I've had 2 of those in my life (brought on by alcohol withdrawl) and it sucked. I'd hate to go through life knowing one of these could come any second
@sexymercurialvapor I hate trolls like you who falsely accuse me if fake. Look at my blog videos and injury how can you be do mean and think I faking seizure?
@sexymercurialvapor also, I have it and there's nothing to joke about so I definitely agree but I'm not faking. I would never do that....to tell the truth, I wish I was because then I wouldn't have to go through this.
@sexymercurialvapor she does have respect it people like you who take the mick out of people and i hate it if you havent got anything nice to say keep it to your self and i hate bullying and that exactly wat your doing
@ferociousgumby Um....I'm not faking seizures thank you. I have gotten two broken arm, got many concussions, bit my cheek, lost bladder control, and torn ligaments in my neck. My seizrues not fake thanks though.
@ferociousgumby You should win dipship of the year award.. or better yet, create something to get yourself a darwin. She's not faking! NOT AT ALL! She and I all wish we culd go with NO seizures. no one WANTS this crap. it is HARD o post videos of ourselves in these conditions.. I only have one that my brother posted for me on my channel of a tonic clonic and it's all 100% real like hers are! Don't judge All seizures look different and there's no way she fakes them at all
also, ask questions like "What's my name?" "What's your name?" "What color is my shirt?" we ask those questions to my sister to see how she responds. After her last one, my dad asked "What color's my shirt" she said "Blue" "What's your brother's name" "Blue" meaning she had not fully recovered yet.
@allegrorules Thanks :) She had 3 minor ones since I've last seen this video and ran a fever too. She was all hyperactive the next day. We have a kit incase she has a severe one and can't breath, good enough to calm her down until somebody comes with an oxeygen tank.
what you should've done was hold her head still incase she starts moving her head all about, banging her head on the floor or on the table. I know these things cause my sister has seizure problems.
@ericmaustin82 Umm no. On the part of recluse, I have aspergers. I don't try to obtain self worth through other peoples, opinions based off an illness whatever is meant by that. Thank you
makes me sad to be a fucking human and so pussy as frail...far too frail weak minded mindlessly procreating infestation of repeatative pests that we are. Scrounging around the earth using and polluting up it's resources for nothing but some slice of religion that breeds absolute segragation upon nations to earn money and profit by making more weapons for mindless lil wars for the promise of a better tomorrow when there really is no point other than financial gain fuckin sorry peeps know no betta
@ericmaustin82 um...because I am requesting people's opinions. Also, I want it to be an eye-opener for people who do not understand how tough seizures are.
@ericmaustin82 Umm are u retarded?? Lots of people Post this to show others How to Handle and Seizure If u hate looking at it Why watch this video in btw learn how to space cause i dont no what "POSTTHIS" is :]
I think your just a recluse, that has the ability to socialize with the normal world... but you choose not too... you hide your true self through youtube postings and try to obtain self worth through other peoples opinions, based off of an illness....
@ericmaustin82 I think you try to act cool by trolling others through the internet and when you get a reaction it makes you feel like you have some sort of worth when you don't.. so you have to pick on people through the net. Go into the world and stop trolling.
One day at school I felt my friend have a seizure, and I felt very tired, I couldnot do anything like mate,work, it made me so tired, that it was hard, and it lasted for a few hour!s it was like we was conneted at that day! It is very tiring,
@CoolOneXD it was the bad feeling. that lasted for a while after that.. it was 3 min, when it happened and stop.is what i meant.. just the feeling , lasted for a few hours
@a36330 Did you actually have a seizure? Or did you feel like your friend does/did when they have seizures? My best friend often feels like I do in my warnings when I still had Auras and when I have seizures even if she doesn't know sometimes she'll feel weird, she'll feel pain in the places I get injured, have issues walking when I can't walk right now.. she feels exhausted when seizures exhaust me.. it's so weird the connection with others we can have!
looks like a pyschogenic seizure. There are differences. Look it up. You really need to find the underlying cause. Are you in denial thinking they SHOULD be epileptic because that seems more "normal" then being considered crazy for psychological seizures? Please tell the truth, because once you do, it might get easier for you.
@kittypride2 No, truthfully we are unsure. neurofeedback examinations taken within 24 hourse of a seizure have recently turned up unstable. Although there is no abnormal eeg in these, the instability is a key for abnormal brain activity. Also, I recently was diagnosed with aspergers which is a form of autism, and 1 in 4 people with autism develop seizures. These frequently develop or get worse around adolescence. I was 13 when my seizures started.
My niece is having similiar problems and we now have went to 2 neurologist and there saying she has panic attacks. Well, I was just wondering what if anything has your doctors are saying? Please let me know something thanks....
@dobbelsplumbing my doctors have said the same thing. the best thing to do is to go to a psychologist/psychiatrist and have her see them for a while. If after a while you feel that isnt the right diagnosis try another doctor. How old is she? Has she had any traumatic events in her life? What are her seizure caracteristics?
