CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Hi Lauren: It was so nice meeting you tonite in Kalamazoo. Your talk was very inspiring. You are amazing at how positive you are. Thank you for sharing your story and good luck on your TV job.
LOLOLOL!!! I was watching this at work, and I - like you - love hearing stories from my elderly relatives about what they were like when they were my age, so I was really excited to hear this one =) I was laughing so hard that my co-workers were looking at me like I was a nutcase ^_^
Funny story Lauren! I know you said your uncle told you this happened when he was 26, but around what year? I'm just trying to picture the cops, and the old police car, and the different simpler surroundings, when you can get away with something like that! That is so cool!
Hey Mike! I believe he was around 26 in the 1950's! Isn't it cool to think about the different surroundings at that time! And yes, how they could get away with doing something like that! Hahaha!
So true! So now I can picture those cool 50's cars and a much better place. I swear, I think I was born in the wrong generation! By the way, I agree what you were saying about how important time is. So much so, that my license plate is:
TIMEVALU
It has more to do with investments, but applies to your version of time too!
Hi Steven! I haven't heard about giving "new consent" after 2 years. I've had 27 infusions and I didn't have to do that. I would talk to your doctor. Good luck to you!
You are absolutely right about dementia patients. I have heard pleanty of stories from the ppl I have taken care of in nursing home,and such. It is scary forsure,and my scariest symptom with ms is cognition problems. I was very close to dementia in 07 myself after a horrible flare. I still have some lasting problems from that flare,but with will power I am getting better day by day!!
Hi Aly! I'm so glad 2010 has been wonderful for you! Mine has been great as well! Dementia is definitely a scary disease and I find similarities with my own cognition problems.
I'm so glad you're getting better day by day! I hope you have a great week!
You have done so many video's, they are great. It's all very good info, keep up with the excellent work. It's so good to hear someone so happy & full of life.
I was diagnosed in 1996, since then so much has happened.
I just wanted to say that I hope you know how much these videos means for many of us with MS. I will promote your pages in Norway as well as I can.
I would like to make one in Norwegian and maybe one in English. I haven't found even one vlog in Norway that is about MS and the life around it. There are a few good blogs about it though.
I really wish you all the best for 2010 with all of my heart.
Hey John!! My goodness you are so sweet! I think you should start a vlog in Norway! I'm sure you would do an excellent job! I wish you the very best!!
Dear Lauren. This such a great reminder! My grandparents have passed away now, but they lived into their late 90's.
I wish I had paid more attention. My own parents are in their 80's and in good health (altho I bought them "neuroactive" for Christmas). They laughed.
What a wonderful idea for a new year's resolution. Thanks for sharing Lauren!
It sounds like your Uncle is a blast to be around!
I'm in a similar boat with my grandparents. They are both in their mid 80s and have mild dementia. I always try to record their stories on video, or at least audio. Just hearing their voice adds a whole extra dimension to the words they say. It can be quite tricky though as my Grandma moves with surprising speed to avoid all cameras! :-)
Thank you! Yes, my uncle is awesome! I think it's a great idea to record your grandparents stories.,..they will be priceless! That's cute that your Grandma moves so fast to avoid the camera!!
Hi Andrea! Thank you so much! Oh wow, I bet you've heard some great stories from your husband's grandfather! You're right, a lot of people don't treat the elderly well here. Thank you for your message - I hope you're doing well!
Great story about Uncle Lou - he sounds like quite a character!
I don't suppose you can find some family mafia connections by any chance? Maybe they could apply some 'pressure' in Italy to help get Zamboni practicing again? Just an idea ;-)
Hi Toby! Yes my Uncle Lou is great! Hahaha...there are no mafia connections that I know of! If there were I would definitely have them apply some "pressure" to help us!! Have a great week!
Hi Mody! I know what you mean...remembering things from the past can be very painful. I hope the local herbs help you! Glad you got your 10th Tysabri infusion!
Very good. We've done that with older family too. My Dad passed and with dementia was still able to talk about childhood. If anyone has family with old film or even VHS tapes from videocameras, then try to get it digitized before they are gone. The old film will fall apart and so much lost. Also scan in old photos to digitize and put on DVDs.
My nanny is 93 now, and you are right Lauren, spending time is something that means so much to them. And the great stories you hear from them! What amazing stories and memories they have.
