You are a stunningly beautiful girl! Darling, how i feel for you, so young, to have to deal with MS. I was just diagnosed, at 54. all these years weird symptoms that came and went. i want on my headstone I TOLD YOU I WAS SICK. i felt like a hypochondriac, but finally, here i am diagnosed. anyway, i want you to know that mine began at 26, yet i worked full time (still do) and went through graduate school, had a family, etc. wait for symptoms to end, then just keep going! God bless you hon
I have lived with Optic Neuritis now for 6 yrs also in my right eye. I have had on and off again episodes, some more difficult than others & the longest daily episode lasted 8 months. I have not been diagnosed with MS and all 4 of my MRI scans are clear. Contact me if you would like:
Hello, I was looking at your videos about your MS story, you are a lovely person, how are things now? I live in the UK what part did you visit? The very best wishes.
It's so good to see an Australian discussing MS. I'm seeing a Neurologist now to investigate for it as I've had tingling, twitches, blurred vision and weakness. My MRI isn't until June 18th. I HATE the waiting!
it vary's in different people I have had MS for 8 years and it affects the right side of my body. At the precise moment I am in England but will soon go to a country near the equator which in fact helps me alot and when I come back my doc is just really amazed to see the improvements in me in fact my neurologist told me if you had been born over there then MS would not have been the case. So my advice is to go places which are closer to the equator or try to spend alot of time outside in the sun
Hi Venom7707. I've lived close to the equator since birth and I burn very easily and live in a country with very high skin cancer rates so I tend to avoid the sun. However in winter I've been taking some time to sit in the sun on sunny afternoons when the UV is low and maybe it helps!
lucky you, australia does have sun in the winter but over in england its a bit like north pole anyways good luck to you. I do hope there is a cure one day, the earlier the better, I am currently in the process of writing a letter to my PM obviosluy gordon brown stating a cure for this condition or benefits for life!
Its really annoying I have the skills, I graduated but can't do the job because of my symptoms.
I have had fasciculation all over my body since nov 08, i also have had tingling in my both soles and fingertips of both hands, plus burning sensations, this all started all of a sudden, i have been to amy GP, a doctor fiends of mine and neuro who have done a physical nuro examination and said that I dont have MS. but my body fascilations (twitches) and tingling dont go, i also feel tried, but no diagnoses which causes me a lot of anxiety. :(
I am sorry that you have MS and that you have these problems lately.
Being newly diagnosed was the scariest time I can remember. I was diagnosed 6 years ago.
Your video helped me because of the headaches I get behind my right eye are intolerable. Hearing you talk has made me resolve to see the neurophtamologist.
Thank you and bless you in these hard times you are going through.
Thank you for sharing. My husband has MS and was just diagnosed in July 08. He had symptoms before being diagnosed but nothing like the ones he had in August just after being diagnosed. It is amazing that they reared their ugly heads after he learned his diagnosis, I wonder what causes that? Apparently he isn't the only one this has happened to. He's doing well and on Copaxone, the last MRI showed no new lesions and his symptoms are mild now. We're thankful for that. Take care.
Great video! I agree with Tori - keep making these videos because not only is it helpful for you, but it's helpful for us! You look great and I really hope the Betaferon works out for you. And don't worry, you will get used to it! Keep in touch!
Hi There! Brave video! I go today for my "official" diagnosis and to determine treatment. I am so nervous my stomach hurts. I am go glad you decided to make a video. I think it really helps to connect with others. I don't know anyone who has MS other than than those I have met on youtube. I would be going crazzzzy if I didn't have my youtube friends to compare and contrast with. Keep us updated!!!
Well done for putting your story out there. The more stories I hear the more I realise that even though we can have different symptoms it is quite a similar process we go through; strange symptoms to diagnosis, response to having a disease and then the ongoing day-to-day adapting. We all respond differently, at different speeds so the next few months as you learn and are more in tune with what your body is doing you will no doubt learn a lot about yourself. You will be ok. love Kerri xo
You are a stunningly beautiful girl! Darling, how i feel for you, so young, to have to deal with MS. I was just diagnosed, at 54. all these years weird symptoms that came and went. i want on my headstone I TOLD YOU I WAS SICK. i felt like a hypochondriac, but finally, here i am diagnosed. anyway, i want you to know that mine began at 26, yet i worked full time (still do) and went through graduate school, had a family, etc. wait for symptoms to end, then just keep going! God bless you hon
SkyBlue1031 1 year ago 2
I have lived with Optic Neuritis now for 6 yrs also in my right eye. I have had on and off again episodes, some more difficult than others & the longest daily episode lasted 8 months. I have not been diagnosed with MS and all 4 of my MRI scans are clear. Contact me if you would like:
Jenn(at)JennDesigns(dot)com
facebook(dot)com/JennEnglish26.2
opticneuritis 1 year ago
Hello, I was looking at your videos about your MS story, you are a lovely person, how are things now? I live in the UK what part did you visit? The very best wishes.
