Vicki's Story Cerebral Palsy

[roz805]

Thanks for sharing this! My daughter needs one of these!

[EasyStand]

@roz805 You are very welcome. Please visit the EasyStand website for information on everything from standing products to funding.

[sljvmtprices]

3. The words we use in language must be taken in context. As was replied, "spastic" is not offensive in this context, it's a fact.

4. Vicki is very confident in who she is. We (yes she gets to talk) about her disability all the time.

5. It was our privilege to do this for EasyStand. If one person sees the benefits of their standers, we were successful.

[sljvmtprices]

After reviewing this video that we did 3 years ago, I'll weigh in on some of the comments.

1. Thank you for all the kind words. Both Vicki and I appreciate it.

2. We were asked to discuss the benefits of the EasyStand. While you may think that Vicki is mortified by discussion of her "bowel program," she is not. It is a fact of life we deal with and discuss often. Trust me, using a stander is better than being in the hospital!

[jimmyjames420666]

I am a Dsp for a home that provides care for individuals with mental and physical disabilities and we use the same exact standers and I'm very familiar with them! and as far as her communication her father and her other family may be used to her way of communication and it makes it easy to decipher what she is communicating.

[Blueyedblondeful]

why do americans use the term "freshman" in high school I wonder? A fresher is a new university student.

[ourfamilycreates]

My son has CP. Please click on my page. I am not asking anyone to buy anything. I just need some support for the gift items that I create in my sons name: "JAYLEN". Again...I don't want to sale anything. It would help me on the emotional side just by each of you stopping by our page. Thank You.

[LuvRK9s]

Loove how Vicki shows her excitement and interest when dad mentions riding therapy and her dog :) Our family is much the same, with my 12 year old daughter being very attached to the family pets...and loves bowling too :) Hugs Vicki!

[HeatherFaeClax]

shes an amazing girl!, i came accross this video and after watching i'd love to do all i can to help people like Vicki <3 her dad is also an amazing support!!

[amberthomas1986]

Thank you for sharing this, my daughter is almost 2 years old and is a spastic quad as well. We have been researching mobility options for her and it is exciting to see examples like your daughter! Emily has two brothers to keep her entertained, but we want her to feel as independent as possible. We are currently saving for her fist chair, and once her core strength improves somwhat through therapy we will be looking into a stander.

It gives us alot of hope to see how happy your daughter is :)

[LadyRochii]

i was in them stand ups when i was 7 until 11 i didnt like it alot of pain but its good you so supportive to your daugther :)

[destroyer8604]

People like Vicki are the true heros of the world. I have so much respect for them. They take their disabilities and make the best of them.  Thank you Vicki and her dad for being so supportive of one another.

[rayblack2004]

@destroyer8604 what makes her a hero exactly?

[ChloeAprilWood95]

@rayblack2004 A lot more things than what would make you a hero.

[Tasha19880212]

i have cp and been doing good

[girlstorm09]

is she mentally chellenged too or no? jw i know some people with CP can be mentally chellenged too.

[KrysKrys10]

My cousin has a mild case of cerebal palsy. He can talk and feed himself and everything but he has trouble walking and only trusts him left hand. If he has something in his right hand and you ask him for it, he grabs it with his left hand to give it to you. I really appreciate you sharing Vickie's story with the people who take the time to watch it. Not everyone understands people with disabilities.

[TheHeartofGodsChild]

I feel so bad for Vicki She's very intelligent. And smart.

[GhostWritersDragon]

When a person with CP moves do they have to think hard in order to move their arm or leg when with a healthy person it would just be a split second body/mind transaction??

[1pathseeker]

Viki has a lovely smile & that bowling arm was great. Thank you for sharing with us all this is very important.

[bittybaby95]

the bowling was awesome! way to go Viki!

[booksandtoys]

The bowling was totally awesome!!

[musicgirl999]

what an awesome dad! I think it's awesome he still takes his daughter to do things people w/o CP do unlike a lot of families who have a child with a disability who just hide them from the world almost.

[xoxoJubeeVxoxo]

it is amazing how medical technology can peform such a dramatic change in a persons life

[whataburgerfan1]

She's a much better bowler than I am.

[blueshadowes]

You have done very well to prevent scoliosis. What type of wheeelchair harnesses have you used? My son Tim is also spastic quad CP but he has more use of his arms than your daughter. He can also speak clearly. HIs head and spine lack tone and he is developing scoliosis and kyphosis from slumping forward in his wheelchair. Current therapists do not know what to suggest and say his harness is the correct one, but I do not think it is. He stands for an hour a day in a "rabbit" stander with wheels.

[MsGONZALEZ93]

I have an older brother that too has Cerebral Palsy. But He is not able to stand. He walks on knees. He does a lot of stuff himself. He does write (his name and many other things like what foods he wants...and more)and holds his pointer in his mouth. He has not use of hands. I hold to put a video up soon to show people. I am trying to find out if he is able to buy a home. He keeps asking me and I can't do it on my own. I am told the older he gets the less things are for him. He is 55 yrs old.

