This video really touched me because i am 14 but i also have epilepsy. I have grand mal seizures. I am very glad that Marielle is not letting this get to her. As long as she has people like you in her life to encourage her to be strong, she will be fine. She is a very beautiful and strong girl. I was diagnosed in August of 2011. My first seizure lasted 15 minutes long. I am praying for her and you also. Stay strong because with people like you we can overcome epilepsy.
I was recently admitted to an epilepsy clinic, I noticed a lot of girls with it have similar features and I was told that some of us have an extra X chromosome? Pretty interesting stuff.
Thank you so much for posting this. I always say "I have Epilepsy but it doesn't have me". When my "staring" (absence) seizures began as a child, I was diagnosed. I was clear for about 15 years, but then it returned with a vengeance. We need to stop the stigma. Bless you and bless Mari. She is strong, and beautiful, just as you are.
I was diagnosed with epilepsy when I was 3 and now I'm 16 and I still have it. I guess i was never meant to drive a car like my big brother does. I hate Epilepsy I always scared im going to have a grand mal because i had tons of them. I had my first grand mal when i was on a field trip. Nobody ever treated me the same, they always were saying stuff about finally my mom said we will homeschool you. I'm glad she made that choice. If feel so much pain. I hate seizures.
Don't hate on me for saying this, but what is epilepsy again? I used to know a friend that had it, but he didn't talk about it, and I just left it at that because I know the pain of telling something that you don't like. For instance, I am completely colorblind and having trouble in school because of it. However, my friend moved last year, and I feel bad not knowing what it is.
Our puter crashed and albiet took me a bit I have us back online again.
Thank you for the supportive comments. Mari is always encouraged when others share their story too~THANK YOU FOR YOUR COURAGE & STRENGTH!!! I am always encouraged to hear from the family members of loved ones fighting this battle too. MUCH LOVE TO ALL OF YOU!
**HUGS****HUGS****HUGS****HUGS**
(For those nasty comments:I feel sorry for you) May God be with you.
U are an amazingly strong and beautiful girl I was diagnosed epileptic last November and I'm beginning to experience both complex and gran mal seizures. I had one today at school and I'm beginning to get them at work. It's very difficult sweety but we got this we are strong. No one knows the pain of epilepsy till you feel it. Keep pushing girlie I'm holding on with you
I have Grand Mal and Petit Mal seizures. I was diagnosed with Epilepsy when I was nine years old. The major types of seizures I have are Myoclonic and Tonic-Clonic seizures. Living with Epilepsy has proven to be a challenge through the years, and, even though I know I'm going to have to take medicine for it for the rest of my life, I still manage to stay positive about it. It's just another challenge that life has given me.
This is a beautiful tribute to your daughter.I wish when I was diagnosed nearly 10 years ago my parents were this supportive.
I don't know if you have it but ask your doctor about Midazolam Buccal (Epistatus) it's an emergency medicine you pump into the mouth or nostrils of the person having the seizure and it can either stop it from happening or make it less severe.It could really help you.It helps me so much.So far its prevented me from having 8 Tonic Clonics this year.
Thank you so much for making and sharing this. She is beautiful. I have had epilepsy from birth, and a LOT of people are very uneducated about it. It is frustrating and brings a lot of emotional pain because not a lot of people understand, but I know we can all get through it since we have each other. Thank you for being a huge part of our fight and I hope for the best for your daughter!
This is a very moving video. I wish you and Marielle all the best in life.
One of the themes of my channel is to shine light on an unusual type of epilepsy called, in the medical literature, "ecstatic" epilepsy, or, sometimes, "Dostoevsky's" epilepsy.
Hi, I just stumbled upon his video and needed to post I don't normaly post but your daughter reminded me of myself. I had headaches and "daydreams" as a pre-teen for 3 years before my first grand mal seizure 7 days after getting my drivers liscense. But your message of having epilepsy but it not having her is something that took me a long time to grasp but since has made my life 10x better. I am successful and have a loving son. Its a tricky condition that can take u down, but stay strong.
Thank you for sharing this video, and your story. My youngest who is a year was diagnosed a eight months ago with complex partial. I am joining the fight to get the word out there as much as I can. We face struggles everyday that most dont' undersatnd. I love it when people say things like " oh but they grow out of it don't they" or "well she'll be ok whatsa medication or two" um.. no she probably wont grow out of it and no its not just medication she has break throughs.. but TY for your video
hi - this really did touch me as i'm 16 and have been having 'grand-mals' for 6 months. the doctors aren't 100% sure it is definately epilepsy because most of the symptons dont match up =\ it ruined my exam results ( well not completely - ) because i was in and out of hospital for 3 months prior to my exams. now im going college and it has made it orse as im 2 months behind on work and it is pretty impossible to catch up
@my9pandas her video was completely my life. i was finally diagnosed at the ripe of age of 35 with juvenile myoclonic epilepy. but my epilepsy started the same as hers. i posted your video on my facebook page. my seizures are same and i keep going and going like the energizer bunny. being older, i guess my attitude is more positive because i have had it a lot longer but i remember that first one. as long as we remain positive we will be positive
her video was completely my life. i was finally diagnosed at the ripe of age of 35 with juvenile myoclonic epilepy. but my epilepsy started the same as hers. i posted your video on my facebook page. my seizures are same and i keep going and going like the energizer bunny. being older, i guess my attitude is more positive because i have had it a lot longer but i remember that first one. as long as we remain positive we will be positive
Your daughter BEAUTIFUL and has the determination to "fight", that's very important I truely believe, because when we give up, we then give up hope. I've watched Kylie have consecutive Grand Mall Seizures (40 minutes) to the point where they didn't know what else to do for her...it's heart breaking and I feel your pain...but keep praying and I will also for a cure, procedure or new medication that doesn't have all the side effects of the present ones. God Bless You All
I love you! You are such a beautiful daughter. Your so strong it amazes me everyday. You don't complain and often try to battle this war on your your own. Please always remember we love you and WILL always be here to care for you, laugh with you and to cry with you. I pray these tougher days will ease soon.
@my9pandas hey if you dont mind but umm i would like to like connect with your daughter because i have epilepsy and i have not talked to anyone with absence seziures like i do its would be nice to talk to someone who is like me not necessarily the same age tho but you can monitor the msgs i dont care i would just see how she feels about the absence seziures
Hi i dont know how life is if u had zto life with epilepsy but i know how it is to live in fear of loosing life i had cancer three times and i thank good and my family and frinds i had i survieved all and could go on in job, fun and love.
You must allways belive in all becoms an happy end if u give up fighting for life and rights u lost in beginning.
My prayers are life will be much gentler to you and yours. Thank you for your comments. These comments give me much encouragement on the tougher days.
Your daughter is beautiful. I am a 15 year old epileptic, and we believe that i have had it my whole life, i just havent gotten diagnosed until last january. i used to have febrile seizures as a baby, and myoclonic/absence seizures growing up. I had my first tonic clonic(grand mal) seizure in december. Ive been on and off meds and they made me start having more tonic clonic seizures. Im not on any meds as of right now, but hopefully will get treatment soon!
Your daughter is beautiful. I am a 15 year old epileptic, and we believe that i have had it my whole life, i just havent gotten diagnosed until last january. i used to have febrile seizures as a baby, and myoclonic/absence seizures growing up. I had my first tonic clonic(grand mal) seizure in december. Ive been on and off meds and they made me start having more tonic clonic seizures. Im not on any meds as of right now, but hopefully will get treatment soon!