@dobbelsplumbing I ave seizures too and it was put down to panic attacks and anxiety psychological seizures.. now 3 years later we're finding how yeah, they're non epileptic even though i have an abnormal eeg, but they are a physical reason not psychological reason and we have to find the reason why now.. and im on seizure meds.. that im allergic to, to boot! >:( I only have one video of a tonic clonic on my page and is only a minor, they're much worse now but its there if uwant
i'm sorry if this sounds rude but why does she breathe heavily at the end of the seizure? has the seizure finished at that point? again, i dont mean to be rude. i hope she's ok
I have a serious question, my boyfriend has Grand Mal and I have never experienced anyone having a seizure. I am scared to death that I will freeze up and not know what to do to help him. Is there any way I can prepare for such an event (physically and emotionally)?
@AmberStalene seizures are never a nice experience for anyone involved however once you have experienced a few you realize that they are simply a part of life for some people and they become easier to accept, the best things u can do to help a sufferer(I suffer from seizures myself) is hold the persons head(and/or place pillow or something soft underneath the head) as there is a tendency to bash it off the ground,then when hes coming out of it try to comfort him,tell him it OK he had a seizure
@ramilanbaginski Thank you very much, I hope that I am strong enough to help him in times of need and able to make him feel like he is no different from me. You help more than you think.
@AmberStalene yes! i have seizures myself so i know what to do! while they look scary, the best thing to do is to stabilize the head and once he comes out of it, talk softly to him and explain that he had a seizure. it's also best to roll him on his side so he does not choke on his tongue. just remember that he'll be okay :]
If the doctors cant find anything wrong with you, and if they just deem it as psychological then its demonic. And before u start judging me, i do believe in medicine, and i know that can be medical conditions. But i am saying in case doctors cant find out whats wrong.
@LadyD1979 lol that doesn't mean crap.. There are tons of things from blood sugar to heart rate to blood pressure ro chemical embalance that can cause seizures and not be epilepsy or psychological. Mine are non epileptic and not psychological but not demonic either, they are a physical problem
@kittypride2 Hey Elyssa.. I know there is no shame in the disorder.. but I think she has a physical thing going on as well after getting to know her. She has seizures much like mine and though mine are now showing non epileptic with an abnormal EEG (hers are abnormal during biofeedback so shes tech not normal either) there are other physical things that can cause it. like we both are klutz and hurt ourselves allot.. each bash to the head lowers the sz threshold too
i have a epileptic child to deal with ... what to do , when a child opens his mouth during a seizure .. is it good to put something in his mouth so that he shouldnt bite his tongue ???... some say we shud, and some suggested not to .. i am confused.
@mehekz You should NEVER stick anything in the mouth. Doing this can be harmful to the person. It is not possible to swallow one's tongue and biting will most likely occur even with something in the mouth. Also, sticking something like a spoon can cause a person to chip teeth. Have a great day :)
ok .. what if we put something soft in their mouth ? what if they bite their tongue or teeth .. ??that would also be harmful for them .. i know they cant swallow their tongue, thats a misconception .. but in our part of the world, i have always heard that we shud put something in their mouth so that they dont hurt their tongue ..
Don't ever put anything in their mouth!!! Nothing! Sometimes I bite my tongue but mostly not, not a big deal. It would be dangerous to put anything in someone's mouth.
@MasterDino3 I was diagnosed with PNES before just finally being told it's physical instead of PENS (also conversion disorder, pseudo seizures, or psychological seizures, all the same thing lol) I agree there is no shame in it.. But it's rough when you *know* it's not mental thing, it's physical. After 3 years for me, we are just now told it's something non epileptic but physical and we need to keep searching.. Frsutrating! and AED im on doesnt work anymore :(
@MasterDino3 *Cont* and the only AED;s that have worked had bad side effects, like kidney stones. D: There are a few videos out here on non epileptic/conversion disorder/psychogenic seizures. There is a channel called conversion disorder and plushbanana has conversion disorder and does videos on those seizures all the time if that's of any help
I have T.C's and seeing an "Epileptologist" is a nightmare took Me, 2 yr's. Its been worth the wait. I just lost my best mate, to S.U.D.E.P! But I'm hanging in there. Hope You do the same:-)
amazing that myself and alot of the people i talk to describe the aftermath of a Grand mal ad feelin like youve been hit by a truck .... keep on keepin on girl
Btw...epileptologists (no I didnt make the word up) specialuze in only epilepsy may want to find one nearby. I had to go 4 hrs from my town back in the day to visit mine. Just a thought
reminds me of mine. Been a year seizure free on meds (been on a lot of different pills in my life) im 29 was 15 when had my first. Mine shot off my frontal lobe so I feel for her big time....
remember seizure are scary try living a life where its always restrictions and u could die at almost any time from busting head open to choking thats what i have to deal since i was 5 trust us u are better off majority of scars i wake up with from seizures limits jobs but u cant get on ssi cause of it because uncle sam does not see it as a handicap
I've had epilepsy for a year now so I sympathize with u hon. I'm missing some of my tongue, my memory sucks and I have to spend extra $ on meds that only work sometimes and have all kinds of side effects. I hope for your sake you don't have epilepsy. Just out of curiosity...are the tonic-clonic seizures the only kind you've had?
