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this video is amazing.... my cuz has this and i hope they find a cure cuz he deserves the freedom to run and jump and play just like any other kid
ugabutler 1 year ago
screw you youtube... this video is for sick kids with a disease... and all they can think to do is mute the friggin music... go jump off a cliff youtube...
ugabutler 1 year ago
@ugabutler That's ok. I really shouldn't have used another person's music without their permission. The first song in the video was Upside Down by Jack Johnson and the 2nd was You Got A Friend by Carole King. : )
magicpez 1 year ago
i wish when i was diaginoised 41 years ago i did not know of other people who had this. i was made front of, stared at. I couldn't play with other children because parents thought their child would get it.
kellyatjcb1 3 years ago
great job
washingsoap 3 years ago
great job
washingsoap 3 years ago
Great job! I love it, and my syblings are so cute here! I can't help but love this video.
nocookie4you 4 years ago 2
What great people.
hollymarg 4 years ago 2
My band is playing at the nearby walk in Saint Thomas. A 5 year old girl with EB is walking a mile on a track, and we're playing a show after.
Shadow8P 4 years ago 2
Please join us in October for "Walk a Mile in My Shoes" Relay-Rally for National EB Awareness Week, our first national awareness event, crossing the U.S. from New York to California.
Join the Relay at any point, for any distance; attend one of EIGHT Rallies; or participate in other activities and fundraising efforts. This campaign is supported by DebRA of America and EB Medical Research Foundation! Just google the words "epidermolysis" and "relay" and you will find us!
liberty1960 4 years ago 2
My kids were thrilled to seem themselves on here, thanks so much for putting this together, Pezman!
spookyghostxyz 4 years ago 2
great ;)
We are very happy that we are able to help you all ;)
susan0016 4 years ago 2
Chris - Thank you SO much. I thought the video was beautiful!!! We loved it!
pamwoo10 4 years ago 2
Great Job, I love it. I enjoyed seeing my daughter too. The Johnson's
ToshaKat 4 years ago 2
Hey Mr. Pez~
Great job! Made me cry but hey that's the point to tug at your heart's strings! Absolutely loved it! Thank you for taking the time to make it!
XOXO
Simba9960 4 years ago 2
I love it Chris! Great Job! I love the music chosen for it too! Thank you for all that you do for EB Awareness!!! xoxo, The Evans Family
muddbug32 4 years ago 2
Good Job! I am going to make sure everyone watches it!
dzucha1 4 years ago