Remicade works amazingly... but starts to stop working (with me at least) 2 and a half years thru it. I switched to Humira and after a year and a half it too is starting not to work. Its time to try something new. Stay strong people. and support the CCFA.
I give myself Humira shots every two weeks due to Crohns. Best place to give the shot is in the stomach area off to the side near the belly button. The shot is not painful. The leg area hurts more.
I used Remicade for years before switching over to Humira for treatment of my Crohn's Disease which I have had for 18 years. I have since been taking Humira since 2008 and I feel a lot better. I HATE taking the shots (every 2 weeks) because of the pain associated with the needle entering and pumping medication in. What I HAVE found to work is NUMBING the area with ICE in a plastic freezer bag for about 30mins to 1 hour BEFORE injection. This may help you and it will DEFINITELY alleviate Pain!
I used Remicade successfully for about 6months until I had a reaction against it. I have now been on Humira for over 18 months and I am in better health now than for more than 6 years. And it is NOT painful to administer. I self inject 40mg fortnightly using a syringe not the pen type. I take it out of the fridge before having a bath as I find that allowing it to warm up a little it, does not sting.
I am wondering if anyone used Humira before Remicade? My Dr had me use Humira 1st and it didn't work for me. Now that I used it, Remicade may not work either and then I would need surgery. I would like to hear form anyone else who used Humira 1st???
No, Humira is usually second to Remicade as it's creation was due to the fact that some people develop antibodies toward Remicade. Humira is absent of the mouse component that would create that reaction. I took Humira and it made things worse, prompting an outbreak of EN on my legs. Luckily that's under control and healing right now. I know you're in canada. I highly recommend smoking mmj. I am currently in remission because of it.
i found remicade may have worked a little better. i used humira on the recommended dose and it wasnt enough so now im on once a week and it is much better in combination with some other Rx. icing the spot helps a lot!!
i took the remicade first but they had to stop it cuz i had a really mad reaction 2 the remicade cuz of the mice cells in it but now i start my humira shot on tuesday for the first time im scared does it hurt? but anyways the remicade was really good do that :) im only 12 but i hade crohns desiese since i was 4 please right back thanks-jen
Just wanted to thanks everyone for thier comments about my Humira video. I wish it had of worked better for me...I know am trying methoraxte by IM once a week, not as painful as the Humira and the once a week doesn't seem as bad compared to some of the pills when you have to take a handful by mouth. I have been thinking about a Crohn's journal online..to express some of my feelings about this as I am sure some where someone feel the same way I do.
They are painful injections. I used to give them to my daughter but she is doing all right on just Imuran now. It is definitely helpful to let the injections sit out for awhile before administering. Too bad I don't have a video of the first time we used the pens. The entire dose squirted out over the room. We were in too much of a hurry. -
My wife is on Humira and it is doing wonders for her Crohns. The injection is very painful for her, but nothing compared to the Crohns. I still haven't found out WHY it hurts so much. If you try it and it does hurt try this: - let the medicine warm to room temperature for 20-30 min - Use an Ice pack on the injection site before and after injecting - If you still have pain, get a perscription for lydicane - a numbing cream
i've been on 6mp for 6 months now and thinking about switching to humira ...after this video i am worried :( but i have heard the pens are worse than the regular needs ...that sound alone :::shudder:::
I have taken all the differnt meds for CD and now take Imuran and Lyrica. I have had prblems with all the meds and am waiting for more test and results, always waiting for an answer. I wish you the best of luck with Humira if you use it! Thanks for your comment!
My daughter used both the pens and the syringes. Once we got used to them, we liked the pens. Both methods are painful. Some people say to inject slowly but she came to prefer to get it fast and over with. Humira helped her symptoms greatly for several months but she does as well on just Imuran now.
good luck to your daughter on the imuran! i have been on the sister drug 6mp for a year now and am in remission! i am still having problems (they now think i have ibs, too UGH) but after my last scope the ulcers are gone and the strictures have opened back up. best wishes for the new year :)
Thanks. Good luck to you, too. She has fistula surgery again in January -- about the fifth or sixth time. The Humira was supposed to help with preventing fistulas but she was not that lucky. I will say, however, that Remicade saved her life -- no response to steroids at that time. She was switched to Humira when the Remicade stopped working. I do think Humira is a good drug. I don't think she needs it anymore, however.
