being an xxy being-shocking info or not?

[StarcraftAlphaBeta]

I found out I'm XXY 2 days ago. My T came out at 216 (range from 300 to 900). At 10 years old I had an IQ test, the results came out at 146, highly gifted). My whole life I've had obesity issues, extreme hunger, I'm extremely tall (6 foot 6 inches), I'm slowly developing insulin resistance from low testosterone. In 12 days I'm going on a powerful testosterone therapy for the rest of my life. I'm highly successful in life and I graduated after 6 years of studies (it was hell because of my low T).

[XCMDragon]

Not all XXY males are Develop mentally Handicapped but i am though, so anyone on here like that

[XCMDragon]

I am an XXY Male so if anyone wants to talk send me a message

[ladycanz]

we found out this monday that our unborn baby is diagnosed with Klinefelters. We really appreciate this posting. Keep up the great work. It is extremely helpful hearing from people who KNOW rather than a counselor handing you a wikipedia printout!

[peaceandparty]

exactly!

well your unborn is nothing more or nothing less than an extra special baby

and there are sooooooooo many eyamples of xxys in this world that are an assistance for people like you and it takes nothing out of me,personally,to do what i do on youtube!

i hope to make better and more professional videos that hit a higher target audience but even these times where someone like you bothers to thank me,its all worth it for this!

thank you for bothering to write this,means a lot

:)

[itinlondon]

Looking back at this old video, it is easy to see why you want to be back on Testosterone.

I don't think that this blame game thing is healthy but there must be a reason for us having this fucking illness! There is a reason. My nan has Fibromyalgia and Irritable Bowel Syndrome (IBS), my mother might have Fibromyalgia and IBS and also Chrons Disease. My brother has several problems associated with KS. I am KS. There is deffinately a genetic link but there is not enough funding for research.

[moenna888]

Interesting topic. I watched few of your videos. Seems there is nothing wrong with the IQ. you seem very very overnormal to me, more comprehancive than many 'normal' man I know. As I female I'd say if there was lower IQ is due to the Y now X chrom. I don't have this syndrom, but I was wondering, can you seeing some men out there can you tell ah this must be xxy? how?

[peaceandparty]

hi

there is much misinformation out there about what xxys can truly be and begave like!

which language do you speak?

[moenna888]

Yes. I agree. What I don't agree about is making a 3ed gender out of it. I have never done a chromosomal test and who knows if I have some abnormality that I don't know about. but this is my point - if we determine 'normal' there must be abnormal too. with it we don't mean bad or wortless, no no that would be just unjustful and wrong, but something out of normal, it could be even resulting in more progresive sort. but the positive as normal brings people believe as what is abnormal must be bad.

[peaceandparty]

thank you so much for your thoughts!

ok.....if we dont use the word abnormality....then i thin we could use the word---extra-ordinary

[moenna888]

i simply think 3ed gender is not the right thing to do. i guess we come here to acceptance of being normal, although biologicaly abnormal. it is important that you know that for yourself, what it can cause you ect., but outside in the world people will always accept you as one or the other gender. noone will observing you say 'hey you are half'. it is impossible. extra-ordinary literaly yes and quite true... extra cromosom. but it actually describes something rather without any problem :).

[peaceandparty]

hi.....i understand you not thinking that a third gender is going to be an accepted way of being.

yet i have to tell you that i am accepted as a third gender by most people that know me....some dont--they are like you.....but i ask you to completely be open minded to hearing my case as to why we do seriously need a t leasta third gender if not more.

outside in the world people will NOT ALWAYS accept me as only one gender or the other.life is evolving and minds are evolving too.peace be with u!

[moenna888]

if we determine a 3ed gender but not mixed gender, we will put many in it... xxy, xyy, xxyy, ais etc. the problem i see is not in determening a new gender but rather looking at the mix genders as normal, even they technically are not.