I've had epilepsy for a year now so I sympathize with u hon. I'm missing some of my tongue, my memory sucks and I have to spend extra $ on meds that only work sometimes and have all kinds of side effects. I hope for your sake you don't have epilepsy. Just out of curiosity...are the tonic-clonic seizures the only kind you've had?
OK... Niceboy... if u have a seizure you won't know what it's like b/c you probably won't remember anything about it... more than likely you'll just feel like crap for a day or so after. And get driving license taken away... not something to hope for. :)
@Niceboy3377 You are crazy. Seizures are NOT fun and they are not something to want. Ask anyone with epilepsy or any other seizure disorder and they will tell you the same. Get a life
@Niceboy3377 Okay. I'm sorry, I get a little defensive with people when they say stuff about my seizures......I tend to take them the wrong way..... Count your blessings that you don't have seizures because they are no fun.
Random ? but why a doctor at your house? I'm still not sure weather which sz you have cause if they're not showing up on EEG and they're TC that's pretty hard to miss
I was told anything great than a simple partial so complex partials, absences, tonic clonics etc will always show up on the EEG in some way or another if they are epileptic!
@allegrorules Yeah, movement artifacts as I think they call them (read one of my EEG reports) can make it hard to see what's going on underneath however, I think in an epileptic fit they should see something just before the shaking starts compared to a psychogenic seizure but I'm not absolutely certain so don't quote me on that.
As i said be4 They Are Definitely epileptic Seizure but i aint a doctor but have seen other have them and i have them as well but mine was diagnosed as epileptic i have Tonic Clonic Drops Absences I had One Complex but i hope it get diagnosed soon
Im not judging cause I do have epilepsy myself, but u seem to have 2 types of seizures going on right, Absence and Tonic Clonic. I saw this one and it didnt seem to mirror all the tonic clonic classic signs, have they pinpointed exactly what seziures you have or they cant pick it up on the tests, do u know where u stand with medication, do they thinks its real seizure or physilogical, seems u need an answer and soon
@leigh1976 The docs aren't sure. I have had 1 tonic clonic and 1 cp/absence seizure on the eeg, neither have shown up. My last eeg I had no seizures during so it came up negative. Just out of question, what did you find atypical of a tonic clonic seizure?
@allegrorules Just that I didnt see any drooling, or mouth clenching, and usually your legs shouldent be stiff they would also be involved in the seizure, not that I am saying its not a seizure it just looks like maybe it's a tonic clonic combined with something else, but yes definatley something is going on there you can see that, it;s just Ive have tonic clonics and they are very diffrent, but hey maybe all seizures are not the same.
@DJChelski - My seizures looked very much like epileptic seizures as well, having them in my sleep and so on, but I was diagnosed with non-epileptic seizures.
What I meant to put is even if you are epileptic (which you might well be or you might not) the dog is sensing the behavior rather than some unusual ability to detect brain waves as epileptics often show signs before they fit that may go unnoticed by everyone else but the animal knows!
What I meant to put is even if it is epileptic (which it might well be but it also might not) the dog knows from the behavior rather than some unusual sense to detect brain waves as epileptics too may show certain signs they're going to have a fit and no one but the animal picks it up!
The thing about animals only knowing if it's an epileptic fit isn't true as people who have psychogenic seizures often show signs just before having a fit that they themselves and other miss but animals pick up!
@kittypride2 Yes, the eegs have come up negative even during a tc, but my doc says that tc eegs are also hard to read sometimes because of all the movement..... I fell into the seizure. I was playing a play station game
Definetely epileptic, but all other hospital tests have shown negative? i don't get it and note, your dog is staying very close by. For animals to do that it usually means some sort of EPILEPTIC seizure!!!
I can't tell could go either way and there's always the possibility you could have both which is why I'm going back to a neuro! There are are signs that are meant to distinguish between the two but with me I show the signs of an epileptic in yet all tests have said psychological!
