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  • 11 jaar geleden is onze dochter overleden aan het LQT-syndroom, toen was er nog niet zoveel over bekend als nu!

    ik heb het zelf ook , maar heb nu eeen ICD, voor haar kwam de redding te laat!

  • See youtube.com/watch?v=Bi30HxD5sQ­0 for a Public Service Announcement (PSA) advertising "The Warning Signs" for inherited cardiac rhythm disorders.

  • what is the likely course and out come of this disorder like how long can you live on average

  • @14pandelidisa You can live forever with this disorder, I have it. You could pass out from dizzyness suddenly, but luckily my case is borderline. You can go your whole life and not have any symptoms.

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