I was diagnosed with MCTD when I was 19. I Have it quite severe & find everyday tasks a challenge. The most shocking thing is the lack of information & awareness for this disease. So I have set up a Facebook page where we can get together & talk about our illness with people who understand. I am in the process of trying to start a registered charity/foundation.
I was diagnosed with the same thing in january. I had the lumps on the soles of my feet and hands and could just manage to walk. The pain was unbearable. I had lots of weird symptoms, swolen hands and feet, very bad joint pain, fever, nightsweats, skull pain, headache. It was caused by sarcoidosis in my case. Im still receiving treatment. I wish you the best of luck and hope you feel better.
Garlic works very well, indeed, and plenty of water...i noticed these a few days ago, and i take aged garlic daily & they are already going away, don't hurt, aren't swollen, or as red, and it's only been two days. they will probably be gone in another day or two...i thought they were bites and until yesterday, i had not even heard of this condition. i figured since i couldn't see any trace of holes or fang marks that a bug or spider would've left, that i needed to find out what else it could be.
i have erythema nodosum as well. Doctors were giving me prednisone, but it was messing me up. i was told this disease could be deadly if not taken care of. Ive found out that Garlic pills or vitamins work well, without the side affects of prednisone. try tem out and let me know if they work for you all.
Hope it clears up soon, the last time she has was over new years - two years ago - and couldn't walk without crutches for two months. Hopefully it clears up soon.
My buddy gets shingle's and has alot of problems like you have and he has hiv...I think you need a test for hiv aids.. You be a dancer I would think you go into something dirty,,,,,
I was diagnosed with the same thing yesterday! I have them on my legs, 4 on my right and 9 on my left. I am also a dancer and this hurts so much that I almost can't dance, and I have to perform tomorrow. They told me that it's from my past case of mono (I had it a few months ago). I have alot of hitting my heels, stamping, and jumping in my dances so it hurts ALOT! *hugs* I hope they find out what's causing it for you exactly, I hope that for everyone because I don't even want to walk right now.
@princess3night3 I'm so sorry to hear that! It's admirable that you try working through your pain, but make sure that you are taking care of yourself, eating enough, getting enough sleep! Do they know if your erythema is secondary to another condition? Mine is because I have something in the same family as lupus, but there are other issues, even food allergies, that can cause them to happen for some people.
@purplelirpa Thanks, I am trying to work though it but it hurts alot! As you know! They think mine is due to having mono a few months ago (which I got from handling money at a grocery store), but it could be due to an allergy that runs in my family called celiac's diesease. It's an allergy to anything with gluton in it (wheart, barley, rye) and my mom has it as well as cousins that I have also have it so it's a possibility, and if they come back then I guess I know what it's from...
@princess3night3 That's erythema annulare centrifugum symptoms.....avoid to eat tomatoes,"blue cheese",no hot pepper,check if u have any infection in your body ,I have to same problem years...sorry but is no cure for this symptoms,is all about reaction even to much stress provoke this erythema annulare centrifugum symptoms, should go away buy itself in couple of days ,good luck.
@ravendon usually permanent. This is really a symptom of the larger disorder I have: Mixed Connective Tissue Disease which is in the same family as lupus.
Two things. This video has really helped me get an idea in my head of what erythema is, so thank you. Second thing... is that my dog in your backyard?! LOL! It's not, because he's in mine, and I live in South Australia... but wow they could definitely be twins.
i have EN too... ive been suffering for almost 3 yrs now, my legs look alot like of a dalmatian coz of the dark marks from my nodes, it heals but when its cold, it becomes swollen again, i have been on antibiotic and steroid treatment but it's still with me....
That seem super sucky. I have a different autoimmune disorder called Crohn's Disease. It's internal, in the digestive tract. It's a bad deal. Had to have surgery; not cool. I don't have to worry about suppression from a period. LoL!
