My mother has been diagnosed with Crohn's for over 30 years. I can see how it affects her and the life she has with it. It's always a battle. And it's very sad because she is allergic to Remicade too so not many other medications work well. We can all get through this together. :)
Has she ever tried AMP(Aloe Mucilagionus Pollysaccarides)?
I had life changing success with Serovera AMP after 21 years of Crohn's.I had 9 operations,used Steroids,Azathioprine,6mp etc but never had one day of remission.
Heyy i also have Crohns Disease And i am going to do a Q and A vid, so if Anyone would like to know go ahead and ask! Check out my channel i only have one vid so it should be easy, or u can go to /watch?v=8Vvsm9yt_Sw please check it out!! <3
I was just diagnosed with Crohn's a couple of days ago. I'm 20. This past month's been really hard, and now I have to use trial and error to find out what is okay to eat, and what will just cause a flare-up. Thanks for putting up this video. You are a real fighter.
Thank You for your inspirational story and I pray for you and your family, now more then ever because you gave my Mom hope, strength, and most importantly to come closer to God, Thank You Once Again and I hope you respond, it would mean sooo much to me
Really powerful, My mom watched your videos all the time, she showed this one to me and I immediately broke down in tears, I lost her two days ago, well I guess three days ago, anyway I really would love to use that version of Nick's song in my moms memorial service, Its gonna be hard but I have to trust in the Lord Jesus with all my heart and reassure myself day by day that he is up there with her watching down from heavens glorious skies.
@monkeypoo765 hey man Idk who you think you are, but my mom just passed away from it, I thank God for giving me every moment I had with her, maybe you should think twice before you write stuff like that
God girl, you are truly brave and humble. I'm currently studying to become a nurse and your story has nurtured my love towards patients with Crohn's. God bless you!!!
L was diagnosed with Crohns when I was 13. Had a resection at age 15. Now I am 46. I have had only brief hospitalizations since that resection. I hope that you will be okay. So glad your friends could be there for you. You must be one special kid.
I have crohn's and colitis. I aslo have an ileostomy. I've had TPN, pic lines, tube feeds, and much more. I got it when I was six, and I'm now seventeen. If you ever want to talk to somebody, and make a new friend.. message me, I would be more then glad (:
And you're so strong! Keep your head up and hang in there. I hope everything goes well for you from here on out!
The worse part of all this is that these thing can be prevented. Eating healthy is the key to living a sick free life. God created nature to provide us with EVERYTHING we need even when doctors say there is no cure there always is not only thru a miracle of God but also thru nature. God bless you.! :) stay strong.
My brother has crohns and my dad has both ulcerative colitis and crohns. I'm scared to get it, now that I have a much greater chance. Your video inspired me so much. I'm gonna continue, loving each day without crohns. I know that if and when I do get it, I will want to come back to this time right now, but I won't be able to. You seem so brave and I hated drinking the barium sulfur chalk milk thing. It was the worst. I know that since you can go through it, I can too.I'll be brave just like you.
I've had crohn's since i was 16 (i am 44 now) and had similar experience-a few weeks after my resection i got new symptoms.
What has helped me the most is modifying my eating habits: try seacrhing the internet on SCD, Elaine Gottschall's diet that cured her daughter. I have been able to get off of all my meds as long as i stay on the diet.
I need help I was just diagnosed with chrons this summer and I'm inexperienced and scared I've been to the hospital twice already I'm barely 16 I don't know how to handle this which causes me stress which causes a flare up wat do I do ? Never once have I thought I would ever be a person as sick as I am :(
@TheresaSmarts Keep your head up! I know how hard it is. The first couple months are always the hardest. Crohn's is SO different for everyone. I know when I was first diagnosed I would look at other people with crohn's and wonder why I was SO much sicker than them. Being young and being sick is really hard, but just stay focused on the good things in life. Even if it's the little things. It will help you get through the toughest times. I'm here if you need to talk!
had Crohn's for a year and 2 months was in the hospital for about 4 weeks... but got much better sense i've been on remnicade.. im 15 and it sucks but wat hell lets fuck it up lol
Stay with the fight sweetheart, I've had the disease for over 20 years, 3 resections. So I understand how ya feel. Watch your diet, watch your stress levels, share your problems.......pray....and give thanks that you're alive. GOOD LUCK !!!
@mickeytuf You are amazing! The Lord is the reason I am where I am today. I am just taking it a day at a time. God bless you! Hope you are doing well xoxo
I don't know anything about this disease but i just watchd a video from CannabisCureTV, where they talk about their life with this disease and how cannabis tottaly have changed their life to normal. Take a look at this video:
/watch?v=95DkpJaal2I&feature=channel_video_title
DON'T BE IGNORANT!
Like this so it's easier to see for everyone! :) peace.
@jesusluvsu02 If you are unsure, try find some good facts (which is written by professionals, not douchebag ..) on this subject and watch videos and documentaries etc. I hope you check this out. If you can't get it legally, try find someone who can be trusted ;)
The prohibition is ridiculous if one makes a tiny amount of research
In 2007 I was diagnosed with Ulcerative Colitis, I went through several surgeries, and last year I found out that the diagnosis was wrong and that my troubles weren't over and that I have Crohn's. I have managed to get my weight up to 150 and am now in great shape! Hang in there, keep powering through this illness and I hope you have a wonderful life :)
@fenderfanatic01 WOW! Don't ever lose that fight in you. You are awesome. I'm praying and hoping that someday we find a cure so that we won't have to go through pain like this anymore! Blessings xoxo
@jesusluvsu02 you are welcome,,,they told me i had chronns once ,,i had a flare up i was severly ill and went through so much in hospital i had a mega colon said it d=couold burst at any minute ,,,
save my life with steriods and anitibiotics intravenously but i was amzed wheni went for one of my scans and blood test months later there wa snp sign of it !!!! prais e the lord i know he will heal you sweety xxx
I've had Crohn's for 2 years no, and Im 15, hang in there! WhenI was diganosed I weigh 50 pounds.. in the 7th grade, I stayed in the hospital for 44 days, and had a bowel resection, now I weigh 102 :) Keep fighting, and maybe one day we'll have a cure :)
I was diagnosed 2009 it's been good till I stopped my meds cause I hate pills and I cry everyday cause I hate this disease and I have to get humira tonight and I'm scared of needles
Thank you for posting!!! I've been so sick for years and this past year I've been at my sickest losing 50 pounds in 4 months and the docs think I have Crohn's w/ Arthritis. You're inspirational!!
@tkd4life2400 Amen! I say it all the time - I wouldn't be where I am today if it weren't for Him! Stay strong and keep trusting in our Father in heaven. He's got you! : )
Let's keep fighting! I was diagnosed three years ago and I was recently hospitalized and got discharged three days days ago. Ugh. It was my 4th hospitalization. Not responding to steroids unfortunately right now. Looking forward to Humira shots in the next few weeks. Everyone good LUCK!
ur so effin strong just keep fighten there will be a cure. remember god is always with you and so is your family and friends. keep fighten you will pull through. your in my heart and prayers so stay strong for all the people who care about you
I am newly diagnosed with Crohn's. I was very touched by your video. I have joined TEAM CHALLENGE through the Crohn's and Colitis Foundation of America and will be training and running a 1/2 marathon in July to raise money for research for a cure. I'm going to everything I can to fight for a cure. Who sings the song in your video? Also, just created a channel and put up my first video. Check it out. My channel is THEMOMMYMEEPA. I'm a Christian too. God really gives me strength.