I got my second treatment on march 11, the really crappy part was the my presription was written wrong and I got less then what I needed so this time I had to get 4 injections, and it hurt like hell, i cried and decided not to put them online. My legs bruised really bad as I was tense because I knoew how much it would hurt. I swear if I hear " I don't know how that happened" once more from a DR I may start screaming and never stop. I just want to not spend half my time on the toliet.
I remember when I had to get my first injections (since they have to do 3 the first time). It was terrible. Then the next week, they put the ice on my leg prior, and it still didn't make a bit of difference. :/
dang that looks painful im sorry :~( im on remicade its amazing i responded to it when nothing else worked
im not sure if you doing remicade if the humira doesnt work is a good idea because theyre both basically the same thing
thezob101 2 years ago
Remicade works amazingly... but starts to stop working (with me at least) 2 and a half years thru it. I switched to Humira and after a year and a half it too is starting not to work. Its time to try something new. Stay strong people. and support the CCFA.
checkcheck662 2 years ago
I give myself Humira shots every two weeks due to Crohns. Best place to give the shot is in the stomach area off to the side near the belly button. The shot is not painful. The leg area hurts more.
photobart1 2 years ago
i was crippled before i got on it after i used it week later i could run again...best shot i ever had!
chris2162003 2 years ago
I used Remicade for years before switching over to Humira for treatment of my Crohn's Disease which I have had for 18 years. I have since been taking Humira since 2008 and I feel a lot better. I HATE taking the shots (every 2 weeks) because of the pain associated with the needle entering and pumping medication in. What I HAVE found to work is NUMBING the area with ICE in a plastic freezer bag for about 30mins to 1 hour BEFORE injection. This may help you and it will DEFINITELY alleviate Pain!
enygma077 2 years ago
methotrexate is a pill now, im taking it and humira
anhowert 2 years ago
I'm due to have the Infleximab treatment in 7 weeks. I hope it works. Don't want to have this Injection pen.
therealKINDLE 2 years ago
lol i have been on remicade. my Crohns has become very painfull.
bromagen 2 years ago
Fuck I know how that feels :C
stings good... o well
heres a tipp get angry before you get the shoot, puntch a pilo just once then grab your skin and just inject it! :D
the adrenalin you built up in your body stops 80 % of the pain :D
BW2Ilidian4922POP 2 years ago
I used Remicade successfully for about 6months until I had a reaction against it. I have now been on Humira for over 18 months and I am in better health now than for more than 6 years. And it is NOT painful to administer. I self inject 40mg fortnightly using a syringe not the pen type. I take it out of the fridge before having a bath as I find that allowing it to warm up a little it, does not sting.
andyhebberd 2 years ago
I am wondering if anyone used Humira before Remicade? My Dr had me use Humira 1st and it didn't work for me. Now that I used it, Remicade may not work either and then I would need surgery. I would like to hear form anyone else who used Humira 1st???
Thanks
CDGirl4Ever 2 years ago
No, Humira is usually second to Remicade as it's creation was due to the fact that some people develop antibodies toward Remicade. Humira is absent of the mouse component that would create that reaction. I took Humira and it made things worse, prompting an outbreak of EN on my legs. Luckily that's under control and healing right now. I know you're in canada. I highly recommend smoking mmj. I am currently in remission because of it.
hserokdivad 2 years ago
did u say you are in remission due do mmj? :) im probably going to move to cali after i graduate in may so i can get my Rx.
funkkysegaboy 2 years ago
i found remicade may have worked a little better. i used humira on the recommended dose and it wasnt enough so now im on once a week and it is much better in combination with some other Rx. icing the spot helps a lot!!
funkkysegaboy 2 years ago
i took the remicade first but they had to stop it cuz i had a really mad reaction 2 the remicade cuz of the mice cells in it but now i start my humira shot on tuesday for the first time im scared does it hurt? but anyways the remicade was really good do that :) im only 12 but i hade crohns desiese since i was 4 please right back thanks-jen
hell2theyes411 2 years ago
Wow that looked painful. I am only 11 so i do not know what the shot is for, but i do know they hurt.
