My heart goes out to not only the beautiful children featured in this video, but also to the parents who had to face the heart-breaking news of the diagnosis. My daughter has parcial ACC with septo optic dysplasia, but amazingly has not so far been affected by it. She is nearly four years old, and appears to have a future ahead of her just like any 'normal' child. These kids with disabilities are even more special, and they all look so happy in the photographs.
Thank you so much for creating this beautiful video. Words cannot express my feelings when I saw my daughter Katie's beautiful face appear at 1:15 and those of all the other gorgeous children featured. I started crying at the beginning, right through to the end. What blessings they all are to us. Sadly our darling Katie passed away in June 2010 but her memory lives on in this beautiful tribute to our inspirational kids. What heroes they truly are .. each and every one. Thank you. ♥
am expecting a baby girl in DEC with agenesis of corpus callosum and inferior vermian hypoplasia of cerebellum and i just found out yesterday and she will be well loved and cared for
i am 31 and just found out I had this. i came out healthy so i never had any tests done. as a kid i was always labeled as clumbsy, dumb and tired. as i got older and it's progressed i was seen by a neuro dr. i now have weekly PT and OT. I use a wheelchair for outside my home to get around. i do have have severe seizures. however i have a lovely 9 yr old son, i am able to cook, clean, go out, etc...just have to make adjustments...
My son has this brain disorder . He six year old now he still cannot walk or talk but he is still a very happy little boy. i don't know what is in store for him or me. his father left after he find out that he was special needs. thank u
What a great video! I have ACC. Thanks for making me realize that some people in the world have empathy,love and understanding for those of us with ACC.
I'm really glad you like the video! I love making them and within the next few months might be making a 3rd one of ACC kids. As long as parents keep asking me to do it I will! :)
Great video Lynnea :) I wish I could have sent you a picture of my sweet little Katie, but my computer wouldn't cooperate with me :( All the children were so beautiful, and I'm sure it's just not on the outside but also on the inside. Our children do not realize how much of a huge blessing they are in our lives. I try to tell my daughter everyday that I am blessed to have her.
wow Lynnea, what a beautiful video... when I saw my daughter at 1:27 I started crying and continued crying to the end. I am very greatful to you for allowing my little girl to be a part of this wonderful video. Each and every child in this video is an inspiration to me, God Bless you all my lovely ACCers :) Araceli, Bries mom with Complete Agenesis of the Corpus Callosum.
My heart goes out to not only the beautiful children featured in this video, but also to the parents who had to face the heart-breaking news of the diagnosis. My daughter has parcial ACC with septo optic dysplasia, but amazingly has not so far been affected by it. She is nearly four years old, and appears to have a future ahead of her just like any 'normal' child. These kids with disabilities are even more special, and they all look so happy in the photographs.
Thankyou for raising awareness.
almostcompletelysane 6 months ago
Thank you so much for creating this beautiful video. Words cannot express my feelings when I saw my daughter Katie's beautiful face appear at 1:15 and those of all the other gorgeous children featured. I started crying at the beginning, right through to the end. What blessings they all are to us. Sadly our darling Katie passed away in June 2010 but her memory lives on in this beautiful tribute to our inspirational kids. What heroes they truly are .. each and every one. Thank you. ♥
SunshineRoses6 8 months ago
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iloveyourbackpack 9 months ago
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iloveyourbackpack 9 months ago
Agenesis Corpus Collosum awareness (please copy and past onto any video you see fit, we must spread the word!
DieselProductions11 1 year ago
Who the FUCK disliked this video?
DieselProductions11 1 year ago
i have only partial agenesis of the corpus callosum.
tigercubgurlie 1 year ago
am expecting a baby girl in DEC with agenesis of corpus callosum and inferior vermian hypoplasia of cerebellum and i just found out yesterday and she will be well loved and cared for
toriandjen1 1 year ago
i am 31 and just found out I had this. i came out healthy so i never had any tests done. as a kid i was always labeled as clumbsy, dumb and tired. as i got older and it's progressed i was seen by a neuro dr. i now have weekly PT and OT. I use a wheelchair for outside my home to get around. i do have have severe seizures. however i have a lovely 9 yr old son, i am able to cook, clean, go out, etc...just have to make adjustments...
momintex09 1 year ago
@momintex09 It happens alot like that, a cat scan is done because of a head injury or something and its discovered.
llaroo87 1 year ago
My son has this brain disorder . He six year old now he still cannot walk or talk but he is still a very happy little boy. i don't know what is in store for him or me. his father left after he find out that he was special needs. thank u
acrescenzo85 1 year ago
What a great video! I have ACC. Thanks for making me realize that some people in the world have empathy,love and understanding for those of us with ACC.
Albertan1956 2 years ago
Great video! I'm the father of a 4 year old with ACC and love to see kids doing so well.
starrdna 2 years ago
I'm really glad you like the video! I love making them and within the next few months might be making a 3rd one of ACC kids. As long as parents keep asking me to do it I will! :)
lynny1206 2 years ago
My baby girl is at 1:52!! Video is GREAT!
heartmommyinpa 2 years ago
Great video Lynnea :) I wish I could have sent you a picture of my sweet little Katie, but my computer wouldn't cooperate with me :( All the children were so beautiful, and I'm sure it's just not on the outside but also on the inside. Our children do not realize how much of a huge blessing they are in our lives. I try to tell my daughter everyday that I am blessed to have her.
katiekate3104 2 years ago
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Afiunesilvia74 2 years ago
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Afiunesilvia74 2 years ago
wow Lynnea, what a beautiful video... when I saw my daughter at 1:27 I started crying and continued crying to the end. I am very greatful to you for allowing my little girl to be a part of this wonderful video. Each and every child in this video is an inspiration to me, God Bless you all my lovely ACCers :) Araceli, Bries mom with Complete Agenesis of the Corpus Callosum.
UFAkefe100 2 years ago
Great job! I love all the vids. keep up the encouraging work!
danclintongarnett 2 years ago
Joel David @ 0.36 our precious boy, thank you for making this video, the kids are all adorable and such an inspiration
911emd 2 years ago
My son Jake is at 2:31 :)
Beautiful! <3
Thank You Lynny! God Bless You!
lisabelle74 2 years ago
My cutie pie is @ 2:49 in this video! Great job! Awesome song choice! Thanks for including us! ♥
rossit269 2 years ago