Is Hate a Strong Enough Word?

[nikistar19]

i think you are amazing...you have made my cry with you....i have both hypermibile EDS and Vascular EDS and early menopause and Raynauds Syndrome and POTS.......and the rarest blood type on earth and i rehect a transfusion!! but can't have any other type....i SO feel for you looking after your daughter ...she is very lucky please know that...i have no-one...i woke hearing screaming today...then realised it was me and i had slept more than 20 mins and gravity had dislocated my knee BLESS YOU XXX

[MsVintageprincess]

at least you are there for her. most important part. you sound like a fantastic mother. and i wish her the best. and you. im so lost. im stuck in this alone. i have nobody. im losing my effin mind. im very happy she is lucky to have you

[TaylorRumsey]

so I was told that I could possibly have Ehlers-Danlos syndrome, but my muscle spasms don't sound nearly as bad as your daughters, and my joints aren't super flexible, but my doctor keeps going back to the muscle spasms and the sprains that seem much to easy to have gotten....

[realnutty01]

Missing you Elfins hun. Hope you are ok. Wanted to wish you a happy new year.

[RobNorthampton]

I feel your pain, Linda. None of us like to see our loved ones suffer. I hope they can find some relief for Chelsea, and by default, you, soon! {Hugs}

[ReineDeLaSeine14]

Hugs to you and Chelly...it's that time of month for me too which means my back is out again and I must miss school. I can't use my wheelchair either as my shoulder's also out of place.

Tell Chelly I hate it too.

[ticklebear4U]

DEAR ELFIN. pills are crap, as far as i'm concerned, from my own experience. they don't quite do what they're supposed to do, & cause other problems, to boot! as for your title, i'd say HATE is an understatement. no one likes seeing others suffer, even less our own. may there be a solution for your daughter, & soon, even if it comes in a pill...

BIGHUGZ_TICKLEBEAR

[sianny45]

I really hope things have eased up since you posted the video. What a nightmare.. Sending hugs to you both..xx

[Weatherhill1]

Wishing and believing

All The Best for

You & Chelsea.

I hope your weekend is restful and happy .

Peace.

[DarkWaterfall]

I'm so sorry you and your daughter are having such a rough time. I know how difficult it is. There are days I wish I were unconscious so I wouldnt have to deal with the pain. I was out with my mom yesterday and she was having a hard time seeing me in such pain. I can't stand for more than a min or so. Hope your daughter gets some sort of relief. HUGS.

[Elfins]

Bless you, I was reading the comments and my daughter was beside me. She shouted, YES thats exactly how I sometimes want to be, unconscious... Great minds and Edders alike :)

[SANDMANCASTHISSPELL]

Mama Elfins, I am so very sorry for your pain and daughters. My mother was feeling how you felt a few days ago. She kept saying over and over why, why is this happening to you. She was desperate. Today I can walk and my heart aches when I have no alternative to call her to help me because I cant help myself or my son. Mamas are our angels. I just wish you all didnt have to bea our cross. We could not make it witout your love as mothers. Thank you Elfins for being our heros in life

sandman

[Elfins]

Thank you for your beautiful comment. I know its so hard on you young ones suffering as you do yet in many ways, us mothers suffer along side you.

[maximotion]

What pain meds is she taking? Is it that none of them work or are they not wanting to use the heavy ones (morphine-based)? Surely it would be a true act of mercy (for both of you) to knock her out with something for the worst days of the month. My heart goes out to you.

[Elfins]

Sorry for the late reply, its been the week from hell with her eventually going to hospital. They have changed her meds now to help ease the spasms and we are seeing our GP on Tuesday to discuss other meds she is on.

[RoobyJuice]

Ane my heart goes out to you, both of you. I feel for you so much :( xx

[Elfins]

Thanks Rooby, its been a nightmare but thankfully easier now.

[realnutty01]

It is horrible enough to know someone is in pain but to be as you say amother and have to watch your child go through this. I do not understnad why the doctors can not do more to help. it must be so bad for her but just as bad for you. I send you a big hug, (((Elfin)))).

[Elfins]

Thank you Kim, the hug is greatly needed