[CocolutoBeans]

Vicki is a beautiful young girl! It's great to see how today's technology and care benefits her! God bless you both!

[koolploppy]

bless her, she is really brave

[wizstar617]

Your such a good person!

[toogoodformost]

I think thats really cool. I have CP too and I think having one of those is an excellent. I am also glad that you are involved.

[chadolson76]

Viki is remarkable I to have cp a mild case Vikki shows People including myself that anything is possible and that just because you have a disability Does not mean you cant have fun and enjoy life .WAY TO GO Vikki a well as her Dad Good Job !!!!!!!!!!!

[Macy64CP]

my moms friend's daughter has cerebral palsy, her name is Phoebe, and i always get to babysit her its fun

[willman20008]

i have mild cpon my left side and i reckon she is doing well being able to do all that!

im just wondering how the father knew what she said in that last part

[C0deZombie]

God bless her, and she is amazing that she could attend highschool like that!

[CacogenKitty]

That's great! I'm glad she's been able to have so many people and so many things available to help her. :D

I have very mild CP, and am currently recovering from a heel-cord-lengthening... It's tough!

She's very strong, and I wish her good luck. :)

[h7hannah1995]

my best friend's got cp her name's steph and its very mild. she goes 2 mainstream school with me and i am always looking after her x

[naruto12668]

vicki you are a courageous.

[misskaymay]

i have cp 2

[morningpeace]

she is gorgeous!

i think she is brave

[RobertTheDodger654]

Did Vicki have to wear special lace-up boots when she was younger - and does she still do nowadays?

[RobertTheDodger654]

Ain't she gorgeous, that Vicki?! She sure puts quite a lot of able-bodied girls in the shade.

[adrianeldy8]

I loved see her bowling! My son is 17 months spastic/ataix CP quad. He is working on all of this and it was great to see such a great dad who cares and is involved! By the way interupting for any child is something that should be addressed and corrected. Communication is great and you would correct a tradtional child who interupts. Great job Vicki and Dad!!

[WildkatPublishing]

What he said about the dog is so true! I'm a blind quadriplegic and a lot of people talk to me because of my guide dog. A dog is a great way to break the ice.

[ColeSprouseLover4]

Go Vicki. Your awsome.

[autourlucy]

Those standers kick ass! A friend of mine knows a chef who uses one!

[11679MRT]

Hello from northern Minnesota. Our son, Logan, who is just over 2 has CP. They started him off in a stand fairly early. I love seeing the bowling! It is great that there are options out there for activities like bowling.

[silentobservor]

I'm proud of you, Vicki :)

[JMR83]

I thought spastic was a derogatory word?

[EasyStand]

"Spastic" means stiff and difficult movement caused by permanently contracted muscles.

[JMR83]

Trouble is, in the UK, it is seen as an offensive word. I suppose you need to research "Joey Deacon" and "Blue Peter" for a cleaer idea.

Anyways, CP is sad to see but it is great to see Vicki's determination.

:)

[roboslobin]

Spastic is a word that has been bastardized. It is not at all derogatory when used in the correct way, even in the UK.

[jazzyspazzy01]

@EasyStand

People have used the word and made it derogatory.

Spastic is a classification of CP.

[lajung]

A more "person first" way to say the same thing is to say that the person has spasticity, if you are needing to describe the type of cerebral palsy. See the "Disability is Natural" website by Kathie Snow for a great help with language use and people with disabilities.

[struten82]

It`s a great video, very interesting! I work with a girl who looks a lot like Vicky and this was very good for me to watch!

Love to you people from a girl in Sweden!

[pianistgreen]

her dad is so nice

[SzChristie]

This girl, Vicki is so cute. I have a friend with CP, Vicki's movements as same as hers. My friend's face is similar to her, and her voice, too. She can't coordinate her movements and can't speak, but I always understand what she wants. She is very warmhearted, I call her, 'Angel'. She can talks to people with a manager calculator, and she told me that I am her 'Angel', too. She got married last year, her husband is healthy. I like the similar people very much. Vicki is an 'Angel', too. ;)

[scooby986589]

i have cp too i have mild cp and axpraxia

[Madhadderall]

whoa, at 6:40 she says something and her dad translates but i couldn't even make out 1 single sound.

has he memorized her sounds to communicate with her. i'm confused.

[EasyStand]

Listen closer, she says "my teachers having a baby" remove the consonants and you can make it out easily.

[Madhadderall]

yea, i can see that.

But It must be a mix of that he knows what matters to her and he's choosing from a small list of options plus he knows what her sounds are.

[ChloeAprilWood95]

@Madhadderall My sister has cp and I can see how hard it is to understand her or Vicki but when you have lived with the person all your life talking to her like this would become second nature, none of my friends can understand how I can have a conversation with her either so i have to translate :)

[Gimber9]

Hi, My daughter is 6 years old and is a spastic diplegic. Thanks so much for reminding me of the importance of standing. I was wondering if you have tried using a communication builder? We use one with my daughter with some success. We are looking into getting one that is controlled by eye gaze.

