CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
sometimes it´s hard to not drop in a black hole but with the right people around and a positive look in the future we can create our wonderful life! besitos janett
I am glad you were able to come and see this video where I tell this part of my MS journey. I really wanted to show that, even when things look really bad, there is a reason to believe that things can get better.
It's normal to be sad and to feel depressed when things are bad, but we can't never lose hope and believe that, one day, we can get better!
I wish you the very best and thank you for keeping in touch!
tu sei sempre cosi`gentile e cosi`dolce con me and this makes me so happy!
Con questo video volevo mostrare che la speranza e`davvero importante e che non ci possiamo lasciare abbattere, ma che dobbiamo provare a non mollare mai!
Giving up on hope means giving up on life and on everything that comes along with it...and I feel that it's very important to find the right people that will believe in you and that will never give up just like we don't give up!
I agree that you MUST find the right Doctor for you. I started using a wheelchair and my Doctor told me to "get used to it because that was my future." I never saw her again after that and using my wheelchair only lasted three more months after that (a total of 4 months). Now I use the cane and just try to keep a positive attitude. Thanks for your videos!
I feel that it's very important to share my experiences with everyone because I don't want people to give up and believe that they will never get better!
You are an example of that and I understand why you never went to see that doctor again!
We don't need them, but we need someone that will be supportive and will believe that we can improve!
I am so happy that you got better too!
I wish you the very best and thank you for writing!
I admire your courage,your fight with this disease,your kindness and everything you do for others.I am so proud to have you here as my friend,dear Angela.
Thank you for always being a kind person and an encourager to those around you,giving them strenght,sharing your story. You are a wonderful person always putting others first, you have a great heart!
My prayers and thoughts are with you and with all those who suffer from this disease!
I am the one that needs to thank YOU because your words are very supportive and truly wonderful and I am always happy when I can read what you think about what I am trying to do.
I feel that this is my purpose and I am very blessed to know that this is what I am "supposed" to do with my life. Sometimes, I feel that MS allows me to be who I am and to care about others the way I always wanted to do.
I saw ur video about a week ago and u inspired me a lot! Ur not too optimistic because ur still improving!
My ms started 2 1/2 ago too and it is pretty active like urs. I am starting Tysabri in 10 days!
I'm quite proactive in fighting my ms. I might need a new neurologist eventually because I feel that mine can't keep up with me and he is holding me back in some ways. He keeps reminding me of how serious of a disease ms is and that it is for life. I don't like his attitude.
Hi Anna (I apologize if I spelled your name wrong!)
I think that we do have many things in common (except the fact that you are much younger than me!) and I am sorry that your MS is just as active as mine. I hope that Tysabri will help you the same way as it seems to be helping me!
You do need a better doctor that will NEVER give up on you and that will be there to support you no matter what.
I am glad to see that you are strong and courageous and I wish you the very best!
Like you, I have a walker, also a stick + a wheelchair for if and when I need them. I enjoy your videos, your positive attitude and your intestinal fortitude. Like you, I don't accept any negative comments from docs. I feel we know our bodies better than anyone else anyway! Wishing you the best!
yes, we know our bodies the best and no one can tell us that we are "done" and that we can't get better! No one should ever give up on us but if it happens, we can be even stronger and we can prove them wrong!
I hope you are doing well and that you will never need any of the items we both have, just in case... :)
First, thanks for sharing your story. No matter what the disease, a person with a positive outlook has a much different outcome than someone who is negative.
I am sad that someone hurt you with their comment because I feel like you are defending yourself a little; something you should not have to do.
You message of not giving up comes across loud and clear. I believe in you, Angela, as I believe in Vern and Janett.
yes, I felt that I had to explain why I am like this and that I am not making MS sound like it is an easy disease to live with...Oh my! It's really easy not at all!!Right??! :)
Next time, remind me that I don't need to do that! You are sooo right!
Did you start taking Tysabri yet?
I was supposed to write you and ask you that, but I forgot...I am having some bad memory days!!!
I hope you are doing well and thank you for coming and sharing this part of my story with me.