THANK YOU FOR YOUR COMMENTS. YOUR A HERO TO ME. PLEASE STAY IN CONTACT I WILL SHARE YOUR STRENGTH WITH MARIELLE, SHE NEEDS TO KNOW SHE IS NOT ALONE TOO. YOUR NOT ALONE!
Thank You for the 4th Of July wishes and Congrats Marielle on 3 years facing & fighting Epilespy! Kylie's seizures have slowed alot now as she gets older, they seem to only strike now with high fevers or illness, her last one was on Dec. 19th, 2009, when she became sick, we are hoping they stay under control so she can be a "Kid" and learn & grow and enjoy life! God Bless you all
I ENJOYED THIS VIDEO ITS SWEET YOU MADE YOUR DAUGHTER THIS VIDEO IM SURE SHE LOVED IT B.C I MYSELF HAVE SEZUIRES AND TRUST ME THERE NOT EASY TO GO THROUGH IT HURTS I CANT WAIT TO GET RID OF EM' IF I EVER DO IVE HAD THEM FOR 9YRS NOW I H8TE THIM I ALWAYS ASK WHY ME?
Hey Panda don't know if u will remember me, but we talked back couple of years ago, I had just undergone an Anterior temporal Lobectomy & just wanted to check up on u and ur daughter 2 c how everything is doing, & the prognosis of everything. I've been praying for u 7 ur daughter 2 overcome what has been put in-front of you. God Bless,
i have epilepsy too. i was 10 but now i'm 16. this is the sweetest thing i have ever seen anyone do! mari , you have a wonderful and loving mother! enjoy her always!!!!! God bless!
i just want to say thank you for that i know how ye feel have epilepsy 12 to 13 years so im decided to do a documentry on it and you gave me the perfect song for it so thabks
this video is so depressing. i have epilespy and its not this depressing. we played this song at my friends funeral. we buried him on his 18th... that's depressing.
@amy1596 i was 10 when i had my first one and was diagnosed. just remember that we're no different than anyone else, but we have, what i like to call a gift from God, that we can tell others about how He works in us and gives us life each day. so the next time you're scared amy just pray to him and know that there are many others out there, like me, that know what you're going through and that you're not alone. I'll pray for you! :) lol
i have epilepsy! i was 12 when i had my first grand mal seizure also! i am now 16 and i have had 6 more seizures, i still have yet to be able to get my learners because of it. but i think im lucky to just be living. tell marielle to be strong! life does go on!
my sister has epilepsy. I've realized how hard it is and especially on teens because she is at the age where she would get her license but that's not an option because you have to be 6 months seizure free. God bless all who have epilepsy including my sister. It is not fun and my heart breaks for my sister and for others like her. God bless all of you.
May God be with Tommie.... This is especially hard on Teens I believe when it comes to dealing with social life. TOMMIE is fortunate to HAVE A FRIEND LIKE YOU. Trust ME being a real friend to Tommie may mean you have to deal with ignorant people...BUT BEING THERE FOR TOMMIE Will GIVE YOU BOTH MORE RICHES THAN all the money around. May God bless you Michaela
When I was a kid, I would daydream and fall out, waking up, losing time, not knowing ppl around me at times, Auras, I had my first GM Seizure at 13, I have fought depression and everything else, Today I accept, I'm on medicine, and do good. I also talk to others.
I have added this to my facebook. I had a daughter with Epilepsy and started Angels for epilepsy. The cause.. Thank yu for being you and your mom for the great video
Sorry I haven't answered your message been very busy lately. You keep on doing what you are doing.. You are a blessing and My family loves yours..Stay strong and when you can't be you let the ones that love you be your strength.. Thank you for you support.
THANK YOU FOR SHARING THE more people who battle this share their stories I believe the better chance at changes and cures for all those that suffer seizures. Perhaps even for THOSE with incureable Dx's like LKS, AND MTLE,AND JME we can find cures.........
Lovely video, she looks like a princess who will not be beat! After meningitis, my absence epilepsy started in 1994 and affected my life, but I won't be beaten either. xxx
YOU WON't BE BEATEN..... YOUR ALREADY A WINNER BECASUE BY SHARING YOUR STORY, YOU help someone newly diagnosed not feeel so alone........ SO YOU MY FRIEND ARE MY HERO!
my neice who is 3 has global developmental disorder but thier not sure to what extent, she has been to great ormond street and they don't know either. Part of what she has means that she has seisures in the night and she has to take medicine to control it. We love our little freya and she's beautiful but I hate the fact that she is 3 and can't walk or talk but we still love her to peices. My family an I(including my other neice) just hope she can make the most out of life. xxx
BE SURE TO WATCH THE MAIN VIDEO ON MY PAGE....... HE HAS LKS, A form that robs the speech too (also with night seizures), his dad knows all to well. THIS BOY STOLE MY HEART.... regardless of his trials he is happy and smiliey and LOVES UNCONDTIONALLY!
My daughter was just diagnosed at the age of 7. Thank you so much for posting. She acts drunk for 4 days and has trouble talking at times. Your Aura pictures make us face it. I know that look. God Bless
I wish you both the best of luck on your journey from a fellow ~E~ Fighter. It doesn't change your daughter, Me, nor anyone else, that suffers from the condition, we all bleed red. We can do everything & anything that we put our faith & mind to. I suffered from Mesial Temporal Sclerosis (MTS) of the Right temporal lobe & am proud 2 say on May 30th of this yr I'll be celebrating 1 yr anniversary since my surgery date & seizure free. Keep Smiling, and living life 2 the fullest. Mom your a HERO
i linked this from 'Daves Story' about epilepsy which was my story that epilepsy scotland put up. i just wanted to say ive been thru a lot having had epilepsy for more than 2/3 of my life and if any of u ever wanted 2 ask anything or chat feel free 2 give me a shout. i find that by talking 2 ppl it can help and sometimes its talking to people with the condition that can help the most as they may not understand exactly but they have some kind of understanding of what a person is going thru - Dave
This is one of the most beautiful videos I've ever seen. THANK YOU!
I have temporal lobe epilepsy from an auto accident back in 1996. I'm 38 now and it was hard enough going through this as an adult. I can't imagine how difficult it must be for the children. I'm fortunate enough to have had surgery in 2007. (Well, 3 surgeries. The first resection didn't work, second surgery was to put the eeg strips on my brain and then another resection.) Still, no confirmed seizures since June 2008!
But I'm still going strong, I just had to drop out of school because I had them so frequently, that they were afraid I'll have one and i'll hurt somebody. They saw me as a liabilty, now I'm being homeschooled. So it's all good.
I have Epilepsy as well, I''ve had it for about 10 years and the doctors are just now trying to do something about it. I had an accident on a school slide and I caused some 'brain matter to disloge'. Now they say I have a cystic tumor and I'm only 17... They can't seem to decide if I should get it removed or not....
I have epilepsy as well and have now for almost 4 years, because of a brain tumor that I had removed back in July of 2005. I understand what Mari is going through and she is a very adorable young woman.
Its all a part of the journey. She is a trooper. I am so rpoud of her everyday. Breaks my heart everyday too though to see how this affects hers daily life.
i have epilepsy and i had it since i was 13 im 30 now well i thought i would never be writing this . i thought i would be seizure free one day please pray for me i need it. i loved the video very encouraging. and strong.
Thanks what you just said means a lot to me. Thanks I do have an email if your daughter would like to email me or ask me anything. If your daughter would like my email just ask or sent me a inbox on youtube and I will give it to you.