[moenna888]

you may get offended, it is not my goal. i think is important to accept yourself as not belonging to none fully, but still belonging partially. to acept as you feel male, but not typical male. or some other female but not typical. first the feeling than the biology. 3ed gender is eggaration. reproduction happenes if there are 2 different genders. we know that. that's why infertility is a sign of abnormality here.

[moenna888]

I was told I can't have children from other reasons than this and I know how it is to feel you don't fit somewhere. I think the nature somethimes makes a problem, but that doesn't necessarly need to make our life quality bad. you ar elucky you are xxy. from what i have read xxxy already has some sign of mental deley in developement. there is something with the chromosoms. as 'patients', need to be accepted a mistake is a mistake but it seems not fatal. so it is acceptable and 'normal'.

[TageKaliandrino]

My son is an XXY male with Klinefelter Syndrome and he is non mosaic xxy. He is fourteen and already 6 foot five inches in height and still growing. Unfortunately he has global developmental delay and so is working at about 8 - 10 years old. He has his own channel in here called JontyBlonty, which I have helped him with. I have not told him about his xxy Klinefelter Syndrome because he really doesn't understand. Not really sure how to tell him and I have known since he was 3.

[peaceandparty]

matt

hi

please look at tax003 he is the newest youtube xxy!

please welcome him on board will you

and tell him about the forum sites available will ya

this vid was done last year.....when i looked better...i feel like arag doll at the mo!

anyway thx for watching commenting and asking how i am

i miss talking to you

but i am sure you are well

gav

[peaceandparty]

:)

hey....lets definetely not get off on the wrong foot

we do agree that there is a difference between xxys and xxys with klinefelter syndrome

thats a good thing because most wouldnt agree with that

and just to "humour" you....i am seen and treated as aman....i wish i was treated like an xxy man instead of a weak mans man!

i talk a lot with the trans community

so there are deeper issues than ours

people getting sex changes because they believe there are only 2 sexes-there cannot be just 2!peace

[unclefesta1979]

Hi Gavan, excellent video and very informative, which is more than I can say about some of these comment on this video at a glance! Your looking great these days, hows things?

Matt.

[peaceandparty]

i know that this book is not absolutely correct

but i have battled it out with xxys on the point of us being intersexed

and you state clearly in your video you are a man

and i dont agree with that!

but there you go!

:)

i give info thats available out to people who didnt know the info existed!

i disagreed with much that i read from this book

but it was necessary to give info out at the time that xxys could compare themselves with

lets start talking about this in vid form...thx for your input

[markive]

Thank you so much, I've always blamed everyone around to why I'm born like that. But after watching your video, I feel different and unique and special as compared to others. There's no blame game. Thank you Gaven.

Mark

[peaceandparty]

well thank you for the thanks too!

and please feel free to contact me any way you want to at any time in the future

i like talking with people of my own kind!

:)

gavan

[yumisushi123]

Thank you, Gavan. Thank you for being true.

[SpeedNeed1980]

you are funny

[jsd1472]

help me. guess what? am getting chased by the csa for money for my kid who is seven i also have a daughter aged 26 how can that be?

i am xxy47 1 had the biopsy in 2000 even my daughter does not believe me x

[peaceandparty]

hello jsd!

i take every comment seriously!

you could be 47 xxy mosaic because they are able to father children!

or you may be one of a rare few that are 47 xxy and can get women pregnant!

be happy about that!

my mother brought me up on her own

so on the point of being chased for money

dont be chased---willingly give over your money so your kids have a worthwhile life!

too many fathers in this world give other fathers a bad rap because of not paying child support!they are your children-but u r u!

[peaceandparty]

thx ....how do you know about it?

[LeaMtl]

VERY good presentation! It's a so "unknown" condition.

[peaceandparty]

it does....and i sympathise in every real aspectthat i can....on not being able to have half of your partner and half of you in a child.....its the one thing about being xxy that is very shit!...truly-the only way to describe it is in a video-thx for the idea!and comment more-i appreciate your input

peace be with you always

[SURFERADDICTS]

Thank you. I just learned my husband has Klinefelter Syndrome after trying for children for so long. It's been thrown at us with no explanation. Thanks for clearing it up... every little bit helps...

