Sickle Cell Disease Causes Much More Pain Than Thought

[DevanTip]

I have sickel cell

[MetaWolfakaZERO]

That's why I'm in pain everyday, I thought I was just lazy as hell I've dealt with it for 17 years

[SlideWaysAllTheTime]

servers these filthy people right

[leavantgarage]

@SlideWaysAllTheTime Learn to spell and construct a sentence, you fucking idiot.

[SlideWaysAllTheTime]

@leavantgarage cool story bro, now tell us the chapter where u fuck up (:

[leavantgarage]

@SlideWaysAllTheTime What's that mean? I understand. I know you're just some poor kid that was born to an alcoholic idiot mother who drank her own weight in liquor every night of her pregnancy, and unfortunately that caused you to have eyes real far apart on your head, and a big ugly unibrow, and a lisp, and all that. And now you're bitter, and you blame it on the blacks because you're also stupid as hell as a result of the birth defects. I feel sorry for you but racism isn't the answer.

[SlideWaysAllTheTime]

@leavantgarage well it means im trolling for lulz, but u clearly have no life writting paragraphs on youtube about hmm nothing really... and as for ur conditions go, i hope u recover eventually (:

[manrightchea]

I honestly feel that sickle cell is the MOST underrated disease in modern times. Those with this disorder understand, people research AIDS, cancers etc, but this disease is just as debilitating. Sadly there are alot of stigma's and prejudice involving this disease. HYDROXYUREA IS A MUST, it allows your body to create new fetal hemoglobin more resistant to sickling, drink lots of water, sodium bicarbonate can keep your blood pH low, and a baby aspirin regimen helps keep the blood thinner.

[manrightchea]

What's up everyone, ,my name is Frank and I also suffer from this disease. My pain was manageable at home until I was around 20, I am 26 now. I was never a hospital type patient, I just used strong pain medicine and warm epsom salt soaks. Sadly, it seems my pain has escalated as I have gotten older, now the pain is so bad that I find myself dreading the next crisis. Hydroxyurea is a MUST for anyone with this disease, you will thank God for it. I know I do.

[AngelaTerry7]

My boyfriend has this disease. I have been with him for 7 years now. It is very tough on me to see him go through the pain that he goes through. There is not one day that he dosen't have any pain. I wish there was a cure but there isn't.

[Getrealpeeps]

YEAH

I HAVE SICKLE CELL ANEMIA TOO

:(

[sweets683]

i have this. sometimes i am in so much pain i just want to die : ''' (

[carameluk26]

@sweets683 please hang in there, am sure there are ways you can manage the pains. speak to you doctor about it.

[randomday1234]

@sweets683 my friend nasraven ibarahim at uni high has sca he says the same thing.

but plz plz hang in there. and u r very inspiring to me and everyone with sickle cell is

[twannaraylive]

Everyone can NOT get sickle cell anemia, you are born with it, it is very painful and ethnic people who carry the trait can pass it on to their children and WE are born with the disease. I suffer almost every day. It's no fun and there is NO CURE.

[pqstr]

one question. if someone has anemia does that mean they have sickle sell anemia?

[carameluk26]

@pqstr no, anaemia does not mean you have sickle cell anaemia as there are different types of anaemia such iron deficiency anaemia, megaloblastic anaemia, thalassaemia, aplastic anaemia etc.

[diekikedie99]

Thanks to James Watson {one of the two Micro-Biologists who discovered DNA in 1953}. His Brilliant Discoveries have Helped Modern Medicine by leaps & bounds. Bless You All.

[oPod]

@mannaet4 you're absolutely right, but please learn the difference between "your" and "you're"

[beau5488]

i have it to...such horrible pain

[hotlilmama89]

Hey everyone! My name is Shameke McFarland I am soon to be 21 years old and I have sickle beta-thal.I would love for every one of you living with the disease to become my friend on here and on facebook for those of you that have one.We need to continue to raise awareness and end this epidemic that some many of us have to live with. Yes it is painful and the sad part is the pain never goes away. We will live with this until the day that we die. I just wish people could see what we go through!

