Jack CP video 2

[dellerox69]

im gonna say spastic quadraplegic my partner has that type of cp and she is exatcly like that when she was little

[deademogirl12]

mixed quadriplegic

[FeliciaDG1]

What a cute little flirt!

[iamacoolkorean]

is he a quad?

[grakowsky]

Actually, it turns out he has Angelman Syndrome, so no, not a quad, not any type of CP. As he's gotten older the differences between AS and CP have become more apparent. The constant movement is due to sensory issues.

[birds16ful]

I do have cerebral palsy but my called Hemiplegia. I was born in June of 1993. I was diagnosed at 11 months old in June of 1994. I been taking ballet for 11 years old since I was 5 years old. I been going to Madonna School Serving Special Needs Students for 3 years now.

I love you Valerie Roberts, Annemarie Keating, Becca, Callie, Caylen, Colleen, Faith, Josee Bents, Kristy, Kristen Koley, Kristen, Mallory Rogers, Moira, Natalie Segar, Rachel, Stephanie, Andrew Hoffman & TyAyre Ross

Michaela

[sydgirl2000]

Allah bless u litle angel...

luv u

[spoilt57]

Aww bless him.

[lookyouabigailkriby]

do have epliepy

[fifthteletubby]

he's adorable.

[redcolt74]

He acts like I did when I was younger. I have spastic diplegia.

[lovebug3312]

I have Cerebral Palsy myself, so his arms don't seem affected. Maybe he has spastic diplegia.

[grakowsky]

Thanks everyone for responding. Jack's PT, OT, and neurologist all think he is ataxic with dystonia which causes the stiffness and random looking movements when he's trying to move.

[grakowsky]

Update: 3/12/2010 Jack was diagnosed with Angelman Syndrome, which has severe sensory issues associated with it. We now know these random movements are a consequence of the sensory issues.

[thefavilles]

I posted on your other vid too. Again, I see that he is able to lift his legs independently and even in a sitting position. My son with mild spastic diplegia was never able to do that at that age. Even now at 4 and he walks, he has a difficult time doing things like that. He has limited strength for that type of movement. You may want to submit your video to St. Louis Children's Hospital. They have a specialty clinic there. Dr. Park is AMAZING there.

[grakowsky]

Thanks for the comment and the suggestion. I will try to contact St. Louis Children's Hospital and see if they can speculate. So far, his neurologist, PT, and OT all think he's 100% ataxic. I think I just want to know what movements indicate spasticity and what movements don't. I don't have any experience with CP other than Jack!

[nikitd]

His arms don't seem that affected so I would also say he has some form of diplegia.

[tinkwink92]

I think he has spastic & ataxic Quadriplegia. My sister has spastic Quadriplegia. I have videos of her on my youtube :)

[grakowsky]

Hi myacidsmiles

Thank you so much for replying. It gives me great hope to hear that you moved similar to Jack , and that he possibly has the same type of CP as you, and to see you typing on YouTube! I don't know what to expect as far as what he'll be able to do in the future, and I know there's no way to tell now, but hearing from you fills me with hope. Thank you.