Regards Martin
martinclembo 1 year ago
Good vid. Hope you're ok.
bangthatdrumb 2 years ago
It's so good to see an Australian discussing MS. I'm seeing a Neurologist now to investigate for it as I've had tingling, twitches, blurred vision and weakness. My MRI isn't until June 18th. I HATE the waiting!
jennidee333 2 years ago
it vary's in different people I have had MS for 8 years and it affects the right side of my body. At the precise moment I am in England but will soon go to a country near the equator which in fact helps me alot and when I come back my doc is just really amazed to see the improvements in me in fact my neurologist told me if you had been born over there then MS would not have been the case. So my advice is to go places which are closer to the equator or try to spend alot of time outside in the sun
Venom7707 2 years ago
Hi Venom7707. I've lived close to the equator since birth and I burn very easily and live in a country with very high skin cancer rates so I tend to avoid the sun. However in winter I've been taking some time to sit in the sun on sunny afternoons when the UV is low and maybe it helps!
eclipsedeyes 2 years ago
lucky you, australia does have sun in the winter but over in england its a bit like north pole anyways good luck to you. I do hope there is a cure one day, the earlier the better, I am currently in the process of writing a letter to my PM obviosluy gordon brown stating a cure for this condition or benefits for life!
Its really annoying I have the skills, I graduated but can't do the job because of my symptoms.
Venom7707 2 years ago
I have had fasciculation all over my body since nov 08, i also have had tingling in my both soles and fingertips of both hands, plus burning sensations, this all started all of a sudden, i have been to amy GP, a doctor fiends of mine and neuro who have done a physical nuro examination and said that I dont have MS. but my body fascilations (twitches) and tingling dont go, i also feel tried, but no diagnoses which causes me a lot of anxiety. :(
rezza01 2 years ago
so a physical neuro pass didnt need an MRI since i havent had any optici nuetritis or loss of feeling in hands or legs.
rezza01 2 years ago
i like your video- just be confident: we can do it!
cruchinet 2 years ago
It is great that you made a video!
I am sorry that you have MS and that you have these problems lately.
Being newly diagnosed was the scariest time I can remember. I was diagnosed 6 years ago.
Your video helped me because of the headaches I get behind my right eye are intolerable. Hearing you talk has made me resolve to see the neurophtamologist.
Thank you and bless you in these hard times you are going through.
IRISH
irishbear76 2 years ago
Thank you for sharing. My husband has MS and was just diagnosed in July 08. He had symptoms before being diagnosed but nothing like the ones he had in August just after being diagnosed. It is amazing that they reared their ugly heads after he learned his diagnosis, I wonder what causes that? Apparently he isn't the only one this has happened to. He's doing well and on Copaxone, the last MRI showed no new lesions and his symptoms are mild now. We're thankful for that. Take care.
cattywonky 2 years ago
Great video! I agree with Tori - keep making these videos because not only is it helpful for you, but it's helpful for us! You look great and I really hope the Betaferon works out for you. And don't worry, you will get used to it! Keep in touch!
Lauren :)
laurenvparrott 2 years ago
Hi There! Brave video! I go today for my "official" diagnosis and to determine treatment. I am so nervous my stomach hurts. I am go glad you decided to make a video. I think it really helps to connect with others. I don't know anyone who has MS other than than those I have met on youtube. I would be going crazzzzy if I didn't have my youtube friends to compare and contrast with. Keep us updated!!!
XOXO
Tori
ToriUTK 2 years ago
Thanks so much Tori! I hope everything goes well at your appointment. I know it feels like going in for sentencing sometimes!
eclipsedeyes 2 years ago
Well done for putting your story out there. The more stories I hear the more I realise that even though we can have different symptoms it is quite a similar process we go through; strange symptoms to diagnosis, response to having a disease and then the ongoing day-to-day adapting. We all respond differently, at different speeds so the next few months as you learn and are more in tune with what your body is doing you will no doubt learn a lot about yourself. You will be ok. love Kerri xo
kezzcass 2 years ago
Thanks for the comment Kerri, I think you're right about it being a similar process. I hope you're doing well right now :)
eclipsedeyes 2 years ago