I would give anything to have my grandparents back with me...just to tell them I love them and have them tell me stories! I wish you and your nanny the very best in 2010!
Happy New Year to you too! Thank you for sharing your resolution. I believe that it is important to have something to work on, to work for,, something like allowing the elderly to lean on you for support. This might also help to distract you from what might be hindering you.
On a side note, I didn't notice any shaking from you in this video. I watched it again and watched your hair...never moved a bit. Also, your speech was steady.
Hello!! Yes I completely agree with you! Thank you so much for saying that about me not shaking and me having steady speech...that means a lot to me!!
Great resolution! I am a caretaker of my great grandmother who just turned 100 years old on 12/10/09 and she has vascular dementia. A century old is a lot of stories to get and we plan on video taping her this coming week. (I am actually going to have my children interview her and ask her about her history). I had to put her in an ssisted/nursing facility two years ago, so I get to hear history from others as well. Best yet, is a 101 yr. old man who use to be a professional baseball umpire!
Thank you! Oh my gosh! 100 years old! That's amazing! I think it is absolutely AMAZING that you're going to have your children interview her on camera - that will be priceless!! Assisted living places can be incredibly helpful. I loved talking to the people who lived in my grandmother's place! Oh my gosh, a 101 year old man who used to be a baseball umpire! That's awesome!
happy new year, thats an amazing new years resolution, i enjoyed the story.. My best friend ( a vietnam vetran) in the USA had a stroke 2 years back and he also tells me some great stories from the past even though he has lost his short term memory. i visit him every 6 months and have been looking after him and talking to him everyday through skype for 2 years.. god bless you.. time is the best gift ever and true friendship..
Hi Lauren. I had no idea we had this in common! I know i told you before about me working in psychiatry, but i didn't say my job is as a team leader for mental health services fro older people. Our team was recently nominated for an award in our national dementia awards for innovative care practices. I have worked with dementia patients for 7 years now, and you got it 100% right TIME is the best thing you can give. my resolution is simply to say "yes" more. Stay well, Love your friend Tony xxx
Hi Tony!! Oh my gosh - another similarity! Congratulations to your team with the nomination for the award! Please let me know how everything works out!
You are soooo right about TIME being more important than anything else and I believe that the best thing for us is to spend time with children (I always did that and I loved it!!) and with the elderly, just like you said. You have a wonderful New Year resolution!
I hope that Luigi and your whole family is having a wonderful weekend! Thanks for sharing the story and thank you for the wishes. Happy New Year to you too!
Ciao Angela! Thank you for your comment! I also love spending time with children and the elderly :) I hope that you and Keith are having a wonderful weekend!
You have no idea how this touched me ...The nursing home where i am now for my leg rehab, has so many elderly people of all differnt degrees....Up until yesterday i shared a room witrh a woman who has dementia too...she is a sweet lady who can tell me about her kids births, but cant remember 5 minutes after her husband has left....It breaks my heart and makes me respect our elderly like never before...I SO agree with you Laruen...Time is the BEST gift we can give:).....GOD bless you..ione marie
Oh my gosh - I really appreciate your comment! It's so nice to talk to someone who can completely understand what I'm talking about! I wish the woman you were in a room with, and the rest of the people at the nursing home the very best! I will keep you ALL in my prayers! God Bless You!
Good to see you. Great New Year's Resolution! When I was in radio I thought it would be great to sit down with my Grandparents and record conversations...but, regretfully, I never did.
great video.. havent seen you in awhile.. your new years resolution is wonderful.. spending time with the eldery is sooooooo great.. that is all they really want.. love and time is the best gift.. so great resolution!!-- also you seem a little more shakey than usual, did you recently have a setback ???-- I hope things are going well
Hey!! Thank you! Yes, that is all the elderly want...just you to spend time with them. No I didn't have a setback - I'm due for my next Tysabri infusion on Monday! I hope you are doing well!
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 10 months ago
Hi Lauren: It was so nice meeting you tonite in Kalamazoo. Your talk was very inspiring. You are amazing at how positive you are. Thank you for sharing your story and good luck on your TV job.
barbcoppins 1 year ago
@barbcoppins Thank you so much for writing to me on YouTube! It was so nice meeting you! I hope you're feeling well!
laurenvparrott 1 year ago
LOLOLOL!!! I was watching this at work, and I - like you - love hearing stories from my elderly relatives about what they were like when they were my age, so I was really excited to hear this one =) I was laughing so hard that my co-workers were looking at me like I was a nutcase ^_^
You are so cute! Haha!
