I have Wegener's and its been a year. I know I'm not the only one. I'm currently taking infusions, and the name of the medication is rituximub. I am taking these infusions to switch my medication from cyclophosphomide. I know the struggle and it's far from easy. I pray that our story gets heard and people understand the severity of vasculitus.
I have Rheumatoid Arthritis & Vasculitus and to look at, I look perfectly well, but inside some days I feel like death.. its a very hard disease to live with, if you take time sick from work with a broken leg that's OK, people can see u r ill, but not here, people think ur taking the piss, but nothing could be further from the truth.
@deergolem1 uhm... i don't think thats what causes it cuz i know poeple who live no where near cars or pollution and they have it.... plus there might be a genetic thing goin in there too, cuz my cousin has lupis i have wegneres and my uncle has MS. a predisposition too the mutation that causes it
my dad got this, we didnt know how sick he was until he was diagnosed, the doctors didnt know what it was at first but now hes back to health and were all happy (:
That was a good video! I have Wegener's Granulomatosis, and you're right! When people see me, they have no idea that I'm sick until I tell them. Message me!
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I have Wegener's and its been a year. I know I'm not the only one. I'm currently taking infusions, and the name of the medication is rituximub. I am taking these infusions to switch my medication from cyclophosphomide. I know the struggle and it's far from easy. I pray that our story gets heard and people understand the severity of vasculitus.
Jhaven504 1 month ago
I have Rheumatoid Arthritis & Vasculitus and to look at, I look perfectly well, but inside some days I feel like death.. its a very hard disease to live with, if you take time sick from work with a broken leg that's OK, people can see u r ill, but not here, people think ur taking the piss, but nothing could be further from the truth.
cassiesmum 5 months ago
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wegener granulomatosis hidden source cars matter pollution matrix composites
deergolem1 11 months ago
@deergolem1 uhm... i don't think thats what causes it cuz i know poeple who live no where near cars or pollution and they have it.... plus there might be a genetic thing goin in there too, cuz my cousin has lupis i have wegneres and my uncle has MS. a predisposition too the mutation that causes it
dorkmeetsnewyork 11 months ago
wegener granulomatosis hidden souce cars matter pollution matrix composites
deergolem1 11 months ago
wegener granulomatois hidden souce cars matter pollution matrix composites
deergolem1 11 months ago
my dad got this, we didnt know how sick he was until he was diagnosed, the doctors didnt know what it was at first but now hes back to health and were all happy (:
Punchinrocksintheeye 1 year ago
@Punchinrocksintheeye may I know where's your location? maybe the doctors there can also help me. please?
flatterkick 1 year ago
Nobody has any idea that I'm sick until I explain how much time I've spent in the hospital. This is a great video!
twoturkey 1 year ago
I was recently diagnosed with p-ANCA vasculitis. Luckily it didn't take THAT long to find out what it was.
chrisandrewable 1 year ago
My Dad has Microscopic Ployangitis, a form of Vasculitis. Together, we will put Jack back in the box. thanks for the video
djkentuckyham 2 years ago
That was a good video! I have Wegener's Granulomatosis, and you're right! When people see me, they have no idea that I'm sick until I tell them. Message me!
ktschr11 2 years ago