Thanks for sharing. This is beneficial to others with the condition, and to medical students who are learning about various disorders. This type of neurological movement disorder is normally progressive, and ultimately devastating. (Pathophysiology classes typically give Huntington's as the classic example. It's instructive to see a type that is transient, offering a chance of recovery.
You are incredible people and I wish only the best for your daughter and yourselves, it seems like you are through the worst of things, if you would like some information on the disorder leave a response here, I have researched fairly extensively myself and as per post before regular checkups with a cardio specialist and the penicillan for rheumatic recurrance prevention are what we have been doing, my son has also been active in Judo for over 4 years now for the co-ordination and fitness
I am a parent who have a boy who had Sydenhams when he was 8yo and is now 14, it was incredibly traumatic at the time as the doctors could not diagnose the disorder, he was flown to specialist to diagnse this and we all went through a traumatic time for 6 months but he has recovered practically fully and is on penecillin till he is an adult as a preventative measure for rheumatic fever re-occurance. He has regular 6 monthly ECO Cardio Graphs to check the valves of the heart but is very healthy
Yes she was perfectly healthy before the chorea. About a week before the onset of the severe symptom she was a little clumsy but nothing severe enough to draw attention. Most children fully recover from Sydenham's Chorea over time although some are left with behavior disorders (my daughter was not tho). The condition is caused by an over active immune response to strep. The body attacks the nervous system, thus once the infection is over the healing can begin.
@SooozieQzie we´re from Holland. our 12 years old girl got Sydenhams chorea , the symptoms lasts for a half year and she/ we were very lucky it didn't last longer!! I recognize the clumsiness at the beginning! It is an awfull disease, I think most people don't take it serious because it looks strange...Our girl recovered very good but I know not every child does....some are left with all kinds of disorders, it's sad. I wish everybody understands it;s no nonsense!!
I'm a medical student and it really makes me wonder how she has gone through all this ordeal, she seems motivated and positive about it.As a parent, what was your role in keeping her this way?
Also, it seems that frustration is a reasonable thing to expect,How did you fight it when it happened?
Please accept me as a fan of you and your daughter,your help in enlightening and assuring other parents brings hope and it's really appreciated. and your daughter is plain awesome! her spirit is amazing.
@TroubledSouI All together, the Chorea was a 5 month ordeal. Recently we got the all clear from the Neurologist. We did the best we could to keep life as normal as possible during this time. We arranged the bathroom for handicap access and rented a wheelchair. She needed assistance with most all daily activities including feeding. We saw a family counselor for support and prayed often. God answered, she has not long term problems.
@SooozieQzie so you mean she was in this condition during 5 months, healthy before and now she's healed? i'm sorry, i just don't know anything about this disease
@Leyuann Yes she was perfectly healthy before the chorea. About a week before the onset of the severe symptom she was a little clumsy but nothing severe enough to draw attention. Most children fully recover from Sydenham's Chorea over time although some are left with behavior disorders (my daughter was not tho). The condition is caused by an over active immune response to strep. The body attacks the nervous system, thus once the infection is over the healing can begin.
@Leyuann My daughter suffers from this condition also. It began when she was 13 in 2005. The first two years she was hospitalized 14 times and had 27 IVIG's. She had to relearn to walk more than five times. Year two her neurologist had her go to a ENT, she had her tonsills and adnoids removed. Come to find out, that the strep was impacted in her adnoids. For five years she had a monthly injection of PCN. She is now in her second year of college. Has bouts of chorea during stress.
Hi again neuroschizl, voyeuristic and Sydenham's are two words I never would use in the same sentence. But since this video is possibly confusing let me clarify. I am not a physician, just a mother of a child who had an illness that is rare in the United States. Upon researching what caused her neurological disorder I found very little on Sydenham's Chorea. I posted her journey through the sickness in efforts to help other scared parents out there understand what was happening to their kids.
That made me smile. She's very brave. And, yes, her optimism and smile are both infectious. :-)
allenjenkins06 3 months ago
Thanks for sharing. This is beneficial to others with the condition, and to medical students who are learning about various disorders. This type of neurological movement disorder is normally progressive, and ultimately devastating. (Pathophysiology classes typically give Huntington's as the classic example. It's instructive to see a type that is transient, offering a chance of recovery.