Might try deep meditation, try to get into a deep Theta or delta brain wave state, once there ask for good health. check out probable future . com or Gerald O'Donnel
Hello miss! You are not alone! Im 25 years old...I got that when i was 16..Each years they come back maybe one or two times..Erythema Nodossum....You got that on arm and i got that on legs..I can walk when its starts to get hurt. If you wanna speak! Dont worry I can understand what you live! (sorry my english is bad sometimes lol im french)
@Katefromhell I was diagnosed with EN about 4 weeks ago. It is very painful and my doctor is in the process of trying to find out what is the cause. Did you ever find out what caused your EN? Also, do you know what triggers yours to come back? I am sad to hear that this is something that can re-occur year later. I hope your EN is under control and you're feeling well.
oh My God...I just diagnosed for EN yesterday. It's very painful and almost make me can't walk. Are you sure that this disease can re-occur in a year???
What treatment you've got from ur doctor? I've got corticosteroid (methylprednisolon).
Are you feeling lethargic also? How are your potassium levels? If it happens more frequently during cycles it could be a signal from your brain to your autoimmune system, tricking it into reaction. There are a few other disorders like this Rheumatoid Arthritis is one off hand, but much more debilitating. Whatever the case maybe hope you are on your way to feeling better. :0)
@qwkkllr71 not as lethargic as I've felt sometimes in the past, but certainly not at my top energy levels. When my potassium has been tested in the past, it's been at different ranges. Although, one of those times was when I had pneumonia and it was super low. Right now, I'm not on any medication for this disorder, as my symptoms are very mild considering what they have been before. Hormones play a huge part in the immune system, so there's some cross-communication.
@purplelirpa Same thing happened to my wife. It only happened once near the start of her pregnancy. Her doctor told us sometimes this happens near the start of pregnancy due to the short drop in her immune system. Just a question...sorry
I have had Erythema Nodosum for over 20 years.
Tried EVERYTHING from antibiotics to steriods to no avail.
Finally, I found out about Serrapeptase. If you catch the knots when they are tiny then the recommended dosage works, take more for severe outbreaks.
(This is not spam or a sales pitch.)
You can get Serrapeptase from just about any health food store. It's safe and effective for many other inflammatory processes.
Check w/ur Dr first & then try it. Hope it works for you!!! God bless!
AmiCracy 1 week ago
This has been flagged as spam show
I was diagnosed with MCTD when I was 19. I Have it quite severe & find everyday tasks a challenge. The most shocking thing is the lack of information & awareness for this disease. So I have set up a Facebook page where we can get together & talk about our illness with people who understand. I am in the process of trying to start a registered charity/foundation.
Search Project MCTD Aware on facebook!!
Abigail xx
projectmctdaware 2 months ago
I was diagnosed with the same thing in january. I had the lumps on the soles of my feet and hands and could just manage to walk. The pain was unbearable. I had lots of weird symptoms, swolen hands and feet, very bad joint pain, fever, nightsweats, skull pain, headache. It was caused by sarcoidosis in my case. Im still receiving treatment. I wish you the best of luck and hope you feel better.
AliensVsCoronationSt 5 months ago
it looks like ringworm to me :/
salakast 7 months ago
Garlic works very well, indeed, and plenty of water...i noticed these a few days ago, and i take aged garlic daily & they are already going away, don't hurt, aren't swollen, or as red, and it's only been two days. they will probably be gone in another day or two...i thought they were bites and until yesterday, i had not even heard of this condition. i figured since i couldn't see any trace of holes or fang marks that a bug or spider would've left, that i needed to find out what else it could be.
tiferet777 7 months ago
Are you planning to become a doctor? Nurse? Dentist?
stak45DDS 8 months ago
i have erythema nodosum as well. Doctors were giving me prednisone, but it was messing me up. i was told this disease could be deadly if not taken care of. Ive found out that Garlic pills or vitamins work well, without the side affects of prednisone. try tem out and let me know if they work for you all.
nekorb1985 9 months ago
Hey i have it as well does ur skin peal and does puss come out of ur old sores?