@TheMommymeepa That is amazing! I am hoping and praying for a cure - but we need more people to actually do something so we can find one! You are awesome! The song is actually by the Jonas Brothers (it was a phase - but still a great song). Gos is good and He provides us with strength when we are weak. 2 Corinthians 12:9-10. <3
I had ulcerative colitis a flare up from stress I went on asacol till bleeding stopped than ate macrobiotics again fish 2 times a week etc and stress out of life and I'm fine
Food is the cure but drs won't tell u this as they make money off u being sick and surgerys. Start reading or ull be sick forevor
Im 11 and have this disease, its my best friend and worst enemy! But it makes me the person i am today! she has guts! ive been in the hospital once for 2 1/2 weeks then in isolation at my house for 2 more weeks. I have to have my blood drawn every 3 months i was diagnosed when i was 8 and before that they thought it was IBS because the hadnt done colenoscopy yet it ended up being so high up in my throat that they had to do and endoscopy to! anyways god bless her! :))
I've got crohn's and yeah it sucks. The lord aint gonna do shit about it tho just so u know. and research the internet for something called "mycobacterium avium subspecies paratuberculosis" MAP in short. type that in together with crohn's disease and boooom your view on crohn's disease will change!!!
@YJDWk I can tell you straight up that without the Lord I would be in a MUCH different place in my life then where I am now. It's by His strength alone that I have made it through all I have. I will go check that out right now. : )
@YJDWk i heard that Ulcerative Colitis and Crohns has a lot to do with Candida. Im doing anti candida diet really helped me. My dignosis is Ulcerative Colitis. I really have had good results here are the improvments; No jont pain, no fatigue, no heart pulpatations and panic attacts ( which i didnt know was UC realated) my weigth is stable as i droped to about 97lb or 95lb i am only 5 foot 1 but i am 34 years old. bloods are normal, White T cells are normal. I dont have bloating or IBS any more.
@YJDWk i heard that Ulcerative Colitis and Crohns has a lot to do with Candida. Im doing anti candida diet really helped me. My dignosis is Ulcerative Colitis. I really have had good results here are the improvments; No jont pain, no fatigue, no heart pulpatations and panic attacts ( which i didnt know was UC realated) my weigth is stable as i droped to about 97lb or 95lb i am only 5 foot 1 but i am 34 years old. bloods are normal, White T cells are normal. I dont have bloating or IBS any more
@YJDWk I will look it up. Personally though - without the Lord in my life, I wouldn't be where I am today. He has brought me through SO much. Hope you are doing well.
@skatevideomaniac I'm sure it's hard seeing someone you love battle something like Crohn's. It's so great he has people like you to be there for him and support him : ) I do believe a cure will be found! The day can't come soon enough.
@FreshPotProductions You aren't alone, my friend. Never give up! I know how hard it is. I was diagnosed when I was 13 and the battle was a constant one. Meds were not at all on my side and because of that I spent a lot of time in the hospital. I have become SO much stronger through everything I have been though, as I'm sure you have, and it has gotten easier. Just keep your eyes on the light at the end of the tunnel. I'm always here if you need to talk : )
Wow you are so strong even with everything that has happened to you, the Lord is definitely shining down on you. I have crohn's and seeing your videos helps, knowing that I am not the only one going through this disease quietly, only for a cure and then nobody would have to know about it ever. I belive that everything happens in you life for a reason in accordance with the Lord, now what is the reason for all of us that share in this. God bless, you will be in my prayers.
@slip180 Thank you so much. I am so blessed to be able to share my story in hopes that it may bless even one person. We aren't alone in this fight. Stay strong!
People suffering from ibd and autoimmune disorders, check out 'Dr Raphael Mechoulem' from the hebrew university of Jerusalem he goes into great detail on the Endogenous cannabinoid system,its no big pharma quack crap!! its genuine science,also there is some great info from Dr Bob Melamede an associate professor of biology at the University of Colorado. good medicinal cannabis has immune modulating power to surpass any pharma drugs ,im currently cutting down on 6mp and eating gd Q hash high CBD.
Cont: I now work full time and live on my own. so for all those who have to go thru this stay strong. If any of you younger people want to talk to a person who has been through it all feel free to email me my id love to talk and more then willing to answer questions that you have my email is Perfecthazeleyes@gmail.com
I am 25 years old, I was diagnosed with crohns when i was 12 just two months shy of my first birthday. Over the last 13 years i have been in and out of hospitals... I have had many surgeries My first major one just 11 months after i was diagnosed I had 1/3 of my small removed and 1/2 of my large and was also given an ostomy at that point. Since then i have had over 50 surgeries due to my crohns and have osteo,arthritis and gastroparesis. I am now 25 years old ive been in remission for 3 yrs
@lilbewitchedgirl WOW! You are amazing. I can't imagine being diagnosed that young and going through all that. I am so glad to hear you have been in remission for three years now. I pray that continues and you keep feeling well!
im 13 years old and i have chrons too i got diagnosed in april almost a year since i have it im fighting through like everyone else this video what i just say gave me more strength and power to fight through
@kevkev244 You have no idea how much that means to me. I was diagnosed when I was 13 and had been sick for about a year and half before that. Here I am over 4 1/2 years since I was diagnosed still going strong. This battle isn't one you are fighting alone. Never forget that : ) Stay strong!
@mguruj It's amazing how much better you will feel when you start sharing what you have been through with others and using it to help them. I always say you haven't been through what you have for nothing. I think that is wonderful : )
i was diagnosed with crohn's february of 2010 but the symptoms started in july of 2009. i started out at 109 pounds and now i weigh 91 . ive been down to 85 pounds and im still fighting
ive had crohns for almost a year now most of the meds ive been on havent worked to swell for me but i think the worst stuff is the prednisone! the moonface junk sucks and so does crohns but dont worry we all are fighting and trying to stay strong it puts a burden on your family and yourself but the best you can do is stay positive and send bloody pics to your friends! Hehe! btw im 13 good luck!
@freakout122 I was in the same boat as you. Meds didn't work for me. I totally agree with you, prednisone is awful. The side-effects are not fun. Hey, at least when you are on it you gain weight nor the first time as a crohnie. haha. You are not fighting alone. Stay strong, my friend : )
glad to hear things are starting to turn around for you, there is life after crohns and it is a blessing when your in remission, hopefully you will be in remission for a long time, stay strong and good luck for the future!
ive been diagnosed, but i cant go to hospital as i must work. i have about 3 years left to live and its all painful. i have videos about my disease...
@1973mazdarx4coupe This disease is one that can really take it's toll with the pain most of the time being constant, day and night. I can't imagine what it must be like to be told you only have 3 years to live. When I was diagnosed with brain cancer I remember how hard that was for me to handle but how much harder that made me want to fight. You are the only person who is has the ability to fight for you but you aren't alone in that fight. Never ever give up! I'm here if you ever need to talk.
