As parent of a child with severe developmental disabilities- I disagree with Becky's outrageous attempts to bash this mother. I always say you walk a mile in my shoes and then you can judge me! I would put my child on you tube, tv, whatever it takes...to search for a diagnosis to HELP my child. Many people view these and just maybe someone out there may be dealing with the same thing and could offer her help or maybe even a possible diagnosis that can be treated. Great Job! mom
My son also has global developmental delays (he turned 3 on New years). He was born with hydrocephalus, laryngomalacia and tracheomalacia. He still has a stridor and he just started walking a month and a half ago. Now i'm just working on speech and getting him to gain weight (his doctor ordered him to drink 4 pediasures a day). I wish you and your little girl the best, God bless.
@beckycarson77 She's showing her daughter's progress. How is that messed up? I would be proud of myself if I was having trouble at such an early age and was able to overcome it. That just goes to show how strong some of these young children are, and that is nothing to be ashamed of.
I would suggest a serious investigation of her nutrition. My son with GDD didn't start walking until he was two and he's still pre-verbal (2.5). He has serious gut problems that affect his nervous system, immune system, and glandular system. I only learned about these issues working with a nutritionist and osteopath, not from regular doctors.
My little cousin is 8 yrs. old and is diagnosed with Global Developmental Delay also. She walked when she was about 5.5 =) She is doing wonderfully. She cant talk yet but she is getting there. Ragan will too!
Have u had her tested for Rett Syndrome? My daughter, Journey is 4 & was seemingly normal til abt 9 - 12mos. I noticed that she was losing her milestones & regressing; stopped eating @ 18mos & had g-tube inserted. 2day she cant walk, talk, or sit w/o assistance. like u no1 could give me answers. I researched til I came across Rett Syndrome. IDK if this is what ur daughter has but plz take the time to look it up. It could be the answer uve been searching for. Good Luck & God Bless!
It's good to see that she is making progress! God put Ragan here for a reason, just like my granddaughter, Kylie, to teach others. I truely believe that. I call children like Ragan & my Kylie, Our "Earth Bound Angels", they truely are God's Gift. I did a video of Kylie from birth to age 5, with the song I wrote for her, showing & describing all her surgeries, etc. , and other videos of her progress. We are still searching for answers also.
As parent of a child with severe developmental disabilities- I disagree with Becky's outrageous attempts to bash this mother. I always say you walk a mile in my shoes and then you can judge me! I would put my child on you tube, tv, whatever it takes...to search for a diagnosis to HELP my child. Many people view these and just maybe someone out there may be dealing with the same thing and could offer her help or maybe even a possible diagnosis that can be treated. Great Job! mom
kmorrisond 7 months ago
My son also has global developmental delays (he turned 3 on New years). He was born with hydrocephalus, laryngomalacia and tracheomalacia. He still has a stridor and he just started walking a month and a half ago. Now i'm just working on speech and getting him to gain weight (his doctor ordered him to drink 4 pediasures a day). I wish you and your little girl the best, God bless.
2008jazzii 1 year ago
@beckycarson77 She's showing her daughter's progress. How is that messed up? I would be proud of myself if I was having trouble at such an early age and was able to overcome it. That just goes to show how strong some of these young children are, and that is nothing to be ashamed of.
2008jazzii 1 year ago
I would suggest a serious investigation of her nutrition. My son with GDD didn't start walking until he was two and he's still pre-verbal (2.5). He has serious gut problems that affect his nervous system, immune system, and glandular system. I only learned about these issues working with a nutritionist and osteopath, not from regular doctors.
inscoe2000 1 year ago
Has she been tested for Mitochondrial disease? Some of the issues your daughter has could be Mito....
Your daughter is very cute! My niece has Mito disease and epilepsy-though the epilepsy is the more noticeable and the more severe of all her issues.
God bless you and your family and keep up the good weork RAgan!
mnat28 1 year ago
@mnat28 Thanks and God bless you and your familay too!
FSUKasi 1 year ago
@mnat28 Thanks so much! God bless you and your family as well!!
FSUKasi 1 year ago
she is doing wonderfully!
My little cousin is 8 yrs. old and is diagnosed with Global Developmental Delay also. She walked when she was about 5.5 =) She is doing wonderfully. She cant talk yet but she is getting there. Ragan will too!
boreilly23 2 years ago
thanks boreilly23!!
FSUKasi 2 years ago
wow look at her shes doing great keep up the good work Regan!!!!
JENNIFERROCKS154 2 years ago
thanks Jennifer!!
FSUKasi 2 years ago
Have you looked in to hyperbaric oxygen therapy HBOT it might help your daughte.
machlis 2 years ago
I have wanted to check into it for more information, but have quickly been shut down by the fact the we do have access to one where we live.
FSUKasi 2 years ago
That original response was supposed to say "we don't have access to one where we live." :) oops
FSUKasi 2 years ago
Have u had her tested for Rett Syndrome? My daughter, Journey is 4 & was seemingly normal til abt 9 - 12mos. I noticed that she was losing her milestones & regressing; stopped eating @ 18mos & had g-tube inserted. 2day she cant walk, talk, or sit w/o assistance. like u no1 could give me answers. I researched til I came across Rett Syndrome. IDK if this is what ur daughter has but plz take the time to look it up. It could be the answer uve been searching for. Good Luck & God Bless!
munkygrl31 2 years ago
I did think she was displaying signs of Rett's as well, but she has been thoroughly tested for Rett's with negative results.
FSUKasi 2 years ago
It's good to see that she is making progress! God put Ragan here for a reason, just like my granddaughter, Kylie, to teach others. I truely believe that. I call children like Ragan & my Kylie, Our "Earth Bound Angels", they truely are God's Gift. I did a video of Kylie from birth to age 5, with the song I wrote for her, showing & describing all her surgeries, etc. , and other videos of her progress. We are still searching for answers also.
CountrybyAudrey 2 years ago
Thanks Audrey! I sure hope you find some answers, hopefully the stem cell advancements will at least improve their lives if nothing else.
FSUKasi 2 years ago