BlushingRoses 2 years ago
Hahah that's great!! I love hearing stories from older people! They are priceless! Thanks for writing!
laurenvparrott 2 years ago
Funny story Lauren! I know you said your uncle told you this happened when he was 26, but around what year? I'm just trying to picture the cops, and the old police car, and the different simpler surroundings, when you can get away with something like that! That is so cool!
Mike
mkallion 2 years ago
Hey Mike! I believe he was around 26 in the 1950's! Isn't it cool to think about the different surroundings at that time! And yes, how they could get away with doing something like that! Hahaha!
laurenvparrott 2 years ago
So true! So now I can picture those cool 50's cars and a much better place. I swear, I think I was born in the wrong generation! By the way, I agree what you were saying about how important time is. So much so, that my license plate is:
TIMEVALU
It has more to do with investments, but applies to your version of time too!
Take care Lauren! Always a pleasure
Mike
mkallion 2 years ago
Lauren,
I just had my 24th infusion. My MS Nurse told me I have to give "new consnt" because they say there is more risk of PML after 2 years.
Have you haeard of that risk?
Steven
steven28long 2 years ago
Hi Steven! I haven't heard about giving "new consent" after 2 years. I've had 27 infusions and I didn't have to do that. I would talk to your doctor. Good luck to you!
Lauren :)
laurenvparrott 2 years ago
Hi Lauren!!
So far so good 2010 has been wonderful!!
How about yourself?
You are absolutely right about dementia patients. I have heard pleanty of stories from the ppl I have taken care of in nursing home,and such. It is scary forsure,and my scariest symptom with ms is cognition problems. I was very close to dementia in 07 myself after a horrible flare. I still have some lasting problems from that flare,but with will power I am getting better day by day!!
God bless,
aly
jupiter71 2 years ago
Hi Aly! I'm so glad 2010 has been wonderful for you! Mine has been great as well! Dementia is definitely a scary disease and I find similarities with my own cognition problems.
I'm so glad you're getting better day by day! I hope you have a great week!
God Bless!
Lauren :)
laurenvparrott 2 years ago
Hello Lauren,
You have done so many video's, they are great. It's all very good info, keep up with the excellent work. It's so good to hear someone so happy & full of life.
I was diagnosed in 1996, since then so much has happened.
Please look at a site: ms taking action
I'm helping by adding comments etc,
This may explain me a little.
regards
Mark
MrMarkafisher 2 years ago
Hey Mark! Thank you so much! I looked at MS Taking Action and I thought it was great!! I wish you the best! Please keep in touch!!
Lauren :)
laurenvparrott 2 years ago
Hello I'm 36 hv been on Tysabri 3yrs now, doing well on it. It's just nice to watch someone who can hv M.S and be as upbeat as u are. thx
James
JQ73 2 years ago
Hi James! I'm so glad you're doing well! Thank you for your message! Wishing you the best!
laurenvparrott 2 years ago
Hello again.
I just wanted to say that I hope you know how much these videos means for many of us with MS. I will promote your pages in Norway as well as I can.
I would like to make one in Norwegian and maybe one in English. I haven't found even one vlog in Norway that is about MS and the life around it. There are a few good blogs about it though.
I really wish you all the best for 2010 with all of my heart.
Big hug from Oslo, Norway.
-John-
ChaozFear 2 years ago
Hey John!! My goodness you are so sweet! I think you should start a vlog in Norway! I'm sure you would do an excellent job! I wish you the very best!!
Hugs and kisses!
Lauren :)
laurenvparrott 2 years ago
Dear Lauren. This such a great reminder! My grandparents have passed away now, but they lived into their late 90's.
I wish I had paid more attention. My own parents are in their 80's and in good health (altho I bought them "neuroactive" for Christmas). They laughed.
But have to get the video camera out!
Thanks
Sandy
sandywatts500 2 years ago
Hi Sandy! Thank you for your comment! I think it's great you got your parents "neuroactive"! Haha...that will help them!
I would definitely get the video camera out!
Take care!
Lauren :)
laurenvparrott 2 years ago
What a wonderful idea for a new year's resolution. Thanks for sharing Lauren!