BTW, her smile is contagious!!
rmcdaniel423 4 months ago
she so cute. hope she ll be fine. from Russia with love
SumeRokr 5 months ago
good on you mate! glad to hear you recovered well!
ashwallin1 5 months ago
good on you mate! glad to hear ou recovered well!
ashwallin1 5 months ago
You are incredible people and I wish only the best for your daughter and yourselves, it seems like you are through the worst of things, if you would like some information on the disorder leave a response here, I have researched fairly extensively myself and as per post before regular checkups with a cardio specialist and the penicillan for rheumatic recurrance prevention are what we have been doing, my son has also been active in Judo for over 4 years now for the co-ordination and fitness
aussiesparky1 7 months ago
I am a parent who have a boy who had Sydenhams when he was 8yo and is now 14, it was incredibly traumatic at the time as the doctors could not diagnose the disorder, he was flown to specialist to diagnse this and we all went through a traumatic time for 6 months but he has recovered practically fully and is on penecillin till he is an adult as a preventative measure for rheumatic fever re-occurance. He has regular 6 monthly ECO Cardio Graphs to check the valves of the heart but is very healthy
aussiesparky1 7 months ago
The girl is so cute ... I'm sorry, but I was glad that she is better!!!
ivanfink1 8 months ago
Yes she was perfectly healthy before the chorea. About a week before the onset of the severe symptom she was a little clumsy but nothing severe enough to draw attention. Most children fully recover from Sydenham's Chorea over time although some are left with behavior disorders (my daughter was not tho). The condition is caused by an over active immune response to strep. The body attacks the nervous system, thus once the infection is over the healing can begin.
SooozieQzie 9 months ago
@SooozieQzie we´re from Holland. our 12 years old girl got Sydenhams chorea , the symptoms lasts for a half year and she/ we were very lucky it didn't last longer!! I recognize the clumsiness at the beginning! It is an awfull disease, I think most people don't take it serious because it looks strange...Our girl recovered very good but I know not every child does....some are left with all kinds of disorders, it's sad. I wish everybody understands it;s no nonsense!!
lind1905 5 months ago
I'm a medical student and it really makes me wonder how she has gone through all this ordeal, she seems motivated and positive about it.As a parent, what was your role in keeping her this way?
Also, it seems that frustration is a reasonable thing to expect,How did you fight it when it happened?
Please accept me as a fan of you and your daughter,your help in enlightening and assuring other parents brings hope and it's really appreciated. and your daughter is plain awesome! her spirit is amazing.
TroubledSouI 9 months ago 2
@TroubledSouI All together, the Chorea was a 5 month ordeal. Recently we got the all clear from the Neurologist. We did the best we could to keep life as normal as possible during this time. We arranged the bathroom for handicap access and rented a wheelchair. She needed assistance with most all daily activities including feeding. We saw a family counselor for support and prayed often. God answered, she has not long term problems.
SooozieQzie 9 months ago 3
@SooozieQzie so you mean she was in this condition during 5 months, healthy before and now she's healed? i'm sorry, i just don't know anything about this disease
Leyuann 9 months ago
@Leyuann Yes she was perfectly healthy before the chorea. About a week before the onset of the severe symptom she was a little clumsy but nothing severe enough to draw attention. Most children fully recover from Sydenham's Chorea over time although some are left with behavior disorders (my daughter was not tho). The condition is caused by an over active immune response to strep. The body attacks the nervous system, thus once the infection is over the healing can begin.
SooozieQzie 9 months ago
@Leyuann My daughter suffers from this condition also. It began when she was 13 in 2005. The first two years she was hospitalized 14 times and had 27 IVIG's. She had to relearn to walk more than five times. Year two her neurologist had her go to a ENT, she had her tonsills and adnoids removed. Come to find out, that the strep was impacted in her adnoids. For five years she had a monthly injection of PCN. She is now in her second year of college. Has bouts of chorea during stress.
cyclekhat 2 months ago
No thank goodness
SooozieQzie 9 months ago
is this condition permanent?
aspirin85 9 months ago
Hi again neuroschizl, voyeuristic and Sydenham's are two words I never would use in the same sentence. But since this video is possibly confusing let me clarify. I am not a physician, just a mother of a child who had an illness that is rare in the United States. Upon researching what caused her neurological disorder I found very little on Sydenham's Chorea. I posted her journey through the sickness in efforts to help other scared parents out there understand what was happening to their kids.
SooozieQzie 11 months ago
Please provide more information so as to appear less voyeuristic and more informative/helpful. Thanks.
neuroschizl 11 months ago