i have a child with the same case but my husband left us... i think it was better that i keep my kids than be with a irresponsible man... your story made me stronger and love my kids even more... pls pray for my kid too.. thanx so much!!! god bless you...
Odd I type it in once and awhile, and yet never really expect to see anything. I have a son with Alagilles, and this video is a honest glimpse of what everyday life is with a sick child. Thank You very much for this video. May your son rest in peace.
I remember Gethin and his 2 younger brothers playing at Bathafarn. His lips were so blue at times and he used to lie down on the floor saying 'it's what mum said i should do', yet he would then get up and carry on playing tennis or whatever it was, on the grass by the fountain. A very brave young man x
Lol, this is actually his brother, Bathafarn is his dad!
Ive been 3 years without him and can't imagine what he'd look like, and how I kept my skin so smooth looking.
And I did actually go on my bike after that!
I dont want to dance naked and throw porridge on the floor.
You can look at my videos by clicking my name up there and to the left!
Three years and no Gethin, it'll be more...
inspectorlaw 2 years ago
this is my brother Gethin,and he still is!
R.I.P.
bathafarn 2 years ago
i have a child with the same case but my husband left us... i think it was better that i keep my kids than be with a irresponsible man... your story made me stronger and love my kids even more... pls pray for my kid too.. thanx so much!!! god bless you...
killervoize 2 years ago
Odd I type it in once and awhile, and yet never really expect to see anything. I have a son with Alagilles, and this video is a honest glimpse of what everyday life is with a sick child. Thank You very much for this video. May your son rest in peace.
momoftwo99 2 years ago
I remember Gethin and his 2 younger brothers playing at Bathafarn. His lips were so blue at times and he used to lie down on the floor saying 'it's what mum said i should do', yet he would then get up and carry on playing tennis or whatever it was, on the grass by the fountain. A very brave young man x
ceninpedr2007 3 years ago
r.i.p little man
StephGLB 3 years ago
R.I.P
=] this made me smile.
Seems such an awesome kid.
regards
-andy-
mrandrew89 3 years ago
Gethin you have such a loving family. You left such a lasting memory xxx
Grwpi 3 years ago