LoveLaTisha 9 months ago
My mum just had another flair up =(
Hope it clears up soon, the last time she has was over new years - two years ago - and couldn't walk without crutches for two months. Hopefully it clears up soon.
BeccaC673 9 months ago
Did your doctor tell you the likely cause?
Allibaby78 9 months ago
My buddy gets shingle's and has alot of problems like you have and he has hiv...I think you need a test for hiv aids.. You be a dancer I would think you go into something dirty,,,,,
paynsterpaynster 11 months ago
I was diagnosed with the same thing yesterday! I have them on my legs, 4 on my right and 9 on my left. I am also a dancer and this hurts so much that I almost can't dance, and I have to perform tomorrow. They told me that it's from my past case of mono (I had it a few months ago). I have alot of hitting my heels, stamping, and jumping in my dances so it hurts ALOT! *hugs* I hope they find out what's causing it for you exactly, I hope that for everyone because I don't even want to walk right now.
princess3night3 1 year ago
@princess3night3 I'm so sorry to hear that! It's admirable that you try working through your pain, but make sure that you are taking care of yourself, eating enough, getting enough sleep! Do they know if your erythema is secondary to another condition? Mine is because I have something in the same family as lupus, but there are other issues, even food allergies, that can cause them to happen for some people.
purplelirpa 1 year ago
@purplelirpa Thanks, I am trying to work though it but it hurts alot! As you know! They think mine is due to having mono a few months ago (which I got from handling money at a grocery store), but it could be due to an allergy that runs in my family called celiac's diesease. It's an allergy to anything with gluton in it (wheart, barley, rye) and my mom has it as well as cousins that I have also have it so it's a possibility, and if they come back then I guess I know what it's from...
princess3night3 1 year ago
@princess3night3 That's erythema annulare centrifugum symptoms.....avoid to eat tomatoes,"blue cheese",no hot pepper,check if u have any infection in your body ,I have to same problem years...sorry but is no cure for this symptoms,is all about reaction even to much stress provoke this erythema annulare centrifugum symptoms, should go away buy itself in couple of days ,good luck.
CHRISMAD01 1 month ago
Are you going to be okay? Is this a permanent condition?
ravendon 1 year ago
@ravendon usually permanent. This is really a symptom of the larger disorder I have: Mixed Connective Tissue Disease which is in the same family as lupus.
purplelirpa 1 year ago
Please join us in the Erythema Nodosum support group: health.groups.yahoo.com/group/erythema_nodosum_Group
There are over 2500 of us sharing our pain, ideas, thoughts, and basically supporting each other.
ptalmage01 1 year ago
test
ptalmage01 1 year ago
Two things. This video has really helped me get an idea in my head of what erythema is, so thank you. Second thing... is that my dog in your backyard?! LOL! It's not, because he's in mine, and I live in South Australia... but wow they could definitely be twins.
ashmir 1 year ago
It hurts sooo much i have it at my leg now....
J4nny 1 year ago
you are just the professor of everything aren't you? I love it...because you are cute too
flyer11234 1 year ago
i have EN too... ive been suffering for almost 3 yrs now, my legs look alot like of a dalmatian coz of the dark marks from my nodes, it heals but when its cold, it becomes swollen again, i have been on antibiotic and steroid treatment but it's still with me....
nurseanj 1 year ago
That seem super sucky. I have a different autoimmune disorder called Crohn's Disease. It's internal, in the digestive tract. It's a bad deal. Had to have surgery; not cool. I don't have to worry about suppression from a period. LoL!
guns4good 1 year ago
I just developed these also....I hope you feel better soon!
DorisDayFanatic 1 year ago
You dis an excellent job with your understanding of this. Thank you.
carlshomeoffice 1 year ago
Feel better!
ahelmbock 1 year ago
A booster dose of Prednisone usually puts this in quick remission...
drommom 1 year ago
Hey Lirpa,
I hope that you're doing alright. Just haven't seen a vid in a while.
