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I am so relieved that trails still are continuing to get this devastating destructive condition eased so that some sort of life can be led . My daughter is 24, and has had this very badly for 8 years and doesn't want to go on. She sees no value or any chance in a future of normal dreams.
Is it possible for her to be on any trials within the UK?
We are desperate for some improvement and understanding of this condition from Doctors and Consultants.
The problem is, very few Doctors understand.
susicatt 2 years ago
It's so painful that it is unbarable. I just found out that I may have IC . My lower stomach hurts so bad all the time. Sex actually beats up my bladder so much that it spasms for weeks. Even if I push on my stomach area (bladder) I blow up like a balloon and then the pain starts. Cramps in the bladder, stiff feeling like I cannot bend or move, I roll in pain all night. Is there no medicine for this?
I had a colonoscopy and they ruptured my colon and the air pressure is what hurt my bladder.
DezzyRayz 2 years ago
Thank God there is some research going on for this quality of life destroying condition.
Nothing like trying to perform when all you can think about is the fiery demon in your bladder
LindaVeeSado 2 years ago
After seeing this video I actually have hope of being cured from IC...Its so painful to live everyday of my life with the feeling of glass cutting through my insides and havin burning urination and pain..I've reached to the point where I've become very suicidal......In this modern day and age it is ridiculous that no one has pursued a cure for this serious illness...Thank you study doctor for your concern and care towards IC patients...
Melissa230984 2 years ago
I can relate 100%. Like hot broken glass grinding up the inside of my bladder.
BUNGLEJYME 2 years ago
I wish that I was part of this study...Ive had IC for 5 years and its just horrible soo much that it has made me suicidal!!!
Melissa230984 2 years ago
Thank you! praying for a cure and effective treatments!
ninjacup 3 years ago