Your daughter is absolutely gorgeous! Let's stay encouraged and stay positive. My son was diagnosed four years ago. I know how it feels. We have to be there for each other. Your video is so beautiful. Thanks so much for sharing. God bless you and you have my prayers.
Thank you. The only sadness was from the start. We seek hope which will give us happiness. Hope comes by wonderful people lovingly caring for Marielle.....thank you fr giving us hope!
Wow, what a sad story, gave me a lump in my throat. A beautiful young lady indeed with a very caring family. All my best to you Marielle and also to the rest of your family. Great video mom. Stay tough kiddo.
Peace to you all~~~Rod
Thank you very much Peg for sharing this awesome video.
Rod, Its a story with a sad start, but will have a happy ending. Marielle brings joy to our everyday. Each time these seizures take her from us, we wait for her smile to return. Sometimes she does not know even I, her own mom, but MARI always maintains that smile to share with the world.
Marielle loves the world. Her spirit is gentle and kind. Mari is very shy, but never misses an opportunity to share with one another a glimpse of the world even if only to look into their eyes and smile her gentle smile.
Ryn...Thank you so much for the letter. Massy has such unbelieveable talent, and such a kind heart also. I thank him for making that video, for it lead me to this beautiful child with eyes that twinkle and the face of an angel! Her beautiful name fits her well...stay strong sweetheart, don't ever let that beautiful smile become a frown. Know that you are in my prayers. Peg
I agree Massy has a gentle and kind heart just as yourself. I am without words when speaking of the video he made for Marielle. I know this, Marielle has captured the hearts of many and with that she gains strength to fight her fight against epilepsy. For that I as her mom am indebted to all that love her so.♥
Marielie is just such a pretty young lady. Hopefully modern technologies will find a cure for her health issue, and she will be able to have a normal life. In the mean time know that you are in my thoughts and prayers.
Marielle's name means "Beautiful." When I named her I thought oh how beautiful she would be...only to find that beauty would be far deeper than I could possibly understand at that time. She has taught so many of us so much... she is truly wonderful. God has blessed us with a wonderful gift with her. Thank you for your kind words.
Such a beautiful young lady WHY???why?? does it happen to your own loved ones who never did anything wrong stay strong. I'm reminded of when I had my first stroke I was call a
Your right YOU ARE A SURVIVOR! A courageous battle it must be to overcome the obstacles from having a stroke. Than you for sharing...
I used to ask WHY???? Now I just ask WHAT??? What can I do to help others? What will come of her life? What will I ever do if this takes her life from us?
Hang in there kid...I get deep temporal lobe partial seizures, and they're really nerve wracking sometimes, like when I forgot what an airplane was when I saw one overhead, or feeling like I'm trapped in a time loop like in "Groundhog Day". Also the muscle spasms that twitch and shake on and off all day long and I worry it'll spread. I'm on 4 medications, and my friend is on 8 plus 2 surgeries, so I know what you are going through there...good luck with school and stay safe!
Great Video. I wanted to say thanks for sharing that. Also I know what it is like having seizures. I had them since age 3. Just in May had the brain surgery. So far no seizures and hopefully stays that way. Goodluck with what you decide in life.
I am at the mo in tears, sobbing, it breaks my heart to see kids suffering from something so frightening, suppose because of understanding, I spent my years so afraid, nobody believed me. I had a gran mal seizure at 19, it was then discovered some time after that I had been haviing complex partial seizures since I was a toddler. If there was anyway hunny that I could wrap my arms around u, resure u, comfort u, protect u, make u laugh I would precious. God Bless baby. Kelli x x x
Thank you so much for such encouraging words. I know so many that we not believed, and parents of children that also were not believed. My life goal is Epilepsy Awareness. We have no family history, no reason to think this was what was wrong. As my friend once said "Some Dr.s are Rock Stars". We followed the Rock Stars advice. Until the first Grand Mal. But oh how she suffered until then...sadly.
I just wanted to say thank you for sharing your video. I do not have epilepsy, but my best friend and her daughter does and I am becoming more aware of epilepsy through her.
Just wanted to say hi, its Richard and Richie from NY, or thunderroad22, didnt hear back from you , you are in our prayers, beautiful video of a beautiful girl, thanks for sharing, i posted a vid response of some vid of my little trooper, may God shine down on all our children, and give us continued strength...
When I hear how it profoundly effects those that we love that is the reality that hurts; reality, I try to forget. I never want to be a burden; causing them pain through my pain.
Part of love is to share suffering, and that is the hardest part!
Thats beautiful, thank you for sharing with everyone. I hate seeing my daughter with that "lifeless" look too. I would give anything for my daughter to never have another seizure or suffer from side effects of the medications that are supposed to be helping her.
Her whole life is ahead of her. She teaches me so much of my own willpower. If I had an ounce of the TRUE strength she has. I could truly overcome any of my petty problems. As my problems are petty compared to hers. Additionally hers are out of her control. Mari you are an inspiration. I hope to achieve the miraculous strength you have. You are nothing short of a miracle of sheer will. I can't wait to see what you do to make this world more beautiful by your presence!
Mari hit her 1 year mark today. One year since that first Grand Mal / GTC. Thankyou to all our friends that have helped us and supported us over the past year. Most of all thank you for being here for Mari....
I just want you to know I watch this video at least once a day ... you are amazing RYN, and Mari is in our prayers everynight ... Your work is inspirational to say the least ...
and you have meant the world to Richie's Dad, whom although is strong, was running low one gas ... thanks for filling ME up ... God bless
As I write this, tears are streaming down my face. The many faces of Epilepsy are so beautiful. I've been connected to Epilepsy for 20 years through my daughter (died from SUDEP August 06) and my granddaughter (diagnosed August 07). Don't ever think that you are not strong, this video proves how strong you are.
Everytime I watch this video, it makes me wish I knew Mari.
Epilepsy is a horrible condition, but one that can be lived with, and your video moves me every time. Pass on hugs and love to Mari & thank you for posting this.
Bravo! This is one of the most beautiful vids I have seen! My husband has grand-mal's just about everyday, it's very difficult...this video is inspiring, Thank you...and take care
Dear Ryn, Thank you for promoting the well being of Epilepsy victims. I pray & hope that your beautiful bright star, your daughter, Mari, is holding on strong and over coming health problems.
With great loving mother like you, I'm sure, Mari, will remain as shinning bright star as she always have been.
Thanks to compassionate caring people like you, FINALLY, I learned to admit, accept, cope & live with my epilepsy.
Dear Ryn, Thank you for promoting the well being of Epilepsy victims. I pray & hope that your beautiful bright star, your daughter, Mali, is holding on strong and over coming health problems.
With great loving mother like you, I'm sure, Mali, will remain as shinning bright star as she always have been.
Thanks to compassionate caring people like you, FINALLY, I learned to admit, accept, cope & live with my epilepsy.
i know exactly how it is and it is tough to be trong but i tell everyone to be i have had every seiure there is to have and i know how it is but i recntly had sergery and so far it has worked but i would ave every seizure in the world everyday if it would help her and others who have them!!
Dear Ryn, I watched Mari's beautiful happy smiling video. I'm simply in tears watching your beautiful daughter, happily smiling & wondering why children have to suffer with this menace. It had to be a nightmare for parents to go through. But, with caring compassionate loving family Mari is endowed with, I'm sure Mari knows, she is loved & cared for by the best caring family in the world. I hope Mari over comes this misery & outgrow her epilepsy, as many children do. Wishing you all the best.
