The many faces of Tuberous Sclerosis

[Msladyboo15]

i have tsc i was 5 when i found out

&& tsc has made me strong i hope

to meet others with it add me &

hopefully we can become friends

[Laespecialdelsur]

Thanks so much, my sister have it, she is 27 now, my sister is in near-vegetative state since she was 15 years and for survive needs to be fed by a gastric tube because the esophagus does not work. I'm so sad because every day is nearest to her dead, and I'm scared too, she is really sick, but I love her.

Sorry for my bad english, I hope you understand. All my love from Spain.

[myactseb]

i noticed some of my friends were in ur vid! awesome job too!

[sixinonefam]

my grandson was 1 month old when i noticed he was possibly having seizures i went on you tube and typed in infant seizures sure enough he was having infantile spasms 3 months later he was diagnosed with tuberous sclerosis and 1p36 deletin syndrome hes 9 months now

[firewarrior3247]

my lil brother is 12 and has TS...i love him with all my heart...i sometimes feel so said that i fight with him all the time :'( i feel like crying now :(

[Ceeferd]

Thank you. My daughter has TS and it helps to remember that we are not alone.

[sbprodigital]

Gracias desde Mexico, thanks from mexico.

my daughter of 8 years old has T.S.

[KlenexTissuesRoxs]

I have it

[cruzinNmy64]

i have tuberous sclerosis

[michaellemke]

I was born with it

[Garner65]

My Brother is 12, and he was diagnosed with T.S. when he was 2. He spent 8 weeks in the Hospital this summer having a tumor in his brain removed. He also has them in his Heart, Lungs, Eyes and Kidneys. He also has seizures severaltimes a month. It's scary, but I have lived with it all my life.

[nnbduke]

Very nice video

[tsmomof2plus1]

Thank you :)

[ashole07]

beautiful video, many thanks!

[tsmomof2plus1]

Thank you so much I'm glad you liked it :)

[ashole07]

Good luck to you and your loved ones, and many blessings