ME/CFS : a devastating illness by Greg & Linda Crowhurst

[Ramzyy007]

Please check the trailer on my youtube channel from the FIRST MOVIE ABOUT CFS / ME ! Release on october 8 (2011) "Voices from the Shadows" 

[karmakomodia]

I am fighting with you...

[chronicallyfatigued]

Brilliant video!

I am a young sufferer of this awful condition, and have a channel of awareness videos which i would be overjoyed if you would check out! Well done again! x

[lucylou780]

ive sufferered significantly for 7yrs i am completely bed bound and confined to my bed 24 hrs a day and i am only 32 with 3 young sons i cant look after myself and cannot manage simple things people take for granted at times i cant feed myself i need 24 hr care i cant wash n dreess or go to the toilet etc my life has been destroyed i have no quality of life at all i have no control over my own life its in my carers hands its tore my family apart

[essy111]

Hi there I recommend a really great book out there called "THE JOURNEY THROUGH ME!CHRONIC FATIGUE" By Janet Hurrell. Its an A to Z packed with the best information on diet contacts of health food shops practitioners and much more. U can get it on Auther House or Amazen. Other then that Licorice tea herb is an uplifitng tea to give you more energy

[essy111]

Hi there I recommend a really great book out there called "THE JOURNEY THROUGH ME?CHRONIC FATIGUE" By Janet Hurrell. Its an A to Z packed with the best information on diet contacts of health food shops practitioners and much more. U can get it on Auther House or Amazen. Other then that Licorice tea herb is an uplifitng tea to give you more energy

[JasmineMarieHudson]

Ohh and I'm not advertising I'm really trying to help I was sevearly ill and depressed for a year but I have it 5 altogether but I hope someone will try it as it might make some difference it really did for me :)

[JasmineMarieHudson]

I have had me/cfs for 5 years and it's litterally ruined my life I can't go school I was meant to have my gcse's this year but iv missed too much so I had to drop out, I'm just getting over it thanks to this health stuff made out if fruits and seaweed and I don't feel I have m.e anymore :) it's called berry.en if anyone want to give it a go, but it tastes vile :( and is expensive but really helps

[hoppytherabbit1]

Just to add, my partner was struck down at the same time with a virus and both of us came down with CFS. My partner had CFS for around 7 months, I had it for 2.5 years.

[hoppytherabbit1]

I had CFS for over 2 1/2 years. I have come through the other side now. It was the most horrible experience I have ever gone through. Please anyone with this illness do not pay for treatments! They will not work. You can get through this but don't expect a fast fix. I research vitamins and found the ones that helped me to recover and an exercise programme I gave myself also helped. Don't give up !

[835283]

I understand what you mean Greg I met a psychiatrist and he said he doesn't believe in ME and he put my friend through hell he sectioned him and gave him all kinds of heavy anti psychotic drugs that made him worse where he was in bed all day and then they said he had depression because he was in bed all day from the heavy sedation anti-psychotic drugs they were giving him, I witnessed all of this when I was in the mental hospital with him, absolutely horrendous, he found it hard breathing so bad

[JohnnyX1239]

I have ME/CFS and everyday is a nightmare for me. I lost all my friends in school because I'm unable to go outside because of all the muscle pains and disabling fatigue. I sincerely hope, for me, and for everyone who has this disease, that it will be cured, no more pain everyday you wake up until you go to sleep...Anyone who has this devestating illness don't give up the fight!!

[BONABOOTS]

There a few comments here saying "try this! only buy this and you will be well!" Be aware, this is misleading advertising. Many people with ME have tried everything on the market, and are still ill, but now they are in debt too.

ME is caused by a gamma retrovirus, not unlike HIV. People with ME need the base cause, the XMRV virus, treated. This is the only real treatment for people with ME.

ME is spreading. It is infectious and yet XMRV research is being suppressed.

