Added: 3 years ago
From: AnnetteRush
Views: 7,792
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  • please find a cure!! i have it and im 15 years old and its getting harded and harder. i also had a uncle that had it and he died at a very young age :( my brother is 33 years old and he isnt doing to well :(

    please help find a cure for me and my family.

  • i must find a cure for dmd!!!!

  • you may trip over it one day, or at least anyone will. We will murder this illness one day soon. I can just taste it. I to suffer, well i don't "suffer" with duchenne. I fight with duchenne everyday, and almost "forget" i have it, cept for the fact of the chair i'm in. No matter. I don't suffer technically because i never let it get to me and i live days like they are my last. As in, i don't mope, i go out and attack the day and enjoy it to the fullest.

  • we have to keep believing that there will be a cure i was told at 12 that i had MD i am now approtching my 31st birthday and i always hope that others with MD can have some insperation in the fact that i am still here fighting in hope

  • soy de argentina, trabajo con niños con DMD y tenemos la esperanza que algun dia se encuentre la cura de esta enfermedad.los apoyamos en su lucha. sigan adelante!!

  • Thanks ZACTION. We heard all about the exon skipping trials at last years Action Duchenne Conference in London and cant wait to hear some updates at this years!

  • Well done. We will find a way to deal with this. There are clinical trials going on now for some exon skipping (Antisense Oligonucleotide therapy)

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