Multiple Sclerosis: starting Tysabri (Natalizumab)

[kippyedwards]

where can i get more of that song please..........

[Armando0002]

Great video!!! I love it!

[lichenologist]

So good, Marlo! I have MS already 8 year... or > more, and injection REBIF three months (by means of Rebiject II)

Thanks, very useful video.)

Max

[canadarobin]

The way your skin reacted ( think you made a comment on an earlier video that the injection sites were leaving you with indentations?) Now that you're not using rebif, did the indentations go away?? I'm just about to start using it.

Thanks!

[teslagirlM]

sorry to take so long to answer. I think it has improved slightly. It does not look bad. I should also mention that what happened to me is rare. It is probably more apparent because I am skinny, which in the case of injecting, does not help things! LOL

I hope this helps!

Good luck starting Rebif and feel free to ask me anything else.

Best,

Marlo

[teslagirlM]

@canadarobin Did I not write back to you? i am sorry if that is the case. The indents went away only slightly. The shape of my leg is changed, but hard to notice if you don't know what they looked like before. please remember this is a rare occurence. Sorry to answer so late.

[carlogiovanni]

I just saw this video, and thought, why on earth haven't I left you a comment? So I start to type, then thought, hang on, maybe I did, THEN was reminded by your wonderful song, and sure enough, I did. Hope you're doing okay on Tysabri?? xx

[DoctorlaNa]

Taking drugs is a very difficult decistion ,,

you know about all horrible side effects & don't wanna take it but you need it , you have to .!

Good luck marlo : )

[nicv11ita]

Good luck Marlo. Sounds like u put some serious thought into this. I wish you the best and hope this will be the one for you.

Take care, nicole

[gb0743]

Good luck with your Tysabri treatment!!

[kezzcass]

This IS real life! And it is a pleasure walking through the real life of MS with you. Not sure your first infuson will be as sexy as your Avonex has become but I am sure it will go fine! I am crossing fingers that it works far better! Kerri xo

[n95johnny]

Marlo,

hope your havin a detox wash out (clean avonex from ur system -- about a month) be4 u start tysabri. uno PML

:)

[teslagirlM]

Hello lovely! Do not worry! Most of the people who got PML had other auto-immune that they were being treated for. There are many articles saying that the families thought it was because of the Avonex, but I don't think there was proof. Also, they were on Avonex for a lot longer than me.

So....I have not detoxed, unless you include cosmopolitans, which I have cut down on.

[teslagirlM]

Hi Kylie! I know I am a bit of a nut, I can't seem to stop. LOL!

I am glad to hear it is the best decision you ever made and I think I will be the same! no side effects so far....yes!

Speak soon,

Marlo

xx

[angelusa73]

Dear Margo,

I wasn't aware that you were going to start taking Tysabri!

Well, I hope that my videos, Vern's and Lauren's have helped you learning about this medication.

I understand your concerne about the medicine. It's not for everyone, you are absolutely right. Tysabri is for people that have active MS.

I don't want to take medicine either but I have to...at least for now.

Thank you for sharing your story.

I wish you the very best with Tysabri.

Lots of hugs,

Angela

[zenflea]

I am sending you good thoughts for yout first Tysabri infusion. Btw, thank you SO Much for you emails a few weeks back when I was first diagnosed. I have started Rebif (in 3rd week of titration pack) and so far so good (except for the meltdown I had tonight with my first 22 injection). Thank you SO much for being so honest and open with your videos and letting us into your "real life".

p.s. I LOVE your music - where can I can I get that song or any of your others?

[bbcalifornia]

Good luck with the Tysabri. I have been on for 5 months and really big improvement for me over the interferons (both in how I feel and convenience/reduced side effects). I hope you have equally positive results. PS - The added bonus for me is the infusion gives me a couple of hours of uninterupted meditation ever 28 days!

[teslagirlM]

Excellent points! Well, I started it and I am amazed that I do not have side effects. I am waiting for them....but they do not come. 28 days of meditation, here I come!

Glad you are doing well on it!!!