This video really touched me because i am 14 but i also have epilepsy. I have grand mal seizures. I am very glad that Marielle is not letting this get to her. As long as she has people like you in her life to encourage her to be strong, she will be fine. She is a very beautiful and strong girl. I was diagnosed in August of 2011. My first seizure lasted 15 minutes long. I am praying for her and you also. Stay strong because with people like you we can overcome epilepsy.
HisPrincess2016 2 weeks ago
my 1 year old son is being tested with it and this video has made me feel mutch better
kimmymummy1 3 months ago
Awesome!
TheEpileptic1 3 months ago
I was recently admitted to an epilepsy clinic, I noticed a lot of girls with it have similar features and I was told that some of us have an extra X chromosome? Pretty interesting stuff.
Prinnycakes 3 months ago
Thank you everyone for your continued support.
Let's all remember NOVEMBER is Epilepsy awareness month.
Much love,
Karin and Mari
P.S.
essell0903
And tinycupcake35
You TWO are amazing. Thx for sharing your stories. I am looking forward to getting to know the two of you. Remember You're NOT ALONE!
my9pandas 4 months ago
Thank you so much for posting this. I always say "I have Epilepsy but it doesn't have me". When my "staring" (absence) seizures began as a child, I was diagnosed. I was clear for about 15 years, but then it returned with a vengeance. We need to stop the stigma. Bless you and bless Mari. She is strong, and beautiful, just as you are.
essell0903 4 months ago
I was diagnosed with epilepsy when I was 3 and now I'm 16 and I still have it. I guess i was never meant to drive a car like my big brother does. I hate Epilepsy I always scared im going to have a grand mal because i had tons of them. I had my first grand mal when i was on a field trip. Nobody ever treated me the same, they always were saying stuff about finally my mom said we will homeschool you. I'm glad she made that choice. If feel so much pain. I hate seizures.
tinycupcake35 5 months ago
Don't hate on me for saying this, but what is epilepsy again? I used to know a friend that had it, but he didn't talk about it, and I just left it at that because I know the pain of telling something that you don't like. For instance, I am completely colorblind and having trouble in school because of it. However, my friend moved last year, and I feel bad not knowing what it is.
brok3nhop3 5 months ago
Our puter crashed and albiet took me a bit I have us back online again.
Thank you for the supportive comments. Mari is always encouraged when others share their story too~THANK YOU FOR YOUR COURAGE & STRENGTH!!! I am always encouraged to hear from the family members of loved ones fighting this battle too. MUCH LOVE TO ALL OF YOU!
**HUGS****HUGS****HUGS****HUGS**
(For those nasty comments:I feel sorry for you) May God be with you.
my9pandas 5 months ago
U are an amazingly strong and beautiful girl I was diagnosed epileptic last November and I'm beginning to experience both complex and gran mal seizures. I had one today at school and I'm beginning to get them at work. It's very difficult sweety but we got this we are strong. No one knows the pain of epilepsy till you feel it. Keep pushing girlie I'm holding on with you
emotionalrawrrz 5 months ago
BITCH GOT A PENIS!
TheKinetic9 7 months ago
@TheKinetic9 WHO"S GOT A PENIS?
B-B-BITCH GOT A PENIS!!!
Vycknl 7 months ago
I have Grand Mal and Petit Mal seizures. I was diagnosed with Epilepsy when I was nine years old. The major types of seizures I have are Myoclonic and Tonic-Clonic seizures. Living with Epilepsy has proven to be a challenge through the years, and, even though I know I'm going to have to take medicine for it for the rest of my life, I still manage to stay positive about it. It's just another challenge that life has given me.
xXRivanXx 7 months ago
Made me cry. -..- I have Grand Mal also. Touching video. Made me think of myself. :/ I wish I knew her.
TheseBonesLiquify 8 months ago
This is a beautiful tribute to your daughter.I wish when I was diagnosed nearly 10 years ago my parents were this supportive.
I don't know if you have it but ask your doctor about Midazolam Buccal (Epistatus) it's an emergency medicine you pump into the mouth or nostrils of the person having the seizure and it can either stop it from happening or make it less severe.It could really help you.It helps me so much.So far its prevented me from having 8 Tonic Clonics this year.
DirtxInxThexGround 8 months ago
Thank you so much for making and sharing this. She is beautiful. I have had epilepsy from birth, and a LOT of people are very uneducated about it. It is frustrating and brings a lot of emotional pain because not a lot of people understand, but I know we can all get through it since we have each other. Thank you for being a huge part of our fight and I hope for the best for your daughter!
Kimbohurley1 10 months ago
Marielle we are away TOGETHER! Your my inspiration!
I LOVE YOU!!!
LOVE MOM
my9pandas 10 months ago
This is a very moving video. I wish you and Marielle all the best in life.
One of the themes of my channel is to shine light on an unusual type of epilepsy called, in the medical literature, "ecstatic" epilepsy, or, sometimes, "Dostoevsky's" epilepsy.
markdzima 11 months ago
Has your daughter seen this video? I'd have cringed if my mum had put this up.
mdekq007 1 year ago
@mdekq007 YES she IS BRAVE! I made it and SHE ASKED IF WE COULD USE IT TO MAKE A DIFFERENCE TO HELP OTHERS!
PROUD TO BE YOUR MOM MARIELLE! THANKS FOR HELPING OTHERS UNSELFFISHLY
my9pandas 10 months ago
Hi, I just stumbled upon his video and needed to post I don't normaly post but your daughter reminded me of myself. I had headaches and "daydreams" as a pre-teen for 3 years before my first grand mal seizure 7 days after getting my drivers liscense. But your message of having epilepsy but it not having her is something that took me a long time to grasp but since has made my life 10x better. I am successful and have a loving son. Its a tricky condition that can take u down, but stay strong.
angelosarah0424 1 year ago
@angelosarah0424 THANK YOU FOR YOUR COURAGE TO SPEAK UP.....
ITS PEOPLE LIKE YOU THAT KEEP ENCOURAGING HER EVERYDAY!!!
Mucho Gracias
my9pandas 10 months ago
Thank you for sharing this video, and your story. My youngest who is a year was diagnosed a eight months ago with complex partial. I am joining the fight to get the word out there as much as I can. We face struggles everyday that most dont' undersatnd. I love it when people say things like " oh but they grow out of it don't they" or "well she'll be ok whatsa medication or two" um.. no she probably wont grow out of it and no its not just medication she has break throughs.. but TY for your video
RaquelCooperstone 1 year ago
@RaquelCooperstone
THANK YOU FOR YOUR COURAGE TO SPEAK UP..... and share your story!!!
Mucho Gracias
my9pandas 10 months ago
hi - this really did touch me as i'm 16 and have been having 'grand-mals' for 6 months. the doctors aren't 100% sure it is definately epilepsy because most of the symptons dont match up =\ it ruined my exam results ( well not completely - ) because i was in and out of hospital for 3 months prior to my exams. now im going college and it has made it orse as im 2 months behind on work and it is pretty impossible to catch up
animalcrazysineadc 1 year ago 3
@animalcrazysineadc
THANK YOU FOR YOUR COURAGE TO SPEAK UP.....
ITS PEOPLE LIKE YOU THAT KEEP ENCOURAGING HER EVERYDAY!!! KEEP YOUR CHIN UP... your our hero!
Mucho Gracias
my9pandas 10 months ago
@my9pandas her video was completely my life. i was finally diagnosed at the ripe of age of 35 with juvenile myoclonic epilepy. but my epilepsy started the same as hers. i posted your video on my facebook page. my seizures are same and i keep going and going like the energizer bunny. being older, i guess my attitude is more positive because i have had it a lot longer but i remember that first one. as long as we remain positive we will be positive
girlgoalie87 1 year ago 3
@girlgoalie87
WOW amazing story! THANK YOU FOR YOUR COURAGE TO SPEAK UP.....