@TheStingRae2010 I start college in the fall and honestly if there is anything I am nervous for, it would be that. Thanks for taking the time to say that, I really needed to hear that right now : ) I'm so glad you are doing well!
@jesusluvsu02 thank you so much for responding, made me sooo happy to know i can help you, even in such a small way. (: You are going to do great in college! Many people are so understanding and take full advantage on what your school can do to help you! the one giant thing i could tell you is to registar with disbility services! they help so much and will do anything they can for you! good luck, it will be the time of your life! don't let anything stop you. You can do it!! (:
I was just diagnosed with Chron's Disease 2 weeks ago, I'm only 15 and i'm not looking forward to what lies in the future but seeing strong people like you gives me hope!
@louveix1 The most important thing is to stay positive. You aren't alone by any stretch even though at times this disease can feel so isolating. Crohn's is different for everyone and sometimes someone might not have to go through half of what someone else does. If you ever need to talk, I'm here : )
i feel for you i was also diagnosed with crohns when i was 15 i went from being 10 and a half stone to 7 stone i had the tube up the nose for 3 months then i lived on food supplements for 3 years before they decided to operate on me, and ill be truthful with you after the opp things got worse and i spent the next year in and out of hospital, but things will get better when you learn to live with it, im now 34 i have a steady job and im also a karate instructor, stay positive and you can beat it,
@jamesbkw1 It was the same way for me. All my symptoms came back only two weeks after my surgery and I was super sick for awhile there after. Meds aren't my friend so I was constantly in the hospital. Only this past summer have things finally started to turn around for me. No reason for it whatsoever, but I look at it as a blessing and I will take it! Crohn's is so different for everyone, but no matter what like you said, staying positive is so important!
You are an amazing person to be so young and go through so much. I found you video 2 days before my scheduled sigmoidoscopy, it gave me hope. I had my test and was diagnosed with ulcerative colitis, thank the lord it was not crohn's, unfortunately, I had/have a severe case. I was diagnosed November 16th, but it could have been found more than a year ago, on November 27th, the day before my 21st birthday, i was rushed to hospital with severe nutrition deficit. I was admitted.
After a long course of TPN (IV nutrition into my heart) and IV prednisone not helping, I was switched to high doses of oral prednisone, this made things worse. Then there was the talk of Remicade treatment, at 3000$ a dose, this was not an option. December 6th I was rushed for emergency surgery, Subtotal Abdominal Colectomy with Ileostomy end. My worst nightmare has come true. I'm 21 years old and have to live with a "bag".
They say it can be reversed, but not for at least a year, and then it's 2 more surgeries, but that means a cure! Every day is a battle, the pain is still severe from the operation, 3 weeks after admission, I’m finally home, though still on high doses of Diladid. My battle now is to gain weight, In 2 years I have lost over 180lbs from this disease. You only live once and life is what you make it. We must take control of our lives before the IBD’s control it!
@mmajor2889 I know we have talked a bit over e-mail, but reading this reminds me once again how strong you are. I know it can feel like the worst thing while you are going through it, but the best feeling is making it through and looking back and remembering all it took to make it through and how much stronger you have become through it all. Hearing that my video gave you hope brings me so much joy. I know how alone it can feel. Stay strong, my friend! I'm always here for you : )
@jesusluvsu02 It's been a month now since the surgery, still experiencing a fair bit of pain related to fluid pockets in the cavity. I'm still on the Hydromorphone but not needing it as much, unfortunately because my disease is not yet cured, I've had another flare and starting to wonder if it's going to end. Back on steroids, orally, and more medication to control nausea/vomiting but I have gained 5lbs - just 15 more to be low normal weight. I still watch this video everyday, there is hope. TY
Please listen! Crohn's Disease is not going to get better taking immune suppressant drugs! All modern medication is is poison and amputations. It is just going to gradually get worse. If you want to get better, take herbs that naturally heal your body. Turmeric or Cat's Claw or both great for inflammation. Colloidal silver and blood electrification both are great at getting rid of bacteria in your body. All this is completely safe unlike modern medication. Do research. Use your brain. Please.
@socceric17 Doing research and always making sure I am doing what's best for me is something I try very hard to do. I think when it comes to Crohn's what works for one person doesn't always work for the next, but I am always open to suggestions and advice. I will look into your recommendations, thanks for taking the time to share them.
i have chrons disease . Was diagnosed at 19 and had 4 years of pain and weight loss . had to be fed through tubes in the end , but trust me it will get better and now i live a very calm life but do very well :) . I found a good tip for me was living through the night and sleeping through the day . it helped me sleep through my morning bowl movements and pain . and u put more weight on eating at night . my thoughts are with u ..... AND I HOPE U ARE FEELING A LOT BETTER NOW XX PEACE
@ohhhREALY I have never thought about that, but that would make a lot of sense. These past few months I have been doing better and I am so thankful. It's been pretty constant since no medications seem to work for me, so it's really nice to have a break, especially since I just had my second brain surgery!
i have chrons too and i have been through everything in this video. i know how it can feel. i was diagnosed when i was nine. i love the fct that you feel cofortable enough with it to put up a video. i can learn something. WE CAN GET THROUGH THIS.
@KaitlynOxfordTV I just hope by me putting this up it can help at least one person in their journey. I know how hard it can be and how alone you can feel at times. I hope you are doing well!
my struggle is getting better I think Iv switched doctors now going to a top rated guy from uic chicago its a long drive to see him and I am redoing all the tests but I believe he will finally give me a diagnosis and thats what I need
@andrewmarcus91 I really hope that it keeps getting easier for you and that they are able to give you a diagnosis. Stay strong and keep fighting. You aren't alone.
Thank you for sharing...May Jesus hold you tightly in his arms as you walk through this life....He has special plans for you...Love, A father of a child with crohns.
@MrScottibee Thank you so much : ) I hope by me sharing my story I am able to encourage others and impact even just one life for Christ. For His plans are greater then my own.
@poersch86 Seeing the positive is probably the MOST important thing. It's what has helped me to get through the roughest times.
You are so right. We will get through : ) I can't wait until the day they find a cure. But until then, I intend to keep encouraging others through the pain.
I'm 13 & was just diagnosed with Crohn's disease last year. I'm glad to know I'm not the only one out there :) I know how you feel it's hard all the hospital visitations and the medicine ... I take pentasa 4 times a day... & soon to be PM6 on top of that you're an inspiration <3
Check out our channel you'd never be able to tell that I have crohn's disease besides the fact that I'm really skinny (I'm the Brunette in our videos.. :)
@SaphireInk You are FOR SURE not alone. It can be really hard especially at first, but finding the good in life is SO important! Keep living life and if you ever need someone to talk to...I'm always here! : )
u have to stay strong and fight for your life. i believe in u! i have colitis. i was in the hospital on Wednesday August 12, 2009 and it was my mom's birthday. i was in the hospital for a week and it was not fun. i have to take medical now and watch what i eat. But u i believe in u, so stay strong and fight for your life. If i did it you can do it and u r very important and a role model to me. u have friends and family that love u. fight for them and try to keep us updated, please.
@oliviarotering I'm never giving up : ) Having crohn's has been one of the hardest things I have dealt with in my life on an ongoing basis, but it has made me so much stronger. Staying positive through it all and also making the most of your good days are both so important. It's good to know we aren't alone in our fights! Stay strong!