Mxx

[fiddleyfingers]

hi marlo, best of luck with tysarbri.please keep us all updated with it, as always you look lovely

[teslagirlM]

Many thanks. You are kind! I will do a vid, but I will tell you that I have no side effects. Maybe they gave me saline....LOL!

[ernahnotme]

Good luck with your 1st Tysabri :)

[teslagirlM]

Thank you! I started! so far so good! no side effects....

[carlogiovanni]

By the way your song sounds very Kate Bush. I love it. Good luck for next week

[carlogiovanni]

I loved watching this video :)  "not in a sexual way" Haha! :p

[teslagirlM]

hahaha! Thanks! Hope you are well! Thanks for the Kate Bush comment. LOVE her! I am so happy you like that song! speak soon

Marlo

xx

[dmplaura]

The dark side. ROFL!! Welcome, pull up a chair!

[teslagirlM]

I knew I was in good company. You seriously rock!!!!

[gavooon]

Hi M,

So nice to see your beautiful face once again. I was worried about you as I watched this video, but breathed a huge sigh of relief when you retracted your sexy needle suggestion!! Sheesh!! :-)

Anyway just to say good luck!.. and that Ill be with you in spirit as you get your first infusion!

Thinking of you always,

G xx

[teslagirlM]

Hi Gavin,

you should still worry, as my mind is slightly twisted. hahaha!

well you were there with me, so thanks! I am now on it, and I have almost NO side effects, and I feel good. talk soon,

Big kiss,

Marlo

[5ChiLanta]

Good Luck with Tysabri! I am taking it in the USA. So far so good :-) -- hang in there!!

[n95johnny]

hey u, i just had 2watch it over again.i was a bit sleeepy last time. forgot to say tanx 4 the hola out to little me in auztralia.u know i get a buzz with u's mentioning my name.sooooo true we all think about each other more than we think ,i do the same how cool is that. well i hope ur last jab was fun,cant wait for ur new jab/drip. only u can think of mixin the dart wit sex,ur soo twisted u make me laugh,ur so wild & crazy and outthere u rock babe. lovulovulovulovulovulovulovulo­vulovulovulo

[haiqin]

Good luck with the Tysabri.  I've heard many positive things about it, and I hope it helps you. Three relapses in a year sounds very rough.

Thanks for the great videos! Haiqin (Janice)

[heavensentfashanna]

that is a great decision. i waited for like 5 years to start tysarbri and it is the best choice i have made in my life. you will not regret doing so.good luck

[tazscott14]

Hi Marlo,

Please keep us posted on you Tysabri infusions. I hope it works out for you. I am sticking with my Avonex. After 12 years... so far so good. Take care, Bill

[teslagirlM]

Thanks, Bill. You see, you are a good example of how well it works! I would stay on it, if things hadn't sped up. I think that it is safer to be on something that has been around longer, and therefore the long term effects are proven. But, I'll give it a go! (I am sure my liver hates me!)

Best regards,

Marlo

[n95johnny]

hey marlo,

wow, seachange good on ya. i love ur honesty thats why u rock. :( losing my thursday jabba. so manny success storys with tysabi proud of u making the leap.

yellow is sooo u, u look soo pretty

much love and chat soon

keeps us updatted...another 1 of ur great vids 10 outta 10 babe. this 1 will work for u as the mirracle of Janett she walked to her wheelchair fukn amazing cant wait for ur miracles so happy for u.

cheers johnny

xxxxxooooxxxxxx :)

[teslagirlM]

Seriously Johnny, my miracle is that I now know beautiful human beings (like you) on this website.

Thanks for your comment! I am glad you like my wacky colour too!

Marlo

xx

ps- I am so happy for Janett!

[nancy44fr]

i can't have tysabri because i had bad Antecedents of health

so i will go to hospital in 2 month for the New treatments , good luck beautiful girl

[teslagirlM]

les joies de la vie avec la sclérose en plaques!

Are you ok? Are you starting Tysabri in two months or something else?

Merci,

Marlo

xx