Added: 3 years ago
From: laurenvparrott
Views: 10,967
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  • Thanks for this video..My mother has MS and has been dealing with the disease over 20 years. She has been lucky to be in the first stage for many years and in the last year I have watched her decline. Her hand tremors just in the last 2 months have gotten so bad she can barely put her key in the door. She has just switched to a new neurologist and I just found out that she went off Avonex about 8 months ago because of cost issues. Do you know of any help as far as medication costs?

  • @dan14615 Oh gosh, I'm so sorry to hear that. I would definitely contact Biogen IDEC - Avonex's product. They can be reached at 800-456-2255. I wish you the best!

  • I totally Get it .Your cute .

  • @jessemac13 Aww, thank you!

  • A document that I find from the FDA web-site talking about Mercury poisoning causes more than 40 chronic health condition, Multiple Sclerosis is mentioned on page 32, please use google search & input text “Bernard Windham Mercury Exposure Levels from Amalgam Dental fillings pdf " , then you will found it.

  • ARE YOU SAYING WHEN YOU GET STRESS OUT FOR YOU THE TREMORS GET WORSE

  • @AWDESIGNS8 Yes, exactly.

  • Thanks for your comments. With all the new research being done on MS I hope there are bright horizons on the future for you. It is a high profile but relatively rare disease. Fortunately for MS sufferers it is an auto-response mitigated condition. Thanks for everything Lauren.

  • @chapter750 Thank you so much!! I hope there are bright horizons in the future for all of us!  I try to make the best of every situation! Good luck to you!

  • Great video. I have never been diagnosed with MS but have neuro impairments . I have exactly the same experience. With a one being doing the dishes and a six being talking to a physician or disability professional etc. As any stress or effort is called for my symptoms get worse. At zero relaxing in bed they are at a zero. I thought I was crazy. Thanks for the validation. You are charming and poised.

  • @chapter750 Thank you so much! You are so kind!! I wish you the best with everything!

  • Hi, I have watched your videos and seen the improvement over the years, You have given hope that I too will get better. I have terrible tremors and balance I had for 7 years off and on. I started researching when dr said possible MS. I am not diagnosed yet but I am on a wait list to get in to a MS dr. It takes for ever in Canada to get dx and I have a long wait. Hope your doing well. Keep well cheers.

  • @zinnia231 Thank you for writing! I promise that everything going to be ok! Keep moving and exercising, stay positive, and you'll do great! Please write to me anytime. I hope you can see a neurologist soon!!

  • hello i have watched your viedos i have ms and your viedos are very helpful!! i would like to comment back and fourth with you!! ur friend to be i hope shavon jackson

  • Hi Shavon! I would love to comment back and forth! I hope you're feeling well! :)

  • I was just diagnosed Sat. I only get tremors in my hands if i am stressed or overheated.

  • Are you taking any medication?

  • I start Rebif next week.

  • Good luck!

  • I love watching your videos Lauren. I've been so sick since April and no one has any idea what's wrong. Could be MS, could be lyme, could be CFS. All testing has been completely inconclusive. Regardless, you put a smile on my face everytime I watch. THANK YOU

  • Thank you so much for your comment! That really made me feel great! I wish you the very best and please feel free to write to me anytime!!

  • Hey im really sorry to hear that you have MS but im glad you are sharing your videos...you have an awesome personality, wishing you all the luck and happyness in the world for the future!

  • Thank you so much! You are so sweet!

  • npppp, thank you ;)!

  • please number your videos! it would be very helpful in following your story...

  • That's a great idea - thank you!

  • when i first was diagnosed i had tremors really bad i did have a lot of stress and i had to stop being friends with some people weren't very positive....but i haven't had them in a few months now

  • I am the same way - I stay away from people that are negative because it totally affects my health. I'm so glad you haven't had tremors lately!

  • Thanks Lauren, I have an MS video here, if you have time I would be honored if you check it out. Your zeal is an inspiration. I'll continue to tune in..

  • I loved your video! It was so touching!! I rated it with 5 stars :) Great work! Keep making more videos!