My mother has been diagnosed with Crohn's for over 30 years. I can see how it affects her and the life she has with it. It's always a battle. And it's very sad because she is allergic to Remicade too so not many other medications work well. We can all get through this together. :)
lisa0525 2 weeks ago
@lisa0525
Has she ever tried AMP(Aloe Mucilagionus Pollysaccarides)?
I had life changing success with Serovera AMP after 21 years of Crohn's.I had 9 operations,used Steroids,Azathioprine,6mp etc but never had one day of remission.
AMP gave me Complete freedom from Crohn's.
HammerHealedCD 2 weeks ago
@HammerHealedCD No, I do not believe so. I will bring that up to her. Thank you!
lisa0525 2 weeks ago
This has been flagged as spam show
Heyy i also have Crohns Disease And i am going to do a Q and A vid, so if Anyone would like to know go ahead and ask! Check out my channel i only have one vid so it should be easy, or u can go to /watch?v=8Vvsm9yt_Sw please check it out!! <3
Crohnstalk101 1 month ago
I was just diagnosed with Crohn's a couple of days ago. I'm 20. This past month's been really hard, and now I have to use trial and error to find out what is okay to eat, and what will just cause a flare-up. Thanks for putting up this video. You are a real fighter.
Your sister in Christ,
Sarah
VibrantSong 1 month ago
I may sound stupid, but what exactly is crohns disease?
AbbyTumbler13 1 month ago
I always watch your videos every time I'm suffering from this dreaded disease. You're an inspiration to all. Thank you for sharing your story. :)
ZIPPERIT 1 month ago
Thank You for your inspirational story and I pray for you and your family, now more then ever because you gave my Mom hope, strength, and most importantly to come closer to God, Thank You Once Again and I hope you respond, it would mean sooo much to me
dreyes1995 1 month ago
Really powerful, My mom watched your videos all the time, she showed this one to me and I immediately broke down in tears, I lost her two days ago, well I guess three days ago, anyway I really would love to use that version of Nick's song in my moms memorial service, Its gonna be hard but I have to trust in the Lord Jesus with all my heart and reassure myself day by day that he is up there with her watching down from heavens glorious skies.
dreyes1995 1 month ago
@dreyes1995 You are amazing. This comment brought me to tears. I hope you got the message I sent your way!
The Lord has you. Don't ever forget that.
Blessings and love <3
jesusluvsu02 1 month ago
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monkeypoo765 1 month ago
@monkeypoo765 hey man Idk who you think you are, but my mom just passed away from it, I thank God for giving me every moment I had with her, maybe you should think twice before you write stuff like that
dreyes1995 1 month ago
I was diagnosed at 10, im now 22. Im sorry for everything you have to go through
318therealLA 1 month ago
God girl, you are truly brave and humble. I'm currently studying to become a nurse and your story has nurtured my love towards patients with Crohn's. God bless you!!!
krazylia 2 months ago
L was diagnosed with Crohns when I was 13. Had a resection at age 15. Now I am 46. I have had only brief hospitalizations since that resection. I hope that you will be okay. So glad your friends could be there for you. You must be one special kid.
hfaherty 2 months ago
Watch Shona Banda
Also, Run from the Cure
Jtrack7 2 months ago
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Jtrack7 2 months ago
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Jtrack7 2 months ago
I have crohn's and colitis. I aslo have an ileostomy. I've had TPN, pic lines, tube feeds, and much more. I got it when I was six, and I'm now seventeen. If you ever want to talk to somebody, and make a new friend.. message me, I would be more then glad (:
And you're so strong! Keep your head up and hang in there. I hope everything goes well for you from here on out!
kellyxmichelle25 2 months ago
The worse part of all this is that these thing can be prevented. Eating healthy is the key to living a sick free life. God created nature to provide us with EVERYTHING we need even when doctors say there is no cure there always is not only thru a miracle of God but also thru nature. God bless you.! :) stay strong.
topdogtaz218 3 months ago
My brother has crohns and my dad has both ulcerative colitis and crohns. I'm scared to get it, now that I have a much greater chance. Your video inspired me so much. I'm gonna continue, loving each day without crohns. I know that if and when I do get it, I will want to come back to this time right now, but I won't be able to. You seem so brave and I hated drinking the barium sulfur chalk milk thing. It was the worst. I know that since you can go through it, I can too.I'll be brave just like you.
BlueRoseArt 3 months ago
HI there,
I've had crohn's since i was 16 (i am 44 now) and had similar experience-a few weeks after my resection i got new symptoms.
What has helped me the most is modifying my eating habits: try seacrhing the internet on SCD, Elaine Gottschall's diet that cured her daughter. I have been able to get off of all my meds as long as i stay on the diet.
Good luck!
Melster66 4 months ago
You inspire me with my crohn's i hope i will be as brave as you one day xxxxxxxx
charley0401 4 months ago
What was the tube in your nose with that red stuff
MrFrenchblood 4 months ago
@garfield3643 We sure can! Stay strong! xoxo
jesusluvsu02 4 months ago
@ihittheballfar So happy you are doing well : ) God is good!
jesusluvsu02 4 months ago
I need help I was just diagnosed with chrons this summer and I'm inexperienced and scared I've been to the hospital twice already I'm barely 16 I don't know how to handle this which causes me stress which causes a flare up wat do I do ? Never once have I thought I would ever be a person as sick as I am :(
TheresaSmarts 4 months ago
@TheresaSmarts Keep your head up! I know how hard it is. The first couple months are always the hardest. Crohn's is SO different for everyone. I know when I was first diagnosed I would look at other people with crohn's and wonder why I was SO much sicker than them. Being young and being sick is really hard, but just stay focused on the good things in life. Even if it's the little things. It will help you get through the toughest times. I'm here if you need to talk!
jesusluvsu02 4 months ago
had Crohn's for a year and 2 months was in the hospital for about 4 weeks... but got much better sense i've been on remnicade.. im 15 and it sucks but wat hell lets fuck it up lol
JasonsSevens 5 months ago
@JasonsSevens Remicade does miracles for so many people. I am glad to hear you are doing better! Blessing to you! : )
jesusluvsu02 4 months ago
I've had Crohn's since i was 7... I'm 13 now, 6 long, hard and painful years, but i'll keep fighting...
Nothing will stop us fighting...
