thanks for posting this video...hope you're doing okay. I have noticed that my body is very intolerant to pretty much all medication (and sensitive to sugar too), no matter how benign it may be, even vitamin D supplements. I think this could be a clue....what if it's something in how our bodies digest/break down/metabolize food and meds that release toxins into our body that cause the fatigue? My opinion is that somewhere in the digestive system is the root of our problem.
I wouldn't assume there isn't any point, rosy. In fact, I see that bit of improvement as a glimmer of hope that we were on to something with the anti-virals. I would continue to watch the research. Wishes of hope to you and your health.
I am 37 and have had this obscene illness for 4 years and wondered if anti-virals were a possible cure as being bedbound and in pain I so wanted to think that there might be drugs to help. After seeing what you went through I now know that there probably isnt any point so thank you so much for being so brave and sharing your story.
You and I have a lot in common, Muddipuppy. Would you consider being chat pals online? I've been bedridden for 3 years now. I'm 31, with two little boys. I'm considering more experimental treatment but would love to talk to you first. How can I get in touch?
@muddipuppy thank you, you are truly brave. I am also bedridden with this stupid disease and I know all too well the desperation we reach to find anything to help us. Good luck with your journey.
thanks for posting this video...hope you're doing okay. I have noticed that my body is very intolerant to pretty much all medication (and sensitive to sugar too), no matter how benign it may be, even vitamin D supplements. I think this could be a clue....what if it's something in how our bodies digest/break down/metabolize food and meds that release toxins into our body that cause the fatigue? My opinion is that somewhere in the digestive system is the root of our problem.
SpiceyGrooves 1 year ago
so brave to leave this video for us who are suffering from CFS. Such a warrior God bless you and your family
myeyesropen40 1 year ago
I wouldn't assume there isn't any point, rosy. In fact, I see that bit of improvement as a glimmer of hope that we were on to something with the anti-virals. I would continue to watch the research. Wishes of hope to you and your health.
muddipuppy 1 year ago
Thanks Muddipuupy, I won't give up hope!
rosybunny100 1 year ago
I am 37 and have had this obscene illness for 4 years and wondered if anti-virals were a possible cure as being bedbound and in pain I so wanted to think that there might be drugs to help. After seeing what you went through I now know that there probably isnt any point so thank you so much for being so brave and sharing your story.
rosybunny100 1 year ago
You and I have a lot in common, Muddipuppy. Would you consider being chat pals online? I've been bedridden for 3 years now. I'm 31, with two little boys. I'm considering more experimental treatment but would love to talk to you first. How can I get in touch?
juliehunt30 1 year ago
the antiviral was foscarnet, significantly stronger than valcyte and administered via IV.
muddipuppy 1 year ago
@muddipuppy thank you, you are truly brave. I am also bedridden with this stupid disease and I know all too well the desperation we reach to find anything to help us. Good luck with your journey.
casielee18 1 year ago
Bless your heart! You been thru it! I am one of the lucky ones so far, altho I can't work, I haven't been hospitlaized but once for a drug reaction.
ironbith 1 year ago
What was the name of the anti viral?
casielee18 1 year ago