[gwyn1971]

Get your husband vit B12 injections asap. It is a lack of vit B12. Vit B12 is non toxic and you cannot overdose with it. You may have to go private to get them, as GPs are not giving them for some reason. Vit B12 injections are very cheap, whilst other drugs prescribed are, I have heard, very expensive. It's worth a try. Have your husband's vit B12 levels and ferritin levels checked via a blood test. God bless

[billoddiea]

@gwyn1971 NO NO NO. CFS is NOT caused by LACK of vit b12. Im sorry. i have had this dreadful, horrible thing for 8 yrs. i wish vit b12 inj were the answer. true, they provide some temporary relief. if you were CURED by vit b12 you NEVER had cfs as the SYNDROME. im sure you were chronically fatigued but it is not CFS.

[george05032010]

no me cfs affects the brain which affects every functioning in the body, too much glutamate in the brain causes all the neurotransmitters to malfunction, try anti anxiety meds such as buspar, and a sleep aid, to ensure a full nightly sleep is obtained, this helps induce rem sleep which also helps brain functioning to return to normal, there is no need to go on suffering!!!!

[wizardscar]

We've just started a project trying to raise some awareness for M.E.

It's up on our channel - it'd be great if you could go and have a watch and subscribe and spread the word.

x

[kruseman44]

We are not far from getting heard. Oxford did a study that proves mitochondrial dysfunction.

[jacgallo]

Is it possible to have a variation of ME/CFS, where the fatigue comes and goes on a weekly basis. I've been having chronic fatigue, headaches, dizziness for the past 5 months, which was set off by an ear infection.. But, my symptoms fluctuate a lot, i.e. one week i'll have virtually constant fatigue/malaise, but very mild headache/dizziness. The following week, my fatigue will reduce quite a bit, but my headaches/dizziness increase at the same time.

[stpglulu]

HI guys i rememeber you, I support you my friend, LOVE XO

[SAMMYBABYLOVE]

Hay! i just want to let you i go through this everyday! ive had it since i was 13 im 23 now! i am happy to say i am at uni now but not with out a struggle, i know what you go through greg!i was house bound for over a year but now im a little better im gunna make a change...i hope you will support my cause!!! Next year im doing a big campaign for awareness for m.e/cfs...so watch this space!!! take care everyone!!

[vincent4500]

tomme1981=low class ignorant faeces..

[dizzit78]

I'm working class and not depressed but still have ME and fibromyalgia, so your theory is unfounded.

[tolive0517]

you've never had it have you? I thought the same thing until it became severe, I thought I was depressed.

[antares4141]

Please! Someone try it! $70 bucks is all it will cost you. Than come back here to youtube and tell me I am wrong. Not trying to be a smart ass, I have 12 years of this illness under my belt I know from hard knocks.

[antares4141]

Aid's, chemo, radiation treatment's, transplant anti rejection drugs all predispose patient's to aspergiliosis. (a life threatening fungal infection) I believe for some reason we suffer from "mold related illness" I don't know the connection but know avoidance gives unmistakable and profound relief. Try sleeping out in your car with a hepa filter going inside it, This helps me a lot. Course if you go back inside your home you will get slammed again. Hopefully you will make the connection though

[AGirlLikeMee]

I dont think that feeling bad about yourself causes CFS.. but i belive that living with this illness.. causes you to feel bad because of the fact that you cant help it :( ... I hate not being able to do day to day activities with my friends and family. It just kills me.

[Bluebottle83]

continued........ I do not have CFS & I know these 'treatments' will make me far worse & that the therapists will have been erroneously trained to think that I have a psychiatric disorder. Yet we are offered nothing else- no viral testing & no antivirals, no heart function testing - no tests or treatment of any value at all. All the money has gone to th e psychiatrists. This illness has been proven to cause premature death. Death for me will be far preferable to the living hell of severe M.E

[vincent4500]

I feel you Bluebottle83, you have a typical trail of destruction from this illness..mine is slightly different tho none the less tragic, all i can say is that we are outside the mainstream and doc's only cater to the mainstream..ME is for me (and many i believe) 1 third thyroid (T3 only thyroid hormone actually works), 1 third immune system suppression( candida,viruses)and I third 'nervous' (STRESS etc)..however conventional doc's don't address any of these problems correctly..

