WE HAVE to get the word out NOW, this is real hope for us and we,in the US have nowhere to go, why's that? ALL medical schools in the US should be teaching these procedures so we don't have to "live" our lives like we do. I've contacted hospitals, newspapers, and schools, all to no avail, unfortunately, and the neuro's are the worst! I even contacted Biogen and got the run around, must be afraid of losing big bucks, although, they say you'll still need DMD's.
Thanks for posting! All us MSer's out here are desperate for any snippet of info on CCSVI we can get. I want to be tested and don't know where to start the ball rolling.
Thank you so much for this update!!!! I have applied for one of their studies and hopefully will hear from them in the next few months! Who would have ever thought we would be hearing such news! Good work!
WE HAVE to get the word out NOW, this is real hope for us and we,in the US have nowhere to go, why's that? ALL medical schools in the US should be teaching these procedures so we don't have to "live" our lives like we do. I've contacted hospitals, newspapers, and schools, all to no avail, unfortunately, and the neuro's are the worst! I even contacted Biogen and got the run around, must be afraid of losing big bucks, although, they say you'll still need DMD's.
bbrfitz 1 year ago
Thanks for posting! All us MSer's out here are desperate for any snippet of info on CCSVI we can get. I want to be tested and don't know where to start the ball rolling.
KatSuergiu 2 years ago
LETS ALL get the word out.
smokeybearsmum 2 years ago
Thank you so much for this update!!!! I have applied for one of their studies and hopefully will hear from them in the next few months! Who would have ever thought we would be hearing such news! Good work!
2muchlivin2do 2 years ago
Good job Judy!
MSVlogSupport 2 years ago
Nice hair! :)
Great work, Judy! Let's spread the word about this!
Have a great day!
Hugs,
Angela
angelusa73 2 years ago