My Kind Of Dignity - Episode 1

[Aaronthegreatest]

This is kind of misleading....it's not really a documentary, so you shouldn't bill it as one. It can be a pain for people who are trying to find research on the subject, for one thing.

[TequilaPete]

@Aaronthegreatest If you notice the note below, you will see we inform the audience that this is NOT a documentary in the purest sense of the term but an attempt to introduce people to CJD.  It is based on real people who suffered the disease and the stories told by their families. We only hope we have done them justice.

[TequilaPete]

If you watch the closing credits, you will see that this is a depiction of someone suffering from CJD. The actual illness is far more horrific then we present. The subject matter was researched thoroughly, the professional interviews are genuine and the symptoms suffered by the lead character are taken from testimonials from family members of actual victims.

The intention was to enlighten the public on a disease that is very serious and terribly misunderstood. The producers made no money.

[TequilaPete]

Note: The lead character's level of jocularity was derived from a number of victims who were reported by family to have never lost their sense of humour throughout their ordeal. We felt it was important to demonstrate this in our film.

For those of you watching for the first time, this is a very real and serious illness, estimated to be misdiagnosed in up to 30% of all patients (often attributed to Alzheimer's or other neurological disorders).

This film attempts to demonstrate the facts.

[TequilaPete]

The producers hope this explanation clears up any misconceptions.

[jamescase13]

CJD is just vCDJ but it look different since its not the same strain that was found in UK. The govt is LYING.

[angel2901]

CJD is THE disease I fear the most. I dont eat beef for 8 years now. Honestly if were diagnosed with CJD I would kill myself. Without my brain Im nothing.

I feel very sorry for him and his family!

[catherinespark]

What about FFI? THat's pretty horrific and there's NOTHING you can do to prevent, cure or treat it.

[andell1]

This man is very brave! These prion diseases...FFI, Kuru, CJD and so on...are frightening.

[cjdvoice]

Thank you Kevin and TequilaPete for allowing this video to bring more awareness of this devastating disease. It should be one of the 'Featured' videos on YouTube.

[ccondon24]

I lost my mom to sCJD, 23 days from diagnosis to death. I have great respect for the man who had his experience documented. Especially because he was claiming his dignity with a disease that leaves you with none in the end.

RIP all those that have been lost to this horrific disease.

[navywife1977]

This is so sad, and I believe that many people within the next 20-30 years will have the same thing.  There is no testing in the US on our meat supply. :o) Eat organic!

[isaiahezekiel]

I know we will find a cure someday... It's actually proteins behaving rather weirdly. You see, we have a protein in our neurons with a certain kind of folding. Once a molecule of that protein changes its folding (usually to something much stronger) it influences the other proteins to do the same. Then - you experience brain cell death. Very rapid. Condolences to those who lost their loved ones in this way.

[IxQuit]

My mom has it, We have had her for a couple months and I pray I get a couple more.

[expresspress]

I lost my mom to CJD. She was dead in less than a month.

I hope one day they find a cure.

[ccondon24]

Express... I lost my mom the same... 23 days from Diagnosis to Death... really ripped us up. It is hard to watch these videos, but it is important that this man tried to find dignity in dying with this disease, because it is truely a disease that takes all of your dignity away.

[McWheeler93030]

I am a spouse of a CJD patient who lasted only 5 months after diagnoses, but was under exam after exam for over 14 monthes. His diognose was found in LA VETERANS HOSPITA IN CALIFORNIS. I have mention this to my physicians and they cant belive the symptons I discrived. It is a nightmare even to remember for all of the family. The family of the member with CJD is nolonger algeble to be any type of medical doner other then to donate the body to science.