Oh bless you, that looked painful.
streamofawareness 1 day ago
I have epilepsy, and all I have to say is lamotrigine and marijuana... perfect combo... at least for me
deimos420 4 days ago
I've had 2 of those in my life (brought on by alcohol withdrawl) and it sucked. I'd hate to go through life knowing one of these could come any second
azzh00le 1 week ago
Hey hope you get better
Anthony71191 1 week ago
@sexymercurialvapor I hate trolls like you who falsely accuse me if fake. Look at my blog videos and injury how can you be do mean and think I faking seizure?
allegrorules 1 week ago
i hate people like you who put fake videos of seizures on the internet. i have it and its nothing to joke about . please get some respect
sexymercurialvapor 1 week ago
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Divinechaos1985 1 week ago
@sexymercurialvapor also, I have it and there's nothing to joke about so I definitely agree but I'm not faking. I would never do that....to tell the truth, I wish I was because then I wouldn't have to go through this.
allegrorules 1 week ago
@sexymercurialvapor she does have respect it people like you who take the mick out of people and i hate it if you havent got anything nice to say keep it to your self and i hate bullying and that exactly wat your doing
Florenceisawsum 1 week ago
@sexymercurialvapor Go be a douchebag somewhere else.
streamofawareness 1 day ago
@AshCanVlog So true. It's weird how same we are!
allegrorules 2 weeks ago
@Niceboy3377 What type of seizure? What were you doing? What did it feel like?
allegrorules 2 weeks ago
You should win the Oscar for bad seizure imitations.
ferociousgumby 2 weeks ago
@ferociousgumby Um....I'm not faking seizures thank you. I have gotten two broken arm, got many concussions, bit my cheek, lost bladder control, and torn ligaments in my neck. My seizrues not fake thanks though.
allegrorules 2 weeks ago
@ferociousgumby You should win dipship of the year award.. or better yet, create something to get yourself a darwin. She's not faking! NOT AT ALL! She and I all wish we culd go with NO seizures. no one WANTS this crap. it is HARD o post videos of ourselves in these conditions.. I only have one that my brother posted for me on my channel of a tonic clonic and it's all 100% real like hers are! Don't judge All seizures look different and there's no way she fakes them at all
AshCanVlog 2 weeks ago
@AshCanVlog thanks ash :)
allegrorules 2 weeks ago
She needed to be watched. Damage to the head, damage to herself.. not necessary. You have to watch her.
caddoiroquois 2 weeks ago
also, ask questions like "What's my name?" "What's your name?" "What color is my shirt?" we ask those questions to my sister to see how she responds. After her last one, my dad asked "What color's my shirt" she said "Blue" "What's your brother's name" "Blue" meaning she had not fully recovered yet.
doctorfeelucky 2 weeks ago
@doctorfeelucky Good idea! I hope your seister good :)
allegrorules 2 weeks ago
@allegrorules Thanks :) She had 3 minor ones since I've last seen this video and ran a fever too. She was all hyperactive the next day. We have a kit incase she has a severe one and can't breath, good enough to calm her down until somebody comes with an oxeygen tank.
doctorfeelucky 2 weeks ago
what you should've done was hold her head still incase she starts moving her head all about, banging her head on the floor or on the table. I know these things cause my sister has seizure problems.
doctorfeelucky 2 weeks ago
@ericmaustin82 Umm no. On the part of recluse, I have aspergers. I don't try to obtain self worth through other peoples, opinions based off an illness whatever is meant by that. Thank you
allegrorules 3 weeks ago
makes me sad to be a fucking human and so pussy as frail...far too frail weak minded mindlessly procreating infestation of repeatative pests that we are. Scrounging around the earth using and polluting up it's resources for nothing but some slice of religion that breeds absolute segragation upon nations to earn money and profit by making more weapons for mindless lil wars for the promise of a better tomorrow when there really is no point other than financial gain fuckin sorry peeps know no betta
86turkishman 3 weeks ago
@86turkishman um...why did you post this on my video?
allegrorules 3 weeks ago
@86turkishman what the hell does this gibberish have to do with her condition?
RezViper 2 weeks ago
You are strong(:
RainbowBlast00 4 weeks ago
WHY U POSTTHIS SHIT
ericmaustin82 4 weeks ago
@ericmaustin82 um...because I am requesting people's opinions. Also, I want it to be an eye-opener for people who do not understand how tough seizures are.
allegrorules 4 weeks ago
its this real ??
shaeisadiva 2 weeks ago
@shaeisadiva Um, yes. It's VERY real. I wish it wasnt but it is.
allegrorules 2 weeks ago
@ericmaustin82 Umm are u retarded?? Lots of people Post this to show others How to Handle and Seizure If u hate looking at it Why watch this video in btw learn how to space cause i dont no what "POSTTHIS" is :]
CoolOneXD 3 weeks ago
I think your just a recluse, that has the ability to socialize with the normal world... but you choose not too... you hide your true self through youtube postings and try to obtain self worth through other peoples opinions, based off of an illness....
ericmaustin82 3 weeks ago
@ericmaustin82 I think you try to act cool by trolling others through the internet and when you get a reaction it makes you feel like you have some sort of worth when you don't.. so you have to pick on people through the net. Go into the world and stop trolling.
