I have Ankylosing spondylitis. It took well over 10 years and a 1/3 fused spine before I got help. Your story is all to common. thanks for sharing. Im glad you never gave up. We know pain.
Watching this video was like I was telling my story. It took ten years for someone to finally come up with my AS diagnosis as well. The only thing different is that they are still trying to find something to ease my pain. I am hopeful though. But will admit that there are days that I just feel like giving up. I do have a question for anyone who has watched or even responded to this video...do or have any of you had redness/hot feeling in your face since being diagnosed?
@mrhazeyy I haven't experience redness or hot feeling in my face, just lots of inflammation in my jaw. I hope you find relief soon. Until then, keep up the fight.
What a fantastic video :) I have AS and your video explains exactly how i and a lot of us Spondy's have to go through to get a diagnosis. It is just how i felt all those years ago when i was constantly passed off for years as a lost cause & the doctors saying it was all "in my head". I have added this video to my favourites. Lovely work, Well done :)
AS diagnosis..."it was relief". That might be hard to understand for anyone that hasn't endured years of undiagnosed AS. I remember peoples' awkwardness when they learned I had AS and their attempts to console me. I remember, also, their confusion at my apparent happiness because I was so relieved to, at last, know what I was up against. Your video is the best description of a journey to AS diagnosis I have ever seen. I wish you well.
i have AS but AS never have me
jack773 3 weeks ago
I have Ankylosing spondylitis. It took well over 10 years and a 1/3 fused spine before I got help. Your story is all to common. thanks for sharing. Im glad you never gave up. We know pain.
Runfourit 1 month ago
@Runfourit
Pain, guilt, devastation... we know it all too well! I'm happy you found help eventually - wishing you a pain-free future of health and happiness.
ChristinasLife 1 month ago
This is a wonderful video. Thank you so much for sharing. This is one that I can definetely relate to.
SMx04 4 months ago
Thank you I can relate to every thing you say my diagnosis took 23 years.
spondy55 4 months ago
Thank You - VERY moving....been living with AS for over 35 years and thanks to TNF blockers living very well the last ten....Peace be you journey.
mchead13 4 months ago
That was powerful and inspiring. I heard some much of myself. Thank you so much for sharing this. I just have to share it.
DLSNiiganii 4 months ago
Watching this video was like I was telling my story. It took ten years for someone to finally come up with my AS diagnosis as well. The only thing different is that they are still trying to find something to ease my pain. I am hopeful though. But will admit that there are days that I just feel like giving up. I do have a question for anyone who has watched or even responded to this video...do or have any of you had redness/hot feeling in your face since being diagnosed?
mrhazeyy 6 months ago
@mrhazeyy I haven't experience redness or hot feeling in my face, just lots of inflammation in my jaw. I hope you find relief soon. Until then, keep up the fight.
ChristinasLife 6 months ago
Beautiful...thank you. :)
SnowyImpressions 6 months ago
What a fantastic video :) I have AS and your video explains exactly how i and a lot of us Spondy's have to go through to get a diagnosis. It is just how i felt all those years ago when i was constantly passed off for years as a lost cause & the doctors saying it was all "in my head". I have added this video to my favourites. Lovely work, Well done :)
leighxmac74 8 months ago
@leighxmac74 I'm so sorry you suffer from this disease also. I'm happy you've found a diagnosis, and hopeful that you've also found some relief.
Thanks for the encouragement!
Well Wishes!
ChristinasLife 7 months ago
Thanks so much, Brendan.
Well Wishes to You!
ChristinasLife 10 months ago
AS diagnosis..."it was relief". That might be hard to understand for anyone that hasn't endured years of undiagnosed AS. I remember peoples' awkwardness when they learned I had AS and their attempts to console me. I remember, also, their confusion at my apparent happiness because I was so relieved to, at last, know what I was up against. Your video is the best description of a journey to AS diagnosis I have ever seen. I wish you well.
Best Wishes, Brendan.
baconsoda 10 months ago