AS LONG as WE SPEAK UP IT CAN'T STAY IN THE DARKNESS!
ITS PEOPLE LIKE YOU THAT KEEP ENCOURAGING HER EVERYDAY!!!
Mucho Gracias
my9pandas 10 months ago
@girlgoalie87 I was diangnosed with epilepsy oct 21,2006 and im going to be 16 in may. with jme :)
LorenaKittleson 10 months ago
her video was completely my life. i was finally diagnosed at the ripe of age of 35 with juvenile myoclonic epilepy. but my epilepsy started the same as hers. i posted your video on my facebook page. my seizures are same and i keep going and going like the energizer bunny. being older, i guess my attitude is more positive because i have had it a lot longer but i remember that first one. as long as we remain positive we will be positive
girlgoalie87 1 year ago
Your daughter BEAUTIFUL and has the determination to "fight", that's very important I truely believe, because when we give up, we then give up hope. I've watched Kylie have consecutive Grand Mall Seizures (40 minutes) to the point where they didn't know what else to do for her...it's heart breaking and I feel your pain...but keep praying and I will also for a cure, procedure or new medication that doesn't have all the side effects of the present ones. God Bless You All
CountrybyAudrey 1 year ago
My Marielle,
I love you! You are such a beautiful daughter. Your so strong it amazes me everyday. You don't complain and often try to battle this war on your your own. Please always remember we love you and WILL always be here to care for you, laugh with you and to cry with you. I pray these tougher days will ease soon.
Love Mom,
my9pandas 1 year ago 2
dude luckyy epilepsy has me big time
coconutzify 1 year ago
Sorry to hear this... Your a brave soldier in one of lifes hardest wars.
my9pandas 1 year ago
@my9pandas thank you hahaha xD but u have a beautiful daughter xD
coconutzify 1 year ago
@my9pandas hey if you dont mind but umm i would like to like connect with your daughter because i have epilepsy and i have not talked to anyone with absence seziures like i do its would be nice to talk to someone who is like me not necessarily the same age tho but you can monitor the msgs i dont care i would just see how she feels about the absence seziures
coconutzify 1 year ago
@coconutzify
You write and YOU WILL GET A REPLY! THANK YOU FOR YOUR COURAGE TO SPEAK UP.....!
lets GET EPILEPSY OUT OF THE SHADOWS!
my9pandas 10 months ago
I will pray for her..
TheUssr5 1 year ago
THANK YOU FOR PRAYERS! The last couple days have been rough, summer brought a 5 day hosp stay and many scares. So prayers are very welcome.
May life be kind and gentle to you and yours....
my9pandas 1 year ago
Thank you. I appreciate your thoughts and prayers very much.
my9pandas 1 year ago
Hi i dont know how life is if u had zto life with epilepsy but i know how it is to live in fear of loosing life i had cancer three times and i thank good and my family and frinds i had i survieved all and could go on in job, fun and love.
You must allways belive in all becoms an happy end if u give up fighting for life and rights u lost in beginning.
TheDIABLO666333 1 year ago
@TheDIABLO666333
My prayers are life will be much gentler to you and yours. Thank you for your comments. These comments give me much encouragement on the tougher days.
my9pandas 1 year ago
Hi Ryn!
Thank you for this vid
Kiss 3>
TiuDindia 1 year ago
Hi Ryn!
Thank you for this vid
Kiss 3>
TiuDindia 1 year ago
@TiuDindia
MISS YOU TERRIBLY !!!!!!!
my9pandas 1 year ago
@my9pandas
Anche tu carissima: KISS!
TiuDindia 1 year ago
This has been flagged as spam show
Your daughter is beautiful. I am a 15 year old epileptic, and we believe that i have had it my whole life, i just havent gotten diagnosed until last january. i used to have febrile seizures as a baby, and myoclonic/absence seizures growing up. I had my first tonic clonic(grand mal) seizure in december. Ive been on and off meds and they made me start having more tonic clonic seizures. Im not on any meds as of right now, but hopefully will get treatment soon!
EpilepticChick15 1 year ago
Your daughter is beautiful. I am a 15 year old epileptic, and we believe that i have had it my whole life, i just havent gotten diagnosed until last january. i used to have febrile seizures as a baby, and myoclonic/absence seizures growing up. I had my first tonic clonic(grand mal) seizure in december. Ive been on and off meds and they made me start having more tonic clonic seizures. Im not on any meds as of right now, but hopefully will get treatment soon!
EpilepticChick15 1 year ago
@EpilepticChick15
THANK YOU FOR YOUR COMMENTS. YOUR A HERO TO ME. PLEASE STAY IN CONTACT I WILL SHARE YOUR STRENGTH WITH MARIELLE, SHE NEEDS TO KNOW SHE IS NOT ALONE TOO. YOUR NOT ALONE!
TAKE CARE AND KEEP IN TOUCH PLEASE!
OUR PRAYERS AND THOUGHTS ARE WITH YOU. ♥
my9pandas 1 year ago
Thank You for the 4th Of July wishes and Congrats Marielle on 3 years facing & fighting Epilespy! Kylie's seizures have slowed alot now as she gets older, they seem to only strike now with high fevers or illness, her last one was on Dec. 19th, 2009, when she became sick, we are hoping they stay under control so she can be a "Kid" and learn & grow and enjoy life! God Bless you all
CountrybyAudrey 1 year ago
Well done and very touching.
Thanks for posting.
God bless you.
Muuip 1 year ago
May God's blessings watch over Marielle and you
eddiegrey 1 year ago
I ENJOYED THIS VIDEO ITS SWEET YOU MADE YOUR DAUGHTER THIS VIDEO IM SURE SHE LOVED IT B.C I MYSELF HAVE SEZUIRES AND TRUST ME THERE NOT EASY TO GO THROUGH IT HURTS I CANT WAIT TO GET RID OF EM' IF I EVER DO IVE HAD THEM FOR 9YRS NOW I H8TE THIM I ALWAYS ASK WHY ME?
videogurl2224 1 year ago
Hey Panda don't know if u will remember me, but we talked back couple of years ago, I had just undergone an Anterior temporal Lobectomy & just wanted to check up on u and ur daughter 2 c how everything is doing, & the prognosis of everything. I've been praying for u 7 ur daughter 2 overcome what has been put in-front of you. God Bless,
In Him
Jeremy
mccoyjeremy 1 year ago
Your daughter is beautiful.
I am 15 years old & I am epileptic.
I have only been epileptic for about a year now.
Next month, I am having brain surgery to sort my fits out. I am scared but I hope I will get better.
The most supporting person during my epilepsey has been my mum, she is my best friend.
My 2 year old nephew died from a seizure a year ago, & I know he is a angel in the sky. He also keeps me smiling when I feel sad.