We never have to give up NEVER and you know i am in "Hubert" for 6 years now but I also don't gibe up my exercises and my morning "walk" , it is 170 steps , but it is and saw your walker I have two of them like two whellchairs , you saw No.2 and I am at home in No.1 .
You are brave girl and I like it so much and wish you all the best !!!
yes, I remember Hubert No.2 and maybe this year I will get to see Hubert No. 1!!!!
I am so happy when I read about you not giving up and that you continue to do the exercises and the 170 steps every day. It's important to keep up our work and to keep our hope alive in our hearts and in our minds...
I am your little busy bee and I will continue to work as hard as I can with everything I will put my mind into!
I loved this very inspirational video. Thank you so very much. you have done so very well on your journy with MS. Thinking of you and hope to be in touch soon as so much has been going on in my life. I have just emmigrated from the UK to Perth, Australia with my family. It has not been easy. Will post a video soon. Lots of Love Angela
I understand how difficult it must have been to move so far away from your home land and I can imagine the impact that the move must have had on you and on your family. I am thinking of you and I am looking forward to seeing your video. Thank you for coming and for listening to this part of my story. I think that it very important for all of us (and for healthy people too!!!) to never give up and to hold on to hope!
no, questo video e`nuovissimo! L'ho appena messo due giorni fa e ho fatto pure la versione italiana, per cui puoi guardare quella se ti va!
Scusa, ma non ho ancora mandato i miei 3 ultimi video a nessuno perche`oggi non mi sento troppo bene...Devo farti vedere quello che ho dedicato a Regina! e cerchero` di mandartelo adesso...
You are right Angela ; never let AANYONE dictate your reality today , tomorrow or ever. It does not matter what some doctors say who want to give you a sentence , YOU know iin your heart your belief and Spirit is so important. Well done my friend and by the way it is not your shoes or your dress that make you beautiful it is YOU ! and we love you XXX isanella
thank you for coming to share this part of my story and of my life with MS. It never crossed my mind to give up because that is not the way I am! I came to America when no one believed I could do it, so I am used to doing things and achiving my goals no matter what people tell me!
Thank you for writing me such a sweet comment and for reminding me that it's not about what I wear and that I can be pretty no matter which shoes or clothes I use! Thank you and take care!
I am so sorry! I used my husband's YouTube address to answer you!!!! The other message that you see after this one is the one that I wrote you but I must have gotten confused and I used his address and not mine! Well, I think the brain fog is still here!!!! :)
Please, read what I wrote you in the other message because it is much better than this one!!!!! :)
Well I've said before that your videos show you to be an inspiring person, but this one goes to show just how much your positive outlook helps - you improved because you didn't give up when that first doctor did. That's a lesson that applies not just to MS, but to almost anything in life: you only achieve things if you stay positive about them.
thank you for sharing this part of my story and thank you so much for being so supportive and so kind to me! I don't think I will ever give up because I have too many dreams and too many people to be fighting for and I am very lucky because, after doing a lot of research, I found the right people to support me and that will never give up on me! I hope this will help others realize that they can get better and that things can always improve!
It is so easy to be miserable. It takes alot of courage and effort to look up and look forward.
Hope is the most important thing in recovery.
I have to say that I have a fear in the back of my mind that by trying and pushing forward I could be either salvaging my life or setting myself up for the biggest heartbreak if things get much worse.
I choose #1
I am happy to tell you that I am making the most of this life I am given.
I did write you an answer yesterday, but I see that it's not here any more!
Anyway, I wanted to make sure to thank you for always being present to the steps that I am taking in my MS journey and I would like to tell you that you are absolutely right and choosing option #1 is a lot better than choosing #2...You are making the most out of your life and you are doing an amazing job at it!
I wish you the very best and I hope that you will never lose your great spirit!
just like I told Tori, I had written you yesterday but today I saw that my comments are not here any more!
I wanted to thank you so much for being present along my journey and for listening to this part of my MS story.
My message is for everyone...not giving up in very important and while it's very hard not to give up, it is super important to try to keep our spirits up! Thank you for the prayers. I appreciate them.