IlovePeterFCarlisleC 5 months ago
@IlovePeterFCarlisleC Amen to that! : ) Stay strong, my friend!
jesusluvsu02 4 months ago
@jesusluvsu02 :')
IlovePeterFCarlisleC 4 months ago
Stay with the fight sweetheart, I've had the disease for over 20 years, 3 resections. So I understand how ya feel. Watch your diet, watch your stress levels, share your problems.......pray....and give thanks that you're alive. GOOD LUCK !!!
mickeytuf 6 months ago
@mickeytuf You are amazing! The Lord is the reason I am where I am today. I am just taking it a day at a time. God bless you! Hope you are doing well xoxo
jesusluvsu02 4 months ago
10 year survivor, diagnosed at age 9.
egucciar 6 months ago
@egucciar Blessing to you! Stay strong!
jesusluvsu02 4 months ago
10 year survivor. i was diagnosed at age 7
AntwanSixFlags 6 months ago
@AntwanSixFlags Keep fighting! God bless!!
jesusluvsu02 4 months ago
I'm 14 and have had Crohns since I was 7 x It's not fun xx
12dpine 6 months ago
@12dpine It isn't. We just gotta stick together and take it one day at a time. Stay strong : )
jesusluvsu02 4 months ago
I am a14 year old boy and live with this and have gone through several surgeries ur not alone girl
slicknick262 6 months ago
@slicknick262 Thank you! : ) It's rough, but it's so good to know we aren't alone! Keep fighting! Blessings : )
jesusluvsu02 4 months ago
I don't know anything about this disease but i just watchd a video from CannabisCureTV, where they talk about their life with this disease and how cannabis tottaly have changed their life to normal. Take a look at this video:
/watch?v=95DkpJaal2I&feature=channel_video_title
DON'T BE IGNORANT!
Like this so it's easier to see for everyone! :) peace.
Jo0kim 7 months ago 6
@Jo0kim Thanks for posting! : )
jesusluvsu02 4 months ago
@jesusluvsu02 If you are unsure, try find some good facts (which is written by professionals, not douchebag ..) on this subject and watch videos and documentaries etc. I hope you check this out. If you can't get it legally, try find someone who can be trusted ;)
The prohibition is ridiculous if one makes a tiny amount of research
Jo0kim 4 months ago
In 2007 I was diagnosed with Ulcerative Colitis, I went through several surgeries, and last year I found out that the diagnosis was wrong and that my troubles weren't over and that I have Crohn's. I have managed to get my weight up to 150 and am now in great shape! Hang in there, keep powering through this illness and I hope you have a wonderful life :)
fenderfanatic01 7 months ago
@fenderfanatic01 WOW! Don't ever lose that fight in you. You are awesome. I'm praying and hoping that someday we find a cure so that we won't have to go through pain like this anymore! Blessings xoxo
jesusluvsu02 4 months ago
god bless ya babe your so sweet and brave ,,,
iknow you will be healed hunnixxxxxbabsie
blondiebabs 7 months ago
@blondiebabs : ) I believe it too!!! Thank you so much!!
jesusluvsu02 4 months ago
@jesusluvsu02 you are welcome,,,they told me i had chronns once ,,i had a flare up i was severly ill and went through so much in hospital i had a mega colon said it d=couold burst at any minute ,,,
save my life with steriods and anitibiotics intravenously but i was amzed wheni went for one of my scans and blood test months later there wa snp sign of it !!!! prais e the lord i know he will heal you sweety xxx
your brave t han iwas xxbabs
blondiebabs 4 months ago
I've had Crohn's for 2 years no, and Im 15, hang in there! WhenI was diganosed I weigh 50 pounds.. in the 7th grade, I stayed in the hospital for 44 days, and had a bowel resection, now I weigh 102 :) Keep fighting, and maybe one day we'll have a cure :)
TheCFLgirl 8 months ago
@TheCFLgirl : ) Thanks for posting. I love hearing encouraging stories like this! Stay strong!! xoxo
jesusluvsu02 4 months ago
I was diagnosed 2009 it's been good till I stopped my meds cause I hate pills and I cry everyday cause I hate this disease and I have to get humira tonight and I'm scared of needles
MrFrenchblood 8 months ago
@MrFrenchblood Hopefully the humira helps! Needles aren't my favorite either. Squeeze someones hand...it helps : ) Good luck!!!
jesusluvsu02 4 months ago
I have chrome disease and it's been he'll
MrFrenchblood 8 months ago
@MrFrenchblood I know it's hard. Just stay focused on the good in life. Even if it's the littlest things. It helps SO much!
jesusluvsu02 4 months ago
Thank you for posting!!! I've been so sick for years and this past year I've been at my sickest losing 50 pounds in 4 months and the docs think I have Crohn's w/ Arthritis. You're inspirational!!
- All honor be to God ! (:
tkd4life2400 8 months ago
@tkd4life2400 Amen! I say it all the time - I wouldn't be where I am today if it weren't for Him! Stay strong and keep trusting in our Father in heaven. He's got you! : )
jesusluvsu02 4 months ago
I finally got diagnosed :) I've lost 35 more punds but ENSURE is a life saver Hahahah. Thanks for commentine back. I'll be praying for you :)
tkd4life2400 4 months ago
Crohns is ruining my life...
monkeypoo765 8 months ago
@monkeypoo765 I know it's hard. Keep looking for the little things to take joy in. It will help so much.
jesusluvsu02 4 months ago
@jesusluvsu02 Believe me. I've tried.
monkeypoo765 4 months ago
Let's keep fighting! I was diagnosed three years ago and I was recently hospitalized and got discharged three days days ago. Ugh. It was my 4th hospitalization. Not responding to steroids unfortunately right now. Looking forward to Humira shots in the next few weeks. Everyone good LUCK!
Almondx3 9 months ago
@Almondx3 Stay strong. It's always the hardest in the times when it seems like nothing is working. You aren't alone! Blessings to you! xoxo
jesusluvsu02 4 months ago
ur so effin strong just keep fighten there will be a cure. remember god is always with you and so is your family and friends. keep fighten you will pull through. your in my heart and prayers so stay strong for all the people who care about you
sweetpearocks98 9 months ago
@sweetpearocks98 You are wonderful. Thank you so much for your encouraging words <3
jesusluvsu02 4 months ago
@jesusluvsu02 no prob and as i said always in my heart and prayers
sweetpearocks98 4 months ago
My heart and prayers are with you! Hang in there.
Redsoxfanmatt 9 months ago
@Redsoxfanmatt Thank you - it means more than you know! : )
jesusluvsu02 4 months ago
I am newly diagnosed with Crohn's. I was very touched by your video. I have joined TEAM CHALLENGE through the Crohn's and Colitis Foundation of America and will be training and running a 1/2 marathon in July to raise money for research for a cure. I'm going to everything I can to fight for a cure. Who sings the song in your video? Also, just created a channel and put up my first video. Check it out. My channel is THEMOMMYMEEPA. I'm a Christian too. God really gives me strength.
TheMommymeepa 9 months ago
@TheMommymeepa That is amazing! I am hoping and praying for a cure - but we need more people to actually do something so we can find one! You are awesome! The song is actually by the Jonas Brothers (it was a phase - but still a great song). Gos is good and He provides us with strength when we are weak. 2 Corinthians 12:9-10. <3
jesusluvsu02 4 months ago
I had ulcerative colitis a flare up from stress I went on asacol till bleeding stopped than ate macrobiotics again fish 2 times a week etc and stress out of life and I'm fine
Food is the cure but drs won't tell u this as they make money off u being sick and surgerys. Start reading or ull be sick forevor
janityy 9 months ago
Google macrobiotic diet
Basically of u are stressed u will ignite symptoms
Find a hobby get happy mines tarot cards
Eat mostly cooked grains, little bit beans , seaweed , cooked vegies and cooked vegetables
Tap water has flouride in it which is a poison it depletes iodine from ure thyroid and makes u docile
Culligan water back of wallmart is 95% flouride free
janityy 9 months ago
Im 11 and have this disease, its my best friend and worst enemy! But it makes me the person i am today! she has guts! ive been in the hospital once for 2 1/2 weeks then in isolation at my house for 2 more weeks. I have to have my blood drawn every 3 months i was diagnosed when i was 8 and before that they thought it was IBS because the hadnt done colenoscopy yet it ended up being so high up in my throat that they had to do and endoscopy to! anyways god bless her! :))
emmyandshane10 10 months ago
@emmyandshane10 I love your attitude : ) Stay positive and stay strong : ) Blessings to you!!!
jesusluvsu02 4 months ago
I've got crohn's and yeah it sucks. The lord aint gonna do shit about it tho just so u know. and research the internet for something called "mycobacterium avium subspecies paratuberculosis" MAP in short. type that in together with crohn's disease and boooom your view on crohn's disease will change!!!
