I've had M.E. for 6 years now. Eventually, I switched GP's and now have some understanding and help. To even suggest that M.E is in the mind and be cured just by talking is frankly ridiculous.
ME sufferers have a physical condition, the treatment for which has yet to be found. The sooner that message gets over to the public, the sooner ME will be taken seriously. One thing is certain. ME sufferers do not imagine their pain and we are not psychologically inadequate.
I had ME. I did LP. I went from 4 years of not being able to even manage a full week at school to NOW being full time in university, and a part time job, and playing Roller Derby. It worked for me and other people I know. There is nothing scary about it.
Yes, very good point Greg, the lack of a widely used test for M.E is a big problem. It means that many of those who think they have been cured, may not have had the same illness at all. So comparing treatments is almost pointless.
M.E is very serious, so is cancer, but hey dont some people with cancer "magically " cure themselves with their minds! our minds are so powerful....LP taught me how to work with my mind and body to get better after 12 years of it. an di really did have M.E. yes we learn to say "doing M.E" because that implys to the body that it has another choice ( and theres ALWAYS choice!)£560 was cheap for a cure
it didnt kill me to do LP greg, i know you love and care for her but you might actually be loving her to death...what would it be like if she tried it....and she got better? i am not 100% cured but i would say 95% and that sa massive differnce from being bed and house bound and aching like a trooper and hardly being able to eat. there was a time i could even swallow.had carers the lot. i think LP people can come to the house in severe cases!
it sisnt kill me to do M.E greg! it brought me back to life. i know that you care and love her but you might actually be helping her to death!?! your ideas and thinking might not be helping her ( no judgement) at the end of the day if LP worked how amazing would that be and what would you both do with your lives if she got better? think on it.
xmrv has been linked to the nervous system and also when your cortisol levels are high ( the stress hormone) then M.E flares up. the lightning process help the patient to lower their stress/anxiety. i could understand how its helped cure my M.E! now with the new research it shows why lp works. i still have a low level M.E and i feel it here and there. but now that i am out of the illness-anxiety about being ill catch 22. greg theres no jumping around on a mat and it wouldnt kill her if she did.
"We prefer to campaign and raise funds for research into the real physical cause of this illness, rather than giving false hope about unproven cures to desperate and vulnerable people."
Dr CHARLES SHEPHERD,Honorary medical adviser,ME Association, writing about the Lightning Process in the daily mail Nov 2008
It's very sad that you see Lightning Process as a very bad thing. It has helped many thousand of people suffering with ME, chs osv. But you aren't ready for it. It seems like you don't want your wife to be healthy.
@simonjoverton your body does get physically better, after the 2 day of training with LP my muscells relaxed and the aches went after 12 yrs! it was like my mind cleared and the foggy toxic feeling went too. i was so happy about it. put on weight and everything in just a few months after. now i can do pretty much anything.
I think this is a branch of a treatment modality that came to America with Meir Schnieder, a man who was helpful to me when I was coming down with ME. The first thing he told me was to stop exercising so much--it was making me worse. He began the massage with ice cubes, very gently, on my swollen and bruised lumbar area. This may help Guillian-Barre, she described Myalgic Encephalomyelitis in Los Angeles in the mid 30's.
Dr. Sandra Guillian, Assistant Surgeon General of the US in the mid-30's.
i am 100% cured of ME after doing the lightning process. i think it is a greatly miss understood training. your friend wont know if it works for her until she tries it. what woud it be like for her if it worked. i mean it might work!
Hey Greg, just came across your video because of the recent surge in publicity of the lightning process following the sad death of lynne gilderdale. I did a video about my experience of the lightning process and a year on i am still none the wiser about it really, i dont know whether its good or bad or what to believe! i would appreciate it if you would have a look at my video :) x
From what I've heard of The Lightning Process Trade Mark, it's simply the usage of one of the conversations of Transactional Analysis - i.e. Parental to Child. The neuro-linguistic hot rebooting of the software claptrap is all delusion, and isn't necessary to explain it's effectiveness in physically healthy people.
It's positively dangerous for people with ME.
However thanks to the Wesselyians "Operational Definition" and Trudie Chalder's psychometry, any quack can make any claim with impunity.
hey i had ME and i am cured now after LP, there is so much misunderstanding about what LP is and i woud sugest that everyone with ME try it. it could work for so many. i thought it might be a scam till i tried it.
A story in Private Eye said Phil Parker is so worried about people saying negative things about LP he has even gone as far as threatening people with legal action if they write anything negative about it! I really feel for desperate people who are conned out of their money by unproven, unscientific 'treatments' like LP. We need to get rid of this CFS label and see good quality criteria used in diagnosis, so people who are tired-all-of-the-time are not given the label of ME!
