make all the videos in the world it wont help you i have sma type 3 the big boyz have the cure put wont give it yet thay need to make 3 or 4 billion its the same thin with aids thay have the cure for that when thay make the money you will get it i tell the truth
I'm so glad of finding so many people who care. If you want to help and have Facebook account you can search for SMA, there are many organizations, foundations and support groups handled by parents who have lost children to SMA or that are fighting to extend the life of their little ones. There are many opportunities to raise funds thru voting in contests like Pepsi which would mean $250k (a year of research), petitions, etc. SMA is the illness closest to be cured in 5 years, but help is needed
SMA is the #1 killer of children under age 2.One in 6000 babies is born with SMA.This happens as a result of both parents carrying the gene that causes it, every pregnancy means 25% chance of having a SMA baby.1 in 40 people carry this gene without knowing, (there is testing available)There is no cure and no treatment, but there is hope, since scientists say SMA is the #1 disease to be cured in less than 5 years if counting with support and proper funding
such a devasting condition with such a massive feeling of uncertainty and helplesness for the parents and carers.
i have lost 2 sons wwith type 1 Jake in nov 2006 age 7 1/2 months and Toby 2 weeks ago aged 11 1/2 months, it would have been his 1st birthday tomorrow, the goal in which i prayed he reach.
I'm so sorry to hear of your loss! I could not even imagine! I have twin sons with SMA type 3, they have been in power chair since they were six and are almost 20 in there second year of college!
I am so sorry for your loss. Every parent's loss is a Heaven's gain, I'm sure you will get to hold them again. You are invited to join the fight in Facebook, there are so many organizations and foundations raising money and awareness, there is the hope for a cure in less than 5 years if support and proper funding is added, right now SMA is competing for $250k from Pepsi contest you can check it on Facebook and vote daily and there are several petitions online for government support
Spinal Muscular Atrophy there are three typs of it i have type three and number one is there worst one i wish thay would get there ass to work and fine a cure life is so shit when you r like this and no girl in the world would go out with you thats it really bye now
I apologize for not responding. I thought I had, but apparently something happened where it wasn't posted. SMA is short for spinal muscular atrophy. Flyfreezzie is correct in the description below. SMA is the leading genetic killer of children under two.
I believe it's a neurodegenerative disorder where the muscles gradually stop working and weaken until they cant breathe and die.. the progressiveness depends on the type
Look at their eyes....you'll see they all have Angel Eyes...old souls. They truly are Angels Among Us, and our lives have been very blessed by knowing them. (Miss You, Miss Morgan Saville!)
These children are gorgeous and truly precious
mylovesofmylife 1 year ago
make all the videos in the world it wont help you i have sma type 3 the big boyz have the cure put wont give it yet thay need to make 3 or 4 billion its the same thin with aids thay have the cure for that when thay make the money you will get it i tell the truth
tex11111 1 year ago
I'm so glad of finding so many people who care. If you want to help and have Facebook account you can search for SMA, there are many organizations, foundations and support groups handled by parents who have lost children to SMA or that are fighting to extend the life of their little ones. There are many opportunities to raise funds thru voting in contests like Pepsi which would mean $250k (a year of research), petitions, etc. SMA is the illness closest to be cured in 5 years, but help is needed
Oceansoul077 2 years ago
is there any study about that? How babys get this SMA? hope sientists can find a cure for it
desarrolloamazonico 3 years ago
SMA is the #1 killer of children under age 2.One in 6000 babies is born with SMA.This happens as a result of both parents carrying the gene that causes it, every pregnancy means 25% chance of having a SMA baby.1 in 40 people carry this gene without knowing, (there is testing available)There is no cure and no treatment, but there is hope, since scientists say SMA is the #1 disease to be cured in less than 5 years if counting with support and proper funding
Oceansoul077 2 years ago
little darlings
sweetpeacegarden 3 years ago
Does any one know If there any chat site's so parants and people with this disabilty can chat among each other.
FYINT 3 years ago
Yes there is FYINT!