YJDWk 10 months ago
@YJDWk I can tell you straight up that without the Lord I would be in a MUCH different place in my life then where I am now. It's by His strength alone that I have made it through all I have. I will go check that out right now. : )
jesusluvsu02 10 months ago
@YJDWk i heard that Ulcerative Colitis and Crohns has a lot to do with Candida. Im doing anti candida diet really helped me. My dignosis is Ulcerative Colitis. I really have had good results here are the improvments; No jont pain, no fatigue, no heart pulpatations and panic attacts ( which i didnt know was UC realated) my weigth is stable as i droped to about 97lb or 95lb i am only 5 foot 1 but i am 34 years old. bloods are normal, White T cells are normal. I dont have bloating or IBS any more.
hellokitty4299 9 months ago
This has been flagged as spam show
@YJDWk i heard that Ulcerative Colitis and Crohns has a lot to do with Candida. Im doing anti candida diet really helped me. My dignosis is Ulcerative Colitis. I really have had good results here are the improvments; No jont pain, no fatigue, no heart pulpatations and panic attacts ( which i didnt know was UC realated) my weigth is stable as i droped to about 97lb or 95lb i am only 5 foot 1 but i am 34 years old. bloods are normal, White T cells are normal. I dont have bloating or IBS any more
hellokitty4299 9 months ago
@YJDWk I have Ulcerative colitis; I heard it was caused by candida.
hellokitty4299 9 months ago
@YJDWk I will look it up. Personally though - without the Lord in my life, I wouldn't be where I am today. He has brought me through SO much. Hope you are doing well.
jesusluvsu02 4 months ago
My dad has crohn's so i know how it can affect people! Keep fighting and one day there will be a cure! =)
skatevideomaniac 10 months ago
@skatevideomaniac I'm sure it's hard seeing someone you love battle something like Crohn's. It's so great he has people like you to be there for him and support him : ) I do believe a cure will be found! The day can't come soon enough.
jesusluvsu02 10 months ago
@FreshPotProductions You aren't alone, my friend. Never give up! I know how hard it is. I was diagnosed when I was 13 and the battle was a constant one. Meds were not at all on my side and because of that I spent a lot of time in the hospital. I have become SO much stronger through everything I have been though, as I'm sure you have, and it has gotten easier. Just keep your eyes on the light at the end of the tunnel. I'm always here if you need to talk : )
jesusluvsu02 10 months ago
im 13 and i have crohns sucks
TheSubzero867 10 months ago
@TheSubzero867 It does. But you aren't alone in your journey. Keep fighting!
jesusluvsu02 10 months ago
I see a Pepsi in front of you, Change your diet or you will be on drugs the rest of your life, till there is a cure, good luck.
MTHKITEBOARDS 10 months ago
Wow you are so strong even with everything that has happened to you, the Lord is definitely shining down on you. I have crohn's and seeing your videos helps, knowing that I am not the only one going through this disease quietly, only for a cure and then nobody would have to know about it ever. I belive that everything happens in you life for a reason in accordance with the Lord, now what is the reason for all of us that share in this. God bless, you will be in my prayers.
slip180 11 months ago
@slip180 Thank you so much. I am so blessed to be able to share my story in hopes that it may bless even one person. We aren't alone in this fight. Stay strong!
jesusluvsu02 10 months ago
People suffering from ibd and autoimmune disorders, check out 'Dr Raphael Mechoulem' from the hebrew university of Jerusalem he goes into great detail on the Endogenous cannabinoid system,its no big pharma quack crap!! its genuine science,also there is some great info from Dr Bob Melamede an associate professor of biology at the University of Colorado. good medicinal cannabis has immune modulating power to surpass any pharma drugs ,im currently cutting down on 6mp and eating gd Q hash high CBD.
herbalenquiry 11 months ago
I have crohn's too . Im really glad that people comment on this video that are the same age as me , and know what im going through (:
ViolentEggProductons 11 months ago
@ViolentEggProductons I totally agree. It's been such a blessing to know we aren't alone : )
jesusluvsu02 10 months ago
I was diagnosed with Crohn's at age 6. I am now 14. The best treatment for Crohn's is a good diet.
CommunityCam 11 months ago
Cont: I now work full time and live on my own. so for all those who have to go thru this stay strong. If any of you younger people want to talk to a person who has been through it all feel free to email me my id love to talk and more then willing to answer questions that you have my email is Perfecthazeleyes@gmail.com
lilbewitchedgirl 11 months ago
I am 25 years old, I was diagnosed with crohns when i was 12 just two months shy of my first birthday. Over the last 13 years i have been in and out of hospitals... I have had many surgeries My first major one just 11 months after i was diagnosed I had 1/3 of my small removed and 1/2 of my large and was also given an ostomy at that point. Since then i have had over 50 surgeries due to my crohns and have osteo,arthritis and gastroparesis. I am now 25 years old ive been in remission for 3 yrs
lilbewitchedgirl 11 months ago
@lilbewitchedgirl WOW! You are amazing. I can't imagine being diagnosed that young and going through all that. I am so glad to hear you have been in remission for three years now. I pray that continues and you keep feeling well!
jesusluvsu02 10 months ago
keep that smile on your face, God is by your side, you will beat this and be stronger than ever for he is always with you.
Philippians 4:13
and for those hard days
Matthew 11:28-30
stay strong sister, you are in my prayers
malvarez1991 11 months ago
keep that smile on your face, God is by your side, you will beat this and be stronger than ever for he is always with you.
Philippians 4:13
and for those hard days
Matthew 11:28-30
malvarez1991 11 months ago
@malvarez1991 Amen : ) I love both of those scriptures. Thank you so much!! It's ALL because of Him that I have made it through all I have.
jesusluvsu02 10 months ago
Your faith is encouraging! I thanked the Lord that he is with you and has given you strength. Never give up, you are beautiful.
gofishinfinate 11 months ago
@gofishinfinate : ) Thank you so much. He is the one that has brought me through all that I have faced. All glory to Him!
jesusluvsu02 11 months ago
im 13 years old and i have chrons too i got diagnosed in april almost a year since i have it im fighting through like everyone else this video what i just say gave me more strength and power to fight through
kevkev244 11 months ago 5
@kevkev244 You have no idea how much that means to me. I was diagnosed when I was 13 and had been sick for about a year and half before that. Here I am over 4 1/2 years since I was diagnosed still going strong. This battle isn't one you are fighting alone. Never forget that : ) Stay strong!
jesusluvsu02 11 months ago
I'm 12 years old and I also have crohn's.
