Added: 4 years ago
From: bbiefeldt
Views: 5,463
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  • i am a CFer myself i am 15 and struggle with it CF has so much more of a tole than just physical problems i know I am not trying to sound down but Ive been there and I admit its hard at times but its worth it to prove people wrong and to prove that CF people can do so much more than they thinnk.

  • 9 year old has c/f and is so excited to see that there are ppl on here who she can relate to she has never known anyone with the disease i have a you tube channel with vlogs about my family but i think i will start making it more about her if ppl will subscribe and interact with her she needs that she feels so different not having ever been around anyone else with c/f so plz sub. to my channel im 'ditalydo' and i will start SHOWING MORE OF HER LIFE XOXO

  • You guys look like great parents! keep up fighting every day. I have a 5 month old son who has it and I am looking around here and I see so much hope on all the kids faces.

  • i love the video! i am prain for them! easy breathin!

  • I wish you well. Good luck. Hope there will be a cure in the futer. LoL I cant spell. :>)

  • Hey Alison, I have a two boys, they youngest is 14 months old and has CF, the oldest is fine. For your information my husband and I had no idea we were carriers. After we found out the baby had it through his newborn screening we were both tested. Unfortunately there is no one to "blame" for this disease. I am sure you know what they say about making assumptions. That was a horrible thing to write. As for Brent and Kaley... breathe easy sweeties and God bless.

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  • Umm.. not everyone knows if they are a carrier and I highly doubt they want their children to suffer. If anyone wants their children to suffer, they shouldn't have had children in the first place. My mom and dad had me and they knew about the risks since my older brother has it too but maybe it was worth it. Maybe having me with cf could help everyone else. You have to think about it from all perspectives. That's all :)

  • luck guys =)

    with all the love from spain =)

  • WOW - this is extremely moving. Five Stars!!!

  • Keep fighting guys! I love these montages - I've made a couple myself to help fundraise for Great Strides. I'm 21 and still doing pretty well! Just keep hangin' in there!!!

    All my love!

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