[peaceandparty]

hola......que tal?.....no puedo hablar espagnol muy bien-your english is very understandable!i am very happy that finally a doctor has come to discover and to talk!...so bienvenido!mi padre diga mi-my father told me of that film but i have not seen it yet-when i do-i will contact you!

[lacarito77]

Hello! Im from Argentina, my name is Carolina and im almost a doctor,( im getting my degree in a few months) Im really interested on your videos and I ask you if you have seen the argentine film called "XXY" directed by Lucía Puenzo.This year was the winner for representing Argentina at the Oscar's next year as Best Foreing Film. If you see it i wanted to know what do you think about it...

Sorry for my english, and congratulations for your videos, are very instructive...:)

[jporezzoli]

Hola Caro! ni me entere de esa pelicula! la estan dando ahora? yo estoy viviendo en USA y llegue a este video de la misma manera, estudiando para los boards. Saludos

[lacarito77]

Hola! Esta película se dio muy poco tiempo en el cine, el año pasado, luego salió en video. Hace poco ganó el premio Goya al mejor film de habla hispanoamericana.Mirá los trailers acá y tb la podés bajar de la red! Suerte y saludos!

[lacarito77]

De todas formas te digo que la peli no aborda el tema científico, sino el lado psicológico y social de la cuestión.

[peaceandparty]

hola....eres xxy como yo?

no mira eso film en cine

y no puedo hablar y escribo en espagnol tambien!

ah well....hablas ingles?deutsch?francais?

suanja con los angelitos esta noche!

what is this film really like!?!?!

[lacarito77]

That's why i wanted to know ur opinion about it.Really i think there are lots of ways to "pass through" or "live" this...Thanks but im not a doctor yet!!Your spanish is good too! jajaja! Bye! Huggs from Argentina

[peaceandparty]

you will probably always be ahead of most docs if you do your own research-i mean i dont think any doctor has come and discussed naything with me or anyone i know with klinefelter syndrome......its simply a disaster on some issues......i am glad that you have a similar case to mine-you talk like i would-and so if you happen to be one of 50 that i get through to-then i can feel like mission accomplished!i am with you in spirit!

[marts33333]

i thank you again very very much for putting ur videos on here and for reading this really made me very happy i mean u have been on the injections for 13 years ive really just started and i feel as if im ahead of the docs just cus of how much ive researched this xxy

thank you again really thank you :)

u may have to read this from the bottom

[marts33333]

but i had to stop cus my body really was not looking like the men around me and all sorts of feelings u get then, and i tell u what if u suffer with the sweating problem that i do i tell u it so pisses me off but hey i started on 250ml injections every 4 week now on it every 3 weeks and i hope it will soon be every 2 weeks

[marts33333]

for the last 8ish months i have been going over in my mind how much more my life would have been if i was an XY but sods law im me now and i live with it it really is such a great feeling knowing that im not on my own i mean its not a great thing for us to have but i think you know what i mean, i mean i was a top swimmer for the county up until the age of about 17

[marts33333]

i really could go on for so long, but u are right we do see life in a much more different way the only thing i wish for is that i had picked up on this years ago, instead of just ignoring and hiding my body my hair line is well very different to xys my legs are thin i have a bulging tummy and the rest im sure u probably know about

[marts33333]

i found this so so hard and it really upset me i almost hid it from myself not just them and i tell u what girls think they worry about what clothes they wear well i can only wear certain clothes, for 7 years i wore 2 pairs of trousers everyday not to look bigger than others just so that i would fit in ,

[marts33333]

hello ive been watching all ur videos i really dont know where to start but thankyou so much all these videos have really helped im an xxy

and i only found out about 8 months ago after researching myself for 1 month i went to the doctors and tried to actually tell them what i have and i got no no it would not be that so did the tests and i was now im 23 and only for the past 5 months ive been on the injections my body really did not form in the way my peers were

[peaceandparty]

you must get a karotype test.....in fact the truth is i am not very knowledgable about what tests to get done-thankfully my mothers super and superior intelligence and wisdom on biological matters has seen me getting excellent treatment(well the best possible in ireland at the time)please refer yourself to xxytalk dot com and ask 2 things:why is peaceandparty banned from there?....and how does one get tested for being xxy?.......thx for your comments,interest and please come back!:)

[judojack27]

So, if one suspects one has this syndrome and would like to be tested for it, what is the name of the medical test and any idea the cost? Great informative videos by the way.

