Huntington's Disease: A Sad Truth

[kliemchenb]

All i can say is THANKS!

Have a look at my personal Chorea Huntington Blog .. veitstanz.wordpress(.)com

Thank you so mutch for this Video!!!

Bernhard 41 +-1 repeats

[BerciSSedeN]

Thank you for making this video..

when I saw that little girl it brought tears in my eyes , she is so full of energy.. trying over and over again.. :(( I dont know alot about this diseade but isnt there any brain stimulation therapy or something to prevent it to become worse:(

[bencivengaantoniable]

questo è un video che ti fa solo rabbia i bambini dovrebbero essere immuni da ogni malattia mia mamma è morta di questa malattia ora ce mio fratello con i primi sintomi io sono daccordo a non avere figli se sei a rischio è da egoisti sperando in una cura

[dupre240]

i feel ur pain. my mom has it.

[Blondie1973pdb]

My 18 year old daughter has JHD,symtomatic since just 9 years old.I HATE this disease with a passion.

[saigondaisy]

I pray evey day thats it not going to happen to me like it has other members of my family but deep down i know it will sooner or later . I hope its the latter

[ArtsandCook101]

:'(((((((((((((((((((((((((

[JenniferJezze]

im 17yrs old & watching this really made me cry to know that its not going to be long before my father gets this bad.. & the 50% chance i have of having the same fate , its terrifying, its not something id wish on anyone.

[JgHaverty]

I cant imagine any pain like KNOWING your child WILL die. I cant even begin to understand... so sad.

[taittan]

Dam! this really makes me cry!

[Anrheiner111]

I'm so sorry especially for the little children in this video. as a father it brings tears to my eyes - every human being is a miracle of nature, every single one. God bless those little kids and every kid going to die way too soon.

[jena56472]

my mom have this disease. i am hopeing to find a care. i am sad.

[leeannrenae]

the sad truth is that not only children have this. this is just an attempt to shed a tear with no actual awareness.

[anapao89]

if I know I could be at risk of such disease I wouldn't have children. How can people that know that they can pass HD to their children, be able to have them...That's just selfish, to bring a human to this world to such suffering. They can adopt!

[smileformenow82]

@anapao89 well, they might not even know they have HD, and I think you should shut the fuck up.

[anapao89]

@smileformenow82 I'm talking about those that have seen past generations or know that it's in their family's history and I think the majority of those suffering from HD know! since this a disease that's past on. So really there's no excuse not to know, only the fact of being afraid of getting tested. In this case, fear leads to another life being torture. And if you are ok with that, u are very sick!

[smileformenow82]

@anapao89 Ok dude, if I had HD, I wouldn't have kids, but different people have different opinions, so shut the fuck up.

[azerskater]

@anapao89 NO, people with HD usually do not know until they're in their 30's or 40's. So, yes, shut the fuck up. And you're sick for being such a dick to these people. You obviously know nothing about the disease.

[charreis67]

@anapao89 Huntingtons disease has passed in our family from my paternal greatgrandmother, out of her 9 children 6 of them had it, many of the children, grand and greatgrandchildren and a few of their children, but, one thing they all agree, they wouldn't have traded their lives to not have been born. They all laughed and loved and contributed to the world.They Mattered! til the 90's tests weren't done= high suicide rates/ most Dr.'s didn't know bout HD. Its ez 4 u 2 say no kids. 2us tis family.

[charreis67]

@anapao89 although my grandfather and 1 aunt have HD, my uncle, aunt & dad didn't, out of those 3there are 6 kids who have a total of 4 kids who do not have HD, if grandma thiught like you, none of us would be alive. at the time my grands had their family there really was no test or even a name that was placed on the condition that people knew of. I was 18 when I first heard of HD. I think it is truly sad that you, in our place would have opted for no kids= no family=no love. HD or no I love em

[anapao89]

@charreis67 Well.. consider yourself extremely lucky and I'm very happy to hear that! however, it could have been the other way around, maybe your family wouldn't have been so lucky. Anyways, I'm not talking about back then, I'm talking about what we know today! That's kind of wrong that u heard of it the first time at 18, when it has been in your family for generations & it's something that u could have suffer from.

[anapao89]

@charreis67 Personally, I'm adopted, and there are other ways of creating a family instead of bringing a child KNOWING the risk of them suffering their whole lives (I see that as selfish). Again, I'm talking about what we know today! not in the past. I'm aware that in past years diseases where mistreated and /or misdiagnosed, or there was no way of knowing what you could pass to ur children. But NOW there is no excuse, you know what you are exposing ur family to.

[rogy1969]

thank you for posting this

[hannahcraig193]

You really don't know what Huntington's disease is like until you experience it first hand. My boyfriend's father has HD and it breaks my heart everytime I see him. My boyfriend and his sister both have a 50/50 chance of developing it. It scares me more and more everyday. I love my boyfriend and I know that I'll stand by his side through everything he has to go thru when he has to get the testing done. No person deserves to have to live their life this way. I one day hope the find a cure.

[volure1]

No worry people this disease is genetic. If it run in your famliy you will most likely get it if not no worrys. Sad for the people that have it the brain in not regeneratable.