[chokoboy5578]

@hotlilmama89 hey shameke im saeed and im 18 years old living with sickle cell disease and everything they say on that vid is true but theres more to sickle cell than pain for some sicklers definitly for me cause im the type that has pain every single day but even worse are the other complications for example i had to get my left hip completely replaced at the age of 17 because of sickle cell there was a time were my liver literally weighed 10 pounds because it pooled up with blood (continue)

[chokoboy5578]

@hotlilmama89 (continue) ive been in the hospital soooo many times that my records from the hospital can fill several long novals (ive been admited over 100 times) ive had pnumonia over 25 times along with other complications that are not pain that i can go on forever about but my point is theres alot more to sickle cell than the pain and i just want people to care about our suffering (which most people dont) (continue)

[chokoboy5578]

@hotlilmama89 (continue) have you ever heard of a famous person taking on sickle cell as there cause i havent there to busy with things like cancer and diabetes not saying those diseases arent serious but most people (ive meet) for some reason think sickle cell isnt that serious just because its not a terrminal disease but sickle cell can be fatal also just because a disease is terrminal doesnt make it worst sickle cell ruined my life im tired of us not having a voice 

[hotlilmama89]

Hey everyone! My name is Shameke McFarland I am soon to be 21 years old and I have sickle beta-thal.I would love for every one of you living with the disease to become my friend on here and on facebook for those of you that have one.We need to continue to raise awareness and end this epidemic that some many of us have to live with. Yes it is painful and the sad part is the pain never goes away. We will live with this until the day that we die. I just wish people could see what we go through!

[Getrealpeeps]

Hi, I have SIckle Cell Anemia. I am 45 years old, Female, no children. MOST EVERY day, I have pain. I try NOT to take pain meds un less I REALLY need to. I start with Motrin, & if the pain gets worse, I have to take something stronger. If that DOESN'T help, I eventually have to go to the hospital, where they give me STRONGER pain meds, IV fluids, and sometimes blood transfusions.....

I get a PRIVATE room, because I moan so loud it disturbes my roomates. The pain is so unbearable.

[DonovanHillery]

@Getrealpeeps Oh that just ruined my day...

[lovelyaley]

@mannaet4 It's genetic and it just depends on where your ancestors are from. But it is mostly blacks that are diagnosed because of where their ancestors lived.

[GNCJ4427]

Damn.. I feel his pain . i was born with the same thing .. (im not lying like some of you..)

And the doctors and nures dont make it any better, all they do is drug me up with morphine and other narcodics until im to sleepy and drowzy to think about how much pain im going through..they do that every 3 or 4 hours around the clock ... SOME PEOPLE DON'T UNDERSTAND HOW BAD THIS CRAP HURTS!!!!!!

[josevivo]

what happens is that inside the amino structure of the hemoglobin particle. the aminoacid Glutamte is replaced by Valine (this is a genetic disease). Glutamate naturally has a negative charge while Valine doesnt, hemoglobin moelcules start to clamp together and distort the shape of the cells into sickle shapes and blocking small passageways for blood and so the boddy doesn't get enough oxygen. yes..loads and loads of pain i would imagine.. :S

[bboy4lifedcity]

people with sickle cell do have pain every day or almost cuz i know i do ive had this all my life and at 16 im in the hospital for the third time sence the summer of 09 thats almost a year and each time ive stayed about 2 to 3 weeks but its good some ones geting the word out to the world about this painful disease

[4liferudy]

I Know How help With your Problem.

[4liferudy]

hey

[TaTyTu777]

I have been sick all this week

im about 2 lose my 4 years effort for nothing

I have a final test tomorrow and I can't even get out of my bed.

[dharmgirl]

i have sickle cell it hurts so bad! it sucks

[MrDaredevil96]

@dharmgirl THANK GOODNESS SOMEONE UNDERSTANDS MY PAIN!! LOL!

[ImvuMFcouture]

yes i have pain everday and its no joke...and yea chinese people have it to

[FrEaKoZOid16739]

sickle cell is so painful

[KeishaGirl1314]

@FrEaKoZOid16739 it is extremely sadly it so painfull

[delyghtfulevents]

Go get tested..the blood test is simple and it can help determine if you have the trait or the disease

[217d3]

you say immune like you can catch it .

its a blood trait you cant get it unless your mom or dad has it .

[RenneRihanna]

my friends brother died of sickle cell anemia and he was only in the 6th grade T_T

[TheManiNicole]

@RenneRihanna i'm sorry about that. hope he is resting in peace.

[avschase]

i do you know you have it? i might have it. just wondering what the signs are.

[lilstewkjs]

You should go to your doctor and get a sickle cell test it's a blood test. I have it and I was diagnosed at 3 mos. old that's because my Dad had the disease and my Mom the trait so get checked out you never know.

[222seanb222]

Pain is the most notice able symptom, you get crisis from lot of things like really cold or hot things. Something you get them out of no where.

[nashea305]

you would know if you had it..when your a baby they do blood tests and im pretty sure if you had it your parents would have told you

[akilahaustin1]

@nashea305 not true!!! alot people don't know their carrier status...and not all hospitals were doing newborn screening. I wasn't diagnosed with SCD SS until I was 6yrs old.

