Added: 2 years ago
From: mayoclinic
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  • I was diagnosed with cutaneous ewings sarcoma. I only had a wide excision of the area. They never treated me, only follow up PETs. Its been 7 years since that diagnoses And thank god i am fine :)

  • I was one of those statistics....11 years later here i am

  • One of my friends close friend passed away from Ewing sarcoma one year ago today .... RIP Ross x

  • I have Ewing's Sarcoma. After 9 months of physical therapy they did an MRI and found a softball sized tumor in my pelvis. The Children's Clinics and Hospitals were shocked to find that it was not in my bone marrow. I will have a total of 14 rounds of chemotherapy. I have 5 rounds left. I also have to have proton radiation. I will have a total of 37 rounds of it. I have 7 left. I am almost done with this stupid cancer!! I am 10 years old.

  • I have Ewing's Sarcoma. After 9 months of physical therapy they did an MRI and found a softball sized tumor in my pelvis. The Children's Clinics and Hospitals were shocked to find that it was not in my bone marrow. I will have a total of 14 rounds of chemotherapy. I have 5 rounds left. I also have to have proton radiation. I will have a total of 37 rounds of it. I have 7 left. I am almost done with this stupid cancer!!

  • My son's Pnet ewings was in his pinky finger. We were told this was a very rare place. He underwent 10 months of chemo, had surgery to remove the finger, although the tumor had already been removed before we knew it was ewings. He just had his 3rd year of clear scans. Dr. Conry and staff were great at Kirkland Clinic in Birmingham, Alabama. The best to you and your staff.

  • My absolute admiration for Dr. Arndt, she looks and sounds and feels (if I may) as a rock solid salvation point for most of her patients, she honors medicine and medicine as a profesion is honored by having her.

  • The Seany Foundation was inspired by Sean Lewis' Robins' 7-year battle with Ewing's Sarcoma. Thank you for helping to educate and create awareness for this horrible cancer.

  • My cousin Laura passed away from Ewing's in her pelvis in 2006. She had extreme pain in her leg that would not go away, & like you said, after they eventually did tests they found her tumour.

    Thank you for your information.

  • thanks for the information. very clear.

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