It sounds like your Uncle is a blast to be around!
I'm in a similar boat with my grandparents. They are both in their mid 80s and have mild dementia. I always try to record their stories on video, or at least audio. Just hearing their voice adds a whole extra dimension to the words they say. It can be quite tricky though as my Grandma moves with surprising speed to avoid all cameras! :-)
Take care, God Bless
Scootchinman 2 years ago
Thank you! Yes, my uncle is awesome! I think it's a great idea to record your grandparents stories.,..they will be priceless! That's cute that your Grandma moves so fast to avoid the camera!!
I wish you all the best!
Gid Bless!
laurenvparrott 2 years ago
What a great resolution to make Lauren. My husbands grandfather just turned 90 and we were talking about all the things he has seen in his lifetime.
Amazing when you think about it, so many things we take for granted that he witnessed first hand.
We don't treat the elderly very well here and I use to be in Property Mgmt and saw that first hand, would make me so mad.
My Husband is Siciian so lot's of stories in the family!
This put a smile on my face.
Andrea
MSVlogSupport 2 years ago
Hi Andrea! Thank you so much! Oh wow, I bet you've heard some great stories from your husband's grandfather! You're right, a lot of people don't treat the elderly well here. Thank you for your message - I hope you're doing well!
laurenvparrott 2 years ago
Great story about Uncle Lou - he sounds like quite a character!
I don't suppose you can find some family mafia connections by any chance? Maybe they could apply some 'pressure' in Italy to help get Zamboni practicing again? Just an idea ;-)
Toby x
lovingfatalist 2 years ago
Hi Toby! Yes my Uncle Lou is great! Hahaha...there are no mafia connections that I know of! If there were I would definitely have them apply some "pressure" to help us!! Have a great week!
xoxo
Lauren :)
laurenvparrott 2 years ago
ha ha ha DONT ask about the PAST Lauren :)
I'm so glad to see you today honey :)
I had my 10th infusion of Tysabry last week and I'm trying a new "local herbs" it might work (Alternative Medicine)
P.s. "sometimes past could be painful!!!" :)
Regards
Mody :)
medad1 2 years ago
Hi Mody! I know what you mean...remembering things from the past can be very painful. I hope the local herbs help you! Glad you got your 10th Tysabri infusion!
laurenvparrott 2 years ago
Very good. We've done that with older family too. My Dad passed and with dementia was still able to talk about childhood. If anyone has family with old film or even VHS tapes from videocameras, then try to get it digitized before they are gone. The old film will fall apart and so much lost. Also scan in old photos to digitize and put on DVDs.
MegF142857 2 years ago
You are so right! I'm sorry your Dad passed, I'm sure that was hard. I wish you the very best!
laurenvparrott 2 years ago
My nanny is 93 now, and you are right Lauren, spending time is something that means so much to them. And the great stories you hear from them! What amazing stories and memories they have.
NikiBoBicki 2 years ago
I would give anything to have my grandparents back with me...just to tell them I love them and have them tell me stories! I wish you and your nanny the very best in 2010!
laurenvparrott 2 years ago
Thanks!
NikiBoBicki 2 years ago
"I was in jail" lol!! Good stuff!
I used to love listening to my Nana's stories. RIP Nana :)
You're definitely right, spending time is a blessing no one should ignore and is a great gift to those around us.
Happy New Year Lauren! :)
dmplaura 2 years ago
Hey Laura! Haha I know isn't that hilarious! I agree - giving time is such a great gift to give! I hope you have a great 2010!!
laurenvparrott 2 years ago
Hi Lauren!
Happy New Year to you too! Thank you for sharing your resolution. I believe that it is important to have something to work on, to work for,, something like allowing the elderly to lean on you for support. This might also help to distract you from what might be hindering you.
On a side note, I didn't notice any shaking from you in this video. I watched it again and watched your hair...never moved a bit. Also, your speech was steady.
Take care!
johnstonchantal 2 years ago
Hello!! Yes I completely agree with you! Thank you so much for saying that about me not shaking and me having steady speech...that means a lot to me!!
xoxoxo
laurenvparrott 2 years ago
Great resolution! I am a caretaker of my great grandmother who just turned 100 years old on 12/10/09 and she has vascular dementia. A century old is a lot of stories to get and we plan on video taping her this coming week. (I am actually going to have my children interview her and ask her about her history). I had to put her in an ssisted/nursing facility two years ago, so I get to hear history from others as well. Best yet, is a 101 yr. old man who use to be a professional baseball umpire!