  • wow you're so positive! I have a chronic illness that is very debilitating and its good to see that there are some out there with chronic illnesses that have such a positive outlook on life :)

  • Oh thank you! I try very hard to stay positive!! I wish you the best!

  • Thanks so much for sharing...I've just gotten the strength to start talking about my MS openly. You're an inspiration to us all...

    Aaron

  • Hi Aaron! Thank you so much! I am so glad that you've gotten the strength to talk about your MS. I hope that you will find it to be healing to share your experiences with other people, especially with other MS patients. I'm always here if you need to talk about something!

  • sou8nds like a wonderful time, no termors is goood,i'm going to start tysabri soon:0). take xare

    Book on tape, yikes

  • Yes it was great! I'm so glad you're starting Tysabri!! Good luck!!

  • Hi Lauren, I've been watching your videos since january & finally decided to post a comment, just hope you know that following your journey has been an inspiration to me & that it's a huge help to members of my family & friends to try to understand what we MS-ers are going through. Best wishes Tony x (p.s. message left)

  • Hi Tony! Thank you so much! I'm so glad that my videos have been helpful to the people around you understand what we go through!! I wish you the very best!

  • Lauren! Thanks for reminding us of that - very true! Agata :)

  • Thanks for writing! It is true! We deserve it!

  • Its always inspiring to see you on your journey. Where do you get such a positive attitude? We all watch you and think you are great!

  • Thank you! I don't know where I get my positive attitude...I think I'm just very fortunate to have been born with an optimistic attitude on life! Thanks again for your comment!

  • Comment removed

  • Thank you so much! That means so much to me. I wish you the best with everything, and please write anytime!!

  • Haha you lucky chick! I went on a weekend to Chicago recently and had a complete BLAST! It's so true, sometimes these get aways are so very much needed to break the routine and stress of everyday life. Glad to hear you had such an amazing time!

  • Hey!! I know I was very lucky! I'm so glad that you had fun in Chicago! That;s my favorite city in America!! Yes, we all definitely need breaks from reality... it was so great hearing from you!!

  • Great hearing from you as well, and that you had a break from your systems. Honestly, from watching your last few months of videos, I'd have never guessed you were still having tremors at all, you look great! :)

    Chicago was AMAZING! Great first experience for me being in a big American city. People there were so nice :)

  • Thank you so much for saying that! It makes me feel really good because I feel like they are so noticable! And yes, Chicago is amazing and the people are extremely nice!! I can't wait to go back there!!

  • Ciao Lauren!

    It's always a pleasure to see your smile on video.

    Continua così!

    Ricky

  • Ciao Ricky!! è grande da sentire da voi!!

  • Its nice to feel "normal" isn't it? Its a blessing, it really gives you appreciation for the little things in life.

    You are looking good.

    Love to you!

    Jolie

  • Hi Jolie! It's great to feel "normal" every once in a while. After I got those massages, I actually felt like I didn't have MS for a short amount of time :)

  • Dude i understand the sing along stuff in the car , sometimes you just needa chill out and thats the best way 2 do it , man my myspace is full of the most random dance videos its kinda sad but it helps me chill out. Peace out take care and your hot lol.

  • You're awesome - I bet you're fun to party with :)

  • omg your 24 , am 24 your my youtube crush lol

  • We r waiting for ur next video Lauren :)

    I wish u all the best

  • I'll be making more soon! I wish you and your family the best!

  • You are a joy to the rest of us MSers. Your advice about stress was right on the button. I am old enough to be your Mom, but I feel I have learned from you. I think you were put on this earth to help teach patience, strength from within, hope, and most of all, the importance of living every day, every minute as if it were our last. I know as a fellow MSer that you don't feel well all the time, but you make the rest of us smile when we see your lovely smile. Thank you Lauren for being you! Kitty

  • Hi Kitty! Your message was so beautiful - thank you very much!! It really means a lot to me. I'm devoting my life to helping other people in the world who have challenges to realize that we can prevail! Thanks again and I wish you the very best!

  • Great story Lauren!! Glad to see ya again on the Tube.

  • Thank you!! It's great to hear from you!

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