dislocations dfinitely make things interestinh

[77095070]

I don't know if anyone told you but we have a high tolerance for lidocaine (as well as pain) so the patches do not seem to help us as well as they do the general population.

Mine never did anything for me but a co-worker who was in agony tried one of mine an felt relief in seconds, just another fun fact for EDS sufferers.

Maybe one day I will make a video and upload it, although I have been in pain since I was 8 overall I haven't done too bad.

Hang in there!

[MadMadamJess]

you look beautiful! you're so tough for being so honest with the universe....I hope you're having a decent day, sweetie. ;-) Muscoskeletal shit is horrible.... you are brave as hell. keep on keepin on, hon.

xoxoxo

luv,

jessie

[AJNitr0]

What do neck braces feel like? I've always wondered that.

[DarkWaterfall]

I have a small soft one. It takes some getting used to. I don't wear it all the time... when im on the computer (I also have a laptop, when I am sitting for long periods of times, and car trips. It makes a huge difference. My neck vertebrae woud sublux about everytime i turned my head to the right. Now i barely crack when i turn. . Good luck to you.

[noedir]

Just time, meditation, netflix & lots of different pillows. I credit a lot of healing success to lolcats, too.

[noedir]

I've done that (gotta love EDS). Hang in there.

[DarkWaterfall]

EDS iz da bomb! Ha, I spend too much time on LOLZCATS. Anyway, what haveyou done to help an injury like this... so far resting and immoblizing and heat (and of course my topical stuff and pain killers) are helping a bit. Anything else I should know about? Take care.

[inkie1990]

hi

there are good support networks in the netherlands, forums to. there are about 3000 people with eds in the netherlands (and about 10 % goes to forums) so its very personal there.

if i have a question i will ask you.

is you're shoulder healing? i hope it is.

bye

[DarkWaterfall]

I'm glad you have some good support networks in your area. a good support system is key ( along with good, understanding dr and meds... lol) in dealing with this condition.

MY shoulder is still very sore,s til very much out of place... but heaet seem to help, im going ot throw a lido patchon im a minute. Take Care

[DarkWaterfall]

Hi there, I'm sorry to hear that you suffer from this condition also. Are there any support networks in your area? I know there is a Ehlers-Danlos online forum in the UK, just google it.

I am 26. If you ever have questing feel free to shoot me a message here on youtube. Take care hon.

[DarkWaterfall]

hahaha, i just realised I said "should have made this video AFTER the vicodin" hahaha, tht should have been "BEFORE the vicoden... guess that's what drugs will do to tou...

[inkie1990]

hey darkwaterfall

i've been watching your blog since the beginning, beceause i've eds. i'm from the netherlands, so i'm sorry for the weird sentences i write :)

umm, im sorry to hear that you're in so much pain. i know what it is, and even the fact that we can endure pain a lot better dan healthy people, it isnt funny.

so i hope youre pain will become a lot better! and i will continue to see your videos!

ow question: do you go to school? (im 18, pre-university)

greets

[ReineDeLaSeine14]

Oh noes!