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Congratulations!
I think you know my mom. My younger brother has DMD. I made a video that I hope will make a difference and make its way around for many to see and appreciate.
Please check it out. God Bless!
clicker009 2 years ago
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Running the Programm BOINC on your homecomputer you donate unused computer capacity to researchers. One of their projects is about
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Adamus70 1 year ago
Pat,
What a great mother you are, your kids are watching you and they must be so proud of having you.
Thank you for your dedication to all of our kids.
JPA
ticlape 2 years ago
Congratulations Pat, what you do is amazing and I know we're all absolutely thrilled for you.
JLKauffman 2 years ago
Pat,
Your speech was eloquent and wonderful. We don't need Penelope Cruz, we need you. You are our hero and you and PPMD mean everything to us. Our Kevin is one of "Pat's kids" -- no one else's!! We thank you for working to save our boy's life. As my Kevin always says to me with a sweet smile on his face, "A momma does what a momma must do!" You are some momma!
Love,
Patti and Gene Frank
pocolady54 3 years ago
Pat, Thank you for all you do! You are as amazing as your speach and just so you know, you are our "Penelope Cruz"!! You are our hero and without you and this project that you began, I know I would be crazy! Your love for our sons is amazing and as Seph and Adam said in their photo to you "Thanks for watching out for our future".
We love you! Lori, Joe and Seph
lww7839 3 years ago
Pat, We are so proud of you and the words you spoke gave chills to me. I wish we could SCREAM out to the world what this is doing to all of us, the pain we have inside us for our children that we feel EVERYDAY!. Thank you for being the PRECIOUS person you are. We have to win this battle for your sons and all the other boys with this Duchenne. As James would say-Love you to the top of God's longest hair. With ALL our heartfelt love to you. James & the Rivera Family
JamesRyanRivera 3 years ago
Pat, You are great. I personally know how you devote your time and effort to find a cure for this dreaded disease, even after losing your beloved sons. You really deserve this award and more.
Your service to Duchenne community transcends all national borders and we in remote Sri Lanka feel the difference it has made on our lives. - Hafiz, Father of a 26 year old Duchenne boy.
yimhafiz 3 years ago
Pat, You are great. I personally know how you devote your time and effort to find a cure for this dreaded disease, even after losing you beloved sons. You really deserve this award and more.
Your service to Duchenne community transcends all national borders and we in remote Sri Lanka feel the difference it has made on our lives. - Hafiz, son of a 26 year old Duchenne boy.
yimhafiz 3 years ago
Great Job Pat!!!
tpyeatt 3 years ago
Pat,
Your speech was very moving. No one deserves this award as much as you do. I am so thankful for all of your efforts in fighting this disease in honor of your sons and for the our sons' benefit. I'm so happy you earned this award! Mom-of-Bradley
lisajonesrn 3 years ago