Added: 2 years ago
From: mom2kaylantristn
Views: 16,318
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  • I was wondering if you got any help paying for the hospital stay? I just got diagnosed with MS on Thursday and am looking for as many tips, resources, advice I can get. Everything you talked about in your video is exactly how I have felt, especially double vision. Any help you can give me would be much appreciated!

    Josephkriegler@gmail.com

  • Oh yeah and problems swallowing has been a huge one with me.

  • I've had a lot of these symptoms for the last 7 years, the only diagnosis that I've received is that I had glandular fever, aka mono, I have my first appointment with a neurologist Dec 3rd. I have almost every one of these symptoms especially exhaustion, numbness, uncoordinated... etc...

  • COME SEE US !!! LDN is helping others and its so safe.. type in GOT ENDORPHINS? LDN on facebook.. omg Im so sorry come see us learn more about LDN for MS

  • MS since 2000. Now dr's say Neuromyelitis Optica. Sure wish scientists were willing to share what really causes these diseases instead of helping drug companies with their profits.

  • I've had MS since 2000. Now they think its Neuromyelitis Optica. I attend a teaching hospital and am certainly a "case study". My current Neurologist said "there are no funds for research". So she treats the symptoms. Sure wish there were scientists willing to share what really causes these diseases and not just help the drug companies with their profits.

  • Y MAKE A VIDEO AND PUT UR SELF IN IT UF UR GOING TO SCARE PEOPLE WHO ARE WATCHING WAT THE CAMERA COURT ON TAPE THUMBS UP IF U AGREE

  • So things which look like theya re shaking or vibrating is one of the symptoms then. Interesting, as I seem to be getting that quite a lot.

  • HI I STILL HAVE THE TINGLING IN MY FEET IN AUG IT WILL BE A YEAR SO I'M WONDERING IN A YEAR IF THE TINGLING DONT GO AWAY MAYBE I SHOULD SWITCH IM ON AVONEX NOW NO SIDE EFFECTS FROM IT .

  • HOW ARE YOU DOING TODAY

  • Start Yoga....See the change...Give it a try

  • Hi I am with an neoulagist if that's how you spell it at the moment an have had positive tests with hoffmans and my left foot has no feeling .I get confused and mad all the time when I am trying to say some thing ,I get a lot of pain in my eyes at the back of them at the moment I have back problems disk l5 and l4 are badly damaged and have arthrightis. In my hips and upper chest I am only 27 and have no one to talk to about it as my wife is close to her mam more that me so instead of talking to

  • XMRV XMRV XMRV XMRV

  • you're not alone.

  • i know how u feel and damn it suxs so much

  • Thank you.

  • Thank you.

  • I found out in late 2008. I get the slurred speech really bad . sensitivity to light. joint in the right hand, shoulder pain. blurred vision

  • how old were you when you first started getting symptoms? did they get worse when you were prenant?

  • This was very helpful, I hope you're doing better

  • my whole right leg has gone numb and my muscles are stiff so can you give me some advice (i'm going to the doctor tomorrow)

  • Spasticity is another symptom of MS, definitely consult your physician about it. If you don't already have MS it could be related to a whole host of other issues.

  • Comment removed

  • you weird, weird, weird sad little freak you....don't ever, ever say anything like that...you really really have no idea how sick that comment is.

  • just checking up to see how your doing

  • I was recently diagnosed with MS. My doctor put me on Rebif.. But I can't tell any benefits or anything from it. I was wondering if you have heard anything about it? I also just had a seizure the other day and was omitted, once again. It was my first seizure. They THINK it was related with the MS but are not sure.. Do you know anything about seizures being related? I was diagnosed in Feburary and am already in a wheelchair and can not ever work again. Or drive. And the seizures, I've never had.

  • I've never had a seizure, so I wouldn't be able to answer this with any reasonable amount of knowledge on the subject. There are multiple websites that offer different MS symptoms though and I would definitely look into those. Sorry, I'm not able to help and I hope they slow down - *hugs*

  • @SinisterTragedy you need to google "baba ram dev medication for MS" , you will walk with in 4 months of his meditation and breathing exercise. I also urge you to do Pranic healing which will cost no more than 200 dollars with a healer. One day you'll thank me. I had MS last year, and I no longer have any symptoms of it.

  • @KRSchannel Thank you so much. If you are serious, I will look into this.

  • Hi, I want to thank you for doing this video. I am a PT Student in NYC and found it very informative and helpful. Are you getting any PT? Are you still working at the radio station? Hope you don't mind me asking you some questions.

  • I am not working at the radio station anymore. I was fired 2 days before my first hospital stay in 2006 (supposedly because they thought I was on drugs when in reality I was having my first REAL exacerbation). I am also not currently a PT patient, however I do work in the PT department at a local hospital as a PTtranscriptionist. I have 12 PT's who check on me daily :)

  • wht is ur prognosis?

  • Relapsing Remitting Multiple Sclerosis originally misdiagnosed as a Clinically Isolated Syndrome. officially diagnosed on August 13, 2008

  • Heeey, uhm, I was just wondering what kind of MS you have.

  • I have Relapsing Remitting Multiple Sclerosis.

  • Right on, an excellent list.

  • Thank you :)

  • MS is such a whatever-casserole of symptoms. I'm newly dxed and seem to be mostly optic neuritis (blind in right eye), jerky muscles, brain "duuuuurrr?", stress = body aches and OMG!fatigue. 5 Hour Energy worked for a little bit but not any more.

    --Sarah

  • I totally take 5 hour energy sometimes... but never the full bottle, only half.

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