AshCanVlog 2 weeks ago
One day at school I felt my friend have a seizure, and I felt very tired, I couldnot do anything like mate,work, it made me so tired, that it was hard, and it lasted for a few hour!s it was like we was conneted at that day! It is very tiring,
a36330 1 month ago
@a36330 OOO its not good have a seizure for hours thts so not good.
CoolOneXD 3 weeks ago
@CoolOneXD it was the bad feeling. that lasted for a while after that.. it was 3 min, when it happened and stop.is what i meant.. just the feeling , lasted for a few hours
a36330 3 weeks ago
@a36330 Did you actually have a seizure? Or did you feel like your friend does/did when they have seizures? My best friend often feels like I do in my warnings when I still had Auras and when I have seizures even if she doesn't know sometimes she'll feel weird, she'll feel pain in the places I get injured, have issues walking when I can't walk right now.. she feels exhausted when seizures exhaust me.. it's so weird the connection with others we can have!
AshCanVlog 2 weeks ago
@AshCanVlog i didnt have one, just a friend and yes its the feel..yes it's so weird the connection with others we can have, i agree!!
a36330 2 weeks ago
looks like a pyschogenic seizure. There are differences. Look it up. You really need to find the underlying cause. Are you in denial thinking they SHOULD be epileptic because that seems more "normal" then being considered crazy for psychological seizures? Please tell the truth, because once you do, it might get easier for you.
kittypride2 1 month ago
@kittypride2 No, truthfully we are unsure. neurofeedback examinations taken within 24 hourse of a seizure have recently turned up unstable. Although there is no abnormal eeg in these, the instability is a key for abnormal brain activity. Also, I recently was diagnosed with aspergers which is a form of autism, and 1 in 4 people with autism develop seizures. These frequently develop or get worse around adolescence. I was 13 when my seizures started.
allegrorules 4 weeks ago
@allegrorules My started at 13 too which is a common age for epilepsy to start but also a common age for psychiatric problems to start as well.
DJChelski 2 weeks ago
you can have seizures depending on how sever the panic attack is. It is caused by stress.
kittypride2 1 month ago
Hiya. How you doing? Have you heard anything from your Neurologist about your EEG? Do you have to have another one in the future?
MasterDino3 1 month ago
@MasterDino3 EEG was negative again but thats not surprise because i didn have seizure. i dont want to do any more eeg i hate them
allegrorules 1 month ago
My niece is having similiar problems and we now have went to 2 neurologist and there saying she has panic attacks. Well, I was just wondering what if anything has your doctors are saying? Please let me know something thanks....
dobbelsplumbing 2 months ago
@dobbelsplumbing my doctors have said the same thing. the best thing to do is to go to a psychologist/psychiatrist and have her see them for a while. If after a while you feel that isnt the right diagnosis try another doctor. How old is she? Has she had any traumatic events in her life? What are her seizure caracteristics?
allegrorules 1 month ago
@dobbelsplumbing I ave seizures too and it was put down to panic attacks and anxiety psychological seizures.. now 3 years later we're finding how yeah, they're non epileptic even though i have an abnormal eeg, but they are a physical reason not psychological reason and we have to find the reason why now.. and im on seizure meds.. that im allergic to, to boot! >:( I only have one video of a tonic clonic on my page and is only a minor, they're much worse now but its there if uwant
AshCanVlog 2 weeks ago
@dobbelsplumbing *cont* to see and i can also try to help as well if you would like
AshCanVlog 2 weeks ago
i'm sorry if this sounds rude but why does she breathe heavily at the end of the seizure? has the seizure finished at that point? again, i dont mean to be rude. i hope she's ok
bookthief100 2 months ago
@bookthief100 yah, it's common to have labored breathing after a seizures. cause you dont breathe during seizures. I don't realy know why else
allegrorules 1 month ago
Dear god lady dont turn more lights on during a fit.... do you know how much your head hurts afterwards? darkness and some confort.
MissTreefish 2 months ago
I have a serious question, my boyfriend has Grand Mal and I have never experienced anyone having a seizure. I am scared to death that I will freeze up and not know what to do to help him. Is there any way I can prepare for such an event (physically and emotionally)?
AmberStalene 2 months ago
@AmberStalene seizures are never a nice experience for anyone involved however once you have experienced a few you realize that they are simply a part of life for some people and they become easier to accept, the best things u can do to help a sufferer(I suffer from seizures myself) is hold the persons head(and/or place pillow or something soft underneath the head) as there is a tendency to bash it off the ground,then when hes coming out of it try to comfort him,tell him it OK he had a seizure
ramilanbaginski 1 month ago
@ramilanbaginski Thank you very much, I hope that I am strong enough to help him in times of need and able to make him feel like he is no different from me. You help more than you think.
AmberStalene 1 month ago
@AmberStalene yes! i have seizures myself so i know what to do! while they look scary, the best thing to do is to stabilize the head and once he comes out of it, talk softly to him and explain that he had a seizure. it's also best to roll him on his side so he does not choke on his tongue. just remember that he'll be okay :]
shannonisavirtue 3 weeks ago
@LadyD1979 and @ferrarimike23, I hope you both are joking! Seizures are not caused by demons or curses. Good grief!
