hey whats up? My name is george and i have dandy walker syndrome and hydrocephalus. I am 16 years old. I actually have an identical twin brother and he was not and does not have either dandy walker syndrome or hydrocephalus. I have had eight brain surgeries in the last year alone and the last two were on my birthday. I almost died in johns hopkins hospital last year. My doctor is Ben Carson. I am doing very very well and so much better. Thanks for the video. i am in dandy kids the movie.
@Bassplayer600 i am very happy to hear that i could hear your story because it's very relieving to know that there is someone out there who knows what it's like, even though i wasn't diagnosed with hydrocephalus, i do understand what it's like to be in the hospital so much at one time, thank you, btw, i will be sure to keep a look out for u on dandy kids
hey whats up? My name is george and i have dandy walker syndrome and hydrocephalus. I am 16 years old. I actually have an identical twin brother and he was not and does not have either dandy walker syndrome or hydrocephalus. I have had eight brain surgeries in the last year alone and the last two were on my birthday. I almost died in johns hopkins hospital last year. My doctor is Ben Carson. I am doing very very well and so much better. Thanks for the video. i am in dandy kids the movie.
Bassplayer600 1 year ago
@Bassplayer600 i am very happy to hear that i could hear your story because it's very relieving to know that there is someone out there who knows what it's like, even though i wasn't diagnosed with hydrocephalus, i do understand what it's like to be in the hospital so much at one time, thank you, btw, i will be sure to keep a look out for u on dandy kids
sikkjuggalo1988 1 year ago
Thank you for your great video. My son also has Dandy Walker and you are an inspiration.
ldlmedia 1 year ago
@ldlmedia you're welcome, it feels so great that their is someone who cares
sikkjuggalo1988 1 year ago
@sikkjuggalo1988 My son has the same condition as yourself. He is 3 years old and is progressing OK.
ldlmedia 1 year ago
@ldlmedia i'm very happy to hear that he's doing ok, if you want, you can keep updated, it's always nice for someone to hear that there not alone
sikkjuggalo1988 1 year ago