[ashbcc10]

hey! my name is ashley, im 18yrs old. and if you want to get tychnical then i have spastic hempledgic cerebral pasly. but super mild. i only have a slight limp and a lil limitations in my left hand.

also. people that commentmented stating that they had cp please add me as a friend

because i am the only person i know with mild cp. thatd be great if you guys could add me. =]

[shadow6190]

great dad

[cpskadatisberg]

A female friend of mine ,she have Cerebral and she is very cute,kind and warmhearted.

Her name is Nathalie and she´s in my age :-)

[sdavies45]

I have Cerebral Palsy also, very mildly though, it doesn't really affect me that much at all, but sometimes I'm worse than at other times so if you caught me on an off day (mostly when I'm tired) I would appear very stiff.

[PiMPeTTExx10]

i have CP too, but its mild and i just walk funny a little. Its hard when ppl stare at me sometimes, but im in love with life nonetheless

[naibastie]

God bless your wonderful daughter!!!! Im a kid with Cerebral Palsy from Romania,I would love to meet her!!

[WWRCvirginiagov]

The Easy Stand is a great therapeutic modility. Thanks for uploading this great video!

[PGMEagle]

I know somebody with CP He walks but he needs help going down steps. Great guy :-)

[AmericanIdolQueen84]

She is beautiful, and so is her dog. I'll talk to anyone :) I can tell she's your pride and joy, you are such an amazing father to her.

[hero22zippy]

i have Cerebral Palsy

[ILuvZacEfron18]

so do i, mine is mild but i have trouble walkin without my braces & walker.

[hpunksterm]

Beautiful family, and im glad that despite limitations life has. that Vicki is really making something out of her limitations. I guess you can say she makes Lemons out of Lemonade. KUDOS FOR VICTORIA!

[FetchServiceDogs]

Thank you for sharing Vicki's testimony. We would like to share our testimony too. Check out our channel. Thx

[PGMEagle]

I love dogs there so smart

[spiffyacey]

What a beautiful daughter you have :) God bless you both xx

[langmaa]

he is an awsome dad and she is so cute and is alway smiling...luv ya girl

[dork72002]

I can relate so much, I have a quad CP as well, not quite the extent, but as far as the bowling and the stander:-D

[kirribilli52]

What a great dad.

[chefry828]

This vid makes up for all the endless crap on youtube. Well done Vicki and Dad!

[DragonLordReviews]

AMEN!

[heybofe]

I like when she smiles at 2:41. So cute.

[acheese9]

I think that Vicky is really, really luvky to have such great technology to help her, as well as a dad who clearly cares about her. However, EVERYONE youtubes, and I know that I would be humiliated to have my bodily functions made oublic. She seems, despite motor and speech difficulties, to have normal intelligence. However, her dad only mentioned the topic briefly, and while it was not quite appropriate, was only trying to help make known the benefits. Keep up the action and the smiles!!!!!

[Kane614]

I love your smile Vicki! Wishing you continued progress ;)

[whitterRN]

Sorry... I posted twice. I haven't ever posted before! I thought my computer froze the first time :-)

[whitterRN]

I would like to say that those with CP are more likely to have constipation due to immobility. Constipation not only causes discomfort, but it can cause other problems like an increased blood pressure. I believe Scott was only trying to educate others on the health benefits of the Easy Stand, not to embarrass her. Anyway, you can see that he is very active in her care by letting her bake, horse therapy, skilled companion, etc. What a wonderful story for them to share.

[whitterRN]

I wanted to comment about Scott discussing her "bowel program." People who are in wheelchairs or those who do not ambulate can easily become constipated. This will obviously cause discomfort, and in some cases, an increase in blood pressure. Therefore, it is definitely a health benefit. I believe he was sharing the information to teach others on what an Easy Stand can do for their family members or friends, not to embarrass her. Thank you for sharing your story, Vicki.

[texxwilson1]

I was also surprised to hear Scott mention the bowel program, but i give the guy a break. We all know it happens. Besides, Vicki is blessed to have such a loving dad as Scott. I grew up with a girl who has CP and her dad did nothing to help her.

[Mandyree63]

I do agree with some of the other users, the poor chick must be embarassed, especially if one of her friends finds this.

Vicki, you're an inspiration to many people. Best wishes in high school and beyond

[OzzieKezzie]

Nice effort but you can tell from Vicky's eye movements that she is very embarrassed about her dad talking about her - especially the bowel movements part - the girl has dignity dad!!! LOL

[89wheelz89]

great!

[legphotog]

Vicki, you're beautiful :)

[HoneyBee1967]

Vicki is a beautiful young woman with an engaging smile. Her dad, Scott, is obviously very supportive and devoted to Vicki.

One small point though ... it's a pity that Scott did not confirm in the video that Vicki was OK with the benefits of the EasyStand for her 'bowel program' being made public via YouTube. Most teenagers, with or without a disability, would be mortified at having their dad tell the world about their bowels!

[SuperRach101]

@HoneyBee1967 I agree - Scott seems like a wonderful dad but its a bit uncomfortable watching him speak about her as if shes not there..?