Added: 3 years ago
From: nikkiblu78
Views: 6,567
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  • Can someone tell me how does it feels at the beginning, my 6 year old was just diagnose with it , and he was having headaches every day (3 or 4 times) after Diamox he is feeling ok, but some days he is great jus a normal kid and other days he feels terrible(bad headaches and really tired) This is the way IH is?

  • i have it too...and know your pain..dealing with a malfuncioning shunt right now

  • I too have Pseudotumor Cerebri.

    Hope they find a cure soon for this very painful & debilitating disease.

  • Lets hope there is a cure soon.

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