Ingrid922 2 months ago 5
@Ingrid922
Yeah? How the fuck would u know that.. Oh because demon don't exist, right? ;)
AyatollaAvRocknrolla 2 weeks ago
LadyD.
Your right. Curses get past down from generation to generation.
She could have a health curse that needs to be broken.
My family has an addiction curse. We become dependent on mind altering things so easy
ferrarimike23 2 months ago
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Ingrid922 2 months ago
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Ingrid922 2 months ago
@ferrarimike23 sorry but seizures are not caused by demons or curses
allegrorules 1 month ago
@allegrorules THANK YOU.
shannonisavirtue 3 weeks ago
If the doctors cant find anything wrong with you, and if they just deem it as psychological then its demonic. And before u start judging me, i do believe in medicine, and i know that can be medical conditions. But i am saying in case doctors cant find out whats wrong.
LadyD1979 2 months ago
@LadyD1979 lol that doesn't mean crap.. There are tons of things from blood sugar to heart rate to blood pressure ro chemical embalance that can cause seizures and not be epilepsy or psychological. Mine are non epileptic and not psychological but not demonic either, they are a physical problem
AshCanVlog 2 weeks ago
@AshCanVlog Like i said: If the doctors cant seem to find the caUSE
LadyD1979 2 weeks ago
@AshCanVlog I am an eye whitness of demon posession and i know they can mimic those symptoms.
LadyD1979 2 weeks ago
Pyschogenic Nonepileptic Seizures is what MasterDino3 is saying. There should be no shame with this disorder.
kittypride2 2 months ago
@kittypride2 Hey Elyssa.. I know there is no shame in the disorder.. but I think she has a physical thing going on as well after getting to know her. She has seizures much like mine and though mine are now showing non epileptic with an abnormal EEG (hers are abnormal during biofeedback so shes tech not normal either) there are other physical things that can cause it. like we both are klutz and hurt ourselves allot.. each bash to the head lowers the sz threshold too
AshCanVlog 2 weeks ago
@kittypride2 So Ithink she has a physical problem even if it's not epilepsy rather than it being psychologcal
AshCanVlog 2 weeks ago
i have a epileptic child to deal with ... what to do , when a child opens his mouth during a seizure .. is it good to put something in his mouth so that he shouldnt bite his tongue ???... some say we shud, and some suggested not to .. i am confused.
mehekz 3 months ago
@mehekz You should NEVER stick anything in the mouth. Doing this can be harmful to the person. It is not possible to swallow one's tongue and biting will most likely occur even with something in the mouth. Also, sticking something like a spoon can cause a person to chip teeth. Have a great day :)
allegrorules 3 months ago
@allegrorules
ok .. what if we put something soft in their mouth ? what if they bite their tongue or teeth .. ??that would also be harmful for them .. i know they cant swallow their tongue, thats a misconception .. but in our part of the world, i have always heard that we shud put something in their mouth so that they dont hurt their tongue ..
mehekz 3 months ago
@mehekz
Don't ever put anything in their mouth!!! Nothing! Sometimes I bite my tongue but mostly not, not a big deal. It would be dangerous to put anything in someone's mouth.
Ingrid922 2 months ago
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mehekz 3 months ago
i hope you have a PERFECT life.
I like your glasses :)
stay pretty :)
chickadee2311 3 months ago 2
PNES. there's no shame in it!
MasterDino3 3 months ago
@MasterDino3 what?
allegrorules 3 months ago
@allegrorules . Hiya.
What I meant was, there's no shame if someone has PNES.
In fact, not many people understand about PNES, and it would be good if someone did a video on that. There is no shame in having PNES.
MasterDino3 2 months ago
@MasterDino3 I was diagnosed with PNES before just finally being told it's physical instead of PENS (also conversion disorder, pseudo seizures, or psychological seizures, all the same thing lol) I agree there is no shame in it.. But it's rough when you *know* it's not mental thing, it's physical. After 3 years for me, we are just now told it's something non epileptic but physical and we need to keep searching.. Frsutrating! and AED im on doesnt work anymore :(
AshCanVlog 2 weeks ago
@MasterDino3 *Cont* and the only AED;s that have worked had bad side effects, like kidney stones. D: There are a few videos out here on non epileptic/conversion disorder/psychogenic seizures. There is a channel called conversion disorder and plushbanana has conversion disorder and does videos on those seizures all the time if that's of any help
AshCanVlog 2 weeks ago
Ive had seizures since I was a teen. I don't have them very often, but when I do I feel really bad for the people who arn't use to it.
