Lupus Vlog 1-10.12-12 Another Biopsy... Stem Cell Transplant

[DjTina12]

You look like me...I have dermatomyositis. Another autoimmune disorder that affects the muscles.....

[treappling1]

@DjTina12 I looked this up and the treatment is steroids so I don't think this is what it is. I've had IV steroids 5 times and then my daily amount I take and it is still here. Plus I read some of the pathology on it and those words did not show up on my path report but who knows. How are you handling the dermatomyositis?

[ironbith]

That lady sounds nice at the store. O man! Bummer that it didn't work!

[treappling1]

@ironbith She is really nice. I look forward going in there just to see her.

[ironbith]

{{{{{{{{hugs}}}}}}}}}}}

[treappling1]

@ironbith xxoo

[TheAnnamarie49]

Hope your doing better It's been 7 days since heard from you

[treappling1]

@TheAnnamarie49 Time flies by so quickly when you don't feel well and have extra added stress. I kept waiting one more day hopefully I will have an answer and I will make a vlog... well it is almost 2 weeks later and I am still waiting. Good thing I made another vlog. LOL

[modelnsinginme19]

I think we have very similar Allergies....it sucks because it makes it very difficult & scary when trying new meds, lotions, foods, & etc. Not knowing whether your body is going to react badly to it or not....went to see an allergist a couple of months ago & they really weren't that helpful & prescribed me an epipen that I refuse to use so when i do have reactions I normally just deal with it & take benedryl if need be...so happy that Dwayne is such a great support system for you..take care =)

[treappling1]

@modelnsinginme19 We do have very similar allergies. The part I dislike the most is the foods. Not being able to try new things because I'm afraid I'll end up in the ER.

[Kellye812]

I'm so sorry you are feeling bad. Hopefully the biopsy comes back negative. Hang in there sweetie, thoughts & prayers to you & family. Kellye

[treappling1]

@Kellye812 Still waiting for final answer on biopsy. We do know there is something there.. just what it is and the treatment is what is in question.

[SheWhoFeels]

Sweetheart, you are nothing short of amazing. I'm sorry you have had such a rough Journey. I hope the biopsy offers further insight into what's going on w/ your poor face. Yay for surviving IVIg again! Another one down! *hugs* I hope you slept well sweetie. Yay for Dwayne going with you! Dwayne gets so many Good Man Points! ^_^ I'm so glad you have him. Much love & be optimally well! Xoxox

[treappling1]

@SheWhoFeels So far no definitive answers on the biopsy. Still waiting.

[imsassi]

OMGoodness, is there anything else that can go wrong? I think you have just about covered everything. lol Congrats, I saw today where you were a winner of the polish - way to go!!! I think your hair would be so cute to take styling gel and smooth down the sides and feather it towards your face at the ears then run your fingers thru the top for a "spiked look"..my cousin has hers that way, its very short and adorable. Do U think U could B alergic to the ster. cream? Maybe baby lotion?

[treappling1]

@imsassi That is exactly how I fix my hair.... when I fix it! LOL  One day I will have energy enough to do it everyday. My hair is still pretty short so I don't get quite the effect I want on the sides but before long it will be there but as for right now this is all I can handle. Yes, I did win the polishes! I am so excited.

[thistlerocks]

sounds like when you try a new lotion, you should just do a little spot to get your system ready for it. Kinda like people get allergy shots so they can handle allergens. Just a thought. Yea for hair.

[treappling1]

@thistlerocks I told someone else that would seem like the logical thing to do! Maybe one of these days my brain will kick in. LOL

[rivers1anne]

Gentle hugs, Tremia

[treappling1]

@rivers1anne Always needed. :)

[Kimmirisk]

I'm glad you have a good team of doctors helping you. How is Buddy? Haven't seen him lately. Thank you for the great video. I like it when you take us through your day. Warm hugs! :-)

[treappling1]

@Kimmirisk Buddy is doing great. I can hear him snoring right now. He healed really nicely from his surgery.

[TheAnnamarie49]

You are looking and talking stronger every day ,just a word of advise ,I am so sensitive to everything because of allergies I learned to only use small amount in small area to see how I am going to react ,even if Dr gives it to me ,and med I will only take small amount to start ,great to see you

[treappling1]

@TheAnnamarie49 Yes, that seems like the logical thing to do doesn't it! LOL Maybe I'll learn one of these days.

[jtguppy]

I'm sorry that you are still on such a rollercoaster of feeling better, feeling awful. Oh dear Tremia. A good note is that your dermatologist seems determined to find ways to help. I think we like her! I'm glad that the IViG is over now. 4 needle sticks YUCK. I always feel I'm so darn grown up because I don't complain about 1 when I have blood tested...but I'm a wimp. You remain my HERO! Hugs, many hugs, to you and your rock Dwayne. Jo-Anne in Vancouver.

[treappling1]

@jtguppy At least the IViG is over for that time but I have to do it for at least a year. :( I wasn't happy with all the needle sticks either. My arms are pretty bruised right now.

[LupusLife]

Glad to see by the end of the video you seem to be feeling better even though you're worn out. My thoughts are always with you. You're an inspiration of endurance and patience.

[treappling1]

@LupusLife I'm still congested at this point but doing a lot better.