DaNoodles54312 2 years ago
i use the pen in my leg but is comes back out
shannonlawrence 2 years ago
Just wanted to thanks everyone for thier comments about my Humira video. I wish it had of worked better for me...I know am trying methoraxte by IM once a week, not as painful as the Humira and the once a week doesn't seem as bad compared to some of the pills when you have to take a handful by mouth. I have been thinking about a Crohn's journal online..to express some of my feelings about this as I am sure some where someone feel the same way I do.
Happy New Year
CDGirl4Ever 3 years ago
They are painful injections. I used to give them to my daughter but she is doing all right on just Imuran now. It is definitely helpful to let the injections sit out for awhile before administering. Too bad I don't have a video of the first time we used the pens. The entire dose squirted out over the room. We were in too much of a hurry. -
MKFaizi 3 years ago
i was injected in the abdomen,it hurts!!
Javi14484 3 years ago
Oh I couldn't do that, stick it in the leg!
nicholaswatts01 3 years ago
10 seconds and the pain goes, I just focus real hard on th TV or something when I hit the button and count to 10!!
Glad its doing such wonders for your Wife, it is with my Crohns too. Closest thing to a cure at the moment.
nicholaswatts01 3 years ago
My wife is on Humira and it is doing wonders for her Crohns. The injection is very painful for her, but nothing compared to the Crohns. I still haven't found out WHY it hurts so much. If you try it and it does hurt try this: - let the medicine warm to room temperature for 20-30 min - Use an Ice pack on the injection site before and after injecting - If you still have pain, get a perscription for lydicane - a numbing cream
My wife's injections are now tollerable.
Good Luck!
strikematch13 3 years ago
What do they have you on Lyrica for?
blakekewl 3 years ago
i've been on 6mp for 6 months now and thinking about switching to humira ...after this video i am worried :( but i have heard the pens are worse than the regular needs ...that sound alone :::shudder:::
good luck, hope you are feeling better!
dustspeck 3 years ago
I have taken all the differnt meds for CD and now take Imuran and Lyrica. I have had prblems with all the meds and am waiting for more test and results, always waiting for an answer. I wish you the best of luck with Humira if you use it! Thanks for your comment!
CDGirl4Ever 3 years ago
My daughter used both the pens and the syringes. Once we got used to them, we liked the pens. Both methods are painful. Some people say to inject slowly but she came to prefer to get it fast and over with. Humira helped her symptoms greatly for several months but she does as well on just Imuran now.
MKFaizi 3 years ago
good luck to your daughter on the imuran! i have been on the sister drug 6mp for a year now and am in remission! i am still having problems (they now think i have ibs, too UGH) but after my last scope the ulcers are gone and the strictures have opened back up. best wishes for the new year :)
dustspeck 3 years ago
Thanks. Good luck to you, too. She has fistula surgery again in January -- about the fifth or sixth time. The Humira was supposed to help with preventing fistulas but she was not that lucky. I will say, however, that Remicade saved her life -- no response to steroids at that time. She was switched to Humira when the Remicade stopped working. I do think Humira is a good drug. I don't think she needs it anymore, however.
MKFaizi 3 years ago
it hurt so bad i had to quit using it and,my doctor yelled and got very angry!!!
taffy992 3 years ago
I got my second treatment on march 11, the really crappy part was the my presription was written wrong and I got less then what I needed so this time I had to get 4 injections, and it hurt like hell, i cried and decided not to put them online. My legs bruised really bad as I was tense because I knoew how much it would hurt. I swear if I hear " I don't know how that happened" once more from a DR I may start screaming and never stop. I just want to not spend half my time on the toliet.
CDGirl4Ever 4 years ago
I remember when I had to get my first injections (since they have to do 3 the first time). It was terrible. Then the next week, they put the ice on my leg prior, and it still didn't make a bit of difference. :/
hserokdivad 4 years ago
I see you use the pen (?), and your leg! Ouch :S
hyperhege 4 years ago
Any advice, info or presonal stories RE: Chorn's Disease are very welcome..Thanks in advance!
CDGirl4Ever 4 years ago