ME/CFS demo: Health and Human Services WDC May 10, '11

[CFSDemo]

@flashcard1011 -- i am so sorry to here how limited your life has become as a result of this illness. i know many many others in similar situations. we need help from our gov't and the medical community and the compassion of the general public. we deserve it.

[misstree75]

Thank you. I'm from Massachusetts. Been sick for 15 years and unbelieved that I am. It is in my blood.

[HogaresLimpiosSQM]

i'm gonna try to add subtitles into spanish i hope that's ok, i believe our mates here need to see it, love, ho. (if that's ok but it takes ages pardon my brains)

[CFSDemo]

@HogaresLimpiosSQM yes, spanish subtitles would be great. maybe my pal "s" from spain can do it, too?

[mienmiennn]

WELL DONE, many thanks from spain!

[mienmiennn]

WELL DONE, many thanks from spain!

[CFSDemo]

thank you to everyone who is posting and emailing on and off this youtube site. i sure hope others who are able will do their own mini-demo. and for those who are not able, we completely support you and are doing the best we can to fight for the rights of all of us.

please, everyone, send a link to this video to HHS Secretary Sebelius, NIH Director Collins and NAID's Director Fauci.

kathleen.sebelius@hhs.gov, Francis.collins@nih.gov, collinsf@od.nih.gov, afauci@niad.nih.gov

[jocelmeow]

So grateful for y'all doing this on all of our behalf. I'm bedridden, so this particular sort of action is beyond me, but I applaud you for using some of your scant energy to make this happen.

[teetje56]

Thank you all so much!!

[Claggy]

Thank you for doing this!

[ElisabethBry]

So so proud of you all - you have done a great job representing us. Thank you so so much Rivka et all. BTW, Rivka - let me know if you need banners and posters - I want to support being heard!!!! Elisabeth

[CFSDemo]

@ElisabethBry -- yes, elisabeth, we need yr help. contact me at rivka (at) thattakesovaries (dot) org

[PaulBeet]

Thanks for a good job of stating the problem. Since authorities don't care about us personally, people with ME/FMS must make life uncomfortable for authorities For starters, why not state your views on their Facebook if you haven't done so yet ?

[jimijamesh]

Great Job!

[onceawitkin]

excellent, well done!!

[tracyannceecee]

I applaud you brave and strong.

[punkboy2004]

Thank you guys so much.