Added: 1 year ago
From: AmazingGrace160
Views: 2,757
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  • You are so cute and smart and inspiring...my daughter has POTS that I diagnosed myself by finding Dr. Fischer on the internet thru a youtube video like this one....they interviewed us and put our video on Youtube to promote using social media to help w/diagnosing and sharing information about POTS, etc....Hayley does not use a feeding tube, I was so interested in that. You are so helpful, if I would have seen u back when I was looking for info, I would have been so thrilled! You are so positive

  • Are you still currently in school?

  • I started a group on fb and shared your video. Keep spreading the word! ;o)

  • I think this video is verry heart warming. :)

  • omg its a mary poppins bag!!! and my bff has a wallet like that :)

  • hey ! great video :D had to post because i go to UNM also, GO LOBO"S !!! and obviously i have pots or else i wouldn't be watching this =P

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  • Um, wow. I don't even want to look in my purse!!! When I go to the store I can never find my wallet I have to much other stuff in it. And most of it is medically required!

  • I want to let you know that you are such an inspiration to us! My 14 year old daughter Stephanie has Dysautonomia, Pots; nerve and joint problems and Gastroparesis; as well as chronic low blood counts. Your paths are almost identical, you have both been through so much w/your illnesses and frequent hospitalizations, she also gets TPN, broviac and JG tube. She expressed an interest in corresponding with you if you would be interested; since you can both relate to one another.

  • @Maresafl I would love to meet Stephanie! Sorry Im just now getting around to replying. School has been crazy.

  • I want to let you know that you are such an inspiration to us! My 14 year old daughter Stephanie has Dysautonomia, Pots; nerve and joint problems and Gastroparesis; as well as chronic low blood counts. Your path are almost identical, you have both been through so much w/your illnesses and frequent hospitalizations, she also gets TPN, broviac and JG tube. She expressed an interest in corresponding with you if you would be interested; since you can both relate to one another.

  • love it. I don't feel as bad having a bag full of splints, TENS and meds. Will definatly do one of these videos once i get myself set up to do vids on here.

  • Great video :)

  • hello Grace, why do you have a feeding tube?

  • You're very prepared! Incredible!

    All of those things are useful!

  • Wow, you are prepared!

  • haha coolest tweezers I've ever seen. you have waaay more things in your purse than me! I'll try to do a video when I'm well enough for what's in mine.

  • Love your purse, I will have to look at my local Target...cute video...my daughter has the same wallet...I just go my medical bracelet, it is pink and waterproof for my active lifestlyle..lol-you will have to show us yours when it arrives. Praying for you! ---Cindy

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