Great video. It has been 7 months since my relapse and I am still getting better! Being positive is the only way to survive this disease.... positive thinking is the best medicine. :-)
I am so sorry you didn't get my answer yet! I had answered to everyone yesterday evening, but today when I got back in, I saw that my answers weren't here!
Well, I will rewrite everything!
Firs of all, I had asked you how things are going with Rebif and then I agreed with you in saying that our positive outlook is fondamental to live with this disease. We need it to look forward, to fight our battles, to keep on smiling!
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 11 months ago
gracie cara for posting this video!
sometimes it´s hard to not drop in a black hole but with the right people around and a positive look in the future we can create our wonderful life! besitos janett
cruchinet 2 years ago 3
Cara Janett,
how are you doing??? I am always thinking of you!
I am glad you were able to come and see this video where I tell this part of my MS journey. I really wanted to show that, even when things look really bad, there is a reason to believe that things can get better.
It's normal to be sad and to feel depressed when things are bad, but we can't never lose hope and believe that, one day, we can get better!
I wish you the very best and thank you for keeping in touch!
Cius!
Angela
angelusa73 2 years ago
Yes, my dear Angela, we must never give up!!!!!
Be strong my daling!!!
I send you all my love!!!
Thanks because you share your experience! It's so touching!
I like you because you explain so well and you speak so beautiful!
Un bacio per te mia cara!!!!
3AutumnLeaves 2 years ago
Carissima Marina,
tu sei sempre cosi`gentile e cosi`dolce con me and this makes me so happy!
Con questo video volevo mostrare che la speranza e`davvero importante e che non ci possiamo lasciare abbattere, ma che dobbiamo provare a non mollare mai!
Giving up on hope means giving up on life and on everything that comes along with it...and I feel that it's very important to find the right people that will believe in you and that will never give up just like we don't give up!
Un bacio,
Angela
angelusa73 2 years ago
I agree that you MUST find the right Doctor for you. I started using a wheelchair and my Doctor told me to "get used to it because that was my future." I never saw her again after that and using my wheelchair only lasted three more months after that (a total of 4 months). Now I use the cane and just try to keep a positive attitude. Thanks for your videos!
silvergate905 2 years ago
You are very welcome, dear Silvergate!
I feel that it's very important to share my experiences with everyone because I don't want people to give up and believe that they will never get better!
You are an example of that and I understand why you never went to see that doctor again!
We don't need them, but we need someone that will be supportive and will believe that we can improve!
I am so happy that you got better too!
I wish you the very best and thank you for writing!
Hugs,
Angela
angelusa73 2 years ago
I admire your courage,your fight with this disease,your kindness and everything you do for others.I am so proud to have you here as my friend,dear Angela.
Thank you for always being a kind person and an encourager to those around you,giving them strenght,sharing your story. You are a wonderful person always putting others first, you have a great heart!
My prayers and thoughts are with you and with all those who suffer from this disease!
cristinadreamer 2 years ago
Dear Cristina,
I am the one that needs to thank YOU because your words are very supportive and truly wonderful and I am always happy when I can read what you think about what I am trying to do.
I feel that this is my purpose and I am very blessed to know that this is what I am "supposed" to do with my life. Sometimes, I feel that MS allows me to be who I am and to care about others the way I always wanted to do.
Thank you so much for being a part of my journey.
Hugs,
Angela
angelusa73 2 years ago
I saw ur video about a week ago and u inspired me a lot! Ur not too optimistic because ur still improving!
My ms started 2 1/2 ago too and it is pretty active like urs. I am starting Tysabri in 10 days!
I'm quite proactive in fighting my ms. I might need a new neurologist eventually because I feel that mine can't keep up with me and he is holding me back in some ways. He keeps reminding me of how serious of a disease ms is and that it is for life. I don't like his attitude.
Best wishes!!
WithCourage2008 2 years ago
Hi Anna (I apologize if I spelled your name wrong!)
I think that we do have many things in common (except the fact that you are much younger than me!) and I am sorry that your MS is just as active as mine. I hope that Tysabri will help you the same way as it seems to be helping me!
You do need a better doctor that will NEVER give up on you and that will be there to support you no matter what.