KaleeCali 3 months ago
is really sad .. I would like to help people like you
haji5000 3 months ago
I have T.C's and seeing an "Epileptologist" is a nightmare took Me, 2 yr's. Its been worth the wait. I just lost my best mate, to S.U.D.E.P! But I'm hanging in there. Hope You do the same:-)
techeytim 3 months ago
amazing that myself and alot of the people i talk to describe the aftermath of a Grand mal ad feelin like youve been hit by a truck .... keep on keepin on girl
Rtrippin1 3 months ago
Your not epileptic but i think u have pnes.
666vanni 4 months ago
Btw...epileptologists (no I didnt make the word up) specialuze in only epilepsy may want to find one nearby. I had to go 4 hrs from my town back in the day to visit mine. Just a thought
AngelBug109 4 months ago
@AngelBug109 Okay, I will see about seeing one
allegrorules 4 months ago
reminds me of mine. Been a year seizure free on meds (been on a lot of different pills in my life) im 29 was 15 when had my first. Mine shot off my frontal lobe so I feel for her big time....
AngelBug109 4 months ago
@AngelBug109 I am glad you have been seizure free. Congratulations!
allegrorules 4 months ago
remember seizure are scary try living a life where its always restrictions and u could die at almost any time from busting head open to choking thats what i have to deal since i was 5 trust us u are better off majority of scars i wake up with from seizures limits jobs but u cant get on ssi cause of it because uncle sam does not see it as a handicap
thor85533loki 4 months ago
@thor85533loki Yah, seizures are tough. More people need to be made aware of their seriousness.
allegrorules 4 months ago
This has been flagged as spam show
I've had epilepsy for a year now so I sympathize with u hon. I'm missing some of my tongue, my memory sucks and I have to spend extra $ on meds that only work sometimes and have all kinds of side effects. I hope for your sake you don't have epilepsy. Just out of curiosity...are the tonic-clonic seizures the only kind you've had?
MsLala8282 4 months ago
I've had epilepsy for a year now so I sympathize with u hon. I'm missing some of my tongue, my memory sucks and I have to spend extra $ on meds that only work sometimes and have all kinds of side effects. I hope for your sake you don't have epilepsy. Just out of curiosity...are the tonic-clonic seizures the only kind you've had?
MsLala8282 4 months ago
@MsLala8282 no, I also have complex partial type and atonic.
allegrorules 4 months ago
OK... Niceboy... if u have a seizure you won't know what it's like b/c you probably won't remember anything about it... more than likely you'll just feel like crap for a day or so after. And get driving license taken away... not something to hope for. :)
sklawshe 5 months ago
Comment removed
Niceboy3377 5 months ago
@Niceboy3377 You are crazy. Seizures are NOT fun and they are not something to want. Ask anyone with epilepsy or any other seizure disorder and they will tell you the same. Get a life
allegrorules 5 months ago
@allegrorules i have got a life u know i felt sorry for u i just want to have one so i can see what its like ok!
Niceboy3377 5 months ago
@Niceboy3377 Okay. I'm sorry, I get a little defensive with people when they say stuff about my seizures......I tend to take them the wrong way..... Count your blessings that you don't have seizures because they are no fun.
allegrorules 5 months ago
@allegrorules oh its alright btw i just had my first seizure last weekend (grand mal) and i get what u mean D; it scary :(
Niceboy3377 1 month ago
@Niceboy3377 Erm.. may I ask how you gave yourself a seizure?
AshCanVlog 2 weeks ago
@AshCanVlog i didnt rlly give my self it just happend idk why :P
Niceboy3377 2 weeks ago
@AshCanVlog what seizures feel like for u?
Niceboy3377 2 weeks ago
@allegrorules Yep Shes Right They Are Not Fun At All And You Dont Want Them Do You Really ?
Florenceisawsum 4 months ago
@Niceboy3377
Are you effing CRAZY?
JessieLee10 5 months ago
@JessieLee10 no
Niceboy3377 5 months ago
@Niceboy3377 How dare you. They are awful things.
BonnyV93 4 months ago
@BonnyV93 well sorry! just want to see what it feels like
Niceboy3377 4 months ago
Who recorded it? They should have moved the table to protect your head. The dog behind you was so cute..trying to be by your side!
DavidEpilepsy 5 months ago
@DavidEpilepsy My mom recorded it. Yah, my head still has a bump from the table
allegrorules 5 months ago
@DavidEpilepsy oops, sorry for the double send
allegrorules 5 months ago
Random ? but why a doctor at your house? I'm still not sure weather which sz you have cause if they're not showing up on EEG and they're TC that's pretty hard to miss
AshCanVlog 5 months ago
@AshCanVlog No, there wasn't a doc at the house....my mom taped it FOR my neuro...so he could see what my seizures looked like.
allegrorules 5 months ago
@allegrorules Ah ha! Thought so, lol You said by a doc in your description so I was a lil confused
AshCanVlog 5 months ago
@AshCanVlog oh, maybe I did. If so, I meant for the doc.......
allegrorules 5 months ago
thats the kinda shit i get in my sleep....usually in the mornings. when im awake i usually just have 5-10 spells
Tprsteve01 5 months ago
I was told anything great than a simple partial so complex partials, absences, tonic clonics etc will always show up on the EEG in some way or another if they are epileptic!