[RubyMiami]

vincent, google Whittemore lab in Nevada. They found a retrovirus that is present in many many with CFS/ME. One of three retroviruses. The other 2 retroviruses cause leukemia and HIV respectively. This is a very serious illness it is not thyroid or candida, those are opportunistic infections or perhaps a result of the systemic damage. A result not the cause in other words. If it were just thyroid I'd get meds for that and be back to my old life or at least out of bed!

[Bluebottle83]

Thank you both for making this video & for highlighting the unrelenting awfulness & pain of living with severe M.E. I have suffered with it for 20 long years & as you say there is no treatment, no cure, & very little understanding. My husband has had a breakdown because of my illness & lost his job (we also lost our home). My son has grown up without a mother. Once again I am being bullied & coerced into doing the tired old graded exercise and cognitive behaviour 'therapy' at a CFS clinic.

[greatestXhits]

i suffer im 14 ,cant go to scool

[Cissy2cute]

As a sufferer, thank you for this video. People think we "look OK". We're not! You can't see heart disease or diabetes either, yet people accept them as being real.

It's hard enough fighting the disease without having to defend oneself at the same time.

[CaptchaU]

God bless you both. I suffer with this illness and my husband suffers watching me go through each day helpless. I was vibrant and active and this cut me down. I muster all I can to run a normal errand. People say "You don't look sick". What does "sick" look like? Some have ostracised me and even called me flat out crazy. The ignorance and cruelty of others is the worst of all. And the illness is bad enough!

[BobnMarlyneMonroe]

Thank you both for making this video. It's so great to educate people with what you know. I had FM/CFS to name just a few things for 20 years. I was in & out of a wheelchair for 13 yrs. I know what it feels like to live with a disabling & debilatating illness. My heart goes out to you both, which is why I'm writing & posting too. Please reply, I have something I'd like to share with you. I believe that I can help you get better ;) Thank you for holding on & giving hope to others!

[vivianaheck1]

You two are so special in that you really make the effort to fight for us with M.E.

You are an encouragement and inspiration to keep going.

God bless you both.

[taniaaust1]

keep it up.. we will all change things. Keep up the fight. Well done Greg and linda.

[indemnis4]

Such a an unselfish plea :)

[deadgirldreaming]

Voted!

Vote for this vid at pandoranet - video advocacy competition page - sorry won't let me put URL...

xxx

[paulmack1]

Excellent video.I think this video vividly illustrates what ME/CFS sufferers are going through,especially the social exclusion & stigma attached to these illnesses.This video would be great at increasing awareness amongst Doctors/governments/family & friends.

Well done.

[devongirlme]

Well done both of you.

Jas

[ivortick]

Well done Greg and Linda - I LOVE your fighting spirit. Never, never, never give up!! Nigel

[paula2048]

Wow - well done Greg and Linda in putting that together - so pleased greg put the song on. Paula xx

[pandoranet]

Dear Greg and Linda,

Your video has been accepted. We are thrilled that you made it before the deadline 4/30! It will be on our web site soon. Title: Fighting for Recognition of CFS/ME: A Defiant Caretaker's Song - A message of hope and defiance from Greg Cowhurst, the husband of a CFS/ME Sufferer from England.

Marla Silverman

[Suzanne42]

BRAVO!

[deadgirldreaming]

Can we vote for the Pandora thing?

[Tedlovesmary]

Hope this wins the P.A.N.D.O.R.A. contest! I'd love it if this video was widely aired so lots of people could see it

[pricklesxpq]

Excellent video, thanks to both of you for making this. I've been looking at lots of M.E. videos lately and this is definitely the best I've seen. But then your videos are always good at explaining M.E.! It's great to see it from the side of the patient & of the carer.

[deadgirldreaming]

Thank you both!

Indeed - the fight is increasing - the truth will out... I have no doubt about it. It won't happen overnight - but it will happen.

ENOUGH IS ENOUGH!

xxxx