Peace
hicap06 1 year ago
Might try deep meditation, try to get into a deep Theta or delta brain wave state, once there ask for good health. check out probable future . com or Gerald O'Donnel
4everyong2 1 year ago
Hello miss! You are not alone! Im 25 years old...I got that when i was 16..Each years they come back maybe one or two times..Erythema Nodossum....You got that on arm and i got that on legs..I can walk when its starts to get hurt. If you wanna speak! Dont worry I can understand what you live! (sorry my english is bad sometimes lol im french)
Katefromhell 1 year ago
@Katefromhell Sorry to hear that you suffer from this as well. I posted an updates video if you wanted to watch that.
purplelirpa 1 year ago
@Katefromhell I was diagnosed with EN about 4 weeks ago. It is very painful and my doctor is in the process of trying to find out what is the cause. Did you ever find out what caused your EN? Also, do you know what triggers yours to come back? I am sad to hear that this is something that can re-occur year later. I hope your EN is under control and you're feeling well.
BridgeNich 1 year ago
@BridgeNich
oh My God...I just diagnosed for EN yesterday. It's very painful and almost make me can't walk. Are you sure that this disease can re-occur in a year???
What treatment you've got from ur doctor? I've got corticosteroid (methylprednisolon).
hendry2nd 1 year ago
Are you feeling lethargic also? How are your potassium levels? If it happens more frequently during cycles it could be a signal from your brain to your autoimmune system, tricking it into reaction. There are a few other disorders like this Rheumatoid Arthritis is one off hand, but much more debilitating. Whatever the case maybe hope you are on your way to feeling better. :0)
qwkkllr71 1 year ago
@qwkkllr71 not as lethargic as I've felt sometimes in the past, but certainly not at my top energy levels. When my potassium has been tested in the past, it's been at different ranges. Although, one of those times was when I had pneumonia and it was super low. Right now, I'm not on any medication for this disorder, as my symptoms are very mild considering what they have been before. Hormones play a huge part in the immune system, so there's some cross-communication.
purplelirpa 1 year ago
I'm trying to figure out how to phrase this without sounding like a douche...and I am not making a joke here...
Do you have to explain to people constantly that you are not in an abusive relationship? I can see people totally misinterpreting the bruises.
ROFLpwnedvideos 1 year ago
@ROFLpwnedvideos They're very faint bruises. no one's ever asked, so I guess they don't really look like bruises from physical trauma.
purplelirpa 1 year ago
@purplelirpa
Ah ok. Makes sense.
I was just curious.
ROFLpwnedvideos 1 year ago
i feel sad when i see ya girls going thru shit like this, yea like that other guy said ya need a big hug.
omnigear1975 1 year ago
tell someone nearby to give you a big hug for me. but not in a creepy way. hope you feel better soon.
FixedByDoc 1 year ago 3
@FixedByDoc Done (:
purplelirpa 1 year ago
@purplelirpa good. :)
FixedByDoc 1 year ago
So sorry to hear u have to go through this,is there nothing that could help make it better,not quite as painful? Keep ur head up high!!:)
blondie973 1 year ago
You've gone through this before. Sorry to hear that.
I have no question here. I'm sure you've looked for variables.
All the best to you. It can't rain every day.
redcollargedeon 1 year ago
are you pregnant?
silvereagle1833 1 year ago
@silvereagle1833 shouldn't be. Why do you ask?
purplelirpa 1 year ago
@purplelirpa Same thing happened to my wife. It only happened once near the start of her pregnancy. Her doctor told us sometimes this happens near the start of pregnancy due to the short drop in her immune system. Just a question...sorry
silvereagle1833 1 year ago
@silvereagle1833 Oh, that's interesting. I've had to deal with them since I was about 12.
purplelirpa 1 year ago
fun :(
urbster1 1 year ago