You're an inspiration, you have so much strenght!
Sorry if my English is very bad, I'm Dutch.
TheLipxGloss 11 months ago
@TheLipxGloss Why, thank you.
Keep fighting! If you ever need someone to talk to, I'm here : )
jesusluvsu02 11 months ago
I have Crohn's disease, and I want want to start talking to people who also have it.
mguruj 11 months ago
@mguruj It's amazing how much better you will feel when you start sharing what you have been through with others and using it to help them. I always say you haven't been through what you have for nothing. I think that is wonderful : )
jesusluvsu02 11 months ago
i was diagnosed with crohn's february of 2010 but the symptoms started in july of 2009. i started out at 109 pounds and now i weigh 91 . ive been down to 85 pounds and im still fighting
veryberrykayla 1 year ago
@veryberrykayla You are awesome. Never lose that fighting spirit. You aren't alone. <3
jesusluvsu02 11 months ago
ive had crohns for almost a year now most of the meds ive been on havent worked to swell for me but i think the worst stuff is the prednisone! the moonface junk sucks and so does crohns but dont worry we all are fighting and trying to stay strong it puts a burden on your family and yourself but the best you can do is stay positive and send bloody pics to your friends! Hehe! btw im 13 good luck!
freakout122 1 year ago
@freakout122 I was in the same boat as you. Meds didn't work for me. I totally agree with you, prednisone is awful. The side-effects are not fun. Hey, at least when you are on it you gain weight nor the first time as a crohnie. haha. You are not fighting alone. Stay strong, my friend : )
jesusluvsu02 11 months ago
glad to hear things are starting to turn around for you, there is life after crohns and it is a blessing when your in remission, hopefully you will be in remission for a long time, stay strong and good luck for the future!
jamesbkw1 1 year ago
@jamesbkw1 Thank you so much! I'm praying for the same thing. Blessings to you --
jesusluvsu02 11 months ago
i am sick, i passed the analysis two month ago, i wood like to ask you how old are you? have you passed the analysis? when you "found" the crohn?
my name is Daniel, 15 years old from Israel,
pleace answer mi... i'm watting... ♥
sbhtkehbi 1 year ago
@sbhtkehbi Yes, I have Crohn's as well. I was diagnosed back in October of '06. Keep fighting : ) You aren't alone!
jesusluvsu02 11 months ago
i got diagnosed with crohns on january 18 2009 and i was 98 pounds now i am 125 just keep fighting youll get there
xxSMITHxx456 1 year ago 4
@xxSMITHxx456 That makes me so happy to hear. Yeah, I'm never giving up!
jesusluvsu02 1 year ago
@xxSMITHxx456 I found out a couple months after you whats the chances lol
HamHamHamstery 11 months ago
ive been diagnosed, but i cant go to hospital as i must work. i have about 3 years left to live and its all painful. i have videos about my disease...
1973mazdarx4coupe 1 year ago
@1973mazdarx4coupe This disease is one that can really take it's toll with the pain most of the time being constant, day and night. I can't imagine what it must be like to be told you only have 3 years to live. When I was diagnosed with brain cancer I remember how hard that was for me to handle but how much harder that made me want to fight. You are the only person who is has the ability to fight for you but you aren't alone in that fight. Never ever give up! I'm here if you ever need to talk.
jesusluvsu02 1 year ago
@jesusluvsu02
Crohn's doesn't kill?
KellyK0028 11 months ago
This has been flagged as spam show
I've had UC since i was 8.
I am 18 almost 19 now. in college and having the time of my life!
after surgeries and pain, still today, i made it!
if i can, anyone can. (:
TheStingRae2010 1 year ago
I've had UC since i was 8.
I am 18 almost 19 now. in college and having the time of my life!
after surgeries and pain, still today, i made it!
if i can, anyone can. (:
TheStingRae2010 1 year ago
@TheStingRae2010 I start college in the fall and honestly if there is anything I am nervous for, it would be that. Thanks for taking the time to say that, I really needed to hear that right now : ) I'm so glad you are doing well!
jesusluvsu02 1 year ago
@jesusluvsu02 thank you so much for responding, made me sooo happy to know i can help you, even in such a small way. (: You are going to do great in college! Many people are so understanding and take full advantage on what your school can do to help you! the one giant thing i could tell you is to registar with disbility services! they help so much and will do anything they can for you! good luck, it will be the time of your life! don't let anything stop you. You can do it!! (:
TheStingRae2010 1 year ago
thank you for the video
you look healthy and i got dignosed a couple weeks ago after years of tests and drinking disgusting things from doctors and losing most weight
we will fight together<3
omfgitsjaney1 1 year ago
@omfgitsjaney1 dirinking disgusting things - story of a crohnies life. haha. You are so right, we WILL absolutely fight together!
jesusluvsu02 1 year ago
I was just diagnosed with Chron's Disease 2 weeks ago, I'm only 15 and i'm not looking forward to what lies in the future but seeing strong people like you gives me hope!
louveix1 1 year ago
@louveix1 The most important thing is to stay positive. You aren't alone by any stretch even though at times this disease can feel so isolating. Crohn's is different for everyone and sometimes someone might not have to go through half of what someone else does. If you ever need to talk, I'm here : )
jesusluvsu02 1 year ago
Wow, Alex, as if brain cancer and your other autoimmune condition aren't enough. God bless you. You're amazingly strong and an inspiration.
suzharr2 1 year ago
@suzharr2 You are wonderful <3
jesusluvsu02 1 year ago
i feel for you i was also diagnosed with crohns when i was 15 i went from being 10 and a half stone to 7 stone i had the tube up the nose for 3 months then i lived on food supplements for 3 years before they decided to operate on me, and ill be truthful with you after the opp things got worse and i spent the next year in and out of hospital, but things will get better when you learn to live with it, im now 34 i have a steady job and im also a karate instructor, stay positive and you can beat it,
jamesbkw1 1 year ago
@jamesbkw1 It was the same way for me. All my symptoms came back only two weeks after my surgery and I was super sick for awhile there after. Meds aren't my friend so I was constantly in the hospital. Only this past summer have things finally started to turn around for me. No reason for it whatsoever, but I look at it as a blessing and I will take it! Crohn's is so different for everyone, but no matter what like you said, staying positive is so important!
jesusluvsu02 1 year ago
I am 14 and got diagnosed with Crohns Disease in July 2010 after rapid weight loss. I know what you are going through. xx
msngirl1990 1 year ago
@msngirl1990 You aren't alone! <3 Keep fighting!
jesusluvsu02 1 year ago
way to make me cry :( I am praying for you i love your smile this song seriously helped me also. <3
jacklynsadventures 1 year ago
@jacklynsadventures Thank you so much <3 This song was the song I heard right after I got diagnosed with Crohn's, it has helped me a lot : )
jesusluvsu02 1 year ago
when i hade that tube in my nose it made my nose kept itching & i have the same scar on my belly
ToriLolz2Kute 1 year ago
@ToriLolz2Kute The NG tube is one of the worst things.. I threw up with it in multiple times cause I would keep gagging. Yeah for battle scars : )
jesusluvsu02 1 year ago
You are an amazing person to be so young and go through so much. I found you video 2 days before my scheduled sigmoidoscopy, it gave me hope. I had my test and was diagnosed with ulcerative colitis, thank the lord it was not crohn's, unfortunately, I had/have a severe case. I was diagnosed November 16th, but it could have been found more than a year ago, on November 27th, the day before my 21st birthday, i was rushed to hospital with severe nutrition deficit. I was admitted.
