I have RP, found out as a young teen and now 21 my vision hasn't been much affected other then a few degrees, and night blindness, I also have severe astigmatism, so my acuity suffers. Coming from a small town I don't have the chance to talk with others who share the same eye disease. But this video was helpful.
i have RP and i hate it :( my parents won't let me do anything at night and constantly check up on me. i also hate telling people cause then it feels like i have to depend on others.
@045darkstar yeah I try to avoid telling people, put it off for as long as I can but I end up looking stupid when someone turns the light off :P but they've caught on to me so people are always turning the light off in the corridor at school cos they know I'll get really peeved off. lol
i have rp (diagnosed when i was 1 i think) i havn't got tunnel vision but i am colourblind which is wierd for a girl. i hate going to the cinema too i got abandoned by my mates once cos it were too dark and they forgot about me!! XD ahh good times...
best advice to anyone who has it, is dont be embaressed to tell your mates! they will give u that helping hand when your in a pickle, and thoses handy little genius torches you can fit in your pockets =)
im 22,male,noticed it when i was very young.my mother , anties and uncles and cousins all have it. it defintly is hard, when your in town with your friends its always hard as most clubs are SOO DARK. so constantly double checking if the chick im dancing with IS even a chick haha! or your mates are running around like hoons and you gotta sit it out, our even a game of lazer strike, nt a good look shooting at a pole that you think is another player!theres alot worse things in life so keep positve
i am 20 and last year i was diagnosed with RP, i wish i could get treatmeants or at least get checked by doctors buut the problem is dat i really cant afford it, cus here in AZ they charge a good amount of money for each appointment.
my brother has this
makeupisfun101 1 month ago
me too,, :(
mimi940503 2 months ago
I have RP, found out as a young teen and now 21 my vision hasn't been much affected other then a few degrees, and night blindness, I also have severe astigmatism, so my acuity suffers. Coming from a small town I don't have the chance to talk with others who share the same eye disease. But this video was helpful.
blindasbat509 4 months ago
i have RP and i hate it :( my parents won't let me do anything at night and constantly check up on me. i also hate telling people cause then it feels like i have to depend on others.
045darkstar 4 months ago
@045darkstar yeah I try to avoid telling people, put it off for as long as I can but I end up looking stupid when someone turns the light off :P but they've caught on to me so people are always turning the light off in the corridor at school cos they know I'll get really peeved off. lol
boycey247 3 months ago
i have rp (diagnosed when i was 1 i think) i havn't got tunnel vision but i am colourblind which is wierd for a girl. i hate going to the cinema too i got abandoned by my mates once cos it were too dark and they forgot about me!! XD ahh good times...
boycey247 6 months ago
@boycey247 tell me about it, i love movies, but lost the taste for going to the cinema due to the darkness, haha.
MrPlink0 6 months ago
I have retinitis pigmentosa
I swear
Rehanamjad123 7 months ago
respect
RealDursun 7 months ago
best advice to anyone who has it, is dont be embaressed to tell your mates! they will give u that helping hand when your in a pickle, and thoses handy little genius torches you can fit in your pockets =)
bigpoppa0102 8 months ago
im 22,male,noticed it when i was very young.my mother , anties and uncles and cousins all have it. it defintly is hard, when your in town with your friends its always hard as most clubs are SOO DARK. so constantly double checking if the chick im dancing with IS even a chick haha! or your mates are running around like hoons and you gotta sit it out, our even a game of lazer strike, nt a good look shooting at a pole that you think is another player!theres alot worse things in life so keep positve
bigpoppa0102 8 months ago
my mother have Retinitis Pigmentosa (since 1993), she is blind now.
and we (children) have small sports?
pray for us
missmankind 9 months ago
i am 20 and last year i was diagnosed with RP, i wish i could get treatmeants or at least get checked by doctors buut the problem is dat i really cant afford it, cus here in AZ they charge a good amount of money for each appointment.
smokey6o2 10 months ago
I am 23, was diagnosed when I was 1. I also have Nystagmus and had cataract surgery on both eyes over the summer of 2009. :)
sweetpickles87 1 year ago
All the best buddy,my son also has RP,he is just 11.
jatinp71 1 year ago
Thank you for sharing. Getting one to one with understanding the disease helps me alot. You're an inspiration.
Roopalmer 1 year ago