I wrote to the National ME Centre after the piece in the Mail about Rantzen's daughter being cured by it - they told me they didn't think it was efficacious.
I also asked about Findley doing trials on it (which they confirmed).
Has there been any paper as the result of his trails? Apparently he was only using it for private patients..
It all plays in to the positive thinking industry as a whole - this is largely based on blaming patients for being ill.
Super as ever Greg, well done. You're the first person to stand up on camera - to the 'LP' lobby, and as always you speak with intelligence and eloquence.
Thank you for defending people who cannot defend themselves.
AHHHH..It's insane to suggest this for a TRUE biological illness. It's dangerous and Ignorant. I don't BELIEVE I am ill. I am ill whether I want to believe it. I have tried to deny it.
If the lightning process can cure M.E...then you should be able to make yourself TALLER with the Lightning process or change your brown eyes blue.
I am not tired...I am ill. I am tired of being ill. I am tired of the label CFS..pffffttt
We are hero's, fighting in the front lines.FOR TRUTH.
All these different treatments/therapies, theorys as to what causes this illness, putting a collection of different illnesses including M.E. under an umbrella term of CFS. It makes this illness so difficult to cope with, and thats on top of coping with the horrible physical effects of M.E.
That horrible CFS name is what has been killing us for over twenty years. When I got sick in 91, the term was CFIDS, Chronic Fatigue IMMUNE DYSFUNCTION Syndrome. And now, they refuse to use that term at all and only use CFS here.
That trivializing name is why too many people are misdiagnosed with it or claim to have it when they don't.
I've had M.E. for 6 years now. Eventually, I switched GP's and now have some understanding and help. To even suggest that M.E is in the mind and be cured just by talking is frankly ridiculous.
ME sufferers have a physical condition, the treatment for which has yet to be found. The sooner that message gets over to the public, the sooner ME will be taken seriously. One thing is certain. ME sufferers do not imagine their pain and we are not psychologically inadequate.
sevenstringbassist 1 month ago
I had ME. I did LP. I went from 4 years of not being able to even manage a full week at school to NOW being full time in university, and a part time job, and playing Roller Derby. It worked for me and other people I know. There is nothing scary about it.
CoraRora 5 months ago
Yes, very good point Greg, the lack of a widely used test for M.E is a big problem. It means that many of those who think they have been cured, may not have had the same illness at all. So comparing treatments is almost pointless.
orwellreturning 11 months ago
M.E is very serious, so is cancer, but hey dont some people with cancer "magically " cure themselves with their minds! our minds are so powerful....LP taught me how to work with my mind and body to get better after 12 years of it. an di really did have M.E. yes we learn to say "doing M.E" because that implys to the body that it has another choice ( and theres ALWAYS choice!)£560 was cheap for a cure
PrincessMoonFeathers 1 year ago
it didnt kill me to do LP greg, i know you love and care for her but you might actually be loving her to death...what would it be like if she tried it....and she got better? i am not 100% cured but i would say 95% and that sa massive differnce from being bed and house bound and aching like a trooper and hardly being able to eat. there was a time i could even swallow.had carers the lot. i think LP people can come to the house in severe cases!
PrincessMoonFeathers 1 year ago
it sisnt kill me to do M.E greg! it brought me back to life. i know that you care and love her but you might actually be helping her to death!?! your ideas and thinking might not be helping her ( no judgement) at the end of the day if LP worked how amazing would that be and what would you both do with your lives if she got better? think on it.
PrincessMoonFeathers 1 year ago
xmrv has been linked to the nervous system and also when your cortisol levels are high ( the stress hormone) then M.E flares up. the lightning process help the patient to lower their stress/anxiety. i could understand how its helped cure my M.E! now with the new research it shows why lp works. i still have a low level M.E and i feel it here and there. but now that i am out of the illness-anxiety about being ill catch 22. greg theres no jumping around on a mat and it wouldnt kill her if she did.
PrincessMoonFeathers 1 year ago
This has been flagged as spam show
I have ME, and I have tried Lightning Prosess. One month ago the only thing i did was to sleep, now I live my life again!
Paramoreinmyheart 1 year ago
I have ME, and I have tried Lightning Prosess. One month ago the only thing i did was to sleep, now I live my life again!
Paramoreinmyheart 1 year ago
This has been flagged as spam show
"We prefer to campaign and raise funds for research into the real physical cause of this illness, rather than giving false hope about unproven cures to desperate and vulnerable people."