[sagefusion]

I don't meet many other Klinefelters, that have a atypical gender identity. I have been off my HRT for 9 years, and would like to say that my bones have not deteriorated yet, and ever since being off hormones, I've gotten my blood tested every 2 years and I remain in a the healthy range of "normal" levels of testosterone. I've encountered a lot of hostility for my choice not take HRT, from both Doctors and the medical community as well as for the Klinefelter community. I appreciate your blog.

[peaceandparty]

hi there!i am extremely happy that you have found me......i hope to talk in depthly with you if you are ever in the mood....i like what i have read so far from you

[peaceandparty]

and we feel as if we have never been balanced and that no-one really truly understands!please please realise.....by talking with your own kind(me and justin)...it can feel better

[peaceandparty]

oh hey!.....believe me if you can!....i also had troubles with the way my brother seemed to have it all and that i was given a bad deal by god or by life!....believe in yourself that you can pull yourself out of this slope of sheeet that is your life right now!if you are hormonally imbalanced you are going to have it tough!because we dont know what reality is....

[mvaneijck]

It is not managable for me, I always feel bad and insecure and I see no reason for living like this. I blame my parents for making me. I am always alone because no one understands me. Why do I wake up each morning in this shitty life and go to college.. WHY it has to be me, my brother has everything in life while I live in HELL

[KraterSr]

I definately have to read that book! Great video's they are a real support for me at this time!

I have been 22 years without the right amount of testosterone, so 4 months cant do any real harm, if you count out the moodswings!

[peaceandparty]

i thought i would have more mood swings........there is a change a noticeable change in my behaviour....i react more to little things....and people bring me down more but my attitude and philosophy of life that i have stuck with---trust in everything in life---has helped me greatly to realise the potentials of life(this comes from someone very financially unstable but mentally stable at last)

[adfgfds]

Do you get blood tests once a year? I have to get one once a year to monitor my testosterone level, and other things. If your body needs it, you should probably get back on it. Not taking it can resort to a lot of health problems if your body really needs it.

[peaceandparty]

i dont get blood tests ever really........did cavemen get blood tests?-----a controversial lol!

[peaceandparty]

ok........thank you all.......i am more sensitive without testosterone the last 4 months.........and i am also more aggressive without testosterone too.....yet many hormonally imbalanced people would argue with that...........my mother cant stand me without testosterone........and i think my behaviour is somehow mirrored in the people around me.....so being at home with my mother is proving very difficult these days......i love the comments so far on youtube...together we will make a difference

[adfgfds]

I'm 47XXY myself. I always wonder if an extra Y instead of an X would make you like....more of a man? Like, I wonder if an extra Y would make someone more aggressive instead of more sensitive like me?

[peaceandparty]

thats a question for the newest recruits for medical doctors and young people studying endocrinology.....its a sickening shame that whilst humans evolve....the education standards dont

[Just47xxy]

Thanks Gavan, for the writen informaton, I just could not put it into words myself on video yet!

Justin.

[nicanicamad]

You are such a breath of fresh air. I just simply enjoy watching you.

[WhatAboutBlighty]

I second that.

[nicanicamad]

yea, I'd be lucky to have him as a friend.

[peaceandparty]

i think you are pretty cool too!what do you like hearing or watching....because most of my videos are about intersex and xxyness!....i would love to know whats on your mind when you come here!:)

[peaceandparty]

hey !truly thanks for your support......you make rainy days into sunshine with your care and use of words!