I wish you ever single bit of luck.
northbabex 1 year ago
i have epilepsy too. i was 10 but now i'm 16. this is the sweetest thing i have ever seen anyone do! mari , you have a wonderful and loving mother! enjoy her always!!!!! God bless!
whatdoyouknow187 1 year ago
i just want to say thank you for that i know how ye feel have epilepsy 12 to 13 years so im decided to do a documentry on it and you gave me the perfect song for it so thabks
tomskip89 1 year ago
this video is so depressing. i have epilespy and its not this depressing. we played this song at my friends funeral. we buried him on his 18th... that's depressing.
stu806704 1 year ago
I'm 13 and was just diognosed, I am still scared out of my mind and dread another seizure.
amy1596 1 year ago
@amy1596 i was 10 when i had my first one and was diagnosed. just remember that we're no different than anyone else, but we have, what i like to call a gift from God, that we can tell others about how He works in us and gives us life each day. so the next time you're scared amy just pray to him and know that there are many others out there, like me, that know what you're going through and that you're not alone. I'll pray for you! :) lol
whatdoyouknow187 1 year ago
i have epilepsy! i was 12 when i had my first grand mal seizure also! i am now 16 and i have had 6 more seizures, i still have yet to be able to get my learners because of it. but i think im lucky to just be living. tell marielle to be strong! life does go on!
777sexilexi 1 year ago
my sister has epilepsy. I've realized how hard it is and especially on teens because she is at the age where she would get her license but that's not an option because you have to be 6 months seizure free. God bless all who have epilepsy including my sister. It is not fun and my heart breaks for my sister and for others like her. God bless all of you.
NellieMarie223 2 years ago
Thank You my9pandas
birds16ful 2 years ago
My 15 years old friend Tommie Foxworth has Epilepsy. God Bless Tommie & other people who has Epilepsy.
Michaela Schwartz
birds16ful 2 years ago 2
May God be with Tommie.... This is especially hard on Teens I believe when it comes to dealing with social life. TOMMIE is fortunate to HAVE A FRIEND LIKE YOU. Trust ME being a real friend to Tommie may mean you have to deal with ignorant people...BUT BEING THERE FOR TOMMIE Will GIVE YOU BOTH MORE RICHES THAN all the money around. May God bless you Michaela
my9pandas 2 years ago
This has been flagged as spam show
@my9pandas Hi Ryn!
Thank you for this vid
Kiss 3>
Andrea
TiuDindia 1 year ago
I have Partial Seizures, this is a lovely video.
When I was a kid, I would daydream and fall out, waking up, losing time, not knowing ppl around me at times, Auras, I had my first GM Seizure at 13, I have fought depression and everything else, Today I accept, I'm on medicine, and do good. I also talk to others.
Thanks for your video.
crazy7house 2 years ago
I have added this to my facebook. I had a daughter with Epilepsy and started Angels for epilepsy. The cause.. Thank yu for being you and your mom for the great video
frieghtcom 2 years ago
Thank you! Angels for Epilepsy...gotta a LINK YOU WANNA SHARE?
I WILL HELP PROMOTE IT..... ♥
~ Ryn
my9pandas 2 years ago
Sorry I haven't answered your message been very busy lately. You keep on doing what you are doing.. You are a blessing and My family loves yours..Stay strong and when you can't be you let the ones that love you be your strength.. Thank you for you support.
frieghtcom 2 years ago
I have epilepsy and oh I understand how it changes life... and really not in a good way...
Vandalah 2 years ago
YOUR A HERO IN THIS BATTLE!
THANK YOU FOR SHARING THE more people who battle this share their stories I believe the better chance at changes and cures for all those that suffer seizures. Perhaps even for THOSE with incureable Dx's like LKS, AND MTLE,AND JME we can find cures.........
my9pandas 2 years ago
Lovely video, she looks like a princess who will not be beat! After meningitis, my absence epilepsy started in 1994 and affected my life, but I won't be beaten either. xxx
commodoremuseum 2 years ago
YOU WON't BE BEATEN..... YOUR ALREADY A WINNER BECASUE BY SHARING YOUR STORY, YOU help someone newly diagnosed not feeel so alone........ SO YOU MY FRIEND ARE MY HERO!
my9pandas 2 years ago
and I have to say all the best to you and your daughter
greytiger1 2 years ago
THANK YOU!
my9pandas 2 years ago
my neice who is 3 has global developmental disorder but thier not sure to what extent, she has been to great ormond street and they don't know either. Part of what she has means that she has seisures in the night and she has to take medicine to control it. We love our little freya and she's beautiful but I hate the fact that she is 3 and can't walk or talk but we still love her to peices. My family an I(including my other neice) just hope she can make the most out of life. xxx
greytiger1 2 years ago
BE SURE TO WATCH THE MAIN VIDEO ON MY PAGE....... HE HAS LKS, A form that robs the speech too (also with night seizures), his dad knows all to well. THIS BOY STOLE MY HEART.... regardless of his trials he is happy and smiliey and LOVES UNCONDTIONALLY!
my9pandas 2 years ago
My daughter was just diagnosed at the age of 7. Thank you so much for posting. She acts drunk for 4 days and has trouble talking at times. Your Aura pictures make us face it. I know that look. God Bless
sweethippielove 2 years ago
CONTACT ME THRU EMAIL HERE, I WILL SEND MY PRIVATE EMAIL..... I HAVE a few contacts if you would like,
GOD BLESS AND KNOW YOUR NOT ALONE!
my9pandas 2 years ago
my brother died from epilepsy just over 4 years now. :'(
kirky305 2 years ago
Please accept our deepest sympathies for the loss of your brother.
♥ Ryn and Marielle
my9pandas 2 years ago
i love this song so much its so...awesome
rockyluver1212 2 years ago
I wish you both the best of luck on your journey from a fellow ~E~ Fighter. It doesn't change your daughter, Me, nor anyone else, that suffers from the condition, we all bleed red. We can do everything & anything that we put our faith & mind to. I suffered from Mesial Temporal Sclerosis (MTS) of the Right temporal lobe & am proud 2 say on May 30th of this yr I'll be celebrating 1 yr anniversary since my surgery date & seizure free. Keep Smiling, and living life 2 the fullest. Mom your a HERO
mccoyjeremy 2 years ago
i linked this from 'Daves Story' about epilepsy which was my story that epilepsy scotland put up. i just wanted to say ive been thru a lot having had epilepsy for more than 2/3 of my life and if any of u ever wanted 2 ask anything or chat feel free 2 give me a shout. i find that by talking 2 ppl it can help and sometimes its talking to people with the condition that can help the most as they may not understand exactly but they have some kind of understanding of what a person is going thru - Dave
mynameisdave4203 2 years ago
This is one of the most beautiful videos I've ever seen. THANK YOU!
I have temporal lobe epilepsy from an auto accident back in 1996. I'm 38 now and it was hard enough going through this as an adult. I can't imagine how difficult it must be for the children. I'm fortunate enough to have had surgery in 2007. (Well, 3 surgeries. The first resection didn't work, second surgery was to put the eeg strips on my brain and then another resection.) Still, no confirmed seizures since June 2008!
szrgirl 3 years ago
But I'm still going strong, I just had to drop out of school because I had them so frequently, that they were afraid I'll have one and i'll hurt somebody. They saw me as a liabilty, now I'm being homeschooled. So it's all good.
boystalker410 3 years ago
Your a hero for sticking with school. Must be a challenge to homeschool and be 17. I am prud of you!
The world can be cruel to those with ~E~, maybe your expeince with schools can be your answer to helping change this for all those in school.........