[aponcapone]

My best friend has this to......Im there for him till the end comes........I love him, he's a nice guy....sad film but very good. Never saw people in the later stage of this illness. Now i know how my friends gets later on in his life.....fucked up

[OPOCHKA]

Pity you chose to use dog-crap irritating ... "music" to spoil the video.

Tip : Don't use such music in medical type videos, it is extremely inappropriate.

[pantyflash]

Like, even though their brains are hosed, they're still real people (at least for a limited time until totally demented and/or dead). Until we find a cure, so sad, babes!

[dmgoedde]

This is the year 2010. There is VERY STRONG medical evidence that root cause of the neuron damage (from glutamate excitotoxicity) is halted or slowed by taking advantage of the body's natural endo-cannabinoid system which is naturally used to fight the same issue. Adding cannabinoids via cannabis or synthetics is likely an EFFECTIVE way to ease symptoms on root cause level (not the underlying genetic root cause, but up on level of how neurons are stressed by the disease).

[sasafraz11]

my family has history of huntington disease wich means my twin brother older sister and i have a chance of getting it.

[28hobbit]

this is very sad.

[irinamiaunel]

this was very sad, but also interesting. I hope one day they'll find a cure.

[WeGoWeb101]

My dad passed away from this disease in November.. this is sad, but good job.

[TwittyWhit07]

My neice has Juvenile Huntingtons shes 17 now my beautiful star.....her video is on my page.....love and hugs to all those familys affected xx

[oXxFrankgxXo]

incredibly sad

[winnydapooh0215]

Great job on the video!! I grew up w/ this disease as my grandmother had it when I was young. I remember some of that but I am now watching my aunt go through this and it breaks my heart. We need to raise awareness about this disease and it's devastation.  I have learned in going through this w/ my aunt that doctors aren't trained to deal with this and most of them are clueless when it comes to treatment. Hopefully soon......

[just1moreperson]

Nutleyfan you did such a brilliant job of putting various videos together and adding your own touch to them, I hope you got top marks for this project... you deserved them.

[Hoops355]

my whole dads side of the family have this and i might too! i dont mind it me and my dad make jokes to get ourselves past it.. its the only way :)

[ornella69100]

mon papa aussi avait la maladie de Hungtinton. Courage aux malades et à leurs familles....

[devin69boy]

man i have to do this for my science project too so sad to kno the real facts behind it

[RealizeXRealXLove]

Sorry i'm saying this...

But it feld if i saw my mom There...

I'm very sorry... But This is what it does with The people you love!!

And my Favorite aunt has it to...

And i'm testing myself now...

And i'm scared as hell!!!

But I Love this film!!

[Hoops355]

dont be scared just make wee jokes with her and you guys will be happier thats what me and my dad and granny do :) like if my granny drops her cup if shes having coffee ect we say shes clumsy and laugh about it and she smiles :) so its nice to know shes still doing well

[NeverShoutAshley2011]

my father has the disease....well he died...until it took his life december 14, 2009. he was diganosed only 2 years before his life ended he was 58. hes resting in peace and i plan on geting tested as soon as possible....I will started spreading awareness in my town. on newsstations and radio shows if i have to and planning fundraisers since i may also have it, I want to find a cure for this cruel disease.

[ajpalomino7780]

I dont wish this upon my worst enemy!!! so sad :(

[Gay1Guy]

"My memories of my mum are so beautiful. Thats what I want to keep in my head" 7.12

[TJ054]

Thank you for your video. My husband is 51 yrs old and in the last stage(5) of HD. It is tearing my heart out to see this once very strong, independent individual with a zest for life deteriorate. And yes I cried.

[Lungreos]

Seriously man, you are one of those people you don't know but have an impact on. Thx for showing me man. U so got an A+.

[sherribaby2009]

Thank You! HD has run in my family for generations.  Thanks for helping to bring awareness!

[hostalmartina]

esta muy bonito

[nutleyfan6294]

muchos gracias! no hablo espanol mucho.

[riNasz]

thanks for the video. it inspires me a lot. cherish your life however it is. be strong. blessings to those who is affected with the disease or who cares for the person with HD =)

[domingue90]

thank you so much for doing this video i and my mom might have this disease and you have truly inspired me so thank you very much

[RODOG6181]

great video man

[jandbonner]

Thank you. It is a good summary and nicely done.

Jan

[Kitshark]

No props to me or Steve? Psh.

Can't wait to show it to the class!

[lisa4903]

thank you for doing such a great job on your poject.....I have seen other school projects where they found Hd as being funny.Hats off to you on this,I hope u got an A.....My husband and 6 year old daughter have hd&jhd..again great job!!!

[nutleyfan6294]

Thank you for watching my video. This has been a touching issue on my life seeing what people go through with HD. I am hoping to get out there and start fundraising with some friends. I am sorry about your husband and daughter. You really have to see what HD is like to understand the cruelty this disease brings and thats what I think I captured with this video. Once again, thank you for watching my video.

[swajansen]

Dear Lisa and others,

If you ever heard of Homeopathy and if you really willing to try to find out means, can explore it. I know, most of the countries like yours now forgotten it, still..... just see the link and if decides so, may give a try. As there are no side effects, I hope there is no harm trying. Doze would be CM (single doze) max 3 doze, with a gap of one month each.

link is- homeoint dot org/books3/kentmm/bar-carb dot htm