I am glad to see that you are strong and courageous and I wish you the very best!
Write me any time!
angelusa73 2 years ago
Hi Angela,
Like you, I have a walker, also a stick + a wheelchair for if and when I need them. I enjoy your videos, your positive attitude and your intestinal fortitude. Like you, I don't accept any negative comments from docs. I feel we know our bodies better than anyone else anyway! Wishing you the best!
Robyn. (jessica53)
51jessica51 2 years ago
Hi Robyn,
yes, we know our bodies the best and no one can tell us that we are "done" and that we can't get better! No one should ever give up on us but if it happens, we can be even stronger and we can prove them wrong!
I hope you are doing well and that you will never need any of the items we both have, just in case... :)
Best wishes and thank you for writing!
Hugs,
Angela
angelusa73 2 years ago
Hi Angela,
First, thanks for sharing your story. No matter what the disease, a person with a positive outlook has a much different outcome than someone who is negative.
I am sad that someone hurt you with their comment because I feel like you are defending yourself a little; something you should not have to do.
You message of not giving up comes across loud and clear. I believe in you, Angela, as I believe in Vern and Janett.
Best wishes,
Marlo
teslagirlM 2 years ago
Dear Marlo,
yes, I felt that I had to explain why I am like this and that I am not making MS sound like it is an easy disease to live with...Oh my! It's really easy not at all!!Right??! :)
Next time, remind me that I don't need to do that! You are sooo right!
Did you start taking Tysabri yet?
I was supposed to write you and ask you that, but I forgot...I am having some bad memory days!!!
I hope you are doing well and thank you for coming and sharing this part of my story with me.
Warm hugs
angelusa73 2 years ago
Carissima amica mia !
How I agree with you my dear friend !!!
We never have to give up NEVER and you know i am in "Hubert" for 6 years now but I also don't gibe up my exercises and my morning "walk" , it is 170 steps , but it is and saw your walker I have two of them like two whellchairs , you saw No.2 and I am at home in No.1 .
You are brave girl and I like it so much and wish you all the best !!!
Primoz
HubertV2 2 years ago
Carissimo Primoz,
yes, I remember Hubert No.2 and maybe this year I will get to see Hubert No. 1!!!!
I am so happy when I read about you not giving up and that you continue to do the exercises and the 170 steps every day. It's important to keep up our work and to keep our hope alive in our hearts and in our minds...
I am your little busy bee and I will continue to work as hard as I can with everything I will put my mind into!
Thanks for being my friend!
Ti voglio bene!
ciao
Angela
angelusa73 2 years ago
I loved this very inspirational video. Thank you so very much. you have done so very well on your journy with MS. Thinking of you and hope to be in touch soon as so much has been going on in my life. I have just emmigrated from the UK to Perth, Australia with my family. It has not been easy. Will post a video soon. Lots of Love Angela
xxx
sharpyangel 2 years ago
Dear Angela,
I understand how difficult it must have been to move so far away from your home land and I can imagine the impact that the move must have had on you and on your family. I am thinking of you and I am looking forward to seeing your video. Thank you for coming and for listening to this part of my story. I think that it very important for all of us (and for healthy people too!!!) to never give up and to hold on to hope!
Take good care,
hugs
Angela
angelusa73 2 years ago
cara angela
ho guardato questo video ma anche se studio inglese non ho capito molto bene!
ma questo video è vecchio??
piciunarda 2 years ago
Carissima Silvia,
no, questo video e`nuovissimo! L'ho appena messo due giorni fa e ho fatto pure la versione italiana, per cui puoi guardare quella se ti va!
Scusa, ma non ho ancora mandato i miei 3 ultimi video a nessuno perche`oggi non mi sento troppo bene...Devo farti vedere quello che ho dedicato a Regina! e cerchero` di mandartelo adesso...