Your journey my friend will take you to great heights....I look forward to hearing from you.
my9pandas 3 years ago
I have Epilepsy as well, I''ve had it for about 10 years and the doctors are just now trying to do something about it. I had an accident on a school slide and I caused some 'brain matter to disloge'. Now they say I have a cystic tumor and I'm only 17... They can't seem to decide if I should get it removed or not....
boystalker410 3 years ago
I have epilepsy as well and have now for almost 4 years, because of a brain tumor that I had removed back in July of 2005. I understand what Mari is going through and she is a very adorable young woman.
pix4434 3 years ago
Ryn, It is wonderful to hear that your little ones seizures have moderated. She deserves all the blessings God can provide!
issieb123 3 years ago
Its all a part of the journey. She is a trooper. I am so rpoud of her everyday. Breaks my heart everyday too though to see how this affects hers daily life.
my9pandas 3 years ago
i have epilepsy and i had it since i was 13 im 30 now well i thought i would never be writing this . i thought i would be seizure free one day please pray for me i need it. i loved the video very encouraging. and strong.
thanks christina
muzicloverz 3 years ago
Wow, You have been on the journey for a time. I wish you all the best in life. Marielle is lucky to have people like you in her life.
my9pandas 3 years ago
Hi I'm 14 and I have epilepsy as well. I have had epilepsy since I was a baby. I know how hard it is for your little girl. But all the best,
Chontelle
chontelle01 3 years ago
Thx Chontelle,
Your too are a hero in my eyes. Marielle turns 13 soon....you can email her here anytime.
my9pandas 3 years ago
Thanks what you just said means a lot to me. Thanks I do have an email if your daughter would like to email me or ask me anything. If your daughter would like my email just ask or sent me a inbox on youtube and I will give it to you.
chontelle01 2 years ago
Your daughter is absolutely gorgeous! Let's stay encouraged and stay positive. My son was diagnosed four years ago. I know how it feels. We have to be there for each other. Your video is so beautiful. Thanks so much for sharing. God bless you and you have my prayers.
kennisings 3 years ago 5
Thank you. I hope to learn and share more with you, your right we must stick together...
~Ryn
my9pandas 3 years ago
You're very welcome! Let's keep in touch.
kennisings 3 years ago 2
She is gorgeous! I have pulled through my 6 year battle with epilepsy and now im 6 years seizure free. Its possible. Keep praying.
OneSongGlory8991 3 years ago 2
Congrads for six years of being seizure free.
You must have a great story to share.
Thanks for commenting, these comments always brighten Marielle's day.
my9pandas 3 years ago
God Bless all of you.
SNAXDUO 3 years ago 2
Thank you. Epilepsy needs a voice for everyone. Marielle hopes this will reach some that can see how important it is to give Epilepsy a voice.
my9pandas 3 years ago
This is amazing and beatiful and sad. God Bless all of you.
Pooshhead 3 years ago 6
Thank you. The only sadness was from the start. We seek hope which will give us happiness. Hope comes by wonderful people lovingly caring for Marielle.....thank you fr giving us hope!
my9pandas 3 years ago
Well if prays will give you hope you will that from me. I promise. God Bless Marielle and you.
Pooshhead 3 years ago 2
What an inspiring video... Such a beautiful girl inside and out...
Thank you for sharing my son.
lenora29 3 years ago
Thank you for encouraging Mari...I agree she is beautiful inside and out...♥
my9pandas 3 years ago
Wow, what a sad story, gave me a lump in my throat. A beautiful young lady indeed with a very caring family. All my best to you Marielle and also to the rest of your family. Great video mom. Stay tough kiddo.
Peace to you all~~~Rod
Thank you very much Peg for sharing this awesome video.
yendor61 3 years ago
Rod, Its a story with a sad start, but will have a happy ending. Marielle brings joy to our everyday. Each time these seizures take her from us, we wait for her smile to return. Sometimes she does not know even I, her own mom, but MARI always maintains that smile to share with the world.
my9pandas 3 years ago
Marielle has become a part of my heart.
Thanks for sharing Peggy.
wolfchow3 3 years ago
Thank you for loving Mari so much...♥
my9pandas 3 years ago
What a beautiful girl ... her eyes seem to look INTO us not AT us.
Thank you for sharing your gorgeous daughter with YT and thanks to Peg (pbesaw) for sharing this video with me!
Bflatblues55 3 years ago
Marielle loves the world. Her spirit is gentle and kind. Mari is very shy, but never misses an opportunity to share with one another a glimpse of the world even if only to look into their eyes and smile her gentle smile.
my9pandas 3 years ago
Amen tu dat!!! She get da Epilepsy...not da odda way aroun, lidat. God Bless Yu WIDE Baby!!!!!!!!!!!
"ALOHA Wide!!!!!!!!!!!"
Unko Welda"
Weldaz1 3 years ago
thanks for share peg i love the video and the music
thyzira 3 years ago
Ryn...Thank you so much for the letter. Massy has such unbelieveable talent, and such a kind heart also. I thank him for making that video, for it lead me to this beautiful child with eyes that twinkle and the face of an angel! Her beautiful name fits her well...stay strong sweetheart, don't ever let that beautiful smile become a frown. Know that you are in my prayers. Peg
pbesaw 3 years ago 2
Aww thanks for the share!
cherrialbum 3 years ago
Wow, what an awesome share Peg.
Thanks much.
Peace~~~Rod
yendor61 3 years ago
I agree Massy has a gentle and kind heart just as yourself. I am without words when speaking of the video he made for Marielle. I know this, Marielle has captured the hearts of many and with that she gains strength to fight her fight against epilepsy. For that I as her mom am indebted to all that love her so.♥
my9pandas 3 years ago
Marielie is just such a pretty young lady. Hopefully modern technologies will find a cure for her health issue, and she will be able to have a normal life. In the mean time know that you are in my thoughts and prayers.
-Dallas
dholm13 3 years ago 2
That was very sad yet beautiful. My prayers are with your daughter she is a beautiful girl and I can't imagine having to go through that!
marcialeer 3 years ago 2
Marielle's name means "Beautiful." When I named her I thought oh how beautiful she would be...only to find that beauty would be far deeper than I could possibly understand at that time. She has taught so many of us so much... she is truly wonderful. God has blessed us with a wonderful gift with her. Thank you for your kind words.
my9pandas 3 years ago
Your welcome!
marcialeer 3 years ago 2
Such a beautiful young lady WHY???why?? does it happen to your own loved ones who never did anything wrong stay strong. I'm reminded of when I had my first stroke I was call a
STROKE VICTIM ! NO!! I'm not i'm a
STORKE SURVIVOR
cheerydavie 3 years ago 2
Your right YOU ARE A SURVIVOR! A courageous battle it must be to overcome the obstacles from having a stroke. Than you for sharing...
I used to ask WHY???? Now I just ask WHAT??? What can I do to help others? What will come of her life? What will I ever do if this takes her life from us?
my9pandas 3 years ago
Hang in there kid...I get deep temporal lobe partial seizures, and they're really nerve wracking sometimes, like when I forgot what an airplane was when I saw one overhead, or feeling like I'm trapped in a time loop like in "Groundhog Day". Also the muscle spasms that twitch and shake on and off all day long and I worry it'll spread. I'm on 4 medications, and my friend is on 8 plus 2 surgeries, so I know what you are going through there...good luck with school and stay safe!
numbstateofennui 3 years ago 2
Thank you for encouraging her this way.
Your journey has been trying, but know your never alone.
my9pandas 3 years ago
Marielle,
As you are at school even after a tough night, I watch this and must let you know what I am thinking....