DJChelski 5 months ago
@DJChelski I don't know then, because my doc said tcs can be hard to see on the eeg sometimes.
allegrorules 5 months ago
@allegrorules Yeah, movement artifacts as I think they call them (read one of my EEG reports) can make it hard to see what's going on underneath however, I think in an epileptic fit they should see something just before the shaking starts compared to a psychogenic seizure but I'm not absolutely certain so don't quote me on that.
DJChelski 5 months ago
As i said be4 They Are Definitely epileptic Seizure but i aint a doctor but have seen other have them and i have them as well but mine was diagnosed as epileptic i have Tonic Clonic Drops Absences I had One Complex but i hope it get diagnosed soon
Florenceisawsum 5 months ago
@Florenceisawsum Thank you, I hope you get your complex diagnosed :)
allegrorules 5 months ago
@allegrorules Ha Lol I Missed Spelt Wat I said I Meant To Say was I Hope you get yours get diagnosed :)
Florenceisawsum 5 months ago
@Florenceisawsum oh, okay. That's all right, I do that sometimes....
allegrorules 5 months ago
Im not judging cause I do have epilepsy myself, but u seem to have 2 types of seizures going on right, Absence and Tonic Clonic. I saw this one and it didnt seem to mirror all the tonic clonic classic signs, have they pinpointed exactly what seziures you have or they cant pick it up on the tests, do u know where u stand with medication, do they thinks its real seizure or physilogical, seems u need an answer and soon
leigh1976 5 months ago
@leigh1976 The docs aren't sure. I have had 1 tonic clonic and 1 cp/absence seizure on the eeg, neither have shown up. My last eeg I had no seizures during so it came up negative. Just out of question, what did you find atypical of a tonic clonic seizure?
allegrorules 5 months ago
@allegrorules Just that I didnt see any drooling, or mouth clenching, and usually your legs shouldent be stiff they would also be involved in the seizure, not that I am saying its not a seizure it just looks like maybe it's a tonic clonic combined with something else, but yes definatley something is going on there you can see that, it;s just Ive have tonic clonics and they are very diffrent, but hey maybe all seizures are not the same.
leigh1976 5 months ago
@DJChelski - My seizures looked very much like epileptic seizures as well, having them in my sleep and so on, but I was diagnosed with non-epileptic seizures.
kittypride2 5 months ago
But docs usually know normal from abnormal... there has to be a reason somewhere as to why you are having seizures. Maybe you know?
kittypride2 5 months ago
@kittypride2 quite true. I'm sure the doc will be able to tell
allegrorules 5 months ago
Sorry phone went a bit crazy and said it couldn't post so typed it again only to find it did!
DJChelski 5 months ago
This has been flagged as spam show
What I meant to put is even if you are epileptic (which you might well be or you might not) the dog is sensing the behavior rather than some unusual ability to detect brain waves as epileptics often show signs before they fit that may go unnoticed by everyone else but the animal knows!
DJChelski 5 months ago
What I meant to put is even if it is epileptic (which it might well be but it also might not) the dog knows from the behavior rather than some unusual sense to detect brain waves as epileptics too may show certain signs they're going to have a fit and no one but the animal picks it up!
DJChelski 5 months ago
@DJChelski I see. That makes sense,
allegrorules 5 months ago
The thing about animals only knowing if it's an epileptic fit isn't true as people who have psychogenic seizures often show signs just before having a fit that they themselves and other miss but animals pick up!
DJChelski 5 months ago
Were you sleeping during this one or did you just fall into the seizure? Yes, the dog knew something wasn't right.
So even when you had big TC's during and EEG test, they came back negative?
kittypride2 5 months ago
@kittypride2 Yes, the eegs have come up negative even during a tc, but my doc says that tc eegs are also hard to read sometimes because of all the movement..... I fell into the seizure. I was playing a play station game
allegrorules 5 months ago
Definetely epileptic, but all other hospital tests have shown negative? i don't get it and note, your dog is staying very close by. For animals to do that it usually means some sort of EPILEPTIC seizure!!!
kittypride2 5 months ago
@kittypride2 That's interesting. Yes, all my tests have shown up negative,
allegrorules 5 months ago
I can't tell could go either way and there's always the possibility you could have both which is why I'm going back to a neuro! There are are signs that are meant to distinguish between the two but with me I show the signs of an epileptic in yet all tests have said psychological!
DJChelski 5 months ago
Oh no, i hope youre ok. That is defalently an epileptic seizure. Hope to hear from you soon.
MetalFanatic6661 5 months ago
@MetalFanatic6661 yes, I am all right now.
allegrorules 5 months ago