Dr CHARLES SHEPHERD,Honorary medical adviser,ME Association, writing about the Lightning Process in the daily mail Nov 2008
Bluebottle83 1 year ago
It's very sad that you see Lightning Process as a very bad thing. It has helped many thousand of people suffering with ME, chs osv. But you aren't ready for it. It seems like you don't want your wife to be healthy.
navlerysk 1 year ago 2
the lightning process would be a bad idea I think. Very bad. Thinking you are better is different to being physically better.
simonjoverton 1 year ago
@simonjoverton your body does get physically better, after the 2 day of training with LP my muscells relaxed and the aches went after 12 yrs! it was like my mind cleared and the foggy toxic feeling went too. i was so happy about it. put on weight and everything in just a few months after. now i can do pretty much anything.
PrincessMoonFeathers 1 year ago
I think this is a branch of a treatment modality that came to America with Meir Schnieder, a man who was helpful to me when I was coming down with ME. The first thing he told me was to stop exercising so much--it was making me worse. He began the massage with ice cubes, very gently, on my swollen and bruised lumbar area. This may help Guillian-Barre, she described Myalgic Encephalomyelitis in Los Angeles in the mid 30's.
Dr. Sandra Guillian, Assistant Surgeon General of the US in the mid-30's.
Ghostbead 1 year ago
i am 100% cured of ME after doing the lightning process. i think it is a greatly miss understood training. your friend wont know if it works for her until she tries it. what woud it be like for her if it worked. i mean it might work!
OhSleeperAwake 2 years ago
Hey Greg, just came across your video because of the recent surge in publicity of the lightning process following the sad death of lynne gilderdale. I did a video about my experience of the lightning process and a year on i am still none the wiser about it really, i dont know whether its good or bad or what to believe! i would appreciate it if you would have a look at my video :) x
katty1234 2 years ago
From what I've heard of The Lightning Process Trade Mark, it's simply the usage of one of the conversations of Transactional Analysis - i.e. Parental to Child. The neuro-linguistic hot rebooting of the software claptrap is all delusion, and isn't necessary to explain it's effectiveness in physically healthy people.
It's positively dangerous for people with ME.
However thanks to the Wesselyians "Operational Definition" and Trudie Chalder's psychometry, any quack can make any claim with impunity.
ShowalterdontlikeME 2 years ago
hey i had ME and i am cured now after LP, there is so much misunderstanding about what LP is and i woud sugest that everyone with ME try it. it could work for so many. i thought it might be a scam till i tried it.
OhSleeperAwake 2 years ago
A story in Private Eye said Phil Parker is so worried about people saying negative things about LP he has even gone as far as threatening people with legal action if they write anything negative about it! I really feel for desperate people who are conned out of their money by unproven, unscientific 'treatments' like LP. We need to get rid of this CFS label and see good quality criteria used in diagnosis, so people who are tired-all-of-the-time are not given the label of ME!
kaazoom 2 years ago
Amen to that!
I wrote to the National ME Centre after the piece in the Mail about Rantzen's daughter being cured by it - they told me they didn't think it was efficacious.
I also asked about Findley doing trials on it (which they confirmed).
Has there been any paper as the result of his trails? Apparently he was only using it for private patients..
It all plays in to the positive thinking industry as a whole - this is largely based on blaming patients for being ill.
It is utter bollocks.
deadgirldreaming 2 years ago 3
Super as ever Greg, well done. You're the first person to stand up on camera - to the 'LP' lobby, and as always you speak with intelligence and eloquence.
Thank you for defending people who cannot defend themselves.
luminescentfeeling 2 years ago 3
@justter and we will get it..
!
karmakomodia 2 years ago 2
AHHHH..It's insane to suggest this for a TRUE biological illness. It's dangerous and Ignorant. I don't BELIEVE I am ill. I am ill whether I want to believe it. I have tried to deny it.
If the lightning process can cure M.E...then you should be able to make yourself TALLER with the Lightning process or change your brown eyes blue.
I am not tired...I am ill. I am tired of being ill. I am tired of the label CFS..pffffttt
We are hero's, fighting in the front lines.FOR TRUTH.
karmakomodia 2 years ago 3
All these different treatments/therapies, theorys as to what causes this illness, putting a collection of different illnesses including M.E. under an umbrella term of CFS. It makes this illness so difficult to cope with, and thats on top of coping with the horrible physical effects of M.E.
Dawny789 2 years ago 2
I don't "DO" ME. I "DO" kick Phil Parker's b*tt- hehehe:P
neelubird 2 years ago 2
That horrible CFS name is what has been killing us for over twenty years. When I got sick in 91, the term was CFIDS, Chronic Fatigue IMMUNE DYSFUNCTION Syndrome. And now, they refuse to use that term at all and only use CFS here.
That trivializing name is why too many people are misdiagnosed with it or claim to have it when they don't.
I'm hoping XMRV will change all that.
Carrigon 2 years ago 3