Added: 1 year ago
From: arbalestreri
Views: 868
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  • I am so sorry about your loss. Life can be so tough. You never know what it may bring. I feel with all parents that lost their precious child with HLHS. My son, born with HLHS is 5 now and is doing great. Of course fears still remain, but we need to be strong and as positive as possible. Keep in mind every precious moment you spent with your baby and believe he is now your angel watching over you from the heaven. My prayers are with you.

  • God bless Ryder & your family.

    My nephew was born w/HLHS last week & Dr. Norwood operated on him this week. We are all terrified of course. This is the most difficult thing the family has had to deal with so I understand what you endured.

    It's beautiful to hear that your precious angel gave you joy although he was only on Earth for a short time. May he rest in peace forever.

    It took a lot of courage to post this video, so thanks.

  • Bless his little soul. Love ya ang

  • This made tear so much.I am truly sorry for your loss.He is such an angel.Baby ryder will be in my heart forever.I have son who is 2 1/2 and he also has HLHS so I understand the struggles.God wouldnt give us something we couldnt handle.IDK what the plan is for me in the future with my baby but im enjoying it one day at a time.Its a scary thing but I refuse to let it bring me down.I know you understand.You and your family will forever be in my heart..

  • Hi I am so sorry for your loss my son was born with HPLHS and he is 10 years old and we just found out that he has had a 3rd stroke it is a very hard thing to have a child born with this kind of prob and I hope the best for you and your family .

  • I'm so very sorry for your loss. What a beautiful angel he is. I cannot begin to comprehend the pain you and your family are feeling. My love and prayers go out to you. I'm pregnant and I just discovered my baby has HLHS. I'm scared of course. I pray that I have the courage and strength that you showed in this beautiful tribute. Thank you for sharing this in his loving memory. God bless you

  • @LovelyMoonBeams I also want you to know so many of these babies live. There is a plan for you, God choose you and what you do with that can be life changing. I know you dont know me but if you ever need to talk or have questions..i'm been through it all!!! I'm hoping to some day help many other mom's through this journey. It won't always be easy but it will be worth it. You will be in my thoughts and prayer. <3 Angie

  • @LovelyMoonBeams Lovely--I totally understand the feeling of being pregnant and fearing the unknown...I want you to know that Ryder change my world, these babies are amazing. I am so grateful to have had him in my life, even if it was for only a short time. His lasting impression will stay with me always.

  • Hiram your little baby is so handsome...I'm sure these picture are just a small amount of memories that you hold on to in your heart. God Bless your family! Be strong!!!! His big angel eyes will be looking down on you always and forever!

  • Ryry this vid breaks my heart all over again...but being able to see your growth is so amazing. Watch over mommy and daddy for us all, they are so lucky to have such a beautiful angel looking over them.

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