Breakthrough Muscular Dystrophy Treatment has been found!!!! Visit my channel to see the featured video of my 6 month progress! I am 22 years old with BMD & am showing more hope than anyone could have possibly imagined!
informative , make sure doctors and medics read this , my son learned the hard way by ignorance of this disease!! He died and im sueing the hospital ! He was 12 , keep on with this ....ignorance is not bliss ..especially when the doc you are speaking to in an emergency debt has no clue what duchenne is and is also too arrogant to not listen to a parent !!
Wow this is a wonderful video with alot of effort put into it i appreciate people taking their time to create such meaningful videos. my brother has DMD and is 17 were considering whether we should go through spinal surgery due to scoliosis or not so please if anyone knows anyone with DMD who has been through it contact me so we could get a taste of what it would be like and make a decision
This is very informative but impossible to read. I hope you'll redo it so the information will be available to those who do wish to become informed. (I realize how repetitive that came across)
My nephew is 21 w Duchennes & this cause is very important to me.
just one thing wrong with this brilliant video, that thing is that you said there brains might not be affected, sometimes they are my friend died of dmd and he had learning difficultys due to dmd but otherwise nice video very informative, maybe to informative for some families who dont wnat their child to know
Thankyou for your comment. Later in the video though, I did state that children with DMD could have a learning disibility or mental retardation, but in most cases the brain is not effected. Sorry to hear about your friend and hope you got most of the information you needed .. this video was made for a grade 9 science project.
@kellyandsherri Thanks for the information! :) Can you ask you something else ? My brother is 12 and he has duchenne muscular dystrophy, if there'll be a cure, will help him ?
sorry to say this. but what has happened to all of the millions of dollars that jerry lewis has raised on behalf of these children? i know that some of the money has gone to the md camps, and to help some of the families with things that they need like wheelchairs, etc. but, after all of these years, and all of the money, why has no one ever found a cure? just lost my nephew to dmd and still don't know why it had to happen.
I feel I must add my comment to your video after the comments from Patroels. My friend have sons aged 5 and 2. Both have DMD. I'm very close to them and all I can think about is a 'cure' can be developed in time. But in the meantime I aim to play a part in making their childhood as great as is possible. I've spent the last hour searching you tube and found some very moving videos. You should be proud of you project. It will help those who maybe were not aware of DMD to understand. Thank You
video, but... Do you know that there are children that can read?... Children with Duchenne's Muscular Dystrophy? Most of what you write is correct but the rest could SCARE THE SHIT OUT OF THEM!
Being the father of a boy suffering from DMD, I know what I'm talking about. Should my son ever ask questions about the disease, I'll answer them honestly. But I'll be damned if I'm going to shove it down his throat with or without him asking.
great vid
Marty88McFly1 2 months ago
you'll only survive till 20s..and very extreme cases get to reach 40s. DMDs are deadly,and sad actually.
shadd255 4 months ago
This has been flagged as spam show
Breakthrough Muscular Dystrophy Treatment has been found!!!! Visit my channel to see the featured video of my 6 month progress! I am 22 years old with BMD & am showing more hope than anyone could have possibly imagined!
DefyingDystrophy 1 year ago
i have duchenne
supergeek388 1 year ago
informative , make sure doctors and medics read this , my son learned the hard way by ignorance of this disease!! He died and im sueing the hospital ! He was 12 , keep on with this ....ignorance is not bliss ..especially when the doc you are speaking to in an emergency debt has no clue what duchenne is and is also too arrogant to not listen to a parent !!
BigLushMollyBabes 2 years ago
This has been flagged as spam show
@BigLushMollyBabes
Fight against Muscular Dystrophy with the help of your personal computer without spending money?
And use the Computer just as before at the same time?
Not possible?
Possible.
Give BOINC or worldcommunitygrid in Youtube search field or any search machine. Installing BOINC is safe and for free.
The Programm runs without problems for years already.
Adamus70 1 year ago
Wow this is a wonderful video with alot of effort put into it i appreciate people taking their time to create such meaningful videos. my brother has DMD and is 17 were considering whether we should go through spinal surgery due to scoliosis or not so please if anyone knows anyone with DMD who has been through it contact me so we could get a taste of what it would be like and make a decision
thank you much
wahidsafi 2 years ago
The small font is hard to read.
Nikki279 3 years ago
This is very informative but impossible to read. I hope you'll redo it so the information will be available to those who do wish to become informed. (I realize how repetitive that came across)
My nephew is 21 w Duchennes & this cause is very important to me.
Godspeed-
MountainViewFor2 3 years ago
just one thing wrong with this brilliant video, that thing is that you said there brains might not be affected, sometimes they are my friend died of dmd and he had learning difficultys due to dmd but otherwise nice video very informative, maybe to informative for some families who dont wnat their child to know
KLT123456 3 years ago
Thankyou for your comment. Later in the video though, I did state that children with DMD could have a learning disibility or mental retardation, but in most cases the brain is not effected. Sorry to hear about your friend and hope you got most of the information you needed .. this video was made for a grade 9 science project.
kellyandsherri 3 years ago
This has been flagged as spam show
@kellyandsherri Thanks for the information! :) Can you ask you something else ? My brother is 12 and he has duchenne muscular dystrophy, if there'll be a cure, will help him ?
530BigBen 3 months ago
man i cant read the letter , they are too small
Rayyan36 3 years ago
sorry to say this. but what has happened to all of the millions of dollars that jerry lewis has raised on behalf of these children? i know that some of the money has gone to the md camps, and to help some of the families with things that they need like wheelchairs, etc. but, after all of these years, and all of the money, why has no one ever found a cure? just lost my nephew to dmd and still don't know why it had to happen.
jade0425 3 years ago
This is a really great video.. i'm currently doing a project on muscular dystorophy too. Could you tell me where you got your information? Thanks.
CarlynnR 4 years ago
I feel I must add my comment to your video after the comments from Patroels. My friend have sons aged 5 and 2. Both have DMD. I'm very close to them and all I can think about is a 'cure' can be developed in time. But in the meantime I aim to play a part in making their childhood as great as is possible. I've spent the last hour searching you tube and found some very moving videos. You should be proud of you project. It will help those who maybe were not aware of DMD to understand. Thank You
littleporky 4 years ago
thank you for the comment .. : ) hope your sons do eventually get better and they find a cure.
kellyandsherri 4 years ago
It's good that you made and posted this
video, but... Do you know that there are children that can read?... Children with Duchenne's Muscular Dystrophy? Most of what you write is correct but the rest could SCARE THE SHIT OUT OF THEM!
Being the father of a boy suffering from DMD, I know what I'm talking about. Should my son ever ask questions about the disease, I'll answer them honestly. But I'll be damned if I'm going to shove it down his throat with or without him asking.
Get the picture?
Patroels 4 years ago
I understand xx and god speed xx
BigLushMollyBabes 2 years ago