You have fought Epilepsy with such strength and courage you are an inspiration to me. :)
I love you so much, Love Mom
my9pandas 3 years ago
Great Video. I wanted to say thanks for sharing that. Also I know what it is like having seizures. I had them since age 3. Just in May had the brain surgery. So far no seizures and hopefully stays that way. Goodluck with what you decide in life.
ashmstng 3 years ago 3
Thank you for sharing your story. I believe if we share our stories it will make living with this easier and less scary for those that are unaware.
my9pandas 3 years ago
I am at the mo in tears, sobbing, it breaks my heart to see kids suffering from something so frightening, suppose because of understanding, I spent my years so afraid, nobody believed me. I had a gran mal seizure at 19, it was then discovered some time after that I had been haviing complex partial seizures since I was a toddler. If there was anyway hunny that I could wrap my arms around u, resure u, comfort u, protect u, make u laugh I would precious. God Bless baby. Kelli x x x
africankelli 3 years ago 4
Thank you so much for such encouraging words. I know so many that we not believed, and parents of children that also were not believed. My life goal is Epilepsy Awareness. We have no family history, no reason to think this was what was wrong. As my friend once said "Some Dr.s are Rock Stars". We followed the Rock Stars advice. Until the first Grand Mal. But oh how she suffered until then...sadly.
my9pandas 3 years ago
hello.
I just wanted to say thank you for sharing your video. I do not have epilepsy, but my best friend and her daughter does and I am becoming more aware of epilepsy through her.
I hope you and your family have a great day/night
Jess
rainbwlzbn 3 years ago 2
Thank you....your sweet and we are blessed to have you as part of our village
my9pandas 3 years ago
Just wanted to say hi, its Richard and Richie from NY, or thunderroad22, didnt hear back from you , you are in our prayers, beautiful video of a beautiful girl, thanks for sharing, i posted a vid response of some vid of my little trooper, may God shine down on all our children, and give us continued strength...
THUNDERROAD22 3 years ago 2
Thank you for being in my life....
my9pandas 3 years ago
hi im mari, thanks for watching my video. be sure to check out more of my mom's videos. i hope you enjoy!
MariYeng12 3 years ago 2
A Daily reality; its "just life".
When I hear how it profoundly effects those that we love that is the reality that hurts; reality, I try to forget. I never want to be a burden; causing them pain through my pain.
Part of love is to share suffering, and that is the hardest part!
SinnfulSky 3 years ago 2
Thats beautiful, thank you for sharing with everyone. I hate seeing my daughter with that "lifeless" look too. I would give anything for my daughter to never have another seizure or suffer from side effects of the medications that are supposed to be helping her.
Bless you and you beautiful daughter...
Denae1977 3 years ago 2
Her whole life is ahead of her. She teaches me so much of my own willpower. If I had an ounce of the TRUE strength she has. I could truly overcome any of my petty problems. As my problems are petty compared to hers. Additionally hers are out of her control. Mari you are an inspiration. I hope to achieve the miraculous strength you have. You are nothing short of a miracle of sheer will. I can't wait to see what you do to make this world more beautiful by your presence!
Phreedahm 3 years ago
Mari is a stunning girl, and her strength in adjusting to life with epilepsy just deepens her beauty.
wiscsuzski 3 years ago
Mari hit her 1 year mark today. One year since that first Grand Mal / GTC. Thankyou to all our friends that have helped us and supported us over the past year. Most of all thank you for being here for Mari....
my9pandas 3 years ago
I just want you to know I watch this video at least once a day ... you are amazing RYN, and Mari is in our prayers everynight ... Your work is inspirational to say the least ...
and you have meant the world to Richie's Dad, whom although is strong, was running low one gas ... thanks for filling ME up ... God bless
THUNDERROAD22 3 years ago 2
Ita asome
polihprince33 3 years ago 2
Ciao Mari.
Ti voglio bene!
Stai sempre allegra e sappi che ci sono tante persone sparse per il mondo che ti amano e vogliono il tuo bene.
Un abbraccio grande come il cielo...
Andrea
TiuAndria 3 years ago 3
Andrea, We just love you. Your a great friend.
my9pandas 3 years ago
Thank you for all of those that have encouraged my Mari. Your words always brighten up her day. Thank you!
my9pandas 3 years ago
As I write this, tears are streaming down my face. The many faces of Epilepsy are so beautiful. I've been connected to Epilepsy for 20 years through my daughter (died from SUDEP August 06) and my granddaughter (diagnosed August 07). Don't ever think that you are not strong, this video proves how strong you are.
lpeck59 3 years ago 6
you know what you are a great woman i have had em since i was a year and i recently had brain sergery and it helped if you need me im here
jackass2003002 3 years ago 4
omj! ive watched this video before! on photobucket! it partly inspired me to make mine!
jbrock185 3 years ago 5
I JUST SAW THIS COMMENT....... WOW took me a while to get back....sorry.
Hope life is being good to you these days...♥ Ryn
my9pandas 2 years ago
There was a time I had seizures. Maybe this fact stregthens my prayers for Mari.
Care2Drew 3 years ago 5
Drew, Your always inspiring. Thanks for being a great friend!
my9pandas 3 years ago
Please everyone pray for Märi she is not well tonight. Please pray for her.
my9pandas 3 years ago
ChelleAmy Thank you for your wonderful words. Your heart is so pure. Thank you for being apart of our family.
my9pandas 3 years ago
Everytime I watch this video, it makes me wish I knew Mari.
Epilepsy is a horrible condition, but one that can be lived with, and your video moves me every time. Pass on hugs and love to Mari & thank you for posting this.
Chelle x
ChelleAmy 3 years ago 3
faeryjennie
Thank you for your kind and encouraging words.
my9pandas 3 years ago
Bravo! This is one of the most beautiful vids I have seen! My husband has grand-mal's just about everyday, it's very difficult...this video is inspiring, Thank you...and take care
faeryjennie 3 years ago 4
"MySeizures" Gerrie,
Your words are very encouraging, Thank you. Thank you for sharing your courage and strength with Mari. Your heart is amazing...
my9pandas 3 years ago
Dear Ryn, Thank you for promoting the well being of Epilepsy victims. I pray & hope that your beautiful bright star, your daughter, Mari, is holding on strong and over coming health problems.
With great loving mother like you, I'm sure, Mari, will remain as shinning bright star as she always have been.
Thanks to compassionate caring people like you, FINALLY, I learned to admit, accept, cope & live with my epilepsy.
Wishing Mari, your whole family & you,
ALL THE BEST!
MySeizures 3 years ago 4
Dear Ryn, Thank you for promoting the well being of Epilepsy victims. I pray & hope that your beautiful bright star, your daughter, Mali, is holding on strong and over coming health problems.
With great loving mother like you, I'm sure, Mali, will remain as shinning bright star as she always have been.
Thanks to compassionate caring people like you, FINALLY, I learned to admit, accept, cope & live with my epilepsy.
Wishing Mali, your whole family & you,
ALL THE BEST!
MySeizures 3 years ago 4
alancarter9,
Thank you.
my9pandas 3 years ago
i know exactly how it is and it is tough to be trong but i tell everyone to be i have had every seiure there is to have and i know how it is but i recntly had sergery and so far it has worked but i would ave every seizure in the world everyday if it would help her and others who have them!!
jackass2003002 3 years ago 4
a beautiful video ,sensiive ,caring but also defiant
alancarter9 3 years ago 4
Dear Ryn, I watched Mari's beautiful happy smiling video. I'm simply in tears watching your beautiful daughter, happily smiling & wondering why children have to suffer with this menace. It had to be a nightmare for parents to go through. But, with caring compassionate loving family Mari is endowed with, I'm sure Mari knows, she is loved & cared for by the best caring family in the world. I hope Mari over comes this misery & outgrow her epilepsy, as many children do. Wishing you all the best.
MySeizures 3 years ago 3