@JWRIGHT5638 Get it treated, VERY quickly. My son had seizures, not quite as bad as this video, but West Syndrome is ALWAYS serious. There's almost always an underlaying cause. My son has Downs, which can trigger it.
This is heartbreaking.....doctors need to trust more in the parents, we are the ones who are with our children all the time, we know when something just doesn't look right or feel right. How old is she now? Has she found any seizure relief? Do they know what caused her seizured...like Tuberous Sclerosis, a tumor, or some brain abnormality?
Did the doctors ever diagnose this spasm as a seizure? Poor sweetheart. That seems scary. I hope she is okay now :)
gillian927 3 weeks ago
@JWRIGHT5638 Get it treated, VERY quickly. My son had seizures, not quite as bad as this video, but West Syndrome is ALWAYS serious. There's almost always an underlaying cause. My son has Downs, which can trigger it.
jegspillerpiano 1 month ago
poor baby :'(
nikkisanchez25 1 month ago
Hope she gets better My daughter has IS also (((hugs)))
coyote70k 1 month ago
:(
afdanakita 1 month ago
makes me cry, cant watch. Hope all gets better, god bless
DudeLebowski2011 1 month ago
I have a son who has IS too, he started like this but is doing better on Vigabatrin, can you please give an update on this precious angel,
opedza30 2 months ago
How absolutely scary..poor you....the gasping for breath, the absent look in her eyes...hope she gets over these. good luck.
Oakleaf700 2 months ago
poor kid!!
misswilline 2 months ago
Comment removed
dearestkela 2 months ago
This is heartbreaking.....doctors need to trust more in the parents, we are the ones who are with our children all the time, we know when something just doesn't look right or feel right. How old is she now? Has she found any seizure relief? Do they know what caused her seizured...like Tuberous Sclerosis, a tumor, or some brain abnormality?
lawofjude 1 year ago