Fight Spinal Muscular Atrophy

[roseyleee1]

@Estellastar1 brought me here. Wish there was something i can do. Its just so deeply saddening. I hope the funding becomes available and soon. I wish you all the best at fighting SMA. xx

[trdgordo]

you are very brave parents. 

[ittakeswill]

all the money that goes to celebrities and athletes can save lives. It saddens me to see the power of greed in our society. My sister has CP and has been wheelchair bound her entire life and I have lived with her and am currently pursuing a nursing degree so i may do my part and provide care for others.

[mandy081610]

My son had SMA Type 1. He passed at 4 months old on December 29th 2010. He was a very happy and beautiful lil boy.

[mandy081610]

My son passed away from SMA Type 1 on December 29th 2010 at 4 months old. But he was a very happy and beautiful lil boy

[mylovesofmylife]

The children with SMA and the Families of children with SMA are all bravehearts

[PauleQueenie]

I wonder what the first person who was cured from tetanos thought?

I wonder what the name of the first person who had a blood translant wasand what that person thought afterwards?

I wonder what the first person treated with penicillin thought from being cured?

I would love to think that one day on this list of "I wonder" something along " that person was the first one being cured from SMA and that would be simply WONDERFUL to live the day

[Mitosynergy]

How long ago was this?

[mcgreggor]

I too have S.M.A. Type 3. I was able to walk until the age of 4. It is a constant fight for even basic comfort, and I feel for those that have type 2 or even the deadly type 1.

But I still have hope that I will see a cure one day.

[VampressOfDarkness]

@mcgreggor I have SMA Type 2 and I know exactly what you mean; I've been pretty much completely bed-ridden for 6 years now because it is just too agonizing to be up in my chair..I only get up and sit in it about 2-3 times a year when it's unavoidable. I'm on a lot of pain medications, and even so I can't remember a single day I wasn't in some kind of pain or had something wrong with me, not since at least 15 years ago. Are you the same way?

[mcgreggor]

@VampressOfDarkness I'm not bed-ridden yet, but I am on two different high powered pain medications just so I can survive throughout the day. I'm still able to stay in my chair during the day, but if I can't find something to help with the hip and leg pain I may end up bed-ridden in the next 5-10 years.

All my major pain started about 4 years ago, when I was 22. Just been a downhill fight since then.

[783lovemusic]

my lil nece also has sma1 her parents was told hat they wouldn't be able to join her 2. birthday with her,, she got two years old few days ago.. i'm so proud of her!! these kids makes people see the live in new light.. my sister and her husband(her parents) are the strongest people i know!

[NewLifeMinistryKhmer]

We all need to pray and ask God to grant knowledge and wisdom to people who are researching to find a treatment/cure for this disease. Let God's love and power be manifested and seen through medical science.

[carolcjg]

Our third child also had this devastating disease. We lost him 30 years ago and all of what you are experiencing is exactly what we went through. My prayers to you.

[purple0381]

My sister has S.M.A type II,

It is hard, but never give up hope!

[paulj0010]

Billy's story is so inspirational.. I saw a touching documentary called "39 Pounds of Love" about a man with SMA. I think it's important to share these stories with people who are in similar situations.

[corky4343]

Billy is a Angel on earth he is Gods instrument and we are very lucky to have this littl eboy on arth he is so sweet I Love his smile I will be praying for him

God Bless

Kalena

[JessicaDevereaux]

Our prayers are with you and your family. Our 3 yr old twin boys have SMA. Its been a long hard road.  Its a neverending fight / struggle but their little lives no matter how short are so worth it, we will never lose hope. Thank you for your story. God Bless.

[simplyfabalous]

hiya i just want to let everyone to know that you must NEVER give up. I have spinal muscular atrophy type 2 severe intermediate as does my older brother. My parents were told that he was not going to live past the age of 2 and he is now 24 and I am 18.

Doctors always give factual information, not realistic. When listening to their information, take it on board but do not rely on this totally as it will drive you crazy. Make sure you focus on the postives and not on the negatives!

[cherchee1]

what a beautiful boy. so sorry for his illness

[trailfollower]

My nephew Gavin lost his fight on March 27 2008. My birthday. We took him to Disney World and made every moment of his life fantstic. He had the greatest mom, (my sister) that any child could have. We all have our faults and so does she. But in the end no baby could have felt more love in the 184 days he had.

[badboy969]

My little nephew suffers from SMA and he recently had his first birthday on Halloween Day. None of his doctors expected him to live that long. We are constantly praying for him and I hope videos like this will help get the word out about this illness and something can be done to save these innocent children.

[jaymie9000]

he is absolutely gorgous.. xx

[kaerlvin]

WE NEED TO KILL OFF MYOSTATIN TO SAVE THESE CHILDREN!

The mentioned chemical inhibits muscular development, removing it would allow proper skeletal muscle function.

[ohitisjustme]

Do more in the fight against spinal muscular atrophy by signing the petition: petitiontocuresma. com

[ShaylovesCarter]

My son has Sma Type 1 also, he iseight months old and we fight to help find acure everyday. Your son is sobeatiful and I just want you to know that you are ot alone. Contact me if you would like. Our prayersare with your family among many. Love Shaylyn and Carter

[pi8370]

My dear Katy.....what a beautiful and absolutely incredible and marvellous way to love your beautiful angel!!!!!! I will pass this video allover Spain.....All my love always to my Biscones!!!!!!!

SILVIA

[1992peter]

Hello.

My name is Peter John Foster, I'm visually impared, and have several health problems. I'm 16. I am determined to finda cure for ur little son. I'm sad to see children dying from Tay-Sachs, and SMA, and other disorders Linked Genetically. I'm determined to find the cure for him. I'll give my own life to FIND THE CURE IF I HAVE TO. I WILL DO ALL IN MYPOWER. I WILL.

[adhira77]

I never knew this condition existed either. Your son touched my heart in a way I can't even begin to express. I will pass this on to others in hopes that they too will contribute to the organization that will find a cure for your little miracle. You are in my thoughts and prayers.

[kf12bono]

I had no idea this disorder existed. I have a 15mo old son and this information strikes me at my core. Your son is beautiful and amazing. I will donate to your cause and encourage as many others to do so as well. I can not beleive, after visiting the fight sma site, that this disorder is not discussed between doctors and potential parents. The stats speak for themselves. I hope a cure is on the horizon for your son.

[mszdiimndx3]

aw=[