[nashea305]

@akilahaustin1 well I was going based off my life..I was a couple days old when I was diagnosed with SC but every I know with SCD were babies when they were diagnosed

[222seanb222]

I heard there are a few white people have it to. I have it, I get get bothered much like I did when younger though.

[Godzsign]

THAT'S NOT TRUE...DO UR RESEARCH B4 U PUT OUT SUCH MISINFORMATION!!! It's common among people whose ancestors come from sub-Saharan Africa, South and Central America, Cuba, Saudi Arabia, India, Turkey, Greece, and Italy. Caucasians have this disease too!!

[JayLee0827]

It is more common in African Americans, and it's linked to ancestral survival of the disease Malaria. But yes anyone can get it if they receive both mutated genes from each parent.

[Nathanea321]

I'm 12 and i have sickle cell trate it isn't full blown disease because my dad has sickle cell but my mum doesn't and i am determined that i am going to have a long life and nothing is stopping. when i run i drink a lot of water it tends to help.

[pesarirooni62]

based on my experience w sickle cell FOLIC ACID helps A LOT

[iFruit96]

I'm 14 and have it. I used to get tons of pain but not so much now. I only get pain if I do some jumping things, like exercising. But if I immediately stretch after words I have no pain. On the day before my birthday I had this huge gigantic pain in my back and it kept growing because than my legs started to hurt and then my arms started to hurt.

[swaggraphicz]

this kid named carlton died at heritage intermidiate from sickle cell today so sad

[rsvfan]

its just that africans usually get it more than anyone else

[Nathanea321]

my family is african and i have it. i am really concerd. do you know why africans usually tend to get sickle cell. thankyo

[nashea305]

because of malaria..the cells mutated into the sickle cell and it has been living ever since

[13animelover13]

Because having :

ONE gene (from one parent, not both) causes your cells to be resistent to malaria

having TWO (one from each parent) causes sickle cell anemia..

if you have both carrier parents(have one gene each)and get neither genes get passed on to you, you're less resistant to malaria, but if you are in the US or something..that isn't a problem at all anymore :)

Basically if both parents carry one gene for it, you have a 1/4 chance of getting sickle cell anemia.

[KeishaGirl1314]

@13animelover13 and not always do u get the most painfull kind. sure i get pain alot but its not as painful as wat my uncle and aunt had sadly

[stamm450]

dumb

[0114ryan]

Your a fool.

[digitaltory]

Temp. Solution to Pain

------

when I get a pain crisis i usually take a warm bath...it reduces the pain considerably... I guess the heat dilates the blood vessel forcing blood to blow properly and oxygen being deliver to your tissue...hence reducing the pain..

try some other Heat treatment...works for me...

[miasmablk]

good idea...say, i don't actually have sickle cell but am curious about it. what exactly is it that causes the pain is it the lack of oxygen the cells are able to provide to limbs and organs or is it something else entirely?

[KasukeUchake]

me and my bro have sickle cell

he has it worse

i dont know much about it becuz im only a preteen'

[warangelcloud]

How much more do you want to know? I'll try to explain more to you if I can. Just add me as a friend. I work for the Cresent Health Institute and I am a reseacher for Sickle Cell.

[sexysiren16]

i have sickle cell anemia and i was wondering if any of u know about the drug hydroxyurea it really helps with the pain but it makes u really tired it is no joke tho i'm in pain all the time

[rineybeany]

i have sickle cell and im telling you the pain is sometimes unberable, but doctors dont really help they just drug me up until im too sleepy to think about the pain, they continue to do that round the clock until the pain subsides... the shit is no joke, and people honestly dont understand how bad it hurts!

[ncblackrootman]

Which sickle cell disease does he have...SS, Sickle-C, Sickle Beta Thalassemia, SD-Los Angeles, SE or SO-Arab? I wonder if he smokes and consumes alcohol? Does he have any bone deterioration?

[jamesz2]

AbSalute08 - you do not have Sickle Cell Disease if you think it's not that bad. I fractured my back in a car accident and the pain wasn't nearly as bad as my crises pain. The sad thing is that the hospital staff was much more responsive when I fractured my back than I'd ever experienced. They IMMEDIATELY gave me something for the pain and didn't make me wait an hour like they do when I go in for a Sickle Cell crises.

[AbSalute08]

no its not that bad i got it and i hurt once n a while depends on ur cells

[ladymjackson001]

AbSalute08:

YOU DONT GET THE PAIN 1NCE AND CALL IT A DAY OF YOUR LIFE

ITS SEVERE, AND SUPER BAD

SICKLE CELL PAIN IS A UNDERESTIMATED PAIN

ITS SHARP

[Jardan25]

My husband has this disease and he is in pain everyday. When he cant control it he has to go to the hospital

[kt268934]

its not everyday its like every month or 2 or can be longer cause it just how you controll it