HI I am so sorry for your lost I have a son with HPLHS and he is know 10 years old we did not know that he had it until he was 5 days old and we almost lost him but we had faith in god and let the doctors do what they do best and he is now 10 years old I want to know what had happend that your BABY FAITH did not make it .GOD BLESS YOU AND YOUR FAMILY you will soon be with your BABY FAITH again keep her in your hearts and mind always .
I am now 28 weeks pregnant and my daughter was diagnosed with hlhs when i was 20 weeks so I feel what have gone through and my heart goes out to you guys because this is my first baby and I am very scared of what can happen so I pray everyday that my baby is going to be okay. You guys had a beautiful baby girl and one day yall with be together my condolenses goes out to your family.
my heart truly aches for you guys'. you sound very fortunate with the time you spent with your little angle. we just had our daughter nov. 19,2010 with TS she is already back in the hospital with RSV and im praying every minute for her!! just know that your baby Faith is in heaven with no more TS or issues that come along with it waiting for her mommy and daddy to join her one day for eternity. love the video made this grown man cry like crazy. all children are miracles!! no matter what!
I am so glad you had the time with Faith that you did. These little lives make such an impact on us and change us for the better. We cannot be the people we are without having had that short time with our children.
My son Graydon, had HLHS and died when he was 3 days old. What I wouldn't give to have had more time with him.
I do believe that everything that was stolen from us, will one day be restored. Don't know how it will work, just that it will.
I just happen to come across this page and I had to watch. I remember reading Faith's story on Jeff and Lindsey's Carepage. I broke down and cried then and I broke down and cried tonight. My nephew has HLHS his is now 14 months old and doing great. I am so sorry for your family's loss and you will be in my prayers.
I am so very sorry for the injust loss of any child, and to something we understand so little about, such as Turner's and it's complications.
I'm 27 and found out in June I have mosaic turner's syndrome, I only found out because I pursued the causation of my repeated miscarriages and a gut feeling I had something wasn't right.
Things are going well, although it's been a tough start to marriage.
I just thought I'd give some hope for others who have Turner's in their lives.
My Granddaughter was born 06-28-2008 with TS and HLHS, 2 open heart surgeries, stomach surgery to repair and put in feeding tube. 7 months in Hospital. 1 year 2 months later, she is getting better, baby steps R.I.P Faith
I'm really sorry for your loss. I was born with Turner's Syndrome (I'm 25 now). I weighed 4 pounds as a baby as well. If you have any questions about TS, please feel free to do so. I think that it's important to raise TS awareness because parents/others know very little about this rare Chromosomal condition. Heart problems with TS girls are very common(Luckily I was born without any heart conditions)
Dunno what happened but I had to post my last comment, it wouldn't let me type anymore? She is so beautiful, wow. What happened? Did she pass in her sleep or something? I haven't a clue what either of those problems are, but I'm intrigued. Going to look it up now. I'm glad she didn't suffer. Such a sad story though.
i have t.s. and i almost died
amy63699 7 months ago
HI I am so sorry for your lost I have a son with HPLHS and he is know 10 years old we did not know that he had it until he was 5 days old and we almost lost him but we had faith in god and let the doctors do what they do best and he is now 10 years old I want to know what had happend that your BABY FAITH did not make it .GOD BLESS YOU AND YOUR FAMILY you will soon be with your BABY FAITH again keep her in your hearts and mind always .
mlopez512 1 year ago 2
my prayers and thoughts to all........
mrtdixon79 1 year ago
I am so sorry for ur loss, i also lost my son Alfie with HLHS, sending love ur way and up above to baby Faith
clairence74 1 year ago
I am now 28 weeks pregnant and my daughter was diagnosed with hlhs when i was 20 weeks so I feel what have gone through and my heart goes out to you guys because this is my first baby and I am very scared of what can happen so I pray everyday that my baby is going to be okay. You guys had a beautiful baby girl and one day yall with be together my condolenses goes out to your family.
Danielle22dunn 1 year ago
my heart truly aches for you guys'. you sound very fortunate with the time you spent with your little angle. we just had our daughter nov. 19,2010 with TS she is already back in the hospital with RSV and im praying every minute for her!! just know that your baby Faith is in heaven with no more TS or issues that come along with it waiting for her mommy and daddy to join her one day for eternity. love the video made this grown man cry like crazy. all children are miracles!! no matter what!
afpmx 2 years ago
I am so glad you had the time with Faith that you did. These little lives make such an impact on us and change us for the better. We cannot be the people we are without having had that short time with our children.
My son Graydon, had HLHS and died when he was 3 days old. What I wouldn't give to have had more time with him.
I do believe that everything that was stolen from us, will one day be restored. Don't know how it will work, just that it will.
Thank you for sharing.
mtwildflower36 2 years ago
Thats just not fair....Nobody should loose their Baby.
Im so sorry.
x
kemipops 2 years ago
I just happen to come across this page and I had to watch. I remember reading Faith's story on Jeff and Lindsey's Carepage. I broke down and cried then and I broke down and cried tonight. My nephew has HLHS his is now 14 months old and doing great. I am so sorry for your family's loss and you will be in my prayers.
tifani2004 2 years ago
I am so very sorry for the injust loss of any child, and to something we understand so little about, such as Turner's and it's complications.
I'm 27 and found out in June I have mosaic turner's syndrome, I only found out because I pursued the causation of my repeated miscarriages and a gut feeling I had something wasn't right.
Things are going well, although it's been a tough start to marriage.
I just thought I'd give some hope for others who have Turner's in their lives.
beraucracy 2 years ago
I just found out that my baby has turners syndrome.god bless you all and let her r.i.p
beautifulace08 2 years ago
My Granddaughter was born 06-28-2008 with TS and HLHS, 2 open heart surgeries, stomach surgery to repair and put in feeding tube. 7 months in Hospital. 1 year 2 months later, she is getting better, baby steps R.I.P Faith
rrt66mama 2 years ago
Aww that is such an amazing thing to hear!!!
beautifulace08 2 years ago
Faith has Hypoplastic Left Heart Syndrome & Turner Syndrome. That will be hard for Faith. I have a friend name is Faith W.
birds16ful 2 years ago
I have HLHS as well... I am sorry for your cousin's daughter...
PrinceDeity 2 years ago
She is truly beautiful and a miracle baby. God Bless you baby girl!
DFGHGN 3 years ago
this is a lovely video and Faith is gorgeous, I have Turner Syndrome, im 14 and was diagnosed when i was 10.
Ella xxx
elrhia 3 years ago
I'm really sorry for your loss. I was born with Turner's Syndrome (I'm 25 now). I weighed 4 pounds as a baby as well. If you have any questions about TS, please feel free to do so. I think that it's important to raise TS awareness because parents/others know very little about this rare Chromosomal condition. Heart problems with TS girls are very common(Luckily I was born without any heart conditions)
My prayers are with you and your family.
God Bless Lindsay
LindzRene82 3 years ago
Dunno what happened but I had to post my last comment, it wouldn't let me type anymore? She is so beautiful, wow. What happened? Did she pass in her sleep or something? I haven't a clue what either of those problems are, but I'm intrigued. Going to look it up now. I'm glad she didn't suffer. Such a sad story though.
xxxjoelpolexxx 3 years ago
@ 2:42 she looks sooooooooooooooo precious!
xxxjoelpolexxx 3 years ago