You Are Not Alone- Video of ACCers

[hunter12433]

i have ACC but sure as hell aint telling my friends or people i know this is something i dont feel comfortable talkin about and my mom thinks i want it rubbed in my face to hear stories how people cope with it i just cant put myself too even talk to anyone about it

[grettagrids]

@hunter12433 sadly i know how you feel:( alot of doctors treat me like a defective human or an idiot.. talking DOWN at me not to me. I now refuse and MRIs or head CTs for this reason. we are still HUMAN BEINGS! i want to fel normal, not defective.

[GamerGrl90]

I have

C-ACC

[gabby6424]

I am a 16 year old mommy too be with a baby that has ACC.

[Albertan1956]

I have ACC,thanks for creating this video.

[momintex09]

recently diagnosed with ACC...im almost 31...as a child i was told i was lazy (cause i was tired alot) and clumsy (drop things and fell). as an adult when i had the numbess n weakness was told it was stress...was not until i starting having seizures and the numbness got worse did they figure it out....i take meds to control my symptoms, use a wheelchair for outside the out, i have weekly OT and PT but I am doing okay

[DieselProductions11]

@momintex09 Does that happen to everyone w/acc?

[Stingly13]

What's C-ACC?

[jermadio]

@Stingly13 C-ACC means complete agenesis of the corpus callosum, as opposed to some people who have P-ACC (or partial ACC) where there is a partial connection.

[Stingly13]

I have agenesis of the corpus callosum.

[lynny1206]

thanks so much for commenting and letting me know that you have ACC. We've all gotta stick together whether it be just by letting each other know we have ACC! :)

[TheCcaceres]

Great Job!!! Thank you for all of your hardwork.

Cathy--Mom to Maryn

[mykeywest38]

I ♥ this-thank you so much for adding myson Sean to your Video.

Missy Stelma

[NorthGeorgiaGirl]

I love this song. It was a very good choice!

Vicki, Mom to Stella