mmajor2889 1 year ago
After a long course of TPN (IV nutrition into my heart) and IV prednisone not helping, I was switched to high doses of oral prednisone, this made things worse. Then there was the talk of Remicade treatment, at 3000$ a dose, this was not an option. December 6th I was rushed for emergency surgery, Subtotal Abdominal Colectomy with Ileostomy end. My worst nightmare has come true. I'm 21 years old and have to live with a "bag".
mmajor2889 1 year ago
They say it can be reversed, but not for at least a year, and then it's 2 more surgeries, but that means a cure! Every day is a battle, the pain is still severe from the operation, 3 weeks after admission, I’m finally home, though still on high doses of Diladid. My battle now is to gain weight, In 2 years I have lost over 180lbs from this disease. You only live once and life is what you make it. We must take control of our lives before the IBD’s control it!
mmajor2889 1 year ago
@mmajor2889 I know we have talked a bit over e-mail, but reading this reminds me once again how strong you are. I know it can feel like the worst thing while you are going through it, but the best feeling is making it through and looking back and remembering all it took to make it through and how much stronger you have become through it all. Hearing that my video gave you hope brings me so much joy. I know how alone it can feel. Stay strong, my friend! I'm always here for you : )
jesusluvsu02 1 year ago
@jesusluvsu02 It's been a month now since the surgery, still experiencing a fair bit of pain related to fluid pockets in the cavity. I'm still on the Hydromorphone but not needing it as much, unfortunately because my disease is not yet cured, I've had another flare and starting to wonder if it's going to end. Back on steroids, orally, and more medication to control nausea/vomiting but I have gained 5lbs - just 15 more to be low normal weight. I still watch this video everyday, there is hope. TY
mmajor2889 1 year ago
Please listen! Crohn's Disease is not going to get better taking immune suppressant drugs! All modern medication is is poison and amputations. It is just going to gradually get worse. If you want to get better, take herbs that naturally heal your body. Turmeric or Cat's Claw or both great for inflammation. Colloidal silver and blood electrification both are great at getting rid of bacteria in your body. All this is completely safe unlike modern medication. Do research. Use your brain. Please.
socceric17 1 year ago
@socceric17 Doing research and always making sure I am doing what's best for me is something I try very hard to do. I think when it comes to Crohn's what works for one person doesn't always work for the next, but I am always open to suggestions and advice. I will look into your recommendations, thanks for taking the time to share them.
jesusluvsu02 1 year ago
i hve crhns im 11
lilmagicmanjws 1 year ago
@lilmagicmanjws I'm sorry you aren't doing well. I know how hard it can be. You aren't alone in this!
jesusluvsu02 1 year ago
i have chrons disease . Was diagnosed at 19 and had 4 years of pain and weight loss . had to be fed through tubes in the end , but trust me it will get better and now i live a very calm life but do very well :) . I found a good tip for me was living through the night and sleeping through the day . it helped me sleep through my morning bowl movements and pain . and u put more weight on eating at night . my thoughts are with u ..... AND I HOPE U ARE FEELING A LOT BETTER NOW XX PEACE
ohhhREALY 1 year ago
@ohhhREALY I have never thought about that, but that would make a lot of sense. These past few months I have been doing better and I am so thankful. It's been pretty constant since no medications seem to work for me, so it's really nice to have a break, especially since I just had my second brain surgery!
jesusluvsu02 1 year ago
i have chrons too and i have been through everything in this video. i know how it can feel. i was diagnosed when i was nine. i love the fct that you feel cofortable enough with it to put up a video. i can learn something. WE CAN GET THROUGH THIS.
KaitlynOxfordTV 1 year ago
@KaitlynOxfordTV I just hope by me putting this up it can help at least one person in their journey. I know how hard it can be and how alone you can feel at times. I hope you are doing well!
jesusluvsu02 1 year ago
thanks
andrewmarcus91 1 year ago
my struggle is getting better I think Iv switched doctors now going to a top rated guy from uic chicago its a long drive to see him and I am redoing all the tests but I believe he will finally give me a diagnosis and thats what I need
andrewmarcus91 1 year ago
@andrewmarcus91 I really hope that it keeps getting easier for you and that they are able to give you a diagnosis. Stay strong and keep fighting. You aren't alone.
jesusluvsu02 1 year ago
May God continue to bless your road to recovery. I will be praying for you. Take care and be in good health.
icunurse01 1 year ago
@icunurse01 Thank you! Blessings and love ~
jesusluvsu02 1 year ago
Thank you for sharing...May Jesus hold you tightly in his arms as you walk through this life....He has special plans for you...Love, A father of a child with crohns.
MrScottibee 1 year ago
@MrScottibee Thank you so much : ) I hope by me sharing my story I am able to encourage others and impact even just one life for Christ. For His plans are greater then my own.
jesusluvsu02 1 year ago
I have same thing, I can relate to everything, you are not alone. We will get through fine!
Hope everyone with this disease take the time to see the pretty things in life, hopefully when we are not in pain.
Love!
Vini
poersch86 1 year ago
@poersch86 Seeing the positive is probably the MOST important thing. It's what has helped me to get through the roughest times.
You are so right. We will get through : ) I can't wait until the day they find a cure. But until then, I intend to keep encouraging others through the pain.
Blessings and love ~
jesusluvsu02 1 year ago
I'm 13 & was just diagnosed with Crohn's disease last year. I'm glad to know I'm not the only one out there :) I know how you feel it's hard all the hospital visitations and the medicine ... I take pentasa 4 times a day... & soon to be PM6 on top of that you're an inspiration <3
Check out our channel you'd never be able to tell that I have crohn's disease besides the fact that I'm really skinny (I'm the Brunette in our videos.. :)
SaphireInk 1 year ago
@SaphireInk You are FOR SURE not alone. It can be really hard especially at first, but finding the good in life is SO important! Keep living life and if you ever need someone to talk to...I'm always here! : )
jesusluvsu02 1 year ago
@jesusluvsu02 Thanks it's good to know that there's someone to talk to :)
God Bless you <3
SaphireInk 1 year ago
u have to stay strong and fight for your life. i believe in u! i have colitis. i was in the hospital on Wednesday August 12, 2009 and it was my mom's birthday. i was in the hospital for a week and it was not fun. i have to take medical now and watch what i eat. But u i believe in u, so stay strong and fight for your life. If i did it you can do it and u r very important and a role model to me. u have friends and family that love u. fight for them and try to keep us updated, please.
oliviarotering 1 year ago
@oliviarotering I'm never giving up : ) Having crohn's has been one of the hardest things I have dealt with in my life on an ongoing basis, but it has made me so much stronger. Staying positive through it all and also making the most of your good days are both so important. It's good to know we aren't alone in our fights! Stay strong!
Blessings and love,
-Alexandra
jesusluvsu02 1 year ago