CousinSusie 2 years ago
such a devasting condition with such a massive feeling of uncertainty and helplesness for the parents and carers.
i have lost 2 sons wwith type 1 Jake in nov 2006 age 7 1/2 months and Toby 2 weeks ago aged 11 1/2 months, it would have been his 1st birthday tomorrow, the goal in which i prayed he reach.
a beautiful tribute to the sufferers of SMA
kat6878 3 years ago 3
I'm so sorry to hear of your loss! I could not even imagine! I have twin sons with SMA type 3, they have been in power chair since they were six and are almost 20 in there second year of college!
CousinSusie 2 years ago
I am so sorry for your loss. Every parent's loss is a Heaven's gain, I'm sure you will get to hold them again. You are invited to join the fight in Facebook, there are so many organizations and foundations raising money and awareness, there is the hope for a cure in less than 5 years if support and proper funding is added, right now SMA is competing for $250k from Pepsi contest you can check it on Facebook and vote daily and there are several petitions online for government support
Oceansoul077 2 years ago
this is a great video. Myv nephew died from sma almost 5 years ago. he was 8 1/2 months old.
defyingGravity87 3 years ago
to all the parents of these sweet little ones- god bless u all- such beautiful angels-
when my daughter was born they thought she had (sma) last we found out she did,t have that she has prader-willi- god bless all our special children !
squattybody1 3 years ago
My name is Peter John Foster and I'm only 15, but I'm DETERMINED to find a cure for SMA.
I may be severly visually impared and have several health disorders, but THAT WILL NOT STOP ME FROM FINDING A CURE FOR SMA.
I will do WHATEVER I HAVE TO to finda CURE FOR SMA.
I don't care the least if it means giving up my WHOLE ENTIRE LIFE.
I AM COMPLETELY DETERMINED TO FIND A CURE FOR SMA, along with other Genetic disorders such as CF, Tay-Sachs disease, and Huntington's disease.
I WILL
1992peter 3 years ago 7
God Bless you Peter, I have twin sons who will be 20 with SMA! We pray for a cure everyday Buddy!
CousinSusie 2 years ago
Spinal Muscular Atrophy there are three typs of it i have type three and number one is there worst one i wish thay would get there ass to work and fine a cure life is so shit when you r like this and no girl in the world would go out with you thats it really bye now
tex11111 4 years ago 2
The three types are blended together. They are not defined lines. A person can have between type one and two or two and three.
tkgarrot39 4 years ago
I apologize for not responding. I thought I had, but apparently something happened where it wasn't posted. SMA is short for spinal muscular atrophy. Flyfreezzie is correct in the description below. SMA is the leading genetic killer of children under two.
stevemullen 4 years ago
I believe it's a neurodegenerative disorder where the muscles gradually stop working and weaken until they cant breathe and die.. the progressiveness depends on the type
FlyfreeIzzie 4 years ago
wat does SMA do to u????
stardancer95 4 years ago
Look it up hon.
SeaverBFriend 4 years ago
these children are so very special and they have so much love to give and to share. what a wonderful video of angels.
tprice1111 4 years ago 2
Look at their eyes....you'll see they all have Angel Eyes...old souls. They truly are Angels Among Us, and our lives have been very blessed by knowing them. (Miss You, Miss Morgan Saville!)
bigrcracerkid256 4 years ago 2
(Sorry -- don't know who that name is.... this is ErinnesMom)
bigrcracerkid256 4 years ago
God bless them!!! Awsome Video..
tkgarrot39 4 years ago
They are in the most beautiful places of hearts.
toeterboef 4 years ago
Wonderful tape!
Tanja060100 4 years ago
Beautiful Video. Shira and I love watching it and looking at the kids. Brad
Shira2 4 years ago
GREAT ! BRAVO TO THE COURAGE
yashshv 4 years ago
Absolutely beautiful. So many familiar faces, I LOVE it!
lmgrisez 4 years ago
great video. my nephew died from SMA. He was 8 1/2 months old.
defyingGravity87 4 years ago