JesswithMS 2 years ago
Thank you! Oh my gosh! 100 years old! That's amazing! I think it is absolutely AMAZING that you're going to have your children interview her on camera - that will be priceless!! Assisted living places can be incredibly helpful. I loved talking to the people who lived in my grandmother's place! Oh my gosh, a 101 year old man who used to be a baseball umpire! That's awesome!
laurenvparrott 2 years ago
happy new year, thats an amazing new years resolution, i enjoyed the story.. My best friend ( a vietnam vetran) in the USA had a stroke 2 years back and he also tells me some great stories from the past even though he has lost his short term memory. i visit him every 6 months and have been looking after him and talking to him everyday through skype for 2 years.. god bless you.. time is the best gift ever and true friendship..
omexmc80 2 years ago
Thank you so much! I think it's so wonderful that you look after your best friend and talk to him every day through Skype! God Bless you both!!
laurenvparrott 2 years ago
Funny story!! Great resolution!
Prissie28 2 years ago
Thank you!
laurenvparrott 2 years ago
Hi Lauren. I had no idea we had this in common! I know i told you before about me working in psychiatry, but i didn't say my job is as a team leader for mental health services fro older people. Our team was recently nominated for an award in our national dementia awards for innovative care practices. I have worked with dementia patients for 7 years now, and you got it 100% right TIME is the best thing you can give. my resolution is simply to say "yes" more. Stay well, Love your friend Tony xxx
tonywilde1234 2 years ago
Hi Tony!! Oh my gosh - another similarity! Congratulations to your team with the nomination for the award! Please let me know how everything works out!
Much love!
Lauren :)
laurenvparrott 2 years ago
Ciao bellissima!
You are soooo right about TIME being more important than anything else and I believe that the best thing for us is to spend time with children (I always did that and I loved it!!) and with the elderly, just like you said. You have a wonderful New Year resolution!
I hope that Luigi and your whole family is having a wonderful weekend! Thanks for sharing the story and thank you for the wishes. Happy New Year to you too!
Un bacio,
Angela
angelusa73 2 years ago
Ciao Angela! Thank you for your comment! I also love spending time with children and the elderly :) I hope that you and Keith are having a wonderful weekend!
Tanti baci!
Lauren :)
laurenvparrott 2 years ago
Great suggestions! Happy New Year to you, Lauren! Ciao and God Bless, Andy.
navymuret 2 years ago
Hi Andy!! Thank you! Ciao and God Bless!
laurenvparrott 2 years ago
You have no idea how this touched me ...The nursing home where i am now for my leg rehab, has so many elderly people of all differnt degrees....Up until yesterday i shared a room witrh a woman who has dementia too...she is a sweet lady who can tell me about her kids births, but cant remember 5 minutes after her husband has left....It breaks my heart and makes me respect our elderly like never before...I SO agree with you Laruen...Time is the BEST gift we can give:).....GOD bless you..ione marie
auntoni51 2 years ago
Oh my gosh - I really appreciate your comment! It's so nice to talk to someone who can completely understand what I'm talking about! I wish the woman you were in a room with, and the rest of the people at the nursing home the very best! I will keep you ALL in my prayers! God Bless You!
laurenvparrott 2 years ago
Hi Lauren!
Good to see you. Great New Year's Resolution! When I was in radio I thought it would be great to sit down with my Grandparents and record conversations...but, regretfully, I never did.
vbeachy 2 years ago
Hey Vern! Thank you so much! I also regret not video taping asking my grandparents questions. At least we have the memories that we can pass down!
laurenvparrott 2 years ago
great video.. havent seen you in awhile.. your new years resolution is wonderful.. spending time with the eldery is sooooooo great.. that is all they really want.. love and time is the best gift.. so great resolution!!-- also you seem a little more shakey than usual, did you recently have a setback ???-- I hope things are going well
MaRiSa22Bunny 2 years ago
Hey!! Thank you! Yes, that is all the elderly want...just you to spend time with them. No I didn't have a setback - I'm due for my next Tysabri infusion on Monday! I hope you are doing well!
laurenvparrott 2 years ago