Un bacio,
Angela
angelusa73 2 years ago
You are right Angela ; never let AANYONE dictate your reality today , tomorrow or ever. It does not matter what some doctors say who want to give you a sentence , YOU know iin your heart your belief and Spirit is so important. Well done my friend and by the way it is not your shoes or your dress that make you beautiful it is YOU ! and we love you XXX isanella
isa2222 2 years ago 2
Dear Isabella,
thank you for coming to share this part of my story and of my life with MS. It never crossed my mind to give up because that is not the way I am! I came to America when no one believed I could do it, so I am used to doing things and achiving my goals no matter what people tell me!
Thank you for writing me such a sweet comment and for reminding me that it's not about what I wear and that I can be pretty no matter which shoes or clothes I use! Thank you and take care!
masterbass5 2 years ago
I am so sorry! I used my husband's YouTube address to answer you!!!! The other message that you see after this one is the one that I wrote you but I must have gotten confused and I used his address and not mine! Well, I think the brain fog is still here!!!! :)
Please, read what I wrote you in the other message because it is much better than this one!!!!! :)
Bises,
Angela
angelusa73 2 years ago
dont worry Angela we always manage to catch up dont we ?love isabella
isa2222 2 years ago
Yes, we always manage to catch up, even if it might take us some time! :)
Take care,
je t'embrasse
bises
Angela
angelusa73 2 years ago
Well I've said before that your videos show you to be an inspiring person, but this one goes to show just how much your positive outlook helps - you improved because you didn't give up when that first doctor did. That's a lesson that applies not just to MS, but to almost anything in life: you only achieve things if you stay positive about them.
Keep up the positivity.
Regards,
Richard
ScotsmanRS 2 years ago 4
Dear Richard,
thank you for sharing this part of my story and thank you so much for being so supportive and so kind to me! I don't think I will ever give up because I have too many dreams and too many people to be fighting for and I am very lucky because, after doing a lot of research, I found the right people to support me and that will never give up on me! I hope this will help others realize that they can get better and that things can always improve!
Thank you, dear Richard!
Hugs
Angela
angelusa73 2 years ago
Angela,
Good message. Attitude is everything.
It is so easy to be miserable. It takes alot of courage and effort to look up and look forward.
Hope is the most important thing in recovery.
I have to say that I have a fear in the back of my mind that by trying and pushing forward I could be either salvaging my life or setting myself up for the biggest heartbreak if things get much worse.
I choose #1
I am happy to tell you that I am making the most of this life I am given.
Ciao,
Mark
irishbear76 2 years ago 3
Dear Mark,
I did write you an answer yesterday, but I see that it's not here any more!
Anyway, I wanted to make sure to thank you for always being present to the steps that I am taking in my MS journey and I would like to tell you that you are absolutely right and choosing option #1 is a lot better than choosing #2...You are making the most out of your life and you are doing an amazing job at it!
I wish you the very best and I hope that you will never lose your great spirit!
Hugs,
Angela
angelusa73 2 years ago
Hello Angela,
Thank you so much for this beautiful and encouraging video, I am sure it will be inspiring and motivating a lot of people. :-)
As always, I wish and pray for you all the best.
Un abbraccio forte!
~Anindya
InnocentMalin 2 years ago 4
Dear Anindya,
just like I told Tori, I had written you yesterday but today I saw that my comments are not here any more!
I wanted to thank you so much for being present along my journey and for listening to this part of my MS story.
My message is for everyone...not giving up in very important and while it's very hard not to give up, it is super important to try to keep our spirits up! Thank you for the prayers. I appreciate them.
Grazie della tua amicizia!
Un grande abbraccio,
Angela
angelusa73 2 years ago
Hey Dear,
Great video. It has been 7 months since my relapse and I am still getting better! Being positive is the only way to survive this disease.... positive thinking is the best medicine. :-)
You look beautiful!!
xoxo
Tori
ToriUTK 2 years ago 2
Dear Tori,
I am so sorry you didn't get my answer yet! I had answered to everyone yesterday evening, but today when I got back in, I saw that my answers weren't here!
Well, I will rewrite everything!
Firs of all, I had asked you how things are going with Rebif and then I agreed with you in saying that our positive outlook is fondamental to live with this disease. We need it to look forward, to fight our battles, to keep on smiling!
It is the best medicine